Friday, July 21, 2017

Public v Private Healthcare in Ireland - the great divide

Galway University Hospital did not get the seal of approval from any of its working consultants there, deemed it dangerous.

wexford thousands are on a waiting list for 6-9yrs to see a consultant

over 150 doctors are upgraded to consultant status, even though they are not qualified to be at this grade.

Ann is in public healthcare and has a story - her story.
its an extraordinary position to be in.
aged 64yrs i have been seriously ill now for most of a decade.
i have a progressive neurodegenerative disease process which is rare, it has no name and yet visible deletions on the mtDNA have been found and alongside this many other issues have been found.
I suffer the following:
CRS (congenital rubella syndrome)
severe/profound hearing loss
Macular degeneration
Crohns disease
Gluten intolerance
Sjogrens Syndrome
Menieres disease
Pes Cavis deformity
Rheumatoid Arthritis
Gall stones
Kidney stones
My guts are failing and on nerve stimulant
I have had one stroke 
(no one told me i had this in 2013, i only discovered i had when looking at hospital notes through FOI)
Ovarian Cyst (no one told me that either)

Comments made through the public health system and its consultants:

"You don't have parkinsons disease, you just want it."  this after a positive DAT scan.
"i am going to do tests and PROVE nothing is wrong with you."
"a movement disorder from some past trauma."  (they mean here a psychological event causing a psycho-physical result, rubbished by a top Irish female neurologist when she heard this comment, thankfully!)

I have had consultant not treating me as inpatient for a week until i was psychiatrically assessed.
a consultant letting me out of hospital after a three hour surgery, major surgery for crohns disease with an infected wound, bursting three days later.
3am this wound burst and a big wad of cotton wool plastered over the gaping wound, 6pm the ambulance came for me!  i was in an old people's home, i was 47!  no one would give me after care in the family setting.
doctors walking out of the consultation room because you ask to go to a discipline recommended in the UK centre of excellence.

now lets look at care, yep.
I have no neurologist.
I have not seen a rheumatologist in over a year and a half, i have had a major flare in that time and had to get my knees aspirated when i drove myself to a hospital so ill that after a week everything 'blew' my knees swelling horribly.
most of my teeth are now gone through decay through gum desease brought on by sjogrens syndrome which was not diagnosed for two years in ireland and only diagnosed when i managed to get out of ireland.
NO neuromuscular tests have ever been done in Ireland.
recommendations for further tests on muscles have been made two years ago to the Irish consultant but nothing has happened.
recommendations for:
ongoing physiotherapy
neuro-physiotherapy and guided program by such.
neuro-physiology work up
intensive work on muscle strengthening, gait and function
Botox advised in the UK not done
Psychologist advised by neurorehabilitation centre in 2009, only recently received - 2017.

wiped off the lists of these disciplines:
gynaecology - even though i have an ovarian cyst and fibroids
ENT - even though i have menieres, chronic mastoiditis, deafness and persistent ear infections
refusal to be sent to an Endocrinologist, advised in 2011 and still not seen by 2016 but went privately to be told thyroid replacement not stable, it has taken over a year to set a replacement dosage that will stabilize the production of hormones.
ill fitting shoes provided for pes cavis, causing toe nails to be ripped off, fall causing fractured rib and also two complete tears to my shoulder muscles, inoperable.
i have troubling symptoms requested to be investigated in Uk getting worse.
i believe its Vascular.  A recent public consultation when finally getting to a top specialist in ENT surgery said the symptoms were not caused by my menieres or mastoiditis.

do i actually have any medical cover right now.
No, i do not.
i have good cover for my crohns and guts.
That is it.
Nothing else, no neurologist, no tests, no support, no therapies, no oversight, no speicalist nurse.  Nada.

