tag:blogger.com,1999:blog-35708482271072276952024-02-18T18:28:35.362-08:00awnyah todaysayAWNYAH TODAYSAY
Ann living in the Republic of Ireland and it is not a good thing. We have now ratified the EU convention on the rights of people with disabilities, yet we failed in ratifying the optional protocol, allowing us ability to make complaints to the EU under the convention, with little facility to do so in our own country. We go unheard in every sense of the word. This is unjust and leaves us more vulnerable and open to abuses. We are suffering. I am suffering.Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.comBlogger372125tag:blogger.com,1999:blog-3570848227107227695.post-70112563261432921582019-12-16T15:40:00.000-08:002019-12-16T15:40:10.136-08:00Christmas and a yo to you too<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdz3Fac_0LPWumXhftcJfTzRZrOeh9I0DRNzhO4u2dDQ3KX-8XtxG1P_LA-N1xpnYzdPn6YngCW8gYVTIFiv0PCfCmgOIh4SrEdsLVJGawryo5f7RaJ3xAQLBxAZVMX4pZM3ezYnLQV2U6/s1600/the+nurse.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1143" data-original-width="1600" height="456" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdz3Fac_0LPWumXhftcJfTzRZrOeh9I0DRNzhO4u2dDQ3KX-8XtxG1P_LA-N1xpnYzdPn6YngCW8gYVTIFiv0PCfCmgOIh4SrEdsLVJGawryo5f7RaJ3xAQLBxAZVMX4pZM3ezYnLQV2U6/s640/the+nurse.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="font-size: x-large;">My mother, before she got married, did volunteering with 'st. john's ambulance brigade, working mostly in Baggot St. Hospital.</span></b></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfExwtjWOu1zRHN6Xi0Kypu5NQqvoaCHDT5il0gkIjcmxUb9aPFXM97-9hlp_Z7B_KPibWUoCfFGa8P25DGsKGQt6vAGc5Uw6T9TLMlZS7UMYmTdH2aVEYjw0WXGspZbTOAK3VGGWTZ4kA/s1600/17191046_1473101286056034_1398627081260473533_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="622" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfExwtjWOu1zRHN6Xi0Kypu5NQqvoaCHDT5il0gkIjcmxUb9aPFXM97-9hlp_Z7B_KPibWUoCfFGa8P25DGsKGQt6vAGc5Uw6T9TLMlZS7UMYmTdH2aVEYjw0WXGspZbTOAK3VGGWTZ4kA/s640/17191046_1473101286056034_1398627081260473533_n.jpg" width="414" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="font-size: x-large;">Dad and 'Uncle Bob' two wonderful men, sadly missed at Christmas.</span></b></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Christmas has never been the best time of year for me.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">recently i tried to think back, did i ever enjoy it.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I did!</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">excitement of waiting for santa, the bottle of milk at the end of the bed and some crackers for the bearded one.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">- that is, until i saw my dad come in and sit down, drink and leave.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I did!</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">when i ran around banging on tin drums with my twin sister, up and down and causing chaos, unit my Mum came in and put her foot down on that.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I did, i say with the lovely little dresses and pink ballet shoes with silk ribbons, the little white cardi and the fuss and pomp with table glistening shiny and best silver polished and placed neatly, candles red and lit, crackers criss cross down the centre and places ear marked for the usual sitters, and the odd stragglers of older sisters x boyfriends, present boyfriends or friends of friends - at a loss for the festive season.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i enjoyed watching my grandma coming in, laden down in a real fur coat of motley proportions and weighty and mangey, we all laughed at that - no one knew where it came from, it suddenly seem to appear late in her life.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">my auntie sat beside me. a petit little lady with a hooked nose with a poorly thought out nickname of 'Polly' but we all loved Polly unreservedly she was kind and gentle and thoughtful.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">she wore thick beige stockings, a bit wrinkled, but she was a tiny person.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">twice i was sick for christmas, and it was Auntie Polly who bothered to climb the 13 stairs to my nursery and pull a cracker and wish me well or sit and chat.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">once even she bought me my first record, an EP with goldilocks and the three bears on one side, and 'donno' on the other.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i was carried into the sitting room to listen, and she held my head and stroked my young face and hair. She was to me a beautiful woman.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">instant reminders of christmas brings flooding back my time with Aunt Polly, and her final days.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Memories as time flooded onwards and older still, i grew to hate it all.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i became overcome in silence.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">"You are very quiet down there," my Dad would say from the top of the table, it was a big table from Frescati, Blackrock where he was brought up.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">it held a multitude for this yearly feast.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">alas if 13 sat down, the youngest was given a small table of her own so as not to make the full circle unlucky.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">we all had our designated places for decades.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i sat near Mum and Aunt Polly was to my right.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Louise, long deceased sat nearest Dad.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">the meal passed off usually in gentile and calmness, but maybe not so always as the meal ended, it was time for 'who is doing the washing up - this year.' Louise was on to that quite quickly or my twin sister or i.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i never remember the older ones doing it or even volunteering.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">afterwards the drawing room was roasting in a blaze of heat from a tiny coal and peat fire.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_rh5DEG9xPSdxe1JCQovX9mCnwqwv_ZzgVsSpJAShvM3-AI5UVYMMNn1Wof-BicGbf4APn55WFNL8e6oJQx4U5AOn_vLsctvKwVDp6203LXf0IDwGv7LaTZza6ryQ_an9zQIQHovFm_Au/s1600/17634496_1496009123765250_2603281665496473263_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="742" data-original-width="960" height="308" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_rh5DEG9xPSdxe1JCQovX9mCnwqwv_ZzgVsSpJAShvM3-AI5UVYMMNn1Wof-BicGbf4APn55WFNL8e6oJQx4U5AOn_vLsctvKwVDp6203LXf0IDwGv7LaTZza6ryQ_an9zQIQHovFm_Au/s400/17634496_1496009123765250_2603281665496473263_n.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-large;"><b>The Kennedy clan.<br />b. row Gerald and Elizabeth, the eldest.<br />F. row, L to R, Louise, twins (we can't tell each other apart even now) and Jane</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Granny got the Masters armchair and Polly got the middle of the sofa with whoever on either side.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Louise lay out front of all and Jane fell asleep.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Mags and i sat on the floor leaning up against large chairs, I usually aimed for my Gran, as she loved to stroke my hair and that was gorgeous and intimate and nice for a seven year old.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">talking for a few hours, it could be testy for some and we had a 'storm out' (or two) as the years went by.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">a lot of teasing went on, i didnt approve of that.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">years on i was glad the ritual was coming to a natural end. Siblings married, moved out and on. soon the numbers were much smaller, meaningless and purposeless.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_JwsTB-4wKFTlcgllHuQQkwtI6fXeS5oQomBE2zMHjf1q9PQ82ChVWBo61-dYOSDhAEIpyFD_shnw-QweDIVJY5KISZW3egIQuUGfUC0vX8u__UbZTXUqdNjV9x9GBC8qSWy2w4eBA2Kv/s1600/family+shot+-+muffled+up.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1600" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_JwsTB-4wKFTlcgllHuQQkwtI6fXeS5oQomBE2zMHjf1q9PQ82ChVWBo61-dYOSDhAEIpyFD_shnw-QweDIVJY5KISZW3egIQuUGfUC0vX8u__UbZTXUqdNjV9x9GBC8qSWy2w4eBA2Kv/s400/family+shot+-+muffled+up.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-large;">Like Christmas ritual, Sunday was another when Mum was left behind doing the Sunday roast. Dad took us up Burma Hill, Killiney for a walk</span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">but for tradition it carried on as pastiche of a time when i did enjoy, pre about seven years of age.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBWE66KKo3MMiDtKgwbcL-Ae8SbSiRD58JxxaSQjy-X_WT5xUPILbMVBafwj6j9ZPBYFPGTYOYoKjh7ZaOrdV6aDnlqaTEblJMX7V3PJpLsWxwOo3SqnCSYhOq-IYOoPt9osxcVxel2nUt/s1600/twins+communion+day.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="676" data-original-width="670" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBWE66KKo3MMiDtKgwbcL-Ae8SbSiRD58JxxaSQjy-X_WT5xUPILbMVBafwj6j9ZPBYFPGTYOYoKjh7ZaOrdV6aDnlqaTEblJMX7V3PJpLsWxwOo3SqnCSYhOq-IYOoPt9osxcVxel2nUt/s320/twins+communion+day.jpg" width="317" /></a></div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Now i am 67yrs old. i hate it.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">My lovely Dad is long gone, my mum, gran and Polly, Uncle bob and the Conans too, with their christmas eve visit all pass on by and forgotten now.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Its not the same.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i remain the youngest of the old class of the generation, waiting now to see if anyone invites me to their table, despite for the full year i may not seen them or received a phone call.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">as the spinster, something like Polly, the family joke/scapegoat for funny fun of some kind, i tag along as the tagger for no other reason but, well 'we should really.'</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I have bought a lovely outfit, something i have not done in donkey's years.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i bought it to relieve my deep depression of recent months and so lets hope the invite comes.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">so far a nephew has enthused about meeting me and doing something of an afternoon when he comes home from London.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">So far a wonderful neice has sent a letter to say she is looking forward to meeting up and having a chat, from France, over too for the first time in over a year.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i love these young uns.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i rarely see them, but hope i count to some of them.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">so i wil be pleased it soon will be done and dusted for another year.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">plenty too to forget of 2019, it was a ghastly year, like none other and most can reasonably guess why.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">but not to put the bitter pill out for all to take, i want to wish all a very happy christmas, as some do still enjoy it and it uplifts many and rejuvenates a bonding of family kinship, so we have to remember those who are thicker than water so.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">happy christmas from Scrooge, who actually is waiting for the invite and turn into a better human being for at least a day or conversion of some kind, but it couldnt be worse i say either.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFcCWqUfK3aM5bWYt2xeB3Xpom-tZVSUN2leytbbde8MZ2ktwvpJ5f7kp8uCd7LpKDvWzV_kg4_wOby1TCPEgJ7NLQgcOZepsUapzWHcMLzca1SmRvkewPNVSwsZxMjLgLJM8cGQLy5zC3/s1600/12552871_1114448475254652_1726951763089668213_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="695" data-original-width="960" height="462" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFcCWqUfK3aM5bWYt2xeB3Xpom-tZVSUN2leytbbde8MZ2ktwvpJ5f7kp8uCd7LpKDvWzV_kg4_wOby1TCPEgJ7NLQgcOZepsUapzWHcMLzca1SmRvkewPNVSwsZxMjLgLJM8cGQLy5zC3/s640/12552871_1114448475254652_1726951763089668213_n.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-large;"><b>So looking forward to meeting up with Katie my favourite Niece.</b></span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-large;"><b>Taken at a past christmas, i look rather beautiful. I look forward to meeting John and his new wife Jane soon</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiXd1Y3UMWUHu-FEpsKEcevunTAfG41irgWRiTTVSpUREpQ5SP7cW4E1psNlz_sxwol76pvQ-wAJ-sK7D31UbHHFICgueNdMWEWAlnENpQW_lio3G-QvKH4XHWVpNTH7PAks8zRbxeuf0_T/s1600/gardton+and+louise.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="489" data-original-width="549" height="570" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiXd1Y3UMWUHu-FEpsKEcevunTAfG41irgWRiTTVSpUREpQ5SP7cW4E1psNlz_sxwol76pvQ-wAJ-sK7D31UbHHFICgueNdMWEWAlnENpQW_lio3G-QvKH4XHWVpNTH7PAks8zRbxeuf0_T/s640/gardton+and+louise.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-large;"><b>I will spare a thought for my next in line sis, Louise, who died too young at 47yrs</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjZDwdm1X7ok6DbLk9TklyO1_1K-TyNAYSgkS2yfNumjCFjNIx0JJ3IlL8SaazYzo4CHp2oMxAzLggDid0I8m05j0bc43d8bFNVm8i2M5JouT8uruFMzzaFXUMxHh3HDJbYeSjocttEFkAR/s1600/**chip%2Bboard%2Btable.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjZDwdm1X7ok6DbLk9TklyO1_1K-TyNAYSgkS2yfNumjCFjNIx0JJ3IlL8SaazYzo4CHp2oMxAzLggDid0I8m05j0bc43d8bFNVm8i2M5JouT8uruFMzzaFXUMxHh3HDJbYeSjocttEFkAR/s640/**chip%2Bboard%2Btable.JPG" width="480" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-large;"><b>The chipboard christmas, 2009 with our meal balancing on a strip of wobbly board between two stools in social housing</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMnAQbp7LOBw4MsFltNkqHhlOP9-zIhX2GKGv3kA6ktz7VzpOwhbZtlPTXUtVGZ6lUfcXms8x6Qr1pTC8iTaJorCzfQTYoP4PLK8WulHAhWdJQPpa-ekwYMZFH7qTn3r3KSM5Zz7FSp5wU/s1600/mags+pulling+bed+out+of+dun+ishael.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1067" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMnAQbp7LOBw4MsFltNkqHhlOP9-zIhX2GKGv3kA6ktz7VzpOwhbZtlPTXUtVGZ6lUfcXms8x6Qr1pTC8iTaJorCzfQTYoP4PLK8WulHAhWdJQPpa-ekwYMZFH7qTn3r3KSM5Zz7FSp5wU/s640/mags+pulling+bed+out+of+dun+ishael.jpg" width="426" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-large;"><b>relocated to a ghastly dangerous social housing unit, margaret moves her bed from eight floor boards, limited space between fire grate and chairs, and returned home not long before with serious illness. We never recovered from this traumatic time</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-56948723258750664522019-12-14T09:17:00.001-08:002019-12-14T09:34:12.578-08:00i am back in time for christmas<div class="separator" style="clear: both; text-align: center;">
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<span style="color: white; font-family: "arial" , "helvetica" , sans-serif;">I am delighted to be back in time for Christmas 2019.</span></span><br />
<span style="color: white; font-size: x-large;"><span style="font-family: "arial" , "helvetica" , sans-serif;"><br /></span>
<span style="font-family: "arial" , "helvetica" , sans-serif;">A LOT has happened indeed.</span></span><br />
<span style="color: white; font-size: x-large;"><span style="font-family: "arial" , "helvetica" , sans-serif;"><br /></span>
<span style="font-family: "arial" , "helvetica" , sans-serif;">I have been to America - and back!</span></span><br />
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<span style="font-family: "arial" , "helvetica" , sans-serif;">this is not something i would do normally, i don't travel to shop cheap, travel to view the sights, "nothing no more" sort of thing.</span></span><br />
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<span style="font-family: "arial" , "helvetica" , sans-serif;"><span style="color: white;">As usual not a lot has changed, but to welcome my discovery of getting back into my </span>actual blog i will share recent images cos its a nice way to ease my readers back.</span></span><br />
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<span style="font-family: "arial" , "helvetica" , sans-serif;">It is always fun for snoop value if nothing else.</span></span><br />
<span style="color: white; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">who doesn't want to see images, out of interest.</span><br />
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</span><span style="font-family: "arial" , "helvetica" , sans-serif;"><span style="color: white; font-size: x-large;">SO HERE WE GO, OUT OF </span><span style="color: white; font-size: x-large;">INTEREST...ENJOY.</span><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMGK0Exn_S3Pw_PIcFJzAcYw1YathlG5kgfyhrw1J0-GRNl5DMOZxYMjsS1KWqosSgtEFgnU_cKHLVq8ZydtQdlNgVfxa5YsvQJipqlSLw8msIb6mXM00qLqpQNGxZpxEVzkKiSL9yGEOp/s1600/ann+and+mags+in+washington.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="color: black;"><img border="0" data-original-height="1600" data-original-width="1181" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMGK0Exn_S3Pw_PIcFJzAcYw1YathlG5kgfyhrw1J0-GRNl5DMOZxYMjsS1KWqosSgtEFgnU_cKHLVq8ZydtQdlNgVfxa5YsvQJipqlSLw8msIb6mXM00qLqpQNGxZpxEVzkKiSL9yGEOp/s640/ann+and+mags+in+washington.jpg" width="472" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="color: white; font-size: x-large;">Ann and Margaret in Washington DC</span></b></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhiO31ouspxXFYairXUQcsvA6p_O6IVC2GushkG0jLLalItN1ecaVYcBlW8Q-UbknRdzYEVU4CrHd4dU6_u2FHFxICWGPNceEsY5WHzN_31O3uZ6YVZqai1y4GNELNOVxtlHSNEH_rnhZQw/s1600/Ann+pins+Dublin+Ireland+with+Catherine.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="color: black;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhiO31ouspxXFYairXUQcsvA6p_O6IVC2GushkG0jLLalItN1ecaVYcBlW8Q-UbknRdzYEVU4CrHd4dU6_u2FHFxICWGPNceEsY5WHzN_31O3uZ6YVZqai1y4GNELNOVxtlHSNEH_rnhZQw/s640/Ann+pins+Dublin+Ireland+with+Catherine.jpg" width="640" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: white; font-size: x-large;"><b>Ann puts a pin for Ireland on the Map of those who have attended the Rare Diseases Programme with Catherine my co-ordinator for the time there</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMmMDS7aXEUqzkdSQ0nhzWSLNz8v0yBreUGNa_7k1gTwR0jreEY9DBJ9ZreAeEOhl-Zy3xukXxxSu6Pr2P7-FimA3Dz8XWRBVaw5pol_d0P8EznoapEmb1JT36GEHssbdv6kNmhcvXVIjA/s1600/ann%2527s+bloodletting.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><b><span style="color: black;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMmMDS7aXEUqzkdSQ0nhzWSLNz8v0yBreUGNa_7k1gTwR0jreEY9DBJ9ZreAeEOhl-Zy3xukXxxSu6Pr2P7-FimA3Dz8XWRBVaw5pol_d0P8EznoapEmb1JT36GEHssbdv6kNmhcvXVIjA/s640/ann%2527s+bloodletting.JPG" width="640" /></span></b></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: white; font-size: x-large;"><b>Blood Letting but important</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuU1QZ4r8Ou7MkP51K-bz35bHUuXS2hG05yyh8B0gBdUeRVTacs91s-MVq9cErwO0hUI-T5NGhAi3ELNe88EtJoIka3zXxcAZloiuDUhMPttRKtZIRdcfqEHR1vlkoMCGOpQB00hl9QMAR/s1600/Dr.+Toro+and+Dr.+Gahl.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="color: black;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuU1QZ4r8Ou7MkP51K-bz35bHUuXS2hG05yyh8B0gBdUeRVTacs91s-MVq9cErwO0hUI-T5NGhAi3ELNe88EtJoIka3zXxcAZloiuDUhMPttRKtZIRdcfqEHR1vlkoMCGOpQB00hl9QMAR/s640/Dr.+Toro+and+Dr.+Gahl.JPG" width="640" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: white; font-size: x-large;"><b>Dr Toro, neurologist, Dr Gahl, Director of NIH undiagnosed programme NIH</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfaxGZCXUjPeP_aPl9FCTPUuIDoHlenGXCxqzc8FmsDSSlgN9fKJymE52C0CarBwfy3777UlJk58yAuQwmRaI15tyHd8ReNEOKlfHc3NH6khY3yfLhqhcguLX1IuXwJeGprDA7IIUI_WKF/s1600/IMG_5565.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfaxGZCXUjPeP_aPl9FCTPUuIDoHlenGXCxqzc8FmsDSSlgN9fKJymE52C0CarBwfy3777UlJk58yAuQwmRaI15tyHd8ReNEOKlfHc3NH6khY3yfLhqhcguLX1IuXwJeGprDA7IIUI_WKF/s640/IMG_5565.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: white; font-size: x-large;"><b>We are on the way! I designed t-shirts in the honour of the trip!</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgrQ6sdZEF6RRVBJ99Du-n_8MbHZMX13_gM1mGqNEji7k4_qXwuS-aEPaj2GXlZAB4KRPO5Oy2_0uvsL__siCKEhg4JmWOnAaXg6xd686sVAJ10NjUis0pbHoTI-SCv584-bRQ5VAfInm5Y/s1600/show+some+love.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgrQ6sdZEF6RRVBJ99Du-n_8MbHZMX13_gM1mGqNEji7k4_qXwuS-aEPaj2GXlZAB4KRPO5Oy2_0uvsL__siCKEhg4JmWOnAaXg6xd686sVAJ10NjUis0pbHoTI-SCv584-bRQ5VAfInm5Y/s640/show+some+love.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: white; font-size: x-large;"><b>when you find an important notice you 'snap' it!</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4xbbVlEHAz7I69r5gqqrEB73o0j3DT_inG2IXsSAHJk-HDFYLzSrs_FeJK9dCbkSWu2ls-TVBRVH31O9v7Un2lFUjOgEOpYbCZXbEVSKNDELd4UVA8v1eGDoX0X3omurTws4krdUjYvMa/s1600/waiting+together.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="color: black;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4xbbVlEHAz7I69r5gqqrEB73o0j3DT_inG2IXsSAHJk-HDFYLzSrs_FeJK9dCbkSWu2ls-TVBRVH31O9v7Un2lFUjOgEOpYbCZXbEVSKNDELd4UVA8v1eGDoX0X3omurTws4krdUjYvMa/s640/waiting+together.JPG" width="640" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-large;"><span style="color: white;"><span style="font-weight: bold;">waiting to board the plane, after a scary start as my twin's visa was not accepted, but thankfully it came through in time.</span><br /><span style="font-weight: bold;">it could have scuppered the whole trip.</span></span><br /><br /><span style="color: blue;"><br /></span></span><br />
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<span style="font-size: x-large;"><span style="font-weight: 700;"><span style="color: blue;">Now this is something ELSE entirely!</span></span></span></div>
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<span style="font-size: x-large;"><span style="font-weight: 700;"><span style="color: blue;">23rd May my wheelchair did a nasty 'twirl' and broke my leg and my elbow, and i incurred a further crush foot injury - same damn wheelchair at fault.</span></span></span></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6X9Z-VCiiQpmQwYwTFg4mA1SG2b2E385iMZAI971bpn43FQlJ0cLuoNAFPXWaJiZVSaB71Zi3RQl1fLZE1ZA12Nbpek-1IY-CuFjxmrRFyv2UnL__cbOpVznfpsfGf3DSEbO3SICGXMeK/s1600/broken+leg+and+damaged+foot.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6X9Z-VCiiQpmQwYwTFg4mA1SG2b2E385iMZAI971bpn43FQlJ0cLuoNAFPXWaJiZVSaB71Zi3RQl1fLZE1ZA12Nbpek-1IY-CuFjxmrRFyv2UnL__cbOpVznfpsfGf3DSEbO3SICGXMeK/s640/broken+leg+and+damaged+foot.JPG" width="480" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: blue; font-size: x-large;"><b>Not good, already broken leg, already broken elbow, never expected the busted foot. Braced leg because i would never have managed a cast, dog and margaret gives me some comfort.</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3QGaawmVlD5c1YXtJMNQZZaXjkTjJhhs6geUmHEYyeRExHemy3XqoDQXVdmtHV1KWTNl8MqfGNnx6FtqcajcEXbHQJ1VBZ6ILKeq_hIIVgCHX-QKMV36hn45XmBdAO-lAObmLgHuJ8inC/s1600/broken+leg+and+dog.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3QGaawmVlD5c1YXtJMNQZZaXjkTjJhhs6geUmHEYyeRExHemy3XqoDQXVdmtHV1KWTNl8MqfGNnx6FtqcajcEXbHQJ1VBZ6ILKeq_hIIVgCHX-QKMV36hn45XmBdAO-lAObmLgHuJ8inC/s400/broken+leg+and+dog.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: blue; font-size: x-large;"><b>the comfort bit, telly and the dog</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjC9BCAtCVyGaKOmeRvW26SyK73JiDV8MYEffYK-fmLeMpsYulbuGusYg_tgdOYnhvWaDiuW8FthWaEnyxMJFCcEWKNmGOBmhu7yP8CyZtxfE2oYfSYOARbcFnZIj8O5RhJEpzaTNq7GNx9/s1600/bucket+improvisionation.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjC9BCAtCVyGaKOmeRvW26SyK73JiDV8MYEffYK-fmLeMpsYulbuGusYg_tgdOYnhvWaDiuW8FthWaEnyxMJFCcEWKNmGOBmhu7yP8CyZtxfE2oYfSYOARbcFnZIj8O5RhJEpzaTNq7GNx9/s640/bucket+improvisionation.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: blue; font-size: x-large;"><b>this should not happen in a 'modern society' on the 'UP' a bucket/storage bin being used as a toilet with improvisation for a grab rail, taken from the main bathroom</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2M1zjxAafuwC5UlY-ualCcKf3UEMXdGsi3xa8JIWsZD_7aYxCs-L6JtFnd7dXglKZ72UVjTGdnYsY1HzZZNZgOJzOCS9zb_oTldw7WL6tYMm-BcKhySYdmXr96fmS_d9zVk2st7d4uOdd/s1600/foot+five.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1222" data-original-width="1600" height="488" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2M1zjxAafuwC5UlY-ualCcKf3UEMXdGsi3xa8JIWsZD_7aYxCs-L6JtFnd7dXglKZ72UVjTGdnYsY1HzZZNZgOJzOCS9zb_oTldw7WL6tYMm-BcKhySYdmXr96fmS_d9zVk2st7d4uOdd/s640/foot+five.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: blue; font-size: x-large;"><b>The pain of this left foot was off the wall awful, and it was dreadful as it all could have been avoided, my too large wheelchair went into a door jam when the healthcare provider refused me a temporary smaller wheelchair to use while i recovered from the broken bones</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoI-3xaFpjvcBzu9JEwymaLmSBkAh7Qrn8Du0pUTdTSPdg_2VJVI9ZgFg-qiexxqiXsT6taPO5TIl7RRY6DZFO_8O00lGI9pPw2Wsrko7kM_fkeW6vt0RjVcL83GlBvkc2ae5F2QQmPkCC/s1600/foot+four.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1067" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoI-3xaFpjvcBzu9JEwymaLmSBkAh7Qrn8Du0pUTdTSPdg_2VJVI9ZgFg-qiexxqiXsT6taPO5TIl7RRY6DZFO_8O00lGI9pPw2Wsrko7kM_fkeW6vt0RjVcL83GlBvkc2ae5F2QQmPkCC/s640/foot+four.jpg" width="426" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: blue; font-size: x-large;"><b>this damn painful foot</b></span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-large;"><span style="color: blue; font-weight: bold;">damn foot! OUT DAMN FOOT!</span></span><br />
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<span style="font-size: x-large;"><span style="color: red;"><span style="background-color: white; font-weight: 700;">I </span><span style="background-color: white; font-weight: 700;">will end of a very light note ok? Or some are love notes, light notes and never to be forgotten notes, amen.</span></span></span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="color: cyan; font-size: x-large;"><b>Isn't she beautiful? My deceased Ana Chi.</b></span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="color: white; font-size: x-large;"><b>A never to be forgotten 'note,' just in case doctors do forget, and have forgotten</b></span></td></tr>
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<span style="color: cyan; font-size: x-large;"><b></b></span></span><span style="font-size: x-large;"><b><span style="color: white;">You never forget being shot at by an underage child with a gun, given she is an adult now and much changed, i post up.</span><br /><br /><br /><span style="color: #6fa8dc;"><br />AND THE BEAUTIFUL!</span></b></span></td></tr>
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<span style="color: white; font-size: x-large;"><b>As promised the truly beautiful, my baby dogs as adults and elderly, and my lovely twin sister, scrubbed up outside Dail Eireann a few years ago, with myself on her right.</b></span></div>
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<span style="color: lime; font-size: x-large;"><b>Them were the days!</b></span></div>
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Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-67191913726712189102019-04-06T22:31:00.000-07:002019-04-06T22:31:50.486-07:00Recipient of HSE medical and community care and BROKEN by it.<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I am broken by the engagement with the HSE, our Health caring services.</b></span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b><span style="font-family: "arial" , "helvetica" , sans-serif;">My twin, left and myself in RESPITE. we got five days away in a lovely place. we are assessed as and given allocated respite four times a year. we never get this of course. Despite being allocated as needed.</span> <br /> <span style="font-family: "arial" , "helvetica" , sans-serif;">it is badly needed right now. (they say I can get it, if I go into an 'old people's home. I won't as its not appropriate for me. Rightly so, and I have no choice which to me therefore would be 'enforced' respite against my wishes.</span></b></span></td></tr>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I was assessed and allocated hours in the home for care.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>in three months I have lost 92hrs of care, the HSE claim they cannot find anyone to fill the slot the lovely PA left when she retired.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I am exhausted from this engagement which the HSE was asked to engage in, in 2015 and yet here we are in 2019 with little or nothing to show for it. In fact its all getting decidedly worse.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I am suffering.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>It's very real and we are talking about human beings in this situation, not monkeys or dogs, or cats or zoo animals but real flesh and bones - human beings.</b></span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>we, as human beings have won the right to live as equal to those who are not disabled roughly this time last year with the ratification of the UNCRPD. I have seen no change in an anxiety riddled life cursed by the dynamic of dysfunction in my small country.</b></span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>we have sat at the mediation table for five years. - this to me is a waste of my life.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Each meeting produces 'action plans' to be done.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>we are talking about very little needing done.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>we are talking about what ALWAYS should have been done and although agreed in principle should be done, its just not getting done.</b></span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>The action plans have not translated into Action.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Anyone going to a talks table brings an agenda of issues with them.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>This agenda is not on the scale of BREXIT.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Its on a minor scale in the, er, scale of things.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Its two human beings against a very large organisation which was mandated to apologise, sort the issues and 'own' their responsibility.</b></span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I woke this morning screaming just that. I had a nightmare.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I have been sleeping with my twin sister on her put-up bed in her living room as my home has had no heating for months and I am ill and cold.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I woke at 5am screaming. I got tea and toast, and wondered if I would sneak out on my wheelchair and go home with my baby dogs.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Shouting out loud "sort these issues." I found myself in a small room with a few individuals, all of whom I know within the HSE. My twin was in the room, weeping in the corner.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I stood screaming at the main protagonist in the charade. Explaining in my nightmare that I am on morphine and other pain relievers saw me wake in a sweat.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>"Sort the issues," ringing in my ear.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>"Sort the bloody issues."</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I feel my life slipping away in a psychological mess and distress, a circus and extreme fatigue and suffering.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Many see it, all see it in fact. Those who want to see it, that is.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>The HSE felt very saddened at my 'impact' statement which I read out at the meeting before last.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>But nothing has changed.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Sadness and expressions of it, don't change practical dilemmas.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>It will not change, for instance, how individuals - identical twins are continually treated with extreme difference - even if both have the very same set of complex issues, bar one. One has severe arthritis and needs hip and knee surgery, but this is offset by the other who had a very bad fall and banjaxed her shoulder, and a written report that I have other serious autoimmune diseases which my twin sister does not and require the help (support letter from a neurologist).</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>My sister and I understand the bad treatment of pitting one twin is distress against the other.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Its the worst sort of dynamic which can cause havoc in a relationship.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I watch my care decrease and hers increase </b></span><b style="color: blue; font-family: Arial, Helvetica, sans-serif;"><span style="font-size: x-large;">for the past two years.</span></b><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif;"><span style="font-size: x-large;"><br /></span></b>
<b style="color: blue; font-family: Arial, Helvetica, sans-serif;"><span style="font-size: x-large;"> I have been in disarray, carers coming in ad hoc and now dialoguing the mess I have lost 92hrs of care allocated to me through assessment of need from February to this April 5th. </span></b><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>That is a lot of hours lost.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I am so exhausted I have asked if these hours lost, presumably unpaid to who was supposed to give it, is still 'banked,' could the HSE use the monies to give me a 'Respite Grant' to go chill out and rest, something I badly need.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>The Respite grant scheme has been changed. It's only for Carers.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I can only go into a nursing home aka old people's home and watch patients with dementia holding dolls and teddy bears.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I am not the human being now that I have reached 66yrs of age.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>There appears many dilemmas here in this case of identical twins.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Its not a complex case, its relatively simple.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I believe my rights in all of this have been infringed.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>we have to see this as a 'human rights' issue now as the suffering has become so great and severe.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>we are in an era which claims that we deserve our lives, to be as equal as many others.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I cannot see this playing out in mine.</b></span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>What I see happening is I am slowly dying in front of the Health Caring Service Providers and they watch on and say 'Too Bad.' and just hope I die soon.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I have let my local TD's and councillors know about my case. Nothing changes.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I have informed my own representative who happens to be the present Minister for Health. I have not felt his impact in this case at all. He should have acted in his role at the top of the chain in our healthcare services. Yes, the Minister for Health is the legal 'boss' of Healthcare in Ireland. </b></span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I believe the UNCRPD is been breached on a daily basis across the country.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-62047238341177744532019-01-29T07:46:00.002-08:002019-01-29T07:46:24.028-08:00HSE meeting - a new turning point<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbvs7BziPEPFzyLTOvsbXOhell1e0qj0WQSfh0upsor5Uxh6nCIKg7upx0q4bYUA-fc6TMOSX9p8-mzQOqYVyPpuJBZKYHD6JqgGjcPmFnSpDWULTwk2lvuER-bNtMcHejLxrqHA9loc5U/s1600/16836028_1457235697642593_2451275484681383985_o+%25281%2529.jpeg" imageanchor="1" style="font-family: Georgia, 'Times New Roman', serif; margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbvs7BziPEPFzyLTOvsbXOhell1e0qj0WQSfh0upsor5Uxh6nCIKg7upx0q4bYUA-fc6TMOSX9p8-mzQOqYVyPpuJBZKYHD6JqgGjcPmFnSpDWULTwk2lvuER-bNtMcHejLxrqHA9loc5U/s640/16836028_1457235697642593_2451275484681383985_o+%25281%2529.jpeg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="color: red; font-size: x-large;">I have had enough</span></b></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Turning tables around CAN produce a 'turning point.'</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Perspectives change and a new way begins which opens up new thoughts, ideas and people are seen I hope more as human beings, rather than 'done unto.'</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>we started the day and week with absolute dread.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This has been a fierce fight, for many basic healthcare needs to be met and more so too, perception of us as human beings who are only wishing for healthcare appropriate to the disease process.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>given we still have no diagnosis any turning point is welcomed in this 'frey'</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the tables in the room were turned, from a board room meeting to a class room style teacher at top and pupils watching and listening.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>ALL listened!</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the orchestra conductor was a seasoned consumer of the HSE care services.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Seasoned in debate</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Seasoned in understanding inch by inch the methodology used.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Seasoned in the language used, against her and the absolute 'fed up with that woman' approach which creeps in when all consumers want is care, sometimes only basic but sometimes very sophisticated, e.g. diagnosis for rare diseases.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the conductor asked me to read out how I felt.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>So I did:</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<b><span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">How I feel</span></b></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;"><br /></span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">I wake early these days and go to bed late.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">I am usually in pain, always depressed.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">Dreading another day of more of the same only words will capture how I actually feel.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">Helpless, hopeless, fractured and traumatised.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">Suffering goes without saying.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">Struggling is not my lifestyle choice, but its added to this list.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">An agonising wait for the 8am postman and the jump in terror as the envelop slips through, dogs bark.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">I open with sweat bristling my forehead.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">Will this be a day I have to flee up to twin in collapse or crying.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">HSE ‘stuff’ Doctor ‘Stuff’ yet again.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;"><br /></span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">Isolated from all I had known, I am lost in hostility all around.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">‘Leave grey stones’ scratched still on the van. Where the hell have I placed myself.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">Beaten and broken, I look out with empty joyless eyes. I have long gone from loving life at all.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;"><br /></span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">I attempt to live and thwarted daily. HSE etched on all surfaces, even my brain.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">My physicality deteriorating four years off seventy I just want to go home, be where I long to be and amongst safety, security, peace and calm.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">I never expected this or asked for it.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">I am in a hell.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">I attempt to soothe some hell from my twin sister and I try to phycialy fill gaps which I know I cannot do anymore, more tears, more pain in my limbs as I know I can’t do all that is expected of me.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">I want to sit on the pavement and just weep.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">I beg inside for the spiralling pain to leave me, someone to save me from it and let it all go away and I get back to what I know.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;"><br /></span></div>
<div style="line-height: normal;">
<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">I chose art for a reason, beauty, skill, aesthetic, it comes naturally that I use vision over verbal communication, I do what I do well, and I want to leave the rest.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">I never used language to any great degree, I couldn’t. I didn’t hear it enough to form good sentences, but then I heard enough to understand and others firing at me language and prejudice needs answers I couldn’t give, articulate and I was left in a heap with no skills at all, I felt beaten down to a pulp, and its ongoing and I am bereft.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">This is how I feel, it isnt a one day wonder, its permanent, and its persistent, its painful.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;"><br /></span></div>
<br />
<div style="line-height: normal;">
<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">Terror is a word I would use to describe my level of care across the board and the basic assessments and dismissal</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;"><br /></span></div>
<div style="line-height: normal;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The snot and tears ran in uncontrolled rivulets down my cheeks, my soul was bursting in grief, my heart thumping in agony and I was weeping as if it had come to this head - to them.</b></span></div>
<div style="line-height: normal;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>to ask them, to listen I could not take any more.</b></span></div>
<div style="line-height: normal;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>they listened.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the sensitive bit was the pensive responses which indicated for once - at last - I was heard.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I tried desperately to stem the stem of body fluids around my nose and eyes, with a lovely scarf I wore, wiping hopeless and more followed more, in drenches.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I do believe they felt shocked and saddened that so much was inside needing to be heard on how I felt.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>its been a long time like this - ten years.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>so its a lot to get out in a short two minutes.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>its shocking really that any very sick chronically ill individual, sits there bearing her soul to basically strangers who hold so much weight in their capacity to give the medical and social care mandated by the state for community care.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>if this does anything now to move forward a pace of care provision that is swift I would welcome it so much.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I am after all four years off 70yrs of age and ten years of stalemate is not something that I am happy about.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwUVfMn9BIm0yxfPneXI-PxNiy0rOCzpEINfcpdR9qgw6HVrJIG9TPLMVI_zjH6vTFCTL7cG8sK7DHVcS8YZ08ymXeXGOtJYCoa8wHBGj4GZ_iAje28qm8Dgm9tPK_6xvl5OQIn3K2O6nS/s1600/48908473_10156718094227348_3554550668297502720_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwUVfMn9BIm0yxfPneXI-PxNiy0rOCzpEINfcpdR9qgw6HVrJIG9TPLMVI_zjH6vTFCTL7cG8sK7DHVcS8YZ08ymXeXGOtJYCoa8wHBGj4GZ_iAje28qm8Dgm9tPK_6xvl5OQIn3K2O6nS/s640/48908473_10156718094227348_3554550668297502720_o.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>nothing more than bone tired</b></span></td></tr>
</tbody></table>
<div style="line-height: normal;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>life moves on not goes backwards, those years now are lost to me and my twin sister where quality too was snuffed out in this tragic fight for the care and needs to be met.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
<div style="line-height: normal;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>to be met with anguish and jumpy anticipation by me on the next accusation and the next derogatory statement and the many in the past going back so long.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
<div style="line-height: normal;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it has to be unpicked and examined.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>because it is so endemic even doctors begin to take up this small island approach of gossip, recently hearing a consultant had investigated me, yes and found information from 2009 which is unreal.</b></span></div>
<div style="line-height: normal;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>given the state of the nation, the over worked consultants, the panic of so many people in a public healthcare system which is failing so many a consultant has that time to ring three different entities on one patient and then write humdingers to the patient says a lot to me really.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>but baby steps have been made.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>today my head is singing.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the menieres is bizarre, the tinnitus is a band gone wild.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the exhaustion is a dancing awfulness on a moving body that wants to collapse.</b></span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">I felt beaten down to a pulp, and its ongoing and I am bereft.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">This is how I feel, it isnt a one day wonder, its permanent, and its persistent, its painful.</span></div>
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;"><br /></span></div>
<br />
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<span style="color: purple; font-family: Georgia, Times New Roman, serif; font-size: x-large;">Terror is a word I would use to describe my level of care across the board and the basic assessments and dismissal</span></div>
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Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-4255272748391166782019-01-14T00:17:00.000-08:002019-01-14T00:17:22.381-08:00HSE - further questions on my medical care need answering<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Who wants to go on Facebook and Twitter and splatter their details on social media?</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjETRVdrzlV9E-W7LdW-gU4yRRxYEd8PW6oTy5Moih5WJecUhXxWbsQ_K-Eanvz7Ju2l7Ov70VjSW5JrPJQSw_AYMGbNfzvMvmZlwd0lEaHrx1HEVYsLxs71jjpIBNVPo_zjM02_QnBfKWq/s1600/ann+kennedy+wishes+santa+2.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjETRVdrzlV9E-W7LdW-gU4yRRxYEd8PW6oTy5Moih5WJecUhXxWbsQ_K-Eanvz7Ju2l7Ov70VjSW5JrPJQSw_AYMGbNfzvMvmZlwd0lEaHrx1HEVYsLxs71jjpIBNVPo_zjM02_QnBfKWq/s640/ann+kennedy+wishes+santa+2.jpg" width="640" /></a></td></tr>
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<span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The worst year in over ten. The suffering has been extreme for twin and myself.</span></div>
<span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><div style="text-align: justify;">
I ask 'Santa' that if we could, would he allow me us 'be free.'</div>
<div style="text-align: justify;">
Allow a quality of life befitting those with chronic disease.</div>
<div style="text-align: justify;">
That I have my medical needs met in full.</div>
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I have access to therapies recommended</div>
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I have access to expertise, which isn't here.</div>