Now, if i was in the Private system.
All would be dealt with speedily, i would never be waiting over two and a half years for a surgeon to investigate troubling head disturbances.
there is a great divide here in Ireland between public health care and private.
those in the Private system would barely know what is happening in the Public.
those in the Public system know it to be frightening and dangerous.
its a scary place to be and a scary country to be sick in.
we now have the worst healthcare system in Europe.
there is nothing we can do about it on a personal level.
It does not stop me telling my readers how awful it is, how terrifying it is, to know that at anytime sloppy medicine can kill me off in a second in this country.
I can even have a registrar stick a steriod into my head under the skin in A'E, a registrar who had no patients allocated to him so new he was to the hospital.  this injection caused a blood clot.
Had he or my primary consultant (now lost) not been aware that my clotting rate is double that of the normal cohort.
well if they did, they ignored it.
I think they didnt bother to read my notes.
amen to that.
i say.

Tuesday, July 18, 2017

Sick in IRELAND - Sick of being Sick in Ireland

it is very difficult being sick in Ireland today.
just before i became unwell - from
 this and its very stressful, barely able to live, our life is consumed with the lack of any real medical care to speak of

Once upon a time, before i was unwell i used to go to the GP for normal small illnesses that everyone gets.  No issues.  None at all.  they got dealt with and everyone was happy.  conversations were good, some really funny and some embarrassing.
But you spoke to your doctor.  You asked private questions, you talked about your ups and downs and you may have got a cream or a pill for a few days or some general bloods.

the experience was never painful.

now the experience is hell.  Today i have multiple medical issues.
the most difficult doctor encounters are with the consultants in the Public sector of our healthcare system.
i am terrified now of going to any.  i have been very abused verbally.  I have had men walk out of the room, just pick up my files and walk.

despite now being in a wheelchair for most of these consultations i find them very intimidating.
You would think as you became sicker that doctors would become kinder and more emphatic and sympathetic, but nothing could be further from the truth.

they dont want to know.
they will even go so far as saying they will do more tests to 'prove' nothing is wrong with you.
they can shout at you 'you don't have parkinsons disease you just want it'  that despite a report citing i had the early stages of it.
rudeness is dreadful.
a single lady going alone into a room with no support from these male attacks to me is wrong.
they should not happen.

i can from time to time use private health insurance.
NEVER have i been so accosted as i have been in the public system.
there is a vast difference in medical attention, their ability to switch from being wonderful when paid to being nightmarish when i do not give them money but the state does.  that is a big difference in their eyes.
i hate it.
its abuse of power.  its an extreme form of dominance over women, vulnerable women and its torturous.
Not all are like this, but very few are actually that kind, i do have two that are the rest are a ghastly ordeal.

doctors also refuse to write recommendations here in Ireland, simply refuse to advocate for their patients in the public system.  they claim the HSE will not take a blind bit of notice so they don't bother.
they will not advocate for a better wheelchair.
they will not advocate for physio, for more tests or for better support in the home.
they do the bare minimum and quality of life isnt part of their remit.

a rheumatologist who can see on a scan that you have nerve entrapment, kyphosis and oestopena and a fractured rib will not advocate for a more comfortable wheelchair here.
he also knows i suffer from chronic pain and dystonia and posturing and am an older person.
he walked out of the room when i asked to be referred to a specialist recommended by UK consultants.

another sacked me.
After admitting he should have done something about the reports coming back from the UK.

we now turn our hands on how patients and clients living in the community deal with the main healthcare provider, the HSE.

seen tonight was a letter that an OT in the community claims that any recommendations by a consultant cuts no ice with a HSE assessment.
can you beat that?
i would have thought that a consultant is the top of the food chain.
this OT gave a lousy assessment.  a wheelchair assessment without a wheelchair or wedges or wheelchair specific questioning is not a wheelchair assessment.
if she doesnt give a damn what a consultant says about a woman needing a better wheelchair, why would she if she herself doesnt understand the meaning of a better wheelchair.
end of professionalism straight away.

if the HSE do not take advise from Irish consultants, where do they get expert medical advise so?
good question this one.
i have been told by HSE that i cannot give in medical reports from doctors as they have known them to be forged.  LOVERLY i say.
i am a crook now and a piece of shit according to the doctors caring for the poor here.