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Ageism is against the constitution where all are equal in law and under the constitution</div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Who wants to do this at the age of 66yrs?</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>If you try and mend a broken care system for very sick people behind closed doors and it fails where do you go next in a country like Ireland?</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Three years of mediation has produced incredibly little.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>this is my nudge to the HEALTH CARE SYSTEM, with special nudge to my local representative TD and Minister for Health Simon Harris.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I believe with 'good will', with a great dollop of maturity, drive, sensible decision making, my life could be a thousand times better and my quality of life uplifted - BY THEM, rather than be placed on the bottom rung of the population for quality of life.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It isn't an accident I am suffering PTSD at a severe level with one of the lowest quality of life within the population - as neuro-psychologically tested by a specialist in the field.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This isn't a massive, complex problem here.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>But questions remain and so I place them down to study, for your consideration and help us twins transcend.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>My sister and I are 'rare disease' cases.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<br />
<ul>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Why did a CEO claim that <i>'did you know that the Irish doctors have a different idea of how to care for you to that of the UK doctors?'</i></b></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>(I certainly did)!</b></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Why was every single MEDICAL recommendation since 2005 never followed through?</b></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Why would the HSE Healthcare funder enable two sisters travel out of the country under the E112 agreement only for recommendations made during the 'out' to expertise, never implemented on our return?</b></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Why has 'ongoing physiotherapy' never been supplied in any shape or form other than 4 sessions ever six months, the same as at the beginning of illness and now ten years on?</b></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Why do the HSE ask of me <i>'what do they mean, 'ongoing?'</i></b></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Is this not self explanatory?</b></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Why has the HSE never found me a Hydro-pool for therapy recommended by many Irish and UK consultants that I avail of hydrotherapy, ongoing to maintain my body - again ten years waiting.</b></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Why has the Irish state never really bothered about getting me a diagnosis for the complex condition I am suffering from which at present is unknown to my sister and myself?</b></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>How many can go through life knowing they are declining without a disease name, even if no cure?</b></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Why has the Irish consultant base never followed the recommendations that our disease process was most likely a primary muscle disease and further tests need to be done - (2016 and still not instigated).</b></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Why have I been left to die alone with no real considerations on my care.</b></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Why has the HSE not provided a key worker, better social care support and why do I struggle so badly even with the basic tasks of daily living?</b></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Why can an important investigation be found in our favour and upheld and the HSE successfully drag this out for well over three years, with a lot of denigration, accusation, slur and no real meat or substance presented on the table.</b></span></li>
</ul>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Can I please beg for the help I need in 2019?</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Will doing so deliver more bad practises and denigration?</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The needs, the care, the diagnosis and the maintenance therapies, are NOT overly weighty.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>They require planning and operational management.</b></span></div>
<div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This is not a complex case - in deed its incredibly standard.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I remind the HSE I am not bed-ridden, I am not peg-fed, I am not needing extensive body management or handling.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I am very sick with a complex disease with many facets that do need oversight, but with a good manager, good will, ability to deliver and a good heart and sensible management skills, this can all be delivered swiftly and should not take ten years to sort, and allow to fester.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>There are far too many GOOD individuals within the HSE so to me I cannot fathom this morass of a mess.</b></span></div>
Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-9307634424914550042019-01-13T14:33:00.004-08:002019-01-13T14:36:40.318-08:00HSE deny me access to information on my own files<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>It is very tough becoming ill.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbITUHDzB303UUVwq7rDu8voXxGAuDEIvKheD5tcGNK9Xmkht-6ep9P-PU2_xE_zMV8lk03lkhqHg21v6MOJKLmpcN1YJwt_5-g7hE577G3KADE8ALafVJ-Z1VyLUFGfcBYwebNG19gxqE/s1600/35225635_1966446733388151_6283793585070407680_o.jpg" imageanchor="1" style="font-weight: bold; margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbITUHDzB303UUVwq7rDu8voXxGAuDEIvKheD5tcGNK9Xmkht-6ep9P-PU2_xE_zMV8lk03lkhqHg21v6MOJKLmpcN1YJwt_5-g7hE577G3KADE8ALafVJ-Z1VyLUFGfcBYwebNG19gxqE/s640/35225635_1966446733388151_6283793585070407680_o.jpg" width="640" /></a><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>It is even tougher losing the community you loved and served for decades.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>It's grossly tough when you knew you had wonderful supporters in consultants and clinicians who gave their advice on what my housing needs were and what would suit me best when I was a very sick older woman with complex needs and difficulties and more and more using mobility aids.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>The toughest about all of this is the fact I was rehoused but so badly I do need answers from the people I had trusted - who will never get my trust back in any shape or form.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I have been very shabbily treated.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Working in an Inter-Agency fashion, the County Council and the HSE were discussing my housing in depth for months.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Sometimes I was present as was my identical twin sister.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>All references were given in by myself and some even directly sent by consultants, to the HSE and to the Council, good recommendations, accurate recommendations of my needs, my ways of living, how best I could be served and how I needed to be embedded in the community I loved and did so well in.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Questions have to be asked why major consultants professional opinions held no weight and I was shoved into a tiny backwater of prodominantly men who drank heavily and the HSE claim they never got to hear of it all!</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I cannot believe this.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>My question being, too, after being shot at in this new enclave I have this to say:</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<br />
<ul>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif;"><span style="font-size: x-large;">Why did the Healthcare service leave a very sick person in a dangerous housing situation?</span></b></li>
<li><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>What did the HSE do with all the letters/reports/advice/ recommendations made to them and the council, because they are not on the patient's community file. Where are they?</b></span></li>
<li><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Why are pages and pages and pages redacted from my view when I asked under FOI to receive community files.</b></span></li>
<li><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Why did the HSE close the file leaving me stuck in an alcholic enclave of men, alone, afraid and terrorised.</b></span></li>
<li><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>How could they do it when it is mentioned at a team meeting I was physically and psychologically declining in the social housing unit?</b></span></li>
<li><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>How could they do this and leave a sick person to the mercy of the men and walk away in the other direction, knowing I had made two suicide attempts there?</b></span></li>
<li><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Where is the file of the Director of Public Health on this case. He was a Director of Public Health of the HSE and no file should be erased during the lifetime of the living patient.</b></span></li>
<li><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Why do they refuse to speak of this time, allow me see the paperwork and claim files do not exist when one or two pages can be gleaned on the files I already have.</b></span></li>
<li><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Why did one consultant who made recommendations who now works for the HSE redact her recommendations to the council from my files after I left as a patient between the time she gave in the recommendations and sometimes after I left her. I was a patient of hers. these files are legal documents and are not allowed be tampered with. They are now not on file in recent FOI requests.</b></span></li>
<li><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Files are legal documents, you are not allowed tamper with them. Redactions of major recommendations for the rehousing of seriously ill patients, whom you advocate for a certain living arrangement to be missing off the hospital file is a serious offence in my eyes.</b></span></li>
</ul>
<div>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>to Me, the HSE has many questions to answer.</b></span></div>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span></div>
<div>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I have suffered badly having such a health caring organisation doing any community work for me.</b></span></div>
<div>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I have been left penniless, out of my county I yearn to return to, I have no means to make any decision, no means to attempt to get home.</b></span></div>
<div>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>the consultants all made sound judgements, but these get tossed to the winds.</b></span></div>
<div>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>why?</b></span></div>
<div>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>This is our healthcare service.</b></span></div>
<div>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>this is the only one protecting those who are sick.</b></span></div>
<div>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>did I feel protected when they walked away after I was shot at and attempted suicide in a situation where I was way out of my depth and which was dangerously violent.</b></span><br />
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Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-1678847660231087142019-01-11T16:03:00.004-08:002019-01-11T16:03:52.369-08:0038,2000 have read my blogs since I began - here is another<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCMQjLe8SfE8EAC1ggQ_QSHupBuBdBBWiIzCaj5z1m0jcp_AwWWjGKWLWAbhlBUvFY07e8p8CKV-gTEyV2Q2L23xcWJA7V2uaiN_7EuVVSWpWNFwMA1OKw-iL8Tg3X4nDl_8jtzIzJlZRf/s1600/_MG_9500+%25281%2529.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCMQjLe8SfE8EAC1ggQ_QSHupBuBdBBWiIzCaj5z1m0jcp_AwWWjGKWLWAbhlBUvFY07e8p8CKV-gTEyV2Q2L23xcWJA7V2uaiN_7EuVVSWpWNFwMA1OKw-iL8Tg3X4nDl_8jtzIzJlZRf/s640/_MG_9500+%25281%2529.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="color: red; font-size: x-large;">I want to go home</span></b></td></tr>
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<div style="text-align: center;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><u>2019. </u></b></span></div>
<div style="text-align: center;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><u>Happy New Year</u></b></span></div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The eve of a bright new dawn I was asked would I like a hint as to what day it was to be the following day!</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I kid you not.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Someone had had a 'senior' moment and thought the best way I was to be cared for in the Irish context during a daft period of Christmas/New Year was in a 'state of the art' nursing home for the elderly.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>"Happy new year" I responded directly to this hint.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>24hrs later I left or fled, take your pick!</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I wrote an angered missive to the HSE, yet in retrospect they did me a service - proving a direction I will never take and I also said angrily, I would rather shoot myself between the eyes.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It's been a grinding decade and more. So much promise when my twin returned to Ireland after 47yrs away. So much joy anticipated, so much living to be lived and grasped on the cusp of the impossible - disability in Ireland.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I wanted it all, the fun, the happiness, my life to ever begin and I felt all my tomorrows had come together the day my twin returned to her homeland.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I was SO wrong.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The break up of everything, my personal home, my personal community, my way of living, my strategies and coping skills obliterated because the HSE determined I could do better, that is - have a better quality of life if I asked for a safer home to live in. (they feared fire in an upstairs social housing unit).</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I wasn't for turning.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>- but I turned - through heavy persuasion.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Again, the HSE had one of their first senior moment when they didn't seem to be aware I had landed like a lamb to the slaughter in a dangerous situation far greater than fire.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Guns.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Drunks.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Danger</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Isolation</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Fear</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Entrapment</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEifbhfW2txj_iAoBs6v64x228z-p2qnR6NWht6eMFExP63lHLM7W1EgpAeRf-GEid5RdmORGktDuAyVWbr9Rv4I9eNalhiu2-5pu6FH8a2VQ_3DlceKaDFg_ueRHEwuBERoRYqfXiioJZym/s1600/girl+with+gun+luppie.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="460" data-original-width="307" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEifbhfW2txj_iAoBs6v64x228z-p2qnR6NWht6eMFExP63lHLM7W1EgpAeRf-GEid5RdmORGktDuAyVWbr9Rv4I9eNalhiu2-5pu6FH8a2VQ_3DlceKaDFg_ueRHEwuBERoRYqfXiioJZym/s640/girl+with+gun+luppie.jpg" width="426" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="color: red; font-size: x-large;">This wasn't my idea of a better quality of Life</span></b></td></tr>
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<br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I was without the ability to even open a wheelchair inside to full width to sit on or do anywhere there, no wifi, no tv no nada.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Even the ambulance couldn't find me.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>So embedded, left and finally shot at, I fled.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_B86PyH2L1qmnHBxxybfS0KZ9UL5flIKQgbPLMRky2cesErSopteTrIXylGnc_CJXUNLIOx7MGN6XVi9cxyGoZvU1-cqv4hSr3bt5K77uUdV25FryS2TULX0EZ-Go_tGmJD1OrHXYfIEL/s1600/IMG_6050.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="270" data-original-width="360" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_B86PyH2L1qmnHBxxybfS0KZ9UL5flIKQgbPLMRky2cesErSopteTrIXylGnc_CJXUNLIOx7MGN6XVi9cxyGoZvU1-cqv4hSr3bt5K77uUdV25FryS2TULX0EZ-Go_tGmJD1OrHXYfIEL/s640/IMG_6050.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="color: red; font-size: x-large;">Though very sick, I have always explained my needs - so have consultants, far too many - so too have advocates - far too many.</span></b></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>now penniless, the HSE followed, and words from the HSE followed and to the present day words spit out repeatedly against the all the findings of the "Brophy report" they do exactly what he castigated them for doing in making 'wild sweeping statements.' My life is hell and burdensome.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>There is no attempt to improve it, though I fight on, as we all do and must.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>There has been the 'talk' and the 'ponderous,' words such as 'complex case.' </b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>All serious in this serious complex case of ours, I think is simple from this side of the fence, very simple.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I am not being peg fed, I am not being spoon fed, I am not been lifted during the night, man handled in having to need washing, dressing, turning, nothing like that.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I simply am posing problems they seem unable to solve or unwilling to. I cannot determine which - yet. Even after ten and more years.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I am in hell.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>That is all I know and I know my age (66yrs) and I know the year (Bravo, Ann)!</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I want 2019 finally to end the hell and I snitch a bit of happiness back home where I belong.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The duty of care was to follow at all times directions made by medical personnel who named my living abilities, disabilities and needs - all ignored the first time round and still being ignored the twetieth time over and more besides.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I will give them a chance to shine, I think they would like that. They would have to want to. I cannot do that for them.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Its not impossible. We are not sorting out the complexities of the USA, for instance.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>There are many good people working within the ranks of the HSE.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>So why can they not sort two sisters 'OUT?'</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The battle now for basic medical care and a diagnosis, treatment, therapies and social care has been pitched for too long.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I was left during 2018 to help in the home equal to that I was receiving in 2005 when first ill, and some parts of 2018 saw less and yet I decline by the day.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Home is where I want to be and where the 'WHO' talk of as being <i>a place a person is familiar and comfortable in, within her own kind and what she is used to.</i></b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6nQ_F2Tx0LcC-edSJ1aHPKydfgYJQzIef-83F1_0-vG-eOCs5KBp9nVBKAvgvdr1j_7gRMTk1zRrOVCAtGU1MihuoIvtHfEKUGhDakPzvmIA2jsN3OsNbxTKDfASh4OxohwF2xjJ2NiGp/s1600/DSC00139.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6nQ_F2Tx0LcC-edSJ1aHPKydfgYJQzIef-83F1_0-vG-eOCs5KBp9nVBKAvgvdr1j_7gRMTk1zRrOVCAtGU1MihuoIvtHfEKUGhDakPzvmIA2jsN3OsNbxTKDfASh4OxohwF2xjJ2NiGp/s640/DSC00139.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="color: red; font-size: x-large;">2014- We are sick here in Queens UK and we are sicker to day - give us the care we deserve</span></b></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I need care, a European policy and directive on both chronic care, neurological care, and rare diseases care has been embraced by Ireland, but the shining has yet to come as in <i>'C'mon, HSE shine on these policies, and shine them on my horizon please.'</i></b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Shine through on paper in all fields and disciplines is no good, the books are closed and fail to reveal the light of it all.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>This isnt what I had planned for my life as I lay in a UK hospital bed and returned to Ireland to - Nothing.</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Shine where it needs to, on the citizens of the state who beg for the help.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I beg my life will change this year before someone or other is standing over my corpse.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>(an event I envisaged towards the end of 2018 lying on a trolley in A'E with chest pains for over an hour without even a name tag. Lying there thinking that next time they saw me could be in the hospital bushes having made the grand escape. </b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Luckily I bypassed the bushes, made the escape and asked them 24 hours later - <i>"did you miss me?)"</i></b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Naw not at all, doesnt matter if I had my own senior moment and a fit in the grounds ending pitched headlong into their bushes, aged 65yrs, a senior. <i>(it wouldn't look good for the doctor stake holder hospital that). </i>Yet they didn't care a toss, and didn't miss me either.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Please get me home.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Please get me a diagnosis.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Please get me treatment and care.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Bring on the sunshine, kindness and care.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Out black spot with the constant abuse and derogatory remarks and the prejudice against me.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgK96yP5EAlUb-jA3kw0TcwQEsOhb5Dl_xANA1OMR0xublZ_xPCjxQRUG4iaASBAl2i4Fo0vPNDDXBuGob0O3CimmoFwXALBGsXhUhfByfs7lHLIiNRIomp0PoMl_ncBlsmbWXtHI8HUEzB/s1600/_MG_9919.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgK96yP5EAlUb-jA3kw0TcwQEsOhb5Dl_xANA1OMR0xublZ_xPCjxQRUG4iaASBAl2i4Fo0vPNDDXBuGob0O3CimmoFwXALBGsXhUhfByfs7lHLIiNRIomp0PoMl_ncBlsmbWXtHI8HUEzB/s640/_MG_9919.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>It had always been YOUR shame, the way you treated the Kennedy Sisters, always.</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It's a big black spot of the state on fragile lives, ending their lives in such trauma.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It's a crime.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>its their crime against two sixty six year olds.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I hope they shine.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Surely to God someone in the organisation is capable of that?</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I may be wrong, I may be wrong, I may be very wrong.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Truth is, (do they like the truth? NO,) they have destroyed me, my life, my hopes and taken away the best part of ten and more years, the lot of them - to date.</b></span><br />