we now have a situation where two women aged 64 with a progressive neurodegenerative disorder do not live as most would understand it.
we live daily in terror, if we have a consultant appointment we are fearful of what we will meet.
when the postman comes we are terrified of a letter from the dreaded HSE.
its simples, the daily grind of sickness and disease and disability is denuding us of our right to enjoy much at all these days.
there is a pall over our existence and a weight second to none.

at present healthcare is non existent.
we get nothing from our present consultants and we do not have a neurologist.
you wouldnt believe how tough it is to get a doctor on board now in ireland and of course no one has the power to request a doctor to care for sick people here!
yes, again i feel its come to the point that the consultants actually can chose who they treat.

even though we have been about 15yrs in neurology care here we now for the past year have had none.
i call this refusal to care, neglect and euthansia by stealth, i do not mince my words when i say this is the 'taking of a life'
i got sick and was left two years like this, already marked muscle wasting can be seen and Ireland diagnosed nothing.  Only when i escaped Ireland did i begin to get an understanding of what was wrong with me.
i do not mince my words that the HSE are doing the same thing, 'taking my life.'

name calling, dodgy suspect communication within the HSE about their clients is rife.
they dont care a toss either.
The winner of the Emma Memorial Prize UK who is tortured in her ill health in Ireland.
i want people to know its unacceptable to put my twin through so much anquish in her last days because of abuse, the very thing my twin fought for others against their abuse for decades.
we have been called everything under the sun by both the hospital doctors and the HSE.

you'd never think that our real needs are care for the sole purpose of getting that life in place that once we may have known.

its called 'finding enjoyment again'  now with a sickness and disability.
but this is life now, this torrid tormented way of having to live it.

you are consumed with feeling the dregs of society.
you are consumed by the feeling of being put down as absolutely not worth to be called an irish citizen as if i was a thief in the night or a murderer or worse.

you are nothing here in this small island if you are sick.
we can go nowhere with our complaints.
we cannot complain about the doctors who ignore expertise from abroad, we can do nothing if the doctors walk out of the room, nothing if they insult you or dismiss you or are rude, abusive and neglectful.

you can do nothing if the HSE get into a huddle like vultures deciding the time and place for taking some pickings off your bones.
this could be violently inappropriate behaviour around a persons rights to their own homes.  it can be through designating their clients as 'serial complainers.'  Well the media made a field day of that one thank god someone saw the light in that one!

but more has been said and done to us twins.
i stood in the car park of the gp practise after my twin's gp had walked out on her.
from this when well but becoming sick to this...
it is not a problem showing the hospital that gave both of us an agonising time of it, the deterioration in ability to feel happiness is self evident as too is the sickness and disability

my twin was distraught and was sitting weeping on her wheelchair when i immediately drove down to her as she said 'rescued' her.
how can a doctor walk out like that.
the encounter was harmless, she had a right to a correct letter of referral be drafted and a right to say the letter written would not actually be much use, it would not have been and she was right to go down and request a stronger more detailed approach.  she has this right as a patient needing care.
and the doctor 'a good man' according to his colleague, had no right to walk out and leave my twin bawling needing 'rescuing'
i am livid.
i had to hug my twin who was weeping horribly saying she wished she was dead and what a horrible country this is.

this is a woman who won the Emma Humphries Memorial prize in the UK for her outstanding work for women who had been abused.  Only one woman each year is given such a prestigious award.

she comes back to ireland after 45yrs and goes from being a lecturer of disability and abuse in the UK, northern Ireland and the Republic of Ireland, bought in by the HSE to train up social workers in this country until of course they defamed her and she won some compo off the HSe.
after that when she retired home in severe ill health she is trashed by the ignorant sods we have in our healthcare system.
just ignorant, arrogant, unprofessional men and also a HSE who hasnt got skill and i mean it simply is devoid of a sophisticated organised way of dealing with sickness and disabilty.
its a bloody eye opener for her so shocking i doubt my twin will recover from the shock of being part of the greatest healthcare system in the world as she worked as  a lecture and a social worker and a woman doing great work for abused women, to coming home to be abused by her very  own.