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<span style="color: red; font-size: x-large;"><b>I want to go home....I want to go home...I want to go home....HELP me achieve this in </b></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>2019</b></span></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSCcdYuk2K7tRrwOMrjD4qkrySrge8LQrZmrOPzHORXVS5_K3LYkLkFthYh_vy7fLtfyW1m9xa6Cuxol3c6S-SLal7dPzh3nn1U4kPIGc-GfDeG5VfLVo1zBdLkiUqdOabxlD6XnXybD4n/s1600/_MG_9500+%25281%2529.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSCcdYuk2K7tRrwOMrjD4qkrySrge8LQrZmrOPzHORXVS5_K3LYkLkFthYh_vy7fLtfyW1m9xa6Cuxol3c6S-SLal7dPzh3nn1U4kPIGc-GfDeG5VfLVo1zBdLkiUqdOabxlD6XnXybD4n/s640/_MG_9500+%25281%2529.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>bring back this van to pick up my already packed boxes in prep for getting back to where I belong...</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-81698914263232808782018-09-07T14:49:00.001-07:002018-09-07T14:49:19.638-07:00suffering and trauma continues unabated<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjsEu3OWYRjpU3Wb6beSoK-wxpwj4HWPdBqEKVyBAVxmvxKD_NflmpOHYUd6FbUrBGbSNGZqHFJMQxeZV_eTMBDowe8QsDmJ5gTApUran3KTo7LbBMYEJ6rYZB4zQl8RDTysGEvUqeUpkJU/s1600/mags+and+simon+coping+opening.jpeg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="940" data-original-width="1600" height="235" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjsEu3OWYRjpU3Wb6beSoK-wxpwj4HWPdBqEKVyBAVxmvxKD_NflmpOHYUd6FbUrBGbSNGZqHFJMQxeZV_eTMBDowe8QsDmJ5gTApUran3KTo7LbBMYEJ6rYZB4zQl8RDTysGEvUqeUpkJU/s400/mags+and+simon+coping+opening.jpeg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>The launch of "Living well in Wicklow" 2013 by<br />TD Mr Simon Harris, now our Minister for Health. Getting him to discuss health with his nice neighbours the twins is impossible.<br />That is my twin sister, now a shadow of her former self but eager beaver once to make a difference in our new county where the minister for health hails from. <br />it is stormy here.</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">there is nothing 'normal' about my life anymore. </span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5IgHrZEmV3bTQTfHtidoF2iRFheVKbGXibSIqik2BBf1cJwYyLsMXEkrXs1gNenwnF6LRUEnOYof_QxbK8Boap8AISJpkuO-7ouE-FTD36m7WIR5rqrrntXDjYey38_krq3Vr08mul-gr/s1600/ann+in+dun+laoghare+flower+pots.jpg" imageanchor="1" style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large; margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1179" data-original-width="1600" height="293" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5IgHrZEmV3bTQTfHtidoF2iRFheVKbGXibSIqik2BBf1cJwYyLsMXEkrXs1gNenwnF6LRUEnOYof_QxbK8Boap8AISJpkuO-7ouE-FTD36m7WIR5rqrrntXDjYey38_krq3Vr08mul-gr/s400/ann+in+dun+laoghare+flower+pots.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">'she has an expressive smile'<br />(so said a cynic of a consultant)<br />me as the flower girl! i do smile, it's a nice one, its the body that is fucked doctor</span></b></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i do not speak about having a disability or being a very ill person or being a rare diseases patient in a small country.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i am talking about the impossible task of living a normal life or even remotely akin to normal as i struggle against the odds to get what we call the recognised 'fundamental rights' which we uphold here, as europeans.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i struggle to get the acknowledged pathways of care for 'chronic diseases', (yes, we have a plan in Ireland for that), neurological care and pathways (yes, we have a plan for that too here) and 'Rare diseases plan' (Yes, this was launched by the then minister for Health Dr. Leo Vladakar), who is now our Taoiseach, head of government and country parliment.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">My local TD and representative of the citizens of this town and county is a neighbour, is the Minister for Health, i voted for him.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">the Department of Health which he is head of claims that the Department of Health has nothing to do with heath and i am to contact the Health Service Exec.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">believe me i find this strange - the World Health Organisation claims that the Healthcare system in Ireland is run by the Department of Health, and if you look at some of our wonderful graphs and pictograms, there is a pyramid of tiers of importants and structure within our healthcare system. Who is at the top, like the star on the top of the spikey christmas tree? The Minister for Health, of the Department of Health who claim to me a citizen, they have nothing to do with Health.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">that to me is very spikey.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">an update will find that i now am seriously ill, with a progressive neurodegenerative disease which is progressive and includes myopathy, complex autoimmune diseases, dystonia/parkinsonism and severe deafness with congenital rubella syndrome (not considered to be the cause of the rest of my medical mess of a body of mine.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i have had this now a long time, and the fight began then, it continues and very little achieved.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">lets look at where we are at.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">there were needs to be fulfilled by the healthcare system as top of the clinical medical teams are consultant medical doctors. </span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">we do not have any centres of excellence for any known group of diseases, in ireland. we have none that fit the criteria set by the European networks for centres of excellence.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">we have no real expertise in anything but we do have some excellent doctors here, just lack a cohesive plan of expertise for multidisciplinary care for very specific and difficult conditions.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">but when we are sent out of the country to centres of excellence, where actually you can get no better opinions, reviews and medical advice, sent out for the advice, the reviews and considerations, what comes back to the country is ignored.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">why send us you may ask if it is ignored.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i ask.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i wont find answers.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i will get one from a CEO "did you realise that the Irish doctors have a different take on how to care for you to the UK doctors?"</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Yes, i reply i do its called "go home and die!'</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i have rights to medical care under the european plan for care and i have rights to use even centres of excellences throughout the union.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">but i am not being allowed use the unions policy on cross border care and use expertise when i need it badly.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">the Irish state will not implement what is recommended by those who know far more than we ever will, and i will be dead before we ever have one place, hospital, unit, discipline that will be declared 'a centre of excellence' matching 'european standards to meet that criteria and designation.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">with 17 separate conditions, and this is not with the neurological decline included i receive the following:</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">no therapies whatsoever.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">hydrotherapy was first requested in 2005 - still not being offered.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">neurophysiotheraphy assessment - never had it, recommended in 2015, isnt it time i had this after all this time being so sick with a progressive disease?</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">is it not time to do an assessment of need for this do you think?</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">can we vote on that?</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">a guided neuro-therapy programme taking into consideration the co-morbid conditions, (the consultant means here, that i tire very easily and have a metabolic disfunction that can be evaluated on a test we do not perform in Ireland at all, no one even knows what the name of the test means, and that is our consultants).</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">to be honest a therapy of maintenance would be better than nothing, nothing isnt therapy, and my body knows this and feels it.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i receive no real medical care, its sort of pitch in the dark and statements such as 'it is probably...' but "Probably" is not a diagnostic term, its a vague sort of 'well, it could be or it could not be or it could be related to or it could not be.'</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Do you get my drift?</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">it drifts onwards out to the horizon and the world is not round but flat.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">chest pains in ireland doesn't look like the ambulance programmes you see on the telly in the country nearest us.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">it doesnt mean you are air lifted, whizzed off to be in any intensive care or coronary heart department and instantly attended to as in life and death situation.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">what happens is, you can die here because the nearest ambulance is 80miles away.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">you can be put in a corridor next to - wait for it - 'the chest pain assessment unit' on a night there is no consultant on duty of any description whether it be nephrology, neurology or cardiology. nada.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">he could be at the yacht club and if there is a prob. the registrar will ring.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">nope doesnt happen.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">what happens, you are put in a corridor, you are not labelled as a human being with a name and left.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i was waiting for two hours before i asked a young rushed doctor when i will be seen by a doctor, 'who are you?' he asks.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">good question.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">a tough one too if the person who i am becames a cadavar in the state of post pasting to the next world and end in the morgue with no id, they are going to have a field day finding out who the hell was that lady on that trolley in the corridor about three rooms down to the left, right again and then left and behind a door and in front of a man and behind an old lady and opposite a sick young lady with her partner and next to the station with three nurses at it looking at screens but blocked by a wall with no window to see that the lady has had cardiac arrest and no one sees it happening and no buzz words or sounds marks the alarm that a dead is impending will all drop everything and bring the electric pads just in case to blast the chest of her before she is a nameless blob in the morgue.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">we cannot afford to lose staff in detection work.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">what does this patient do?</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i walk, still with the chest pains.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">and it takes me a further hour and a half to get out of the hospital.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i walk from A'e pass what is a war zone of bodies absolutely everywhere, no consultant but many very young registrars or even students drafted in to fill gaps in the missing expertise, of which we have little here.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i walk with my blankie, they are now not providing pillows and blankies so i come prepared to my hospitals with a blankie at least.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i walk and no one batts an eye lid, i just walk past the war, and i move into the next, thats the war zone ready to implode in the waiting room which is filled to the gills again of the sick and ill and battered and cut and split and bleeding.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">out the door i go, walk around the building in the dark and try find a phone to get a taxi.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">this is a woman who has a muscle wasting disease, no wheelchair (ambulances here wont take your wheelchair into the hospital with you), two sticks and a blankie walking the dark alleyways of an Irish hospital seeking the escape route plan.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">gp's saying 'did they not hook you up to a moniter?' mystified, but in reality we all know our A'E's which now are called ED as if we are one of the more sophisticated kinds.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">we are crashing the parties of the real ED's as seen on telly calling ours that is a stretch too far.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">so i am still here, still no medical care, still cannot get out to centres of excellence, still cannot fecking move for care.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">still no bed.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">still no wheelchair review to make it more comfy for my battle riddled back in a bucket, sophisticated yes, but not person centred as it stands.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">no therapies which were recommended in 2005, 2009, 2010, 13, 14, 15, 16 and 18 i kid you not, ongoing physiotherapy is met with:</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">"what do they mean by 'ongoing?"</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">that is our HSE exec, and professional asking me the lingo definitions here.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">well i ask my facebook page and get versions from the US of A and the UK and further afield and the Oxford dictionary is at everyones disposal and so too is any google app as anything from toenails to nails to bad teeth and coronary heart disease is now cured through google mostly in ireland, for you cant get the real mccoy here.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i use it all the time to bring me knowledge cos i cannot get it in a human being here.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">so progress is in my self invented eye-medicine, that is i-medicine, in wiki style.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i am hating all this.</span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">its taking its toll on my health and sanity and terrifies the flipping life out of me.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">meanwhile i am taking the odd photograph which are turning out well indeed.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">but apart from that, life isnt living, its barely existing and arguing with the HSE is not a past time, a hobby or an education, its a disease and a profession at this stage.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">thats progress report. </span><br />
<br />
Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-70756384510491725802018-07-14T04:01:00.004-07:002018-07-14T04:01:54.970-07:00Neurology - medicine - Autism - THE LOT<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8JmaenOoC2PUReNnASmUvx9LG40mUXytceH6DCzBRRvmDrMv14e7BM09vWkE_YN1Q-tNs_lZDwmpCXseii_ODOW6x7rxlYda74JQhfZsrum0gQUPo1-sijio5n8jkOjSv1rcNXmSZ7U6B/s1600/_MG_9961.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8JmaenOoC2PUReNnASmUvx9LG40mUXytceH6DCzBRRvmDrMv14e7BM09vWkE_YN1Q-tNs_lZDwmpCXseii_ODOW6x7rxlYda74JQhfZsrum0gQUPo1-sijio5n8jkOjSv1rcNXmSZ7U6B/s400/_MG_9961.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>BORN EQUAL ACCORDING TO THE CONSTITUTION</b></span><br /><br /><div style="font-size: medium; text-align: start;">
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I am BACK!</b></span><br />
<br /><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>writing blogs were the last thing on my mind in recent months.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhad1s1PN3_iCFPquIXyAWMqfQpDaZQJxcEy2Sw6V7imVON3dSVoD2uaXcxbuzjC8PlsGePV8OgqDLqh-_z3pAcrGlaCC56egM-91KtHgrPYOiqkyb5E-tHXSaoc5Hppv94rbF7Bj4dKSUU/s1600/ecp.JPG" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhad1s1PN3_iCFPquIXyAWMqfQpDaZQJxcEy2Sw6V7imVON3dSVoD2uaXcxbuzjC8PlsGePV8OgqDLqh-_z3pAcrGlaCC56egM-91KtHgrPYOiqkyb5E-tHXSaoc5Hppv94rbF7Bj4dKSUU/s400/ecp.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>BEFORE 'ILLNESS' I WORKED AS AN EQUAL CITIZEN, PAID THE SAME WAGE AS EQUAL FOR A JOB WELL DONE.</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtd8dXCmhGOGOAbrpupWmTiLuhxk0DKv61i9S2cPsJDxTXZ795iffgAj8SxKS5HPix7bvAz8w-ISNHjoYP8LU1Mg4XzZGie2bR0HOJlh-u1z0E8TXLz3BSfvH0BOK7DRXRGF3EeggLv1Pb/s1600/studio+carlisle+pier.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtd8dXCmhGOGOAbrpupWmTiLuhxk0DKv61i9S2cPsJDxTXZ795iffgAj8SxKS5HPix7bvAz8w-ISNHjoYP8LU1Mg4XzZGie2bR0HOJlh-u1z0E8TXLz3BSfvH0BOK7DRXRGF3EeggLv1Pb/s400/studio+carlisle+pier.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I COULD CREATE EQUALLY WITH THE MOST CREATIVE. I PAID RENT AS EQUAL TO OTHER ARTISTS AND I HAD A QUALITY OF LIFE EQUAL TO ALL. <br />THIS IS MY STUDIO I LOVED BEFORE I BECAME ILL.</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiO_8xyOXDtnzE_3f3_0XdS_j_fXKao0zfiSW_1m6JptWlVJF-M7sWfQzlxIu_kAj3JwK6Eho6EODmNR_2JG6qggmHWyRiZvQBnWaakK6r8V9vQjUC3IgPqmM4pJCqG_qdUyLcxOZ3BP8u/s1600/exhibition.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiO_8xyOXDtnzE_3f3_0XdS_j_fXKao0zfiSW_1m6JptWlVJF-M7sWfQzlxIu_kAj3JwK6Eho6EODmNR_2JG6qggmHWyRiZvQBnWaakK6r8V9vQjUC3IgPqmM4pJCqG_qdUyLcxOZ3BP8u/s400/exhibition.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I EQUALLY HELD EXHIBITIONS AND SOLD WELL.<br />THE ONLY INEQUALITY DUE TO 'DIFFERENCE' BEING, I WAS ISOLATED, LONELY AND HAD ASPERGER SYNDROME. IT DID NOT PREVENT EQUALITY IN CREATIVITY AND ABILITY.</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPBZ5EtS8LeoZbWnjjzYYipUCCsaG4Nu-sdHrf4xUDKTqX91QMOPiQZxwAtkFG3DqSxpgv1o0T7enzRYX13joBhUF5CQYKim1R5DuZ2TpKd2lIEenfPxhwBazL4aieHU7YrsvpSzWytLes/s1600/writer+with+artist.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPBZ5EtS8LeoZbWnjjzYYipUCCsaG4Nu-sdHrf4xUDKTqX91QMOPiQZxwAtkFG3DqSxpgv1o0T7enzRYX13joBhUF5CQYKim1R5DuZ2TpKd2lIEenfPxhwBazL4aieHU7YrsvpSzWytLes/s640/writer+with+artist.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>SHY AND RETIRING I DID NOT 'COURT' AN AUDIENCE AND PETRIFIED IN THIS SITUATION.</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>dealing with healthcare consumed me to such a degree I really felt as if I was drowning.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I came to the veritable 'full stop.'</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Breaking a wrist did not help.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Doing my back in compounded my sense of despair.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Fighting a large organisation for basic medical and auxilliary care and supports had now become a 24/7 nightmare and a hell on earth.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>My life as it once was had passed by ten full years - I want it back - I still want it back.</b></span><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDk2n46xPcZueTsm5twysOKO3Ai6umyro76kefDLIAgI-fi2IpV3nDxMCY6hXkz1cdbeDBkhkKgnXwcuLp9R88BK80QLy7U6gGxNweMrmZyZkWy8iu4ndKlsUMcWyfzjOop92LyIHz22Bq/s1600/before+london+ireland+and+duchess.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDk2n46xPcZueTsm5twysOKO3Ai6umyro76kefDLIAgI-fi2IpV3nDxMCY6hXkz1cdbeDBkhkKgnXwcuLp9R88BK80QLy7U6gGxNweMrmZyZkWy8iu4ndKlsUMcWyfzjOop92LyIHz22Bq/s640/before+london+ireland+and+duchess.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>NOTHING PREPARED ME FOR THE MEDICAL DISREGARD. I BECAME ILL AND SENT HOME - LEAVING ME LIKE THIS FOR TWO YEARS IS NEGLECT. I MANAGED TO GET TO UK AND DIAGNOSED FIRST WITH SJOGRENS SYNDROME AND MUSCLE MYOPATHY</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTWz5QECwEYB75YysCOhWavi2BJbzffkF0rllWQZfXnpOxOrlb0AhfGJLuWd6AnuvFqpqNgLdL__4N7q-hBL7_PtlAw1KWhpfEajsW30FODYb6ILjuGK5El2JYLOpG4nZOTj371AynZuwx/s1600/trapped+ands+sick.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="425" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTWz5QECwEYB75YysCOhWavi2BJbzffkF0rllWQZfXnpOxOrlb0AhfGJLuWd6AnuvFqpqNgLdL__4N7q-hBL7_PtlAw1KWhpfEajsW30FODYb6ILjuGK5El2JYLOpG4nZOTj371AynZuwx/s640/trapped+ands+sick.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>VERY SICK - ABANDONED BY ALL</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhiS8QsU4MuCn_Em5K_byo12x976fFNh2AvBoTK68PVmjcWLMl_C4yxGLvfoetjSlAZSUE8M0AmeJryNfLpGaf_gy_nMcnRs5KuYy82f6kBCISKxFx_CEKNmcTUoMUS9z8vxIZtg-0DPpDP/s1600/sad+and+unhuman.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhiS8QsU4MuCn_Em5K_byo12x976fFNh2AvBoTK68PVmjcWLMl_C4yxGLvfoetjSlAZSUE8M0AmeJryNfLpGaf_gy_nMcnRs5KuYy82f6kBCISKxFx_CEKNmcTUoMUS9z8vxIZtg-0DPpDP/s640/sad+and+unhuman.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>AN IMAGE SNAPPED BEFORE CROHNS SURGERY IN 2002, VISIBLE SLASH MARKS ARE EVIDENT. THIS DID NOT HELP IN MY PHYSICAL HEALTHCARE AVAILABILITY. I DID OVERCOME THIS, BUT THE RIGHTS OF EQUAL TREATMENT NEVER MATCHED MY ABILITY TO BE EQUAL.</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgD-NH09InmQ9dBonUUFv1KdXPuB9Jf5vWhT2bWjAlF3jiA5eDvBAn0UpRZTPl4TdJDYd0CTK7Vurcxjohk9Mh46NU-wJ3mbPjd3cclsIlwfWFZuYVzrL3L2FoKbJ4KyvPRLiGXyQ8hgIZY/s1600/sick+with+anna.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgD-NH09InmQ9dBonUUFv1KdXPuB9Jf5vWhT2bWjAlF3jiA5eDvBAn0UpRZTPl4TdJDYd0CTK7Vurcxjohk9Mh46NU-wJ3mbPjd3cclsIlwfWFZuYVzrL3L2FoKbJ4KyvPRLiGXyQ8hgIZY/s640/sick+with+anna.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>CIRCA 2009 I WAS VISIBLY SICK. STUDIO NOW GONE - THERE WAS NO MEDICAL CARE AND NO UNDERSTANDING</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjL75Liud77QSR_g_eQhyphenhyphenvBaRJU86ujvaFxnaAmtNmcoT8eiFotHAThyfpJVsyylRNXsrmB4dkmiW-Ghix_t1CLbALBAlL38X9OGdvzm_B3AJGM26eerep6kW0QyMjkKWF-WjgOM4z2kqCs/s1600/recommendations+ignored+for+housing.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjL75Liud77QSR_g_eQhyphenhyphenvBaRJU86ujvaFxnaAmtNmcoT8eiFotHAThyfpJVsyylRNXsrmB4dkmiW-Ghix_t1CLbALBAlL38X9OGdvzm_B3AJGM26eerep6kW0QyMjkKWF-WjgOM4z2kqCs/s640/recommendations+ignored+for+housing.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>THE HSE DECLARED MY SOCIAL HOUSING UNIT 'A FIRE HAZARD' AND SUGGESTED I ASK FOR REHOUSING - EVENTUALLY PERSUADED NOTHING PREPARED ME FOR FALL OUT.</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRy413oWCH-CCEWj4sbXQXuVRSw-HulNkKemvgXdQoM34GoeSfDLDcDSdr0Q4N_-bQOIXPCCPN8h_8KXZ4bSp43Dajcuxwrhh_0Dgdw6Pm-_UQGcyyFLRuNdhF0ujShhgJoZIzl635P07V/s1600/_MG_9980.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRy413oWCH-CCEWj4sbXQXuVRSw-HulNkKemvgXdQoM34GoeSfDLDcDSdr0Q4N_-bQOIXPCCPN8h_8KXZ4bSp43Dajcuxwrhh_0Dgdw6Pm-_UQGcyyFLRuNdhF0ujShhgJoZIzl635P07V/s640/_MG_9980.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>RESULT - MEDICAL MISMANAGEMENT AND HSE DYSFUNCTION - RESULT - FALLOUT ON A MAJOR LASTING SCALE.</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirvvvY4x4vUsEwMxfc9GHiamH_3YX2818Bd3R5nAKqcngdDfAAc2xuE7k47cb27z0YX6ze574Vf3q2nKdqYq1MY6Ahyphenhyphen8DZa4HThWuqPl_M7qoAFsWQksfKBklVRAZzB02nzrr9hWC-ymKI/s1600/eggs+thrown.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirvvvY4x4vUsEwMxfc9GHiamH_3YX2818Bd3R5nAKqcngdDfAAc2xuE7k47cb27z0YX6ze574Vf3q2nKdqYq1MY6Ahyphenhyphen8DZa4HThWuqPl_M7qoAFsWQksfKBklVRAZzB02nzrr9hWC-ymKI/s640/eggs+thrown.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>YOU SHOULD NEVER PUT SICK AND VULNERABLE PEOPLE IN VIOLENT SITUATIONS WITH ALCOHOLICS WHERE SHE WAS IN DANGER</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBNKd6BFC95nfy3wRbLadv5jQ3RyJPW9aKYdMJkPhAAKCSkonJHIi_h2qGiCLqbGKbAy44y9UKbIwLznPry14C5wlG1AVs0JbaffRq03RImj8yjv187G36GzAmWeSUFIgku9X-8U2msToc/s1600/better+tortured.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBNKd6BFC95nfy3wRbLadv5jQ3RyJPW9aKYdMJkPhAAKCSkonJHIi_h2qGiCLqbGKbAy44y9UKbIwLznPry14C5wlG1AVs0JbaffRq03RImj8yjv187G36GzAmWeSUFIgku9X-8U2msToc/s640/better+tortured.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>HOW THEY TREATED ME PRODUCED THIS IMAGE.<br />HOW I REACTED IN STRESS DEFINED ME TO THEM IN TERMS I NEVER IMAGINED</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgP4H5KzsnzZSZ4vAL1pNO5-3VS87pPMBOlazhljhyphenhyphenRG8EbTDT5IaxK-wtT15dJ9R1jAj3rD22ALygeBxZK2uX2cDwfhIKrVEjeL9MrWFS5PAdJFp8T3F4yxFSxkBHnKcsW-HMAoNeyBVit/s1600/soon+after+i+was+ditched.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgP4H5KzsnzZSZ4vAL1pNO5-3VS87pPMBOlazhljhyphenhyphenRG8EbTDT5IaxK-wtT15dJ9R1jAj3rD22ALygeBxZK2uX2cDwfhIKrVEjeL9MrWFS5PAdJFp8T3F4yxFSxkBHnKcsW-HMAoNeyBVit/s640/soon+after+i+was+ditched.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>TEAM MEETING - HSE VERY AWARE OF HOUSING DANGERS - BUT IN THE END THEY CLOSED THIS FILE ON A VERY SICK INDIVIDUAL.</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgobXOGwqVeapN9PVjzc-usLDXekbZgKvRib1U3vAjpPkVLxRyM4hlU5MjWFbR0KKe5-jcF9XTQGKiz6im0fV_vxccxooCrZiQuuFSyTsF5YpVijvjPsoqFtTIPLhVERZgcmqN-wIDehsS2/s1600/mags+feet+on+sofa.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgobXOGwqVeapN9PVjzc-usLDXekbZgKvRib1U3vAjpPkVLxRyM4hlU5MjWFbR0KKe5-jcF9XTQGKiz6im0fV_vxccxooCrZiQuuFSyTsF5YpVijvjPsoqFtTIPLhVERZgcmqN-wIDehsS2/s640/mags+feet+on+sofa.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>A PICTURE PAINTS A THOUSAND WORDS. WE SOLD OUR ONLY ASSET, TWIN WITH PARKINSONS DISEASE SLEPT ON MY TINY SOFA FOR EIGHT MONTHS - WE FLED THE COUNTY DUE TO FINANCIAL CONSTRAINTS. THE HSE ONCE SEEKING QUALITY OF LIFE FOR ME ABANDONED ME.</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilJDMmxeHFk06di86DqSe7YGR6FWL4VWBB0S8XBhS-sjuJvsXYPgmkqWxAPpMxXsnobhuRlrPplr3g5lQdSQ6rPHO-y5MqmjGuaMMsoe17KK32cXfqlHgJWXIJleMG5Tk_XhfkYNlLji4t/s1600/trama+on+face.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilJDMmxeHFk06di86DqSe7YGR6FWL4VWBB0S8XBhS-sjuJvsXYPgmkqWxAPpMxXsnobhuRlrPplr3g5lQdSQ6rPHO-y5MqmjGuaMMsoe17KK32cXfqlHgJWXIJleMG5Tk_XhfkYNlLji4t/s320/trama+on+face.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I THINK IMAGERY SAYS IT ALL.<br />THE SUFFERING THAT ENSUED.</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I dream of the time I can paint and write.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>That tapping out distress, tapping out begging emails and letters ceases and that harmony will prevail. The care I receive will end with quality input from medicine and quality output at what i am best with - my creativity.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Lets look at where I am at.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Regarding engaging with the HSE, its as dreadful as ever.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>To me thoughts around</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><i>'Who do they think i am,'</i> </b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>springs to mind as i have spent long hours looking through community healthcare files.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>WHO THEY THINK YOU ARE is actually more important to them than:</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<br />