i am sending this out to the doctors of the Irish state and to the HSE.
the day we became sick was the day our life ended.
why? because we daily have to face abuse, ridicule, abandonment, neglect, abuse of power and name calling. 
expect a meal like this when you are sick in Ireland - a home help taking a rotting 'off' bit of mince from the freezer and tossing a few bare potatoes on the plate.  realising the meat was 'off' of course i didnt eat this - but this is what you cannot object to. 
this isnt a healthcare service by any stretch of the imagination.
Ireland is a torture chamber for the sick and disabled now.
its torturous journey to the grave.
when we do not have legal rights to defend ourselves against this enslaught you can safely say we are 'enslaved' to abuse here.
and because there is no legal rights for us this is what happens.
i am letting this out to the world.
this has now the worst healthcare system in europe and getting even worse.
we also have the worse public sector workers in Europe according to latest stats but i am less clear why they have called us this and to be honest, i am dealing with one such public sector body the HSE so i know its a mess so fully understand how the public sector is also a mess in all other areas where we need civil servants.
I have to say 'Dying for your country' takes on a whole new meaning living in your country as a sick and disabled woman.
welcome to the land of the saints and scholars.
Ireland, a nightmarish place for us.
the final image of course says much, we are now protestors and protectors of the truth.  we will not sit down under abuse and be expected to take it, nor will others who will come out and say it as it is before the Dail.  they may not come out to meet us but we will go to them and tell them - indirectly if not face to face

Tuesday, May 30, 2017

slainte care Ireland

the committee on health at government buildings launched a 'new way,' 'new approach' and i believe called it 'Slainte care:
From This....TO.....

From This....To This.....
We are calling the system Sláinte Care and are also proposing the launch of a new health card, called a Sláinte card.
“That card would give people an entitlement to access universal healthcare locally in their community, GP care and reduced cost medication.”
in better times, hurt and damage and harm done to me was only a great big damning series of the future..that is as i speak now.
Absolutely everyone would welcome a new way of 'doing' the healthy thing, but lets see its deliverable in my life time.
we have a new dawn...Slainte!
god knows i have had a terrible time in the past ten years.
lets have a lick rather than a bark - Slainte!
right now i have no healthcare provision for what is deemed a 'heavy disease burden.'  if the government is committed to this, let them be committed to uplifting the hurt and the damaged and those suffering from the system that is presently in place.
Genuine care from this is welcome.
First though, is 'mending'.
Mending in a very meaningful way.
speaking to a disability advocate at the close of day i said i never thought what would happen me when i got sick would happen.
i never thought it possible actually.
i reminded her of what a life i had led until i became so unwell with a progressive neurodegenerative disease and we recounted what has happened since.
genuine committment to my healthcare would be what i want now, we launch but let it not only be for the future, but begin now.
those of us who have a 'life limiting' condition need to feel they can end their days with care befitting their disease burden but also honouring the future by beginning in the present.
by starting again, by bringing on board new ideas will be the educated, the bright new future and we all want this to happen.
I have seen too much suffering.
Any person who becomes sick puts faith in their healthcare professionals, when they fail you in such a manner that is dangerously damaging, they have failed you on the trust levels too.  A reminder to the disability advocate being - "How can i learn to trust again?"  also "Can they allow me to live again?" that would be the test of maturity and committment to change.

If the pettiness and the enslaught continues now for my twin sister and i the naming of Slainte will be pastiche and hypocrisy and nothing more.
we are awful good at launching new directives, new plans, and very poor actually in implementing them.
So many been, gone and dusted as launched, few implemented as modern and new, they are but 'launched.'
We have had the whole recognition of considering patients as part of the agenda, that is 'nothing about us without us.'  This has been said by the healthcare providers for a few years now.  On the ground the truth is anything but consideration of the patient, the client for which the largest employer of the state has been created.
we seem to forget that having over 100,000 workers for the health of the county has costed us lives, we have created an unhealthy healthcare system, despite giving the wage, the lifestyles, the mortgage and the pensions to so many civil servants to look after the sick!
Any change is welcome, but it has to be sincere.
We now have enough policies, programmes, visions and plans to paper palaces, lets see the shine on them come to glow in the Irish sun (yes, we get it from time to time).

i want to wake up and begin my day by being grateful i am alive.
i want to wake up with the plan to engage meaningfully in the god given day that is mine as i am a living entity, called human.
i want to wake feeling that humanness.  I want to be purposeful, present and joyous as the dawn rises.
I wake at present with sickness and dread in the pit of my stomach, the hope of being kept alive already deadened at dawning.
I wake at present tearful, painfully aware of my physical decline, my pain and the psychological fall out of damage done by the system we have at present in place.
oh wouldnt it be wonderful to wake, sick but well.  Sick but assured of the living part of being a human being equal to all and at least equal to 100,000 civil servants who depend on me and others being sick for them to have their own quality of life in wage assurances and their 'no sack' policy (i don't believe in this bit actually).
I want to be able to teach about justice, and truth.
i want to be able to say the truth in safety
to tell the people of Ireland never to forget that speaking truth is healthy and that truth will be a strength to uphold a nation, not allow my truth damage my personal life, because others determine that by myself speaking my truth they are aggrieved in some way that it may damage something belonging to themselves.  What damage i do is actually saying it 'warts and all.'  For this, i should be thanked.
My truth should never damage me, my twin nor any other person, it should never be fake truth and i demand that it be acceptable to speak the truth...
why?  Because fake truth, fake news, licking arse, bowing and cringing under abuse, being beaten to a pulp by bad practises of malpractise isn't the way we should run a small nation.
Everyone should be able to stand up and make another be accountable for wrong doing.
Too many are left unaccountable, we have it from all society in Ireland and it doesnt do our reputation any good at all.
Bring back those who will say it as it is.  To know that 'the emperor has no clothes,' is no shame to the emperor, he just goes to his wardrobe and gets the best pants in town.  Simples, in my mind.
a very universal injustice we have to change and march forth to change this pyramid of distruction
its called 'see it, believe it, change it and march forth.'
Am i hopeful.
I have to be.
the guinness is raised daily with the word Slainte, we value the guinness the world over, lets now value the Slainte.
I would value healthcare given to help me cope with my heavy disease burden.
i never felt it was too much to ask of 100,000 workers in this state, surely to god a few of them should feel the same.

i am all for....walking free in the knowledge that those honoured to care for the sick, vulnerable, elderly and disabled will freely give it without sanction of abuse as a top up.

Friday, May 12, 2017

oh for water to swim in - when very sick

2009-2017 i have sought out - water!

i seek it here and i seek it there and no where is it to be found - in ireland.

I seek out a special type of water ....its called warm water.

I see it first in the public pools
and a hotel

All were too cold for i am sick

i seek it secondly in a hydro pool, most are developed here in Ireland either privately or in hospital settings.

Hospitals first:
A rehabilitation facility who first stated i needed it in 2009 said in 2017 that 'we do not fit in.'  that is, they can't allow us use this pool.  it is about ten miles away if that.

i sought it at a hospice i attended for a while, they allow mother and baby groups, but not an x-hospice user.

I sought it again at a school for disabled children - no joy.

I sought it again at a centre for learning disabled people - but it was only to be used for learning disabled.

i am attempting to get into a rehab facility as an inpatient, but it will mean i get to use that pool once a day for half an hour!

in all this time, i have been completely unable to get water to do gentle exercises for a muscle wasting disease process.

i tried two hotels, both will not allow a 'pay as you go' fee, but you must join for a full year.  i have not that money.

if my government cannot offer me physiotherapy nor hydrotherapy, how am i to fulfil my ideal need that i keep my body in the best possible shape as i degenerate with a rare neuromuscular disease.

if i cannot get water, warm water in a pool, do you think the state should fund me to get to a pool weekly in a private facility.