<ul>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">WHAT IS WRONG WITH HER</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">WHAT IS HER DISEASE PROCESS</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">HOW DO WE ACCOMMODATE THIS</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">HOW DO WE STREAMLINE HER CARE</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">HOW DO WE 'ENABLE' RATHER THAN DISABLE.</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">HOW CAN WE RELEASE HER TO BE AN ACTIVE CITIZEN AGAIN</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">HOW CAN WE SUPPORT HER IN HER END YEARS.</b></li>
</ul>
<br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>but actually the predominant features of the Healthcare system as I see it today is far from lived reality.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It severely rebukes the disabled and chronic sick individual.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Healthcare in Ireland is based primarily on loving, liking and behaving.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You actually have to be a certain person.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You cannot be anything other than 'perfect'.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the model for a viable patient and disabled person runs something like this:</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<br />
<ul>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">ENGAGING</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">COMPLIANT</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">WILLING</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">NON CONFRONTATIVE</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">LIKEABLE</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">AGREEABLE</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">NON DEFENSIVE.</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">NON ARGUMENTATIVE</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">A PERSON WHO NEVER OBJECTS, or SAYS 'NO,' </b></li>
</ul>
<br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>BUT MOST IMPORTANTLY IT IS THE PERSON THAT NEVER:</b></span><br />
<br />
<ul>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">SCREAMS</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">SHOUTS</b><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">USES NASTY WORDS</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">NEGATIVE</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">DEPRESSED</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">DISTRESSED</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">CRYING</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">BAWLING</b></li>
<li><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">YOWLING</b></li>
</ul>
<br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Personality presentation COUNTS.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It is fine for many if the road is less hard and easily travelled.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It is terrible if the road was never easy, if it was fraught with lifelong difficulties in general communication, and integration. Ones ability and issues around stress in engagement, skilled communication compromised over that of a person who was always able to be a party animal and had many friends.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>These types usually find a middle ground to negotiate difficult times.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>So here is the personality the HSE are failing to understand within this client.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It is actually important to know!</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>For starters - <i>no where in the files has it been noted that i have had frontal lobe brain damage from a young age.</i></b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This therefore is a profound medical omission. it distorts the medical definitions and overview of this patient and client</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><i>It has not been noted that i have brain lesions too from birth issues around being born with Congenital Rubella Syndrome.</i></b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>this being omitted from medical and community files or only briefly stated without qualified explanations is medically denying a reality for this patient. It denies the person a right to the full patient profiling.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><i>it has never been understood that i have only 20% hearing.</i></b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Lack of medical comprehension to these things is inexcusable, modern science, understand of deafness and impact has grown in the past decade and is understood and weighted as having 5 times disabling effects than ever once considered (World Health Organisation has upgraded its disadvantage)</b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>this is a massive deficit.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>you usually do not classify in percentage terms, but its easier to understand it in those terms.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>you cannot tell a person because you have great fluency, a nice accent and no issue with actual pronunciation that she is anything other than deaf. </b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Deafness began around seven years of age, so i had 'understood' language until then and the decline though significant in the early years became worsened in later years with 'menieres' onset and 'mastoiditis.'</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>So personality is further complicated with a very late diagnosis of Asperger Syndrome, this term now has been melted into the Autism pot as part of Autism and being on the Spectrum.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>but denial of both brain damage, deafness and autism is pervasive on community files.</b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Denying the medical evidence is medical neglect and abuse of power. It twarts the picture. It does not represent the patient. It effectively wipes a reality of complexity, medically defined, therefore files are incomplete. 'Weight of disease/complex issues,' is not reflective for the person nor for consultant or community care professional.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It is never written down in community team notes as being 'important to note' which i think it is!</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The understand of 'wholeness' of complete observation of persons with chronic illness and disability cannot be found either, within the medical field.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>When clashing dynamic of how a patient 'operates' in the 'functional' way of 'communication abilities' we inevitably have a disharmony.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You are not going to ever get a patient with such complexity to match your ideal.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Society has to be observant of 'difference'</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it has to adjust to facts. HARD FACTS being, disability is what it says on the tin, it pours out with the communication skills which are appropriate to these deficits.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You cannot ever make an autistic person into a neurotypical.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You cannot put brain matter back when its atrophied.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You cannot remove brain lesions.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You cannot give renewed hearing when it has died, and is effectively - <i>dead.</i></b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>When a patient therefore becomes sick, we have disharmony and only one person suffers in this.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The patient.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>People like myself and of course many others have their own ideas of how to care for any individual.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>There is a golden norm we wish to aspire to and its called: </b></span><br />
<br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><i>Best clinical practise for all</i></b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><i><br /></i></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I personally have my idea of how i should be cared for. I am not without intelligence and I am very practical, sensitive, and knowledgeable.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>That has not been damaged by the deficits i presently have.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i believe in Morality and Ethics.</b></span><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"> </b><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">'Difference' should not bring in its wake inferior medical care and inferior community supports.</b><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"><br /></b>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I am now 65yrs and this too can come badly against you as you are expected to go home and die off, irregardless of how unwell or disabled you are.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Again, i cite any country as a Morally Bankrupt society if it inflicts such suffering on the most needy as care should increase not decease for our older citizens of this state.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i don't intend to allow this happen and will demand equal treatment for equal illness as the rest of the youthful citizens.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Treatment of those with 'difference' has meant an inferior care system for us.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It is blatant, obvious and painful.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It crushingly defeats the strongest of us.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It attempts to deny and anihiliate the personality of spirit, spunk, genuine good intentions and the care for the greater good of the individual.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">Arguing for best practise in a badly communicated way is considered consistently as - 'she is aggressive, abusive' and a character/personality is defined from professionals meeting this as:</span></b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;"> </span><i>'here we have a disagreeable person'.</i></b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It says nothing of how that person deals with stress.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>But then if you do not put on the files medical evidence the person deals badly with stress and distress we are not heading for a winner here, ever. </b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This, I consider medically screwing the evidence for the benefit of the professional rather than the patient.</b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b> </b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><i>It is medical malpractise to obliterate the diagnosis</i></b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the black and white picture is very black for the consumer in Irish Healthcare.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">Try going to a consultant </span>(alone)<span style="color: blue;"> with a diagnosis of Autism, Severe/Profound Deafness, and issues around communication, deprivation of social inabilities due to a life of isolation when you withdrew from the world for decades.</span></b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Try carrying on an equal discourse on disease, care and diagnosis with this set of 'communication difference'.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It is impossible.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>you are not meeting my sisters here.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You are meeting a 'born with disability' person with newly acquired disability and chronic diseases of considerable complexity.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Missing this point entirely because I am articulate, forthright, intelligent and speak proper, misses the deficit marks entirely.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I speak sir and equally.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I am sir, different.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You will not applaud my screaming when so distressed its unbearable.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You will not applaud my meltdowns when you rubbish my illness and presentations.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You will not applaud my loud snide remarks, abusive phrases when you have brought me to the end of my personal rope and i am beginning to loathe every fibre of your being.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Denegrating me as a person who intrinsically never wanted this discourse or disease and who is pissed to the eye balls with the reticence and the rejections and the put downs will cause a reactive response every time. You caused it, Sir!</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You will not appreciate me telling you that for too long you have insulted me, defamed me, anihilated me.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You will not appreciate it when I attempt to tell you that although I scream and shout, I would not consider myself who you have decided to label me as.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>YOU decided that without my input.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>YOU decided that because it is convenient.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>YOU have decided that without looking at 'cause and effect.'</b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><i>YOU have made this judgement without looking at well observed, tested and diagnosed issues you have failed to note on the files with medical correctness that files should be complete and give the full picture.</i></b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>There is no warning that difference will present in this individual from the start.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>No doctor or community care officer has ever written such words of these as part of 'history' for this patient.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This woman in senior years presents with chronic disease and with a complex neuromuscular disorder of unknown aetiology.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Her social history has been peppered with disadvantage, isolation, exclusion and sadness.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>She has rarely engaged with the general community on a level expected of a citizen who is accomplished in communication.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>She is intrinsically vulnerable and has experiences not many encounter on a consistent basis. She has a history of sexual abuse, further impacting on trust levels especially with men.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This woman has an autism spectrum disorder, is severely deafened and shy and has a communication fitting her ability.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We must therefore at all times remember her lived experience we may never understand or have experienced.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><i>Best practise demands the following dialogue:</i></b></span><br />
<br />
<ul>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><i>She comes to me today nervous, terrified, with little trust but expects as is her right to be treated well and fairly.</i></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><i>we have a duty of care to respect her, do all we can to 'enable' her have a quality of life as all life is sacred.</i></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><i>we will endeavour to give her back her dignity and quality by enablement not denigration of body, soul and spirit.</i></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><i>we treat her with a preciousness because she is special and requires a sensitivity from us she may never be able to equally give in return.</i></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><i>we must never abandon her or make her feel pain due to her communication disabilities.</i></span></li>
<li><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><i>we must never make it worse for her than it already is.</i></span></li>
</ul>
<br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Alas my friends they, the medical professionals and the community care teams, have made this person's life HELL ON EARTH</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Labelling has been so defamous that its shocking.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Denigration is the order of the day.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Abuse, torture and neglect comes on a power that many who can fight back would have been able to stem long ago.</b></span><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>HOW THE CARING PROFESSIONS SEE ME</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>To me today as a person thus described above, my lived experience of those who should be better able to enable has been profoundly traumatising.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It has cut me down to worm status. Given me a level of despair and depression I never thought possible.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It has halted me in my tracks and stunned me as if shot with a stun gun.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i have been very heavily beaten and thrashed.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Denial of healthcare has been the result.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Many know that part of the story.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>How many know why it has happened?</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Ignorance.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Plainly I see this all as inability to deal with 'difference' and inability to accept that people are different.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The ability to need a person to be a certain way before you can treat them is profound here in Ireland.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It does lead for an easier life if a person is a 'yes man/woman' and pliable and grovelling and compliant.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It is not easy to meet an intelligent woman with high standards, expectancy but who has a different way of engaging in a conversation she finds almost beyond her ability.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>What happens then is anger, really on both sides as one trashes a person trying to be heard on a consistent basis resulting in a person who has had enough of the abuse and lash out.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>That part should make perfect sense.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You cannot have it any other way.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Anyone abused should react!</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Do I respect those who abuse me?</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>No, I do not.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You will never make a saint out of a person who is harmed.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You will never make me act saintly in the face of abusive practises.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You will never make me accept your perception of me and you cannot expect me to be in your terms 'normal' when its abundantly clear what we are dealing with here.</b></span><br />
<br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It is MY personal situation from hell. The anihilation is real. It happens because of the expected response from a disadvantaged person with so many health issues. You cannot ever conceive such a heavy disease burden.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Two consultants to date has named this as it is.</b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">one said in writing </span><i>'she carries a heavy disease burden.'</i></b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">The other considered me amazing and said to me as he wheels me away from a colonoscopy room, </span><i>'you have such a lot to deal with.'</i></b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Tears dribble down from the corner of my eyes.</b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">Will you look into my eyes and observe my distress of this </span><i>'heavy disease burden' </i><span style="color: blue;">and unrealistic expectations of the healthy and powerful over one single person who is doing her best.</span></b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The added problem is, I have now reached 65yrs of age.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I am expected now to go home and die and go home with even less service than I ever managed to garnish for myself.</b></span><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>YOU DEFINITELY FEEL IT!</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>So we have inequality here being played out on a grand scale.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpPzTbgW1jIKdR4wPl78h5z38plMhyphenhyphensHU6vdXYLF8ZjGXIQ29-NBD4SpreAI82EuGVOhUcPlgxubkdeea_oPHffAcEzQgmtukDouH1Q-_IDVygUuJG2zmQC6I6UVw3ZRdAVEZltxas5Sr5/s1600/free+strong+independent+now+protest.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpPzTbgW1jIKdR4wPl78h5z38plMhyphenhyphensHU6vdXYLF8ZjGXIQ29-NBD4SpreAI82EuGVOhUcPlgxubkdeea_oPHffAcEzQgmtukDouH1Q-_IDVygUuJG2zmQC6I6UVw3ZRdAVEZltxas5Sr5/s640/free+strong+independent+now+protest.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I DID NOT GO THROUGH SO MUCH TO LIE DOWN AND DIE NOW.<br />I AM NOT GOING AWAY WITHOUT MY FIGHT TO MY LIFE, QUALITY OF LIFE AND EQUALITY OF HEALTHCARE AND SERVICES.</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This person will not accept this.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I demand equality, despite all.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You are not allowed discriminate on the grounds of age.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You are not allowed discriminate on the grounds of disability.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b> route it out where ever it occurs.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Ten years of denying the therapies and treatments mandated by the medical consultants who mapped a plan for me has been denied me and my identical twin sister, i hasten to say.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I have yet to have anything implemented and now aged 65 it will be harder.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I want all to understand this - I will fight on, in truth and justice.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i will face this with my inability of communication but I will intellectually be able to tell you that it is against the law to abuse your power, to defame and to cause harm.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>All of which you have done to me.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it is morally and ethically wrong</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>but more importantly - it is acknowledged as a dynamic as being against the law.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>May i ask all the community care professionals as i end this discourse -</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>WHERE HAVE YOU HIDDEN THE MEDICAL EVIDENCE I GAVE INTO YOU WHICH NOW SHOULD BE ON MY MEDICAL FILES, BUILDING A PICTURE TO ENABLE YOU TO CARE FOR ME AS A DIRECT RESPONSE TO THE REALITY OF DISEASE, FUNCTION AND DISABILITY -</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>THEY SHOULD BE ON FILE, THEY ARE NOT.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>WHY?</b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: red;">IT IS NOT POSSIBLE TO KILL OVER A 'STRONG SPIRIT WOMAN' DESPITE HER DIFFERENCE AND INABILITY THROUGH DISABILITY, I AM INTRINSICALLY SOUND!</span><br /><span style="color: blue;"><span style="margin-bottom: 0.5em; margin-left: auto; margin-right: auto; text-decoration-color: initial; text-decoration-style: initial;"><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="-webkit-text-stroke-width: 0px; font-family: Times; letter-spacing: normal; margin-bottom: 0.5em; margin-left: auto; margin-right: auto; orphans: 2; padding: 6px; text-align: center; text-decoration-color: initial; text-decoration-style: initial; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px;"></table>