Or am i not worth it?
and my twin not worth it?

is this the beginning of state organised euthanasia and private healthcare now in little holy ireland where the rich can pay for their hydro and the poor can seek, and seek and seek and simply not find.
2009 -2017

Hydrotherapy and Physiotherapy (ongoing, no less) was first mooted in 2009 by a consultant in rehabilitative medicine, further suggested as a care plan in 2013,2014 and 2015 by specialist consultants in rare diseases units outside of Ireland.

Ireland is not looking after its chronic sick patients.

Saturday, May 6, 2017

Complicated Ireland purposely complicated Ireland

it is such a complicated little island.
everywhere i look now i see that not a lot is 'simples' any more.

Lets take Health, ah but it would be me to chose that first as my baby subject of interest, so much so i think i will work on getting a PhD on 'quality and quantitative research on Irish health care management.'

its about management i believe and its not simple, but complicated.
who was the wise one who did the daft thing and separated the Department of Health from the HSE?

it hasn't worked, that's the first observation which is not really rocket science actually.

Management, it is NOT the fault of Simon Harris TD Minister for Health that its all going pear shaped, its a monster in the shoebox affair we have in health care Ireland.
so many things are lacking and so much is both secretive and non transparent it beggars belief.
you would be forgiven in believing the Health care service isn't about health at all in this complicated country of mine certainly its not operating as one.

in the hope of sorting the chaos, mess, dysfunction and mistrust they bought in a bevvy of new management, an extra layer lets say, to sort this mess, chaos, and our distrust of the HSE as an organization - to bring back both advancement in actual delivering health care and the nations trust in the HSE.
it did neither.
so that knocks two of the so called answers to pressing questions.
whose fault is it?  - it is NOT Simon Harris TD!
how well did new Management layer work?  - one word - malignant
Management again and on this one we take the role of the client/patient with management and the hospitals.

very heavy stuff this is and contentious for its complicated by both the Department of Health and also the HSE.
the HSE does a heck of a lot of policies and guidelines and structures, and visions and graphs, and projections and so forth adnauseum 
in most if not all, it claims WE COUNT YOU IN!  as part of the deal the patients, clients are part thereof the structure, dynamic, projections, guidelines et al - we are there in partnership (that's a great one so it is), we are there to be heard (nope) and we are there to be helped (nope) but also the HSE is there to be empathic (nope), be a listening ear (no) to listen to the needs you have (no) and to put in place a person centred care plan and package that is individualized to the disease burden (start laughing, i have).

From the ordinary man in the street, even the road sweeper to the top of the pint, the cream, we will name Prof. O. Hardiman who is shrewd, knows what she is talking about and says it as it is, but all know, the sweeper will say the same as Prof. Hardiman, but won't be heard, won't be believed but he will 'understand as equally well, the dynamic, the chaos, the melee and the dysfunction of delivery of health care in Ireland - no brainer that one.

why are we cynical and dejected and let down and lacking a health care system at all.

Make no mistake we have no health care system, there is no system in operation, i mean SYSTEM.
a System i guess is how you deliver, right, there is none.
from hospital trolleys, to overcrowding, religious debacles, religious divide and public/private divide, cuts, austerity, savage cuts and then billions added and subtracted, moved from one area of health to file a gap in another and a drain of resources as in personnel as they go elsewhere to take up better paid employment and better working conditions.
so there isn't a system.
management too jumps as equally precariously as the money pot, or honey pot.  A manager may be in charge of mental health one week and fill a gap in Disability manager the next, and we have 'acting head of...' and then that person disappears for another to take her/his place and the jack in the box pops a spring just about every hour of the day.

no wonder no one knows who is running the show.

try making a phone call to a department within either the Department of Health or the HSE.

the main issue is you can have a clear picture of who you think can answer a question you have, that is 'the protection of vulnerable adults and children' is overseen by the director of the National director of the protection of vulnerable adults and children' but no, that department deals with policies and planning not the individuals.