</span></span></b></span><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpPzTbgW1jIKdR4wPl78h5z38plMhyphenhyphensHU6vdXYLF8ZjGXIQ29-NBD4SpreAI82EuGVOhUcPlgxubkdeea_oPHffAcEzQgmtukDouH1Q-_IDVygUuJG2zmQC6I6UVw3ZRdAVEZltxas5Sr5/s1600/free+strong+independent+now+protest.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpPzTbgW1jIKdR4wPl78h5z38plMhyphenhyphensHU6vdXYLF8ZjGXIQ29-NBD4SpreAI82EuGVOhUcPlgxubkdeea_oPHffAcEzQgmtukDouH1Q-_IDVygUuJG2zmQC6I6UVw3ZRdAVEZltxas5Sr5/s640/free+strong+independent+now+protest.JPG" width="640" /></a><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I DID NOT GO THROUGH SO MUCH TO LIE DOWN AND DIE NOW.<br />I AM NOT GOING AWAY WITHOUT MY FIGHT TO MY LIFE, QUALITY OF LIFE AND EQUALITY OF HEALTHCARE AND SERVICES.</b></span><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"></table>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com1tag:blogger.com,1999:blog-3570848227107227695.post-37672310096840949372018-04-16T00:22:00.001-07:002018-04-16T00:22:45.426-07:00When Quality of Life reaches the lowest 20% of population<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Suffering isn't enjoyable.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Suffering is exactly what it says on the tin.</b></span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFENcDr1TWihyFWL1Oewqc8cvIZW-lXw4maizhXygjTFtyg4XDPXREEkgmy9CFHVFdxQ4bRN32iL_M2fAkecIn39WH_EKUMJY8Y477wV4mWXQuvvRodIAFJ3SvYTEBTs6lWZ_j3ZQQSO4p/s1600/16388003_10154857320202348_5573816790216419968_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="720" data-original-width="960" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFENcDr1TWihyFWL1Oewqc8cvIZW-lXw4maizhXygjTFtyg4XDPXREEkgmy9CFHVFdxQ4bRN32iL_M2fAkecIn39WH_EKUMJY8Y477wV4mWXQuvvRodIAFJ3SvYTEBTs6lWZ_j3ZQQSO4p/s640/16388003_10154857320202348_5573816790216419968_n.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the story of lives played out in spectacle never expected</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Torture too is abhorred the world over in all its guises.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFkSW1AP332YcZCBiwzkrtDePh-uKH5cPav9ueCegfbaM9FZB1VwWAS66T-xLWIwC_iK9NpgPj6pLASFP_8znhyphenhyphenAlvz6VS_BNDwd78PSrjCyAA2PdPZpaXjHsfaQGdh5kIAyN3RVN1LxRq/s1600/seven+years+of+hse+hell+damages.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="873" data-original-width="1559" height="356" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFkSW1AP332YcZCBiwzkrtDePh-uKH5cPav9ueCegfbaM9FZB1VwWAS66T-xLWIwC_iK9NpgPj6pLASFP_8znhyphenhyphenAlvz6VS_BNDwd78PSrjCyAA2PdPZpaXjHsfaQGdh5kIAyN3RVN1LxRq/s640/seven+years+of+hse+hell+damages.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Any fight worth the fight damages you<br />when you are very unwell.</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Remember there are many faces to that Torture.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it can be at the worst end of tragic and cruel wars, to the lowly silent killers of domestic abuse.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It can be anywhere in the middle.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It can be from the State and from the Public Services.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Countries can have a 'reputation' or 'suspicion' of being unsavoury, unpleasant, and undemocratic in its attitude to its own.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Countries can have a reputation for being a great 'crack,' a 'fun loving nation' a country can be the best place to live, and yet lurking in the recess is the cesspit of abuse and torture.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Gift wrapping away issues of abuse and torture is held in the best hands at the commercial counters of 'sell us well' stores.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Gift wrapping is an Art form in some countries, especially if it is needy of world attention and affection due to size, economic wobbliness and poor management.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>All these reasons, do not make torture in any shape or form, excusable.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I do not accept it in any form whatsoever.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>WHEN IT HITS TO YOUR DOORSTEP AND THAT OF YOUR LOVED ONE, YOU WILL RISE UP AND DEFEND THIS INDEFENSIBLE ATTACK, which i now am trying to do and have done for a solid ten years of grim endurance.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I am tired, bone tired of fighting systems of abuse,systems of anihilation and systems who actually believe far more in defending the indefensible than in those they were constituted to uphold and honour.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I am tired of our healthcare system, our denegration of the citizen to the lowest of the low.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I am fighting weary of the suffering across Ireland, for the elderly, the young, the very sick the disabled.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnko2NKNwkQWbd5M-0sq7VCemxvRd8oWaWMpLcWjdVDZwrzohHCWRwCtgNAu02u41FhEaxUGNDZnKeqMlgcXfewCPt6HK6KZJcg67gbChCCZmHn-I4h7BN5JIA338da7DEU_1w50-2oRCh/s1600/14124429_1277545345611630_5367088027842036613_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1103" data-original-width="1103" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnko2NKNwkQWbd5M-0sq7VCemxvRd8oWaWMpLcWjdVDZwrzohHCWRwCtgNAu02u41FhEaxUGNDZnKeqMlgcXfewCPt6HK6KZJcg67gbChCCZmHn-I4h7BN5JIA338da7DEU_1w50-2oRCh/s640/14124429_1277545345611630_5367088027842036613_o.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it was not a 'good life' but it was MY LIFE,<br />all i was given.</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I am tired and angered that the people we elect do this to us and hold themselves up to be some wonderful species facing the modern world with modernity.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>"we are a modern country" states Enda Kenny in his office of An Taoiseach, with indignant stance against the Roman Catholic Church not so long ago in history.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Say that to the trolley watchers, the nurses, the patients and the ones that have laid on hard rock trolleys for 40hrs at the age of 80 and more.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>When abuse hits home I guess that is where it hurts the most.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It has been a grim decade and we are in decline.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiN5-OoyDUfCnYTOJPsFbulEzdU5bCKrqCrp8MjqrM6-RzAUniNkRCUiYBu71lIpWA_58falMFDb7Ftcd97_yWLAKRdjbgv0QmB4PYK53PwSLAFTE9BDYjdIOkmKpLDvvJeS18iH9c3E8RK/s1600/16835858_1456404761059020_2725368531301007639_o.jpg" imageanchor="1" style="font-size: medium; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiN5-OoyDUfCnYTOJPsFbulEzdU5bCKrqCrp8MjqrM6-RzAUniNkRCUiYBu71lIpWA_58falMFDb7Ftcd97_yWLAKRdjbgv0QmB4PYK53PwSLAFTE9BDYjdIOkmKpLDvvJeS18iH9c3E8RK/s640/16835858_1456404761059020_2725368531301007639_o.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>not for the first time booted out of A'E and ending in another hospital very sick</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>My twin returned to Ireland after an incredibly valuable career and contribution second to none towards the less able. she gave to women who were victims of clerical sexual abuse, but she earned her crust showing a better way to treat children with disability and protecting them from abusive practises in care management systems.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_SKMes8hH116l_tI8-XiRhOVoe-Rlcg6mxnaYdxrUbzxQJf0S4rz2J9ukGRvHvox052UoWrXw9ChL_25mIwyj0moIwiy4JEgFw01sum8nXAbVV3yZqB2kQvT23yQH-cN4EdqIfx3QDXdr/s1600/ann+in+hospital+bed+copy.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1600" data-original-width="1262" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_SKMes8hH116l_tI8-XiRhOVoe-Rlcg6mxnaYdxrUbzxQJf0S4rz2J9ukGRvHvox052UoWrXw9ChL_25mIwyj0moIwiy4JEgFw01sum8nXAbVV3yZqB2kQvT23yQH-cN4EdqIfx3QDXdr/s400/ann+in+hospital+bed+copy.jpg" width="315" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>you never get use to Irish healthcare systems</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Nothing prepared herself nor I, given our decline through severe illness and disability for what was metted out to us for the past ten years.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNs2t-JOIo4POR9TEnTj7zPfJB4MRTydsI2WezV23cZfJv5zbAJYnyOySU6ntM-y6wRxBrZkpynRaTynMMW8vUWjTDnlblmOe4oHAs_Q1KBUKkUX2RfklRVPAoyxsHpjsd43NG-msgHOWf/s1600/29793262_10156094474807348_5469171207052084936_n.jpg" imageanchor="1" style="font-size: medium; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="306" data-original-width="306" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNs2t-JOIo4POR9TEnTj7zPfJB4MRTydsI2WezV23cZfJv5zbAJYnyOySU6ntM-y6wRxBrZkpynRaTynMMW8vUWjTDnlblmOe4oHAs_Q1KBUKkUX2RfklRVPAoyxsHpjsd43NG-msgHOWf/s400/29793262_10156094474807348_5469171207052084936_n.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>we all felt betrayed with the denial of our rights under the Optional Protocol which the government of the Day rejected when ratifying the UN convention on the rights of those with disabilities.<br />WE FELT BETRAYED<br />WE ARE TRAPPED IN THIS ABUSIVE VICE<br />IT ALLOWS NO WAYS TO SPEAK THE PAIN</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhytcqOfGsRKiYpNUxUQGc5734cHFETbkqkJYR-9-HJluje_zOEKbpsIRsyVs9KR8SKxPjO2PUY_ESvTrO-XgHV3uMGZgx7YN54oPz_fUcfbdDQ-YONO07RIGlVsCNbBe_MqRQvuXSfYQ63/s1600/000f1586-800.jpg" imageanchor="1" style="font-size: medium; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="450" data-original-width="800" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhytcqOfGsRKiYpNUxUQGc5734cHFETbkqkJYR-9-HJluje_zOEKbpsIRsyVs9KR8SKxPjO2PUY_ESvTrO-XgHV3uMGZgx7YN54oPz_fUcfbdDQ-YONO07RIGlVsCNbBe_MqRQvuXSfYQ63/s400/000f1586-800.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">REAL CHOICES FOR REAL LIVES IS NOT THERE FOR MANY<br />WE NEVER PROTESTED WILLINGLY<br />PROTESTS COME ABOUT WHEN INJUSTICE OCCURS <b><i>FIRST</i></b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b></b></span><br /><span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQdywRxk-n1DErxLFjV-9h6Jlgo-1Y5GgAPcVSSGyN8eQjs9G9hDJpT152ODn_KmOMaTyVUKzIyc9UGbSvG6qJ8OzwWcfwv-5mwDjPqABvFPuM9YEJdlbOyU4BKNkHqZZRXuNXdj3hEOxu/s1600/17499031_10155030467962348_6684668597472700106_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="674" data-original-width="674" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQdywRxk-n1DErxLFjV-9h6Jlgo-1Y5GgAPcVSSGyN8eQjs9G9hDJpT152ODn_KmOMaTyVUKzIyc9UGbSvG6qJ8OzwWcfwv-5mwDjPqABvFPuM9YEJdlbOyU4BKNkHqZZRXuNXdj3hEOxu/s320/17499031_10155030467962348_6684668597472700106_n.jpg" width="320" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUoxnEXgt7uHa16lccXgvmlrBcS0IJSSdLu0rsF2uoXJ5_SBZKLzY5uOT3L3SRfotBbAxzz2OhanhZz8NShL-Vt1TvxnigRAaoJweEqypyNOwqqLpW9C1EOIdRzyq5TJrS39BOVgR7wQMz/s1600/16427780_10154857319342348_5700447917076228925_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="228" data-original-width="221" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUoxnEXgt7uHa16lccXgvmlrBcS0IJSSdLu0rsF2uoXJ5_SBZKLzY5uOT3L3SRfotBbAxzz2OhanhZz8NShL-Vt1TvxnigRAaoJweEqypyNOwqqLpW9C1EOIdRzyq5TJrS39BOVgR7wQMz/s1600/16427780_10154857319342348_5700447917076228925_n.jpg" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxafpph1oPHWS8WLerqnUPX_79KflXxCuXm7moEalaFc7-uFuQ-Qn0CUeLa6tJUy3wCH6T81zu67264LL9nYYEVuVvmlHsp-LBWrV_KR_JDJVNxW0gmghz0Hr4OGsAilZDDUB7QTihsKYt/s1600/16427805_10154857309837348_1837270254742183387_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="320" data-original-width="450" height="227" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxafpph1oPHWS8WLerqnUPX_79KflXxCuXm7moEalaFc7-uFuQ-Qn0CUeLa6tJUy3wCH6T81zu67264LL9nYYEVuVvmlHsp-LBWrV_KR_JDJVNxW0gmghz0Hr4OGsAilZDDUB7QTihsKYt/s320/16427805_10154857309837348_1837270254742183387_n.jpg" width="320" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMRdq54VWZgOFl1S6ceQGMB2mre7fr7EKi9Z5uefsIhsllQhJxM33qJszptM2gSyPDSVc0cvWnqZLkGolsV_tu0kz9MLPMXoY2IJNrWladZX1gJ8l5et3PgsclJjJA7YafShawml7DAJv5/s1600/969250_10151754546257348_1646139754_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="533" data-original-width="770" height="221" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMRdq54VWZgOFl1S6ceQGMB2mre7fr7EKi9Z5uefsIhsllQhJxM33qJszptM2gSyPDSVc0cvWnqZLkGolsV_tu0kz9MLPMXoY2IJNrWladZX1gJ8l5et3PgsclJjJA7YafShawml7DAJv5/s320/969250_10151754546257348_1646139754_n.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>'taking this on'<br />was not by choice</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Driving wedges into our quality of life with reports now claiming we suffer severe PTSD and the reports also claim our quality of life rests at the bottom sector of society within the mass of 20% who has the worst quality of life within the citizen base.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhb70ayLWGrzmbLpic617QM9IhyXO4__lpSCiBIXYQnFLNbewqrtyuFJZby_sfJiXn7dBQH3V2f2mUhgclveuVwruIbaeZ1Tnxop7eZWKLPgvSaNRs7SU8HJr9nK_7bqT__a4dE89SoEiK2/s1600/_MG_0588.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1600" data-original-width="1067" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhb70ayLWGrzmbLpic617QM9IhyXO4__lpSCiBIXYQnFLNbewqrtyuFJZby_sfJiXn7dBQH3V2f2mUhgclveuVwruIbaeZ1Tnxop7eZWKLPgvSaNRs7SU8HJr9nK_7bqT__a4dE89SoEiK2/s320/_MG_0588.JPG" width="213" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBfX77deF2GlyCMfC2cw_r5QBRnLiWbJgvkxp17k24WemAPD_31QYZspRHrHAPA3Di-DWMH6NedAOdzM_dASgL1hfz-xinwbmicULV0XQIMGklFE6ZoAk3UZ6bVBVzphY-k8zqeogiOlIF/s1600/18739886_1561214907244671_2340791577107976699_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="724" data-original-width="724" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBfX77deF2GlyCMfC2cw_r5QBRnLiWbJgvkxp17k24WemAPD_31QYZspRHrHAPA3Di-DWMH6NedAOdzM_dASgL1hfz-xinwbmicULV0XQIMGklFE6ZoAk3UZ6bVBVzphY-k8zqeogiOlIF/s320/18739886_1561214907244671_2340791577107976699_n.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b> recent images<br />says it all</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This was caused and there was purposeful intent to smash our resistance to the mite of the HSE, an institution of huge proportions within this state.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The HSE, the mechanisms of the HSE are recognised within the world of the sick, the disabled, the poor and the needy as being a very harsh and cruel force against the people who are vulnerable and needy.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The way it operates is understood by all, it may be a secret underground, undercurrent, but it is well understood.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it is morally and ethically wrong to be cruel and uncaring if your role is in the caring professions.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it is a bankrupcy worse than the financial sort.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>its soul bankrupcy. It kills body and soul. It kills to torture sick and elderly in this manner, hoping that if you keep it up long enough the sick will turn away and not bother to ask for more.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Or ask for rights based care and consideration.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Those who fight for their lives are literally fighting for that quality of life which left them, spirited by pain and suffering and abuse, spirited away from all they had once known that brought joy of being alive.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We face a desperate end of anihilation by this state.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We have fought a battle for ten years now.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Most across the globe recognise this, and stand by us, many may do so in the silent manner of the Irish. We are not a very demonstrative nation when it comes to healthcare, at all.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Yet recognition is there and we are grateful we know it is.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I want to see closure from this situation. We have lost a decade of living and our lives put have been put on hold.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We have lost the ability to sense the joy in the juice of love and life.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We have lost the ability to look past this ghastly suffering as it still continues.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We want our lives back in total.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Today this is more about pleading, a pleading that sense will prevail.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It does no one any real favours defending the indefensible here.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The closure is for all.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Movement into a more positive vein is a worthwhile road to take.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Movement away from such intense involvement in our lives is worthwhile. All involvement requires committment of time,money and paper trails.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>No one likes to be hated to the core, as we do, due to injustice set upon us and our being, our character and our lives.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKlMqFxQ701GAX8XqX-1xrd1LDm2yzdRBxhUjRNugPl-xWYKXon2cenf03uOxnbyTMAyOpQxqxQDQj5BNKYzB7U_veranRlRYyiTOmZ_VzJYVqzRMN2kqdSCtCaBxnh5qD4MQxw9nPNJuh/s1600/16423095_10154857319817348_5589313188859591250_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKlMqFxQ701GAX8XqX-1xrd1LDm2yzdRBxhUjRNugPl-xWYKXon2cenf03uOxnbyTMAyOpQxqxQDQj5BNKYzB7U_veranRlRYyiTOmZ_VzJYVqzRMN2kqdSCtCaBxnh5qD4MQxw9nPNJuh/s400/16423095_10154857319817348_5589313188859591250_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>learning is the way forward. when wheelchairs were seen to be a problem, Margaret did a post graduate course in 'wheelchair & postural seating' course with Limerick University.<br />Learning is a way to tackle issues more than procrastination</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>No one wants to sit in the office and know they have to tackle the same tedious odious job of sorting out for another day the procrastination game demanded of them, wearing them down and giving no job satisfaction.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>No one wants to be an abuser.</b></span><br />
<span style="color: blue;"><span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>But they are, and there are too many out there.</b></span><b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"> They get paid for that!</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>What better way for closure in an Irish psyche is a handshake with a smile?</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Both parties divide, walk away from the table 'a peace process' in train, a sorting of a veritable mess achieved.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Back at the office the hands can be clasped to the gods above, "thank god that is done"</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>and we can go home and hug each other and say, "let our life begin twino."</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Please pray with us that tomorrow that this is the last sort of, trench warfare battle scene, where there are two victorious sides.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>'Them and us.'</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It would be a good feeling and a good day and a great outcome.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Remember the world does watch Ireland, we may be small and seem inconsequential, but i know the world watches this.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEGq5mI_sAKUI19TNB2eCjJ0DHugwZ4WFy3SS5kRsbNvlbShBKzK11Zue1d2wUInv15tNel5ffmhe1jOu9L2McIfwkZdrEW1kmzI-xjtDhGQulDrP1CKSlrzLhOnZOoFECA-l0hkqdJL7S/s1600/13503072_1219152718117560_6114291868173199861_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1103" data-original-width="1272" height="346" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEGq5mI_sAKUI19TNB2eCjJ0DHugwZ4WFy3SS5kRsbNvlbShBKzK11Zue1d2wUInv15tNel5ffmhe1jOu9L2McIfwkZdrEW1kmzI-xjtDhGQulDrP1CKSlrzLhOnZOoFECA-l0hkqdJL7S/s400/13503072_1219152718117560_6114291868173199861_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>many are too terrified to go 'public' on state abuse. the suffering is huge, fallout massive and there are consequences for action taken, it takes its toll.</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The reputation in our healthcare services has reached far and wide by now.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Many are spreading their pain worldwide, not only the twins.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Many say it as it is, and the face of the inhumane treatment is heard.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Ireland does work silently in these veins of communication.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Its not the enviable situation to be in to hear another country claim us as 'third world' in healthcare approach.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Far too often this is being said, to many not to a few.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj8JdWEoL_XHLtRJo9df3eexy7Xycto6heREzqzSJIP2jvZlM-sVyEwbbt2X1Ra1-n8ohskruKr4X31NEpHhpKJoVNmPUgnryn_ctPFn8RACqXIUQ3-ViccXS_AIgn5KJkFQbClgBKc9uh7/s1600/14207609_1285413564824808_6036191469946359133_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1200" data-original-width="1600" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj8JdWEoL_XHLtRJo9df3eexy7Xycto6heREzqzSJIP2jvZlM-sVyEwbbt2X1Ra1-n8ohskruKr4X31NEpHhpKJoVNmPUgnryn_ctPFn8RACqXIUQ3-ViccXS_AIgn5KJkFQbClgBKc9uh7/s400/14207609_1285413564824808_6036191469946359133_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>London underground<br />on the way to meet a neuromuscular specialist.<br />we look great!<br />we feel absolutely awful!<br />Looks mean everything in an country that doesn't fully understand complex diseases.</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Let us begin the beginning of an end to this.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Tomorrow we sit around the table,two 65yr olds going on 30yrs, who want life over the bed pan.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Sick yes, but needing our life.</b></span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Tomorrow we sit and hope that sense will prevail.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0CNaUX4Cd4yjTsz9Q3CLd9Y-P6qMzJoIwvs3vHV-iW4zwRvYmfjqQT_SQhRSUQQN_kVFDSoSwiDr3_3GUDCUaFQmwJQIicZM2vFO0PvvG6ehFVdOXlNsVOiHTWuTojsr40VJ3-jqXi8Uy/s1600/16298966_10154857316312348_8168935533038861820_n.jpg" imageanchor="1" style="font-size: medium; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="389" data-original-width="544" height="285" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0CNaUX4Cd4yjTsz9Q3CLd9Y-P6qMzJoIwvs3vHV-iW4zwRvYmfjqQT_SQhRSUQQN_kVFDSoSwiDr3_3GUDCUaFQmwJQIicZM2vFO0PvvG6ehFVdOXlNsVOiHTWuTojsr40VJ3-jqXi8Uy/s400/16298966_10154857316312348_8168935533038861820_n.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>ALL VOICES COUNT TO TALK THE STORY OF NEED</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Tomorrow we hope that the cruelty will end for us, we have endured enough.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg78Hp5Pyl_Ch5pOZOad9wEUfw8MxqfMp7YLVPqELpIgmxcsDH0H4o1NFGedcS2ig5EQe_b9WDIw7jPOW9h4rno6VE7ZODm7e1rvdo9OBrXiaGtAwYEodcRuevO4yS8Gv0-0qojOM8Y6gX-/s1600/_MG_5570.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg78Hp5Pyl_Ch5pOZOad9wEUfw8MxqfMp7YLVPqELpIgmxcsDH0H4o1NFGedcS2ig5EQe_b9WDIw7jPOW9h4rno6VE7ZODm7e1rvdo9OBrXiaGtAwYEodcRuevO4yS8Gv0-0qojOM8Y6gX-/s640/_MG_5570.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Margaret waiting to give an impassioned talk to the Transport committe at Dail Eireann</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Age Action, Friends of the Elderly, People before Profit, Simon Harris TD Minister for Health, Finian McGrath TD Minister with special responsiblity for Disability, Deirdre Clune MEP, Roisin Shorthall TD, Gino, John Brady, Caoimhghin O'Caolin TD, Thomas Pringle, Pat Casey TD, Independent Living foundation, AT Networks, Centre for Independent living, Neurological Alliance of Ireland, IPPOSI and far more have heard our story.</b></span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Many international organisations of note heard our story - Amnesty International, International Mito Patients, Researchers, clinicians, Patient Focus, Advocacy groups, Disability advocacy groups, and charities.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>CEO's of large organisations have been appalled at our plight, and stated such.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPa8_y-wOHtrogU4aVDDzlbMyt48dOFXXr96dGfhMOfWK8GueTBxtWd2_9qzLcbyCdIh99rYog45SyBq8BcE0vACzNVvkD2FTlDWizKxm6hanhLB0KOC-nUE4pdZbNdUmf3dkWyU7JT2ny/s1600/16402534_10154857320567348_3406550720479294048_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1562" data-original-width="1600" height="624" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPa8_y-wOHtrogU4aVDDzlbMyt48dOFXXr96dGfhMOfWK8GueTBxtWd2_9qzLcbyCdIh99rYog45SyBq8BcE0vACzNVvkD2FTlDWizKxm6hanhLB0KOC-nUE4pdZbNdUmf3dkWyU7JT2ny/s640/16402534_10154857320567348_3406550720479294048_o.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>saying it as it is, is never 'Pretty'</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>So too has RTE, Joe Duffy, Joe Little, Primetime, Newstalk, East Coast Radio, the Irish Examiner, the Irish Independent, the Irish Times, Twitter and Blogs, all carried features, video clips, news snippets and paper spreads on this case.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKtTXv_8g_7QXnr_IcO0Ey5dLsCsnFYI4I-u7Z0eNbgsyntd8H6RjR8kT9R_Pg5VldBzatV0eqAyx60YXtatDReik4zEZVq1td6tV4aqYDZikWmZZ4p7JjP4-Of4TIV9o_enKw8-NvEySk/s1600/16300058_10154857311057348_9111248214581476649_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKtTXv_8g_7QXnr_IcO0Ey5dLsCsnFYI4I-u7Z0eNbgsyntd8H6RjR8kT9R_Pg5VldBzatV0eqAyx60YXtatDReik4zEZVq1td6tV4aqYDZikWmZZ4p7JjP4-Of4TIV9o_enKw8-NvEySk/s640/16300058_10154857311057348_9111248214581476649_o.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>we may have angered the HSE<br />we are very damaged by this system</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Tomorrow 17th April 2018 is the day the war ends - or will it?</b></span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I would welcome a strong force of support in any guise it is to be activated, people power works, but it strengthens our resolve and should galvanise those to realise a Fight worth fighting is the Fight worth that fight.</b></span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Please be on our side tomorrow, in any way you chose, demonstrate the committment we have felt and seen for a full decade of our pain. We have been in chronic pain during this journey.</b></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-27496397945710167822018-02-23T01:10:00.002-08:002018-02-23T01:10:56.977-08:00My biodegradable brain - definitive diagnosis!<div style="background-color: white;">
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Achievement gave me a new way of dealing with disease and it meant ‘escape routes.’</span></span></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_WxLVuJUPrMPlmQ2-M1_yuTIn1ljiwuWJSO_hO_DBZ1wYo7VpXbjt-mh3y0hnE4iBxvS_7nRMoi44ltItygKi7GLs1wMLiqL8Vrs4UulJPCVEnWKcZEW1_5jWfFbiTKlCkNrY_1q47zWX/s1600/thumb__MG_9065_1024.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="724" data-original-width="1086" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_WxLVuJUPrMPlmQ2-M1_yuTIn1ljiwuWJSO_hO_DBZ1wYo7VpXbjt-mh3y0hnE4iBxvS_7nRMoi44ltItygKi7GLs1wMLiqL8Vrs4UulJPCVEnWKcZEW1_5jWfFbiTKlCkNrY_1q47zWX/s640/thumb__MG_9065_1024.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">chucked with no neurological care after being to centres of excellence abroad as a rare diseases patient - Ireland has reframed me as not worthy of either diagnosis, care, treatment - basically sent home to die<div class="separator" style="clear: both; text-align: center;">
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrH8GgxfJiRfqkEltfk6YfJ2lIKLJw2bijHeMwEtFq8yNU2KBhOV0gWgQNimfdNYUg5UfHitYqHwpYGmt22J_EuagOPfE1L-9p8av4JYmiePotWTpZBT_RctjEIliTw2lVZJjaY8raahhY/s1600/ann+will+fight.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1103" data-original-width="1272" height="554" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrH8GgxfJiRfqkEltfk6YfJ2lIKLJw2bijHeMwEtFq8yNU2KBhOV0gWgQNimfdNYUg5UfHitYqHwpYGmt22J_EuagOPfE1L-9p8av4JYmiePotWTpZBT_RctjEIliTw2lVZJjaY8raahhY/s640/ann+will+fight.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: purple; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">fighting a medical model of tyranny of the person is a tough road, my aim is to meet the beauty at its end<div class="separator" style="clear: both; text-align: center;">
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">These escape routes were to be come increasingly valuable as I stumbled along a healthcare system which seemed designed to test both my endurance, capacity to fight and capacity to remain calm.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">My ability to stay calm is not one of my enduring features.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Calmness is a pre-requisite for my wellbeing, noted as being an essential ingredient in any way I chose to live. I needed this calm.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I now was in new territory becoming increasingly alarmed.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I was in this territory alone, with no supports to counter face this.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I had transitioned once more from normality to completely abnormal ways forced upon me in an abnormal fashion because I was catapulted into a system of powerful consultants and I was not going to be able to manage any of this.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I left the consultant who labeled me as ‘<i>wanting Parkinson’s Disease’.</i></span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I did the right thing, no one would stay with such a slur or abuse of language or insinuation to a person who is honorable and kind and could not cope with such spiteful remarks.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Walking away I felt I would get the right consultant next time.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I chose another hospital. I chose to trust again.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">My first visit was made with the support of my identical twin sister.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Oddly, the consultant was more enthusiastic about requesting some paintings from me for his bare walls once he heard my ‘occupation.’</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Alas, he didn’t suffer Abstract Art well, so it looked like he was not going to get anything even if offered. I do not do pretty landscapes.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">He was a disappointed man.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Soon after another visit was made and a test requested by this consultant’s registrar for Huntingtons Chorea was put to me.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">This condition would be my death sentence, if positive. </span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">You gradually develop towards dementia and full incapacity.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I consented to be tested.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Learning years later having this test you must be in counseling and be genetically counseled in order to prepare for the outcomes of this because of its very poor prognosis.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I wasn’t.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I waited and nothing was forthcoming.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I continually rang the nurse, continually rang the department but nothing further was mentioned of this test once the blood had been drawn.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I was sent to the psychiatrist within the hospital.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">These notes are embedded in this hospital file and are shocking as some kind of construct was woven around the organic process of a slowly forming atrophy/dementia type condition.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Given this was in 2009 and I still remain with full capacity, the slowly forming progressive brain disease never happened. We are in 2018.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Further inquiry through FOI in 2018 found that a recent visit to this hospital and another consultant saw him extract the psychiatric reporting of that time, 2009 and pin it all on the blood results he had performed in 2016. </span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">He advised me to go home and enjoy what was left of my life.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I have to ask many questions here as my brain goes into a spin of intrigue and confusion (not from dementia I hasten to add)!</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">A signature was being given to my case. I was being framed.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">This isn’t TV entertainment. This is Irish medicine at its worst.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">It certainly, to me, sounded alarm bells within and fully confirmed my suspicion of their intent against me a very sick individual.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Any way you look at neurology here and my case you see a construct forming.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Within the space of two years at this hospital no tests were ever done to determine why I had a movement disorder, muscle wasting and a mixed connective tissue disease. </span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">There appeared no interest and no further investigations were ever done. We did have of course the psychiatric consultants ‘stitch’ me to the tapestry with lack of personal consent by this patient to be labeled the way she has been which is untrue.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">In brilliant academic language I was in their words just a woman with a progressive organic type of brain degeneration and a personality reflecting this organic degeneration.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">The book was effectively closed by consultant psychiatrists.’ </span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">No further inquiry made on Neurology. It did not matter that one of these professionals I never got to meet!</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Whatever happened the blood tests for Huntington’s Chorea you may ask?</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">There is considerable complexity in my personal understanding of this.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">It was never done.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">It is and remains as simple as that.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">It was sent to the The Genetics Department of a major hospital. It was found to have incorrect labelling and this was claimed by the hospital as ‘human error.’</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">We can all fully accept human error.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I cannot accept what happened next.</span></span></div>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;"> Genetics were informed that I had been discharged, the bloods were taken by a different team and they had no idea where the doctor was who took the bloods. (2007)</span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">This is not true.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I remained under the care of the same neurology team at this hospital for a further two years and was then discharged.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I threw what is eupanistically called ‘a wobbler.’</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">In the presence of a supporter who came with me to try and extract the test results from this team, I was not being told and I lost the preverbial plot.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I was discharged due to the atrocious abusive manner in which I dealt with the staff on that day.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Looking back I see this an entirely different way. To struggle for two years in effective communication through the normalized channels of contacting by phone and engaging in the clinic on ‘where is the genetic test results?’ for Huntington’s chorea’ being met with a file never opened is testament to how I tried to engage.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">If as above, the files contained the psychiatric reports of confirmation that I was going through an organic brain, progressive disease leading to a demented state then no file would be opened thereafter. </span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Of this condition, i wasn't informed of either, which is odd because i was the patient. Who is this very disease discription actually for, if not for the patient herself?</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">But witness to the fact recently with a mighty chuckle to all of this my GP tried to contain herself from laughing. </span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">“You have not got dementia!’ (ten years later)!</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">“No,” I laugh back “I do not”</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Within a year my dear mother on developing dementia, was feeding teddy bears.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I continue to feed myself, my sister, creatively.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I feed my van petrol and I can drive to Athlone and further and can manage money (what’s left of it).</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">The astonishing findings on this file, is enough to rocket any sane individual into a seething mass of fury, but alas although I see it now and it can all be discounted – we live in Ireland.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">A consultant running through these very inaccurate files, extracting physically data dating from 2009, (out of date data) and pinning it to the collar of his recent blood reports is shocking in extreme, occurring in 2016 and I have received no further help from him or his team.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">The suggestion to go home and ‘enjoy what is left to me.’ Seems now ‘staple medication’ and cheap.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Its cheap to scapegoat patients who are considered very rare and complex in this manner.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Labelling is never good, but this is at the extreme end of utterly atrocious.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Extremes exist and difference does exists.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">When differences of opinion and fabrication occurs the patient must stand up and call it, name it as it is.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">We have here a case of “the emperor is wearing no clothes.”</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">This well known fable from a different time and era attests to the fact that Asperger Syndrome was alive and well in that kingdom too.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Bluntly put this little child of observation squarely claimed a case of fabrication, denuding of a patient to a state of vulnerability and wrongful diagnosis is medical negligence, a crime against the hypocratic oath and a denial of duty of care.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">So says this lady delving into the intriguing world of semantics, power, and uncredible diagnostics spheres of Irish consultant disciplines.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Two or three major medical trips abroad to centres of excellence tell a very different story and in a very different way with a very different emphasis on the physical decline alone. Nothing further needs to be looked at.</span></span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">London 2016 - visit to see consultants inform us they consider we have a muscle wasting disease and more tests need to be done - to date they have not - they, instead (in Ireland) both have a different way to care for us than that of the UK, it is called 'go home and die.'</span></td></tr>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">When an eminent CEO tells me or inquires of me</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;"> “do you realize that the Irish Consultants have a different view on how to care for you than the UK consultants.” </span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I instantly say back, I am fully aware of the Irish ‘take’ on all of this.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">“go home and die.” is their wish of myself and my twin sister.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">It takes into account no consideration of eminent consultants at the cutting end of ground breaking science and research and at the forefront of managing disease complexities, to that of an Irish setting where consultants are struggling to keep up with its clients on a basis of even managing at all, anything in fact.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">When a patient receives a neurology appointment in 2016 for 2024 as a first appointment you begin to see where ‘flushing out’ such patients as my twin and I as a viable way of getting patients lost from the system easily to cather for ‘the real ones.’</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">The UK see it all differently.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">We are the REAL ones.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">They may have over 58 million citizens to deal with, but with limited means and time they dealt with us in an exemplary fashion. Detailing our case as vary rare and complex cuts no ice whatsoever once you return to Irish soil.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">They instantly revert to the lunacy of us and our case and I call it lunacy of Irish medicine to discount a far superior view and place us in a nomads land of complete and utter ‘entrapment.’</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">We have a power base willing and able to imprison us in such a way that we are powerless to effect meaningful change in any shape or form.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">The construct has been established, I am a person biodegrading like washing power into nothing therefore go home and die.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">This isn’t the case of solidness and soundness of mind, belief, my wishes and that of superior medical resources.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">The different way of treating us and caring for us is not our wish.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">We have not agreed to be sent home to die and be left to die.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">This is the meaning of power.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">It is degrading to label a patient forever in a vice of misuse of both disciplines and expertise.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Uk determined many things and discounted a lot including issues around my frontal lobe atrophy. This being the brain problem that got rocketed into a mass of washing up powder, by the shrinks here.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">When considering this brain atrophy it is minimal they claim.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">It has caused no pathogenic effect and I am not suffering dementia or nowhere near it.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I have not got a pathogenic type organic progressive brain issue and the atrophy most likely was there since birth and is not going away but likely not going to get worse, beside its not that BAD!</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">Its only minimally worse than normal and it has not changed over decades.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">We still cannot put to bed the theory of the washing up biodegradable brain matter.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">We cannot bring back a fact the brain is not going jelly like and I am still sick from a disease no one here is bothering to investigate.</span></span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">is this an image of a demented woman (2017) absorbing the essence of the scenery and taking professional photographic shots? when Ireland refuses to treat me, they allow me intellectually know degrading in body without even knowing why is a breach of my fundamental rights to both a diagnosis and to care in the European context of holistic medical input -since 2015 i have had NO medical care. Those who use wheelchairs can rise out of them, 80% can walk, i have a very strange disease type, i can walk for short periods, but mostly outdoors i am in a wheelchair. (you constantly have to explain)</span></td></tr>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">It is keeping twins trapped alone against our wishes with powerful men, usually men, claiming that is all that should happen.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">We say its not all that should happen.</span></span></div>
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<span style="line-height: 25.6px;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: large;">I claim its gross negligence and it is prejudicial against us.</span></span></div>
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Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-59359910937810953092018-02-16T09:24:00.002-08:002019-01-16T13:52:30.857-08:00'it has been obscene and torturous ten years' updated a year on<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTCu0eRlNGL3yEHhFeg4Zv_bICWAkC2wCoaWy8LpVeL0tvqKxjpIKVc7gtTGZrUejRYUzHragh8u64eb16OrU8J7wFX3vk-TdMfPx3DXKTKloWrmd2J-vJU3pLIL9pSnZKhKuYEZHoG1ol/s1600/ann+killiney+hill.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="373" data-original-width="328" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTCu0eRlNGL3yEHhFeg4Zv_bICWAkC2wCoaWy8LpVeL0tvqKxjpIKVc7gtTGZrUejRYUzHragh8u64eb16OrU8J7wFX3vk-TdMfPx3DXKTKloWrmd2J-vJU3pLIL9pSnZKhKuYEZHoG1ol/s640/ann+killiney+hill.jpg" width="562" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>i was about to lose my county, my financial stability, my everything.</b></span><br />
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<span style="color: red; font-size: x-large;"><b><i>One year on from posting the extreme suffering in this blog form, I update it tonight and say we both have been diagnosed with severe PTSD.</i></b></span></div>
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<span style="color: red; font-size: x-large;"><b><i>Nothing has shifted for a better life, in fact it has become unbearable suffering and agonising hell even engaging with the HSE causes deep distress.</i></b></span></div>
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<i><span style="color: red; font-size: x-large;"><b>We believe this cannot even remotely be related to a caring Health Service Executive. They can write their Twittering on being 'Values of the HSE' in 'little kindness means </b></span><span style="color: red; font-size: x-large;"><b>a lot, ' which I saw them write recently. I honestly think that it has now become the killing machine for two very very decent women who has suffered at the hands of officials of this organisation. </b></span></i></div>
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<span style="color: red; font-size: x-large;"><b><i>I fully am aware individuals can be selected as being good, but there seems a disconnect to realisation that managing this case in the way they are doing is extreme neglect and causing untold harm.</i></b></span></div>