the individuals are dealt with at source, base line, very base line, the local areas.
these are not skilled people who are also plucked from somewhere to fill this gap.

you can have a guy in charge of this in your area and decide without ever seeing a vulnerable adult that a case, by degree is harmless when in fact many who understand psychology will know, no case involving the abuse of vulnerable adults or children can be quantified by degree of harmless or harmed.

the management structures lack stability, style and insight into real people's lives, they barely meet them and get whopping big briefs to deal with cluster groups of sickness when they may never be trained or understand how to begin to approach it all.
a manager coming from mental health can clearly say when suddenly co-opted into management of disability 'when you get the wheelchair, will that be it?'  a bit of a strange question to a person with a progressive neurodegenerative disorder.

the understanding of health and safety for disabled people too also goes sort of pear shaped with a mental health practitioner manager who decides to leave the above woman without a bath chair aid to get into a bath for two years, no insight that with muscle wasting, leaving such a lack or gap means the person can or could or may crack their head open if they lose footing or grab of the grab rails.

there seems no insight, and that is massive problem within health care services.

if you do not understand cause and effect you will fail hopelessly to manage well.

Managing money.  this is a huge issue.
we have all and sundry claim the biggest wastage in the funds is that funds are wasted within the HSE.
we have this from the driver of the vans delivering the same bed a second time to the same person when the bed was supposed to have been a very different bed, from the repair man who comes for the umpteenth time to mend a wheelchair on its last legs by adding maybe a bolt, screw, or duct tape, yes i have seen this used copiously.

many at the coal face will name 'wastage' as being the biggest issues for failure to deliver proper care and appropriate care to the people.
if you waste it, its gone, nothing has been used for the main purpose intended.

I asked a question the other day about money and the HSE.
we all know that its a bit of a mantra these days to hear there isn't any around, none, as in Nada but then how many groups, organizations, individuals and managers have been told 'there ain't no money'  so if all of the disadvantaged, the sick, the disabled, the elderly, vulnerable and the td's are told there isn't any money in the HSE to deliver what they are mandated to do, where is the money going?
because i have never heard anyone saying their needs are being met.
they very much are being under met and many are on their knees, begging, to the point of sit downs outside dail eireann and far more.
others say it goes in the wages.  we have a top heavy managerial structure with too many captains, whose underlings, do not even know what the answer to a question could be, they get floored when asked a question if you ring the appropriate department to have a young person hesitate badly as so much is changing before her eyes too she doesn't know where to go with the question.

of course we could blog this out in a slog slog and slogging fashion, but to all intend and purpose, we haven't a health care system.

How is it that if you have private health insurance you can get a CT scan immediately for a suspected stroke, that is a bleed in the head F's, and if you are public you are put in a room on a ward and told 'the CT scanners are not manned over the weekend (Friday you arrive), so sweat it out mate, and lets hope you haven't had a stroke, it will be manned on Monday, i kid you not!
OK so.  its that bad and that's the divide, so the scanners ARE there, they ARE being used, they ARE operational for those paying, but not for those depending on the state.
this is so wrong.
the scanner in the hospital i attended, was closed for the weekend.
for all i know it may well have been opened for private patients, i am not to know.
but sure as eggs the anxiety in a side room with a possible stroke event is worrying.
the scanners are within walking distance and you are panicking as a sick person with a suspected stroke and no consolation can be had from the statement 'ah sure you probably didn't have a stroke.'
no one should have to wait three days to find out, when if you have money it could be three hours or three minutes and problem solved or crisis begins!

i do not see how we equate living and dying with the amount you have in your pocket, society will always have the poor and life needs all types of people in it to function as a society.
not everyone can be a doctor, or lawyer and pay insurance, you also need builders, brickies, and writers, artists and road sweepers.
all work is viable and needed, therefore i contend that health care should be provided for all, all contribute to society in some shape or form, and they should be looked after.
well my fingers ache as they clap along the keyboard, so i am ending this.
i pretty much just stated the obvious, but maybe some countries don't know the obvious.
bloody nice scenery but don't end in an Irish a'e.
i have to add - especially if you are a woman and poor.

Sunday, April 30, 2017

little Ireland with little healthcare

it is a very tough country to be sick in.
bank holiday - May Day - the workers holiday, those who toil and sweat get a day off just because they toil and sweat.

there is no day off from torture in Ireland.
many will see that as a very strong word indeed.
i see it as a truthful word that most would shy away from, as a reality here in ireland.

i heard a word the past few days, a scandelous case of 'waterboarding.'

tell me please, if you are treated by the state health care system HSE with utter contempt, and you are fed drip drip tiny bits of help but only coming ad hoc with no real effect to daily living is this not torture.
is it torturous to try and get a care plan in place and trying to do this now for a decade.
it is.
is it torturous that in a country where the government of the day claims we are 'on an up' when most with disability and sickness are very much on the down.

lets look at some of the needs that need addressing and why i see it as torture.

hydrotherapy is an asset.  it now is a standard of care for a myriad of conditions around the world, extensively used and proven benefits documented.
most modern states can provide hydrotherapy for the worst cases and chronic disease cases - not so little Ireland with little healthcare.
did i think it was that difficult to get three quarters of an hour in such a pool once a week?  No i did not.
its impossible.
of course i cannot ask around, i have no clout.  but those who have have failed on my behalf and that of my twin sister.

its not that these pools are exactly butlins on Mayday.
they are used yes, but not hour in and hour out 24/7.
we have lost a dear friend of late, Donal Toolan.
Not so long ago i spoke to him and told him i was finding it impossible to get into a hydropool recommended by at least five consultants.
he told me a few months ago it was the only thing that kept his pain at bay.
we spoke of this at some length, and it is true, we know the benefits.
we now know the benefits to even infants and the elderly.
but we cannot benefit because its not available for my twin and myself.

beds and sleeping also is another indicator we are on a slippery slope, how long is this debate going on?
well a very long time.
what does the HsE do?
well, they throw 'toppers' at you, foam, some three inch thick, some more or some less, some with ripples, some as cubes but in essence they are cheap ways of preventing pressure for those who do not move.
i move too much.
they also produce heat and i cant cope with that.
the glorious letter writing detailing how we have had five to seven chances with mattresses is but a fob off to the reality of five to seven toppers of foam for bedsores which i do not suffer from.
these letters wing their way to the TD's.
then again we have companies and retailers say that the HSE do provide sophisticated beds for the chronic sick in ireland.
but we twins, the ones with the pink hats cannot get the HSE to engage on bed and nighttime at all.
one such lassie came and then disappeared, never to be seen again.
i am in a hell.
there is more than this going on.
far more.
there is name calling, denegration, fob offs, procrastination and injury in extreme.
torture is injury and also lack of care is injurous.
we do not have euthanasia here in ireland but you might as well, for that is what i feel is happening my twin and i.
left to die at home with no health care.
well everyone is asking that.
what happened the Grace case whistleblower?  what happened Maurice McCabe?
what happens in ireland if you spill the beens, we must look to all whistle blowing in ireland and vocal individuals who say it as it is as opposed saying it as they would like to hear.
there is an answer to the extreme pain we are suffering in little ireland its called revenge and inflicted intentionally.
imagine a healthcaring organisation, advocating its citizens be watchful of elder abuse whereever they see or withness it.
hey man, visit, because i can tell my story, its elder abuse.  On a grand scale.
its even happening in the Minister for healths own patch, simon harris, on the minister's childhood estate and the ministers own road for the school walk he would have taken.
but there are two women suffering here.
very much so.
the flourish to help was evident in a history of trying to make things better but now its someones turn to help us, we dont ask for too much just what you would give to very sick individuals. as in a healthcare befitting the 'heavy disease burden.'

if people dont understand why we are not getting it.  i dont understand it either.

its a shit country to live in when sick and that is all i know.
you just want to die in the end of it, you do.