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<span style="color: red; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><i>we want it to end. We need light at the end of the tunnel, we need closure, peace and to be free of the pain. </i></b></span></div>
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<span style="color: red; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><i>I beg the HSE to allow us this, we are four years off 70 years of age. </i></b></span></div>
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<span style="color: red; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><i>For God's sake spare the rod and save the children. We are not your property of yours, but you have been entrusted with the caring of my nation. I dont see this is a job well done, in this instance.</i></b></span></div>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">'Brokeness' caused by actual Healthcare services is not a position that any healthcare provider should be proud of.</span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>i was pretty much 'nobody' to ALL.</b></span></td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjsBfGtMQm5ZHiar4ef3c3ryDUFC8DyGiA0ll2IEjyB0QB94H2_uooYn8sP1OnkR51BDxnSnpd-wQbDGoc7_5AlkIA4Pxwe4DUxcUakDeMy05HaJaR_WNTxIA8fUfvkCuQcsB0d7ECyybZi/s1600/these+shoes+are+made+for+walking+2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjsBfGtMQm5ZHiar4ef3c3ryDUFC8DyGiA0ll2IEjyB0QB94H2_uooYn8sP1OnkR51BDxnSnpd-wQbDGoc7_5AlkIA4Pxwe4DUxcUakDeMy05HaJaR_WNTxIA8fUfvkCuQcsB0d7ECyybZi/s640/these+shoes+are+made+for+walking+2.jpg" width="640" /></a><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEifbhfW2txj_iAoBs6v64x228z-p2qnR6NWht6eMFExP63lHLM7W1EgpAeRf-GEid5RdmORGktDuAyVWbr9Rv4I9eNalhiu2-5pu6FH8a2VQ_3DlceKaDFg_ueRHEwuBERoRYqfXiioJZym/s1600/girl+with+gun+luppie.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="460" data-original-width="307" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEifbhfW2txj_iAoBs6v64x228z-p2qnR6NWht6eMFExP63lHLM7W1EgpAeRf-GEid5RdmORGktDuAyVWbr9Rv4I9eNalhiu2-5pu6FH8a2VQ_3DlceKaDFg_ueRHEwuBERoRYqfXiioJZym/s640/girl+with+gun+luppie.jpg" width="426" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>a girl with a gun was the final straw.<br />Being shot at is very threatening to a vulnerable person</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGQVgErKHVK6WMwjWYtOZ7riW6kO6W5aRazw4y0qK_nfZXtCCGau6YQZCs9Z3x8eLyLWxpv-rHZmu6_QWftbVV7KFm3PxggisczKUBCo8htyB0aPySpDPugO-_viovCOueJrLpZmITFcXv/s1600/IMG_1192.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="640" data-original-width="480" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGQVgErKHVK6WMwjWYtOZ7riW6kO6W5aRazw4y0qK_nfZXtCCGau6YQZCs9Z3x8eLyLWxpv-rHZmu6_QWftbVV7KFm3PxggisczKUBCo8htyB0aPySpDPugO-_viovCOueJrLpZmITFcXv/s640/IMG_1192.JPG" width="480" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>helping me escape when no one cared was my twin who took even bricks out to save me money i did not have and here we flee our county after i was shot at. Four years of consistent hell i had endured.</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEignCsbQ5NiXpSjALoY21MDYnNdopdtv47h2UPA77lkDg7SnhhdcQjVSx9xSExdt5dFbSZ19LIZlCFoRW3wYF9b8T4WAwc9Zo6WCQNnyjvRPBERh5ZRVkc__oKOQxusEJX9D4alct2y_yb7/s1600/_MG_9054.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEignCsbQ5NiXpSjALoY21MDYnNdopdtv47h2UPA77lkDg7SnhhdcQjVSx9xSExdt5dFbSZ19LIZlCFoRW3wYF9b8T4WAwc9Zo6WCQNnyjvRPBERh5ZRVkc__oKOQxusEJX9D4alct2y_yb7/s640/_MG_9054.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>state property i was put in but no state help when it was an ugly scene of terror for a very unwell woman placed badly in with alcoholics</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCMQjLe8SfE8EAC1ggQ_QSHupBuBdBBWiIzCaj5z1m0jcp_AwWWjGKWLWAbhlBUvFY07e8p8CKV-gTEyV2Q2L23xcWJA7V2uaiN_7EuVVSWpWNFwMA1OKw-iL8Tg3X4nDl_8jtzIzJlZRf/s1600/_MG_9500+%25281%2529.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCMQjLe8SfE8EAC1ggQ_QSHupBuBdBBWiIzCaj5z1m0jcp_AwWWjGKWLWAbhlBUvFY07e8p8CKV-gTEyV2Q2L23xcWJA7V2uaiN_7EuVVSWpWNFwMA1OKw-iL8Tg3X4nDl_8jtzIzJlZRf/s640/_MG_9500+%25281%2529.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>2010 a tiny home for twin sister Margaret was sold, two women in wheelchairs packed this house up, gritted the bottom of the slope for the removal van to enter a cul de sac. this should never have been allowed happen. (one up/one down, that all it was)</b></span></td></tr>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">'Brokeness' means that hurt has occurred and a life has been shattered into tiny pieces, not only a life but a soul and part of their whole raison d'etre has been twarted, disrupted, brutally crushed and smashed into broken bits.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3s1cXY3pV1gUTPzIec35pVTdMgt-Ff7EixnPlq-hqdBmQl-ePZ3bifbYq0a1sQCwGjJ-CmB6FJPvM6fUBeexblf75LL9FkJ_SRRYsjWO9cU3q_B_e4uVA0BdNgjw-QGW0UpP4sGGoP0ET/s1600/IMG_0396.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3s1cXY3pV1gUTPzIec35pVTdMgt-Ff7EixnPlq-hqdBmQl-ePZ3bifbYq0a1sQCwGjJ-CmB6FJPvM6fUBeexblf75LL9FkJ_SRRYsjWO9cU3q_B_e4uVA0BdNgjw-QGW0UpP4sGGoP0ET/s640/IMG_0396.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>such trauma, such exhaustion, such pain</b></span></td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_B86PyH2L1qmnHBxxybfS0KZ9UL5flIKQgbPLMRky2cesErSopteTrIXylGnc_CJXUNLIOx7MGN6XVi9cxyGoZvU1-cqv4hSr3bt5K77uUdV25FryS2TULX0EZ-Go_tGmJD1OrHXYfIEL/s1600/IMG_6050.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="270" data-original-width="360" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_B86PyH2L1qmnHBxxybfS0KZ9UL5flIKQgbPLMRky2cesErSopteTrIXylGnc_CJXUNLIOx7MGN6XVi9cxyGoZvU1-cqv4hSr3bt5K77uUdV25FryS2TULX0EZ-Go_tGmJD1OrHXYfIEL/s640/IMG_6050.jpg" width="640" /></a><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">When this happens it can cause lasting harm, enduring hardship and traumatic reliving of past events which can become a person's whole focus. Rather than focusing on a 'goodness' as opposed to 'obsessing' brokedness and how or why it occurred in the first place, causes indivuduals agonising sleepless nights and a sense that they can never find a way through the injustice of it all.</span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Vulnerable individuals are born but also created. Once vulnerable usually, always vulnerable.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">its a hard concept to grasp that even the outward appearance of strength, articulation and intellectual prowess can mask such a vulnerable individual.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">a strength of one with a vulnerability is actually to mask well their own vulnerability through their personal anxiety over it, their fears about it, and the pain of it.</span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">We all know the theory of those who show undue annoyance, who voice a lot and do a lot in time of injustice do so because they feel it so intently that it hurts, this is a mask of personal vulnerability.</span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">i have witnessed the slow erosion of personal confidence bringing about a brokeness of soul, spirit, purpose, love of life and love itself.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">i have seen it sap an individual of wellbeing and become stunned into a mute silence of unrelenting despair.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">This has happened my twin sister and myself.</span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I feel what has happened us has literally been 'watched' by society who failed to act on two women being slowly destroyed for no real good reason but bloody mindedness and obstenancy.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">It has been callous and cold,unrelenting, unforgiving and a torturous ten years for us both.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">we should not have to continue in this way for the remainder of our days.</span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">my twin came home a really happy person, full of expectancy and joy to be around her family and her twin sister and her attempts brutally dashed almost immediately. She tried to begin retirement, write and document her experiences which were good and successful and this now had been smashed asunder when a newly done up home had to be sold to get her twin out of a social housing unit from hell.</span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">ten years done the road, both sisters feel unsettled and in despair.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">both twins are caught up in a relentless bind of a fight for the rights to be treated well or better or fairly.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">there isnt a way that any one can contemplate twins with a severe progressive neurodegenerative disease should have to live,in any civilised society.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrTwGiqWpSp-JtlD56kVCB2i2U04TSSIkt33GDRP4KKdlylc-cqmZaUNy3P7yKXyHMa1CO4wmHg-v2SbS50JZnaZ0NgzVgWwbDolOOBJpOESjRZ8jV_mV8IDHQ20nbLkKd7ZCyIhHrxzLS/s1600/ann+and+mags+fran+veale.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="576" data-original-width="864" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrTwGiqWpSp-JtlD56kVCB2i2U04TSSIkt33GDRP4KKdlylc-cqmZaUNy3P7yKXyHMa1CO4wmHg-v2SbS50JZnaZ0NgzVgWwbDolOOBJpOESjRZ8jV_mV8IDHQ20nbLkKd7ZCyIhHrxzLS/s640/ann+and+mags+fran+veale.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>such trauma, such suffering and pervasive pain</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEit1EpT1opXCAVnEXV0zUxNKaJluJoOGxGsrdzlDt1tLo-0BI7_ocLmIw0g6_bDrFqh3P858fngq58j7ItHR3Qp1hI1ERZjpJAWnOLOf73ziIqKmxyTbR91JNHRMOzazC5decWQfyGr9Cll/s1600/21950914_1440857702697263_7008969822008765777_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEit1EpT1opXCAVnEXV0zUxNKaJluJoOGxGsrdzlDt1tLo-0BI7_ocLmIw0g6_bDrFqh3P858fngq58j7ItHR3Qp1hI1ERZjpJAWnOLOf73ziIqKmxyTbR91JNHRMOzazC5decWQfyGr9Cll/s640/21950914_1440857702697263_7008969822008765777_o.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>it shows, underneath these smiles is real suffering and undeniable harm done to psyche and physical health - taken in 2017 seven years after the one directly above, it shows.</b></span></td></tr>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">arguing the minutae, every day for ten years has been an appalling case of utter suffering.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2JwdOZq0Z0vrRFCC-gXPu1zJ6f9QKgw9VLvlsUwhpZgzWQ1CIMMERN4qLF9gsqHDY5O0UYRcypkZxjMHB61A0LvEgNg3pxUkUE_6huP1blHfA9yxn8c28YuccviXkk3QQjwUbgkafVgRN/s1600/_MG_9919.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2JwdOZq0Z0vrRFCC-gXPu1zJ6f9QKgw9VLvlsUwhpZgzWQ1CIMMERN4qLF9gsqHDY5O0UYRcypkZxjMHB61A0LvEgNg3pxUkUE_6huP1blHfA9yxn8c28YuccviXkk3QQjwUbgkafVgRN/s640/_MG_9919.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>even moving from trauma did not prevent more of the same, an utterly terrible time was ahead</b></span></td></tr>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">it simply has been an arguement, drawn out for this long for care, for consideration and for the once revered and honoured christianity ireland professed to uphold, the decency of the human being towards their own fellow man.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh15Hq0aZvkJGGpk77b_vrv3mwc_6GxZAFmnMtlGTCyLjebrZ2gJr172MdBf9514RqhhRxkUlLDQCy5h4MqKNw6Gf6nj1Gzp7BVOkeeow15kaxHfXqfFWHjO9Jec5WZOxzmCyzvqW0DyL0q/s1600/bamboo+ann.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1600" data-original-width="1067" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh15Hq0aZvkJGGpk77b_vrv3mwc_6GxZAFmnMtlGTCyLjebrZ2gJr172MdBf9514RqhhRxkUlLDQCy5h4MqKNw6Gf6nj1Gzp7BVOkeeow15kaxHfXqfFWHjO9Jec5WZOxzmCyzvqW0DyL0q/s640/bamboo+ann.JPG" width="425" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>the HSE demanded 'either or' the wheelchair or the scooter, both were banjaxed and barely operational, but this held sweet memories and joy for me, they took it.</b></span></td></tr>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Like all fantasies, we face shortly celibrating our unique Irishness on St. Patrick's day.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">we celebrate this throughout the world, where we were scattered to the winds over decades of emigration and thus bringing green Eiffel towers, Green Niagra Falls, Green Big Ben and Green bridges, monuments, rivers, and clothes and Green will be celebrated all over by every country in the world.</span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">yet in the small country where this all began there remains immense poverty of modernity especially within public sectors, especially within the way we value human life and can adjust all economic boundaries to do just that, value and respect human dignity.</span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">our value of a human being is being eroded daily as we watch the divide grow between rich and poor, vulnerable and the ruling classes.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">its a different world altogether, but i would have loved to be celebrating our unique ability to care over all other matters.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhVy3xahzp3K3b7r8NAuoNr_anm12P_Fz3FsQTHVYIS7_0-I7v55uZR6_3lo-3paXwNmZXry8lr9zJaHQk66JoXmC1Pe6Y2np1EytrbdXFoiU3CnG6A1Cyr1YnpNumCOIgEL-8hQo1hmbze/s1600/self+with+maggie+in+scooter+therapy+uni.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1600" data-original-width="1236" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhVy3xahzp3K3b7r8NAuoNr_anm12P_Fz3FsQTHVYIS7_0-I7v55uZR6_3lo-3paXwNmZXry8lr9zJaHQk66JoXmC1Pe6Y2np1EytrbdXFoiU3CnG6A1Cyr1YnpNumCOIgEL-8hQo1hmbze/s640/self+with+maggie+in+scooter+therapy+uni.jpg" width="494" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>when they took the scooter, they took away my ability to offer relieve for an hour in an old persons home through 'irish therapy dogs.' without the scooter i could not bring a bit of joy as i had done.</b></span></td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj8zVEed9Cw15aTnp83JqVo-4YtaXt0bEvY9drMEvIJe7xwsPuQbAtGpASRNR60nL2FdHa_96GHPZNUtkfhczdHU_63y3Q5JIkbRbSy3ka9ipzozcDc7rqAp0gnVpJiMKtKbh3u7P_0K23Q/s1600/_MG_7799.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1600" data-original-width="1067" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj8zVEed9Cw15aTnp83JqVo-4YtaXt0bEvY9drMEvIJe7xwsPuQbAtGpASRNR60nL2FdHa_96GHPZNUtkfhczdHU_63y3Q5JIkbRbSy3ka9ipzozcDc7rqAp0gnVpJiMKtKbh3u7P_0K23Q/s640/_MG_7799.JPG" width="426" /></a><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">i would prefer to celebrate goodness, celebrate a sense of wonderful uniqueness that is truely unique, value of the citizens of the state.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">meanwhile as i type my blog today i know and have seen silent suffering as twins sit together in a personal 'weep-in' unspoken, lacking tears,but pevasive in intense, solitary brokeness.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">this has been caused, not by them, but others.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">it can only be reversed by others and not by them.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">For ten years the twins have attempted all things to accommodate hacking at their lives in such perverse ways, to alliviate pain they have been virtually useless.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">we have failed to transport ourselves out of this intensity.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">we hope and pray that such suffering will find an end soon.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUHe_56Id1jXfqKigZ2e9o_LbHQzFPrOUhSdnMkdXuZ6VT360xpTzvqGIC2oDFo6M-dDz3SB0xnjDc8n_ZuRX98ZPp2AQ9sKu836s1WJ_gt7w8hn-S__Tv1S6qcbG_otBaevrXMVT9svUO/s1600/_MG_6077.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUHe_56Id1jXfqKigZ2e9o_LbHQzFPrOUhSdnMkdXuZ6VT360xpTzvqGIC2oDFo6M-dDz3SB0xnjDc8n_ZuRX98ZPp2AQ9sKu836s1WJ_gt7w8hn-S__Tv1S6qcbG_otBaevrXMVT9svUO/s640/_MG_6077.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>give us our life back please, at 65 we need every minute possible.</b></span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjKyRTluEr_Pf2eNNRLklAMAm3fi7y8yjXlnJHuRzfRuS0tzNYAwN5fuI1GmEasaPZGay6jFKlamQQzyZgdVb0px2YRJ4yzMaQbpqHVl2UWrDNmrB-1ivD0FU8zxQCFxg8S3O2lxQSOed7/s1600/IMG_5712.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="270" data-original-width="360" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjKyRTluEr_Pf2eNNRLklAMAm3fi7y8yjXlnJHuRzfRuS0tzNYAwN5fuI1GmEasaPZGay6jFKlamQQzyZgdVb0px2YRJ4yzMaQbpqHVl2UWrDNmrB-1ivD0FU8zxQCFxg8S3O2lxQSOed7/s640/IMG_5712.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>in the beginning when my twin came home first we had hope of a happy time together - all dashed by the workings of the STATE.</b></span></td></tr>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">we hope that decency will prevail.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">we hope and pray that the state will sit up and answer a well worn prayer and a begging from our hearts to theirs, that we need them to uplift out of this to something akin to security, calmness, fun, joy, quality and care.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2ybLx3x-tUqaUL7EN4-ctqyixSVTMqhhTJfZx1dV6dzoJgx3NgFKsV33XkI8cfAKZvqARCAKVw3nGc9Rs4Bld8x6GkeGs8MbKK9WUU3J5kCMDr1BL-q9dIFBV7VvlKo7H3kaxdl2aemjA/s1600/DSC00114.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2ybLx3x-tUqaUL7EN4-ctqyixSVTMqhhTJfZx1dV6dzoJgx3NgFKsV33XkI8cfAKZvqARCAKVw3nGc9Rs4Bld8x6GkeGs8MbKK9WUU3J5kCMDr1BL-q9dIFBV7VvlKo7H3kaxdl2aemjA/s640/DSC00114.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>not in ireland</b></span></td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNcUYmixo-hoUeU_kNOJcm8z6Fh0-5_dqkb9uyX0bE1spYIhZOtlKSbV0bd4vE1Jc1BAGKXZWfwCk1ZLGN_7pl91O4Tx9cHks3p_N8wMDxwWN_dqFOOXNAO9kpWK7Qny5L-QVA62fJvics/s1600/DSC00121.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNcUYmixo-hoUeU_kNOJcm8z6Fh0-5_dqkb9uyX0bE1spYIhZOtlKSbV0bd4vE1Jc1BAGKXZWfwCk1ZLGN_7pl91O4Tx9cHks3p_N8wMDxwWN_dqFOOXNAO9kpWK7Qny5L-QVA62fJvics/s640/DSC00121.JPG" width="640" /></a><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">i cannot 'do this' any longer.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Nor can i watch it in another any longer.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">i am utterly spent.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6nQ_F2Tx0LcC-edSJ1aHPKydfgYJQzIef-83F1_0-vG-eOCs5KBp9nVBKAvgvdr1j_7gRMTk1zRrOVCAtGU1MihuoIvtHfEKUGhDakPzvmIA2jsN3OsNbxTKDfASh4OxohwF2xjJ2NiGp/s1600/DSC00139.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6nQ_F2Tx0LcC-edSJ1aHPKydfgYJQzIef-83F1_0-vG-eOCs5KBp9nVBKAvgvdr1j_7gRMTk1zRrOVCAtGU1MihuoIvtHfEKUGhDakPzvmIA2jsN3OsNbxTKDfASh4OxohwF2xjJ2NiGp/s640/DSC00139.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>not in an irish hospital</b></span></td></tr>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com1tag:blogger.com,1999:blog-3570848227107227695.post-20830088093226902602018-02-16T03:33:00.001-08:002018-02-16T03:33:29.211-08:00In this blighted house: No-one will comeI wish to share this blog by my identical twin sister.<br /><br />
it screams the pain both are suffering.<br /><br />
in days to come i very well write my experience, which actually is a mirror image as placed here.<br /><br />
<br /><br />
<br /><br />
<a href="http://blightedhouse.blogspot.com/2018/02/no-one-will-come.html?spref=bl">In this blighted house: No-one will come</a>: Three days ago I had a very bad night. I got out of bed, with much difficulty. no help. I live alone. Single. No one to 'be' there f...Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-88915387424236464772017-12-11T11:23:00.001-08:002017-12-11T11:23:13.759-08:00Healthcare in Ireland and no magic word 'enforcements'<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Heaps can go very wrong in a country that doesn't want to understand.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi844Mf2daR7XgNHUfpoVnQKtAoUsZSjcJiCVJCo-T5BLFLe1pqxY3Sr8QAtgj1cwBU-jJ0JgQ0sfsGFAtkZIoDCKEXJ_sphbQwT-pUfE18Z-6Ir5ivOnTjjgFvfhkIRmfPjoWBi9RgvTvr/s1600/ANN+DOES+NOT+WANT+TO+BE+BRAVE.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1600" data-original-width="1292" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi844Mf2daR7XgNHUfpoVnQKtAoUsZSjcJiCVJCo-T5BLFLe1pqxY3Sr8QAtgj1cwBU-jJ0JgQ0sfsGFAtkZIoDCKEXJ_sphbQwT-pUfE18Z-6Ir5ivOnTjjgFvfhkIRmfPjoWBi9RgvTvr/s400/ANN+DOES+NOT+WANT+TO+BE+BRAVE.jpg" width="322" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i cannot deal with the HSE one minute longer</span></b></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>heaps does go wrong.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>How can you explain in plain english how to do things well, sensitively and properly here anymore?</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Who cares enough to hear them?</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>A judge making judgement on a very sad case of a rough sleeper probably said it as best anyone could really, he claimed before him was an example of how Ireland has lost the ability to care for its people.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-bwnf4mUpxWdW9mpIHwgNxjN_VezVzndzdPRmnHs74CqBpMa6HgZ6VOVAsSgzKEG_3ZfJYLzlLnY0hYRQuHfpO7kwKqppWeBzdQdY561vNooVoRxdMvsS9tYdO75RTgLDGquE2Ud0mUf9/s1600/IMG_0141.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1200" data-original-width="1600" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-bwnf4mUpxWdW9mpIHwgNxjN_VezVzndzdPRmnHs74CqBpMa6HgZ6VOVAsSgzKEG_3ZfJYLzlLnY0hYRQuHfpO7kwKqppWeBzdQdY561vNooVoRxdMvsS9tYdO75RTgLDGquE2Ud0mUf9/s400/IMG_0141.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>believe me 'shit' happens in Ireland. the country left me like this for two years before i managed to get out of the country for the help and diagnosis i needed to try repair this ailing body, all the Irish doctors could tell me was go home and take the 'anti-depressants' thats the best this country can offer the physically sick and getting sicker</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This is correct.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>a judge has a person who had fallen on hard and bad times, sleeping rough and losing his parents, home and everything. He said what he should have and more should too, ' a huge reminder that Ireland doesn't care anymore.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Another is around the idea and notion that those who are sick, disabled and elderly have no rights to decency, care, healthcare and a quality of life.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It's how Ireland doesn't care anymore.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>When using any case as a 'case in point' there is no harm using your own for example. Many do this and its the start of a lot of blogging and new forums beginning and flourishing because a 'wake up call' has been sounded, but also because where do you go when the country doesn't care anymore.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We have a healthcare system. They do not want to care. They prefer to abandon the ship along with making amazingly reasonable claims how they can justify doing so.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>if you do not challenge wrong doing for those least able, then how can uphold the belief to having a moral fibre within?</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This country is a country without any moral fibre left.</b></span><br />
<br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>If you allow things to flow badly which brings immense hardship and suffering you are complicit in crimes against the people and the state inflicts harm on the people.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It's a crime to remain silent in the face of such terrible, terrible hardships.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Today i had a minister for health's secretary stating that i always ring up complaining.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i swiftly reminded her of my own case being upheld that complaining that no answers are forthcoming is not complaining and that i have aright to complain if they are not meeting the needs of very sick people.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUgWBsf2VMzBZcK6QtbyHUDvDvkNCkIZwEIS6foRhDBtpoE9gij7p1_W6anXG0i5SbstrAZ5Hpk_sdr7pm94UYJFCCLvksOlWyyilTx5evtiQKlfpt2_xyvaqNJ4OIVAq8rSwVjaA0C50E/s1600/_MG_9988.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUgWBsf2VMzBZcK6QtbyHUDvDvkNCkIZwEIS6foRhDBtpoE9gij7p1_W6anXG0i5SbstrAZ5Hpk_sdr7pm94UYJFCCLvksOlWyyilTx5evtiQKlfpt2_xyvaqNJ4OIVAq8rSwVjaA0C50E/s400/_MG_9988.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>ask anyone with a serious progressive neurodegenerative disease is it 'ok' to leave a woman with her bed like this for about a year? is it 'ok' not to offer a decent surface to sleep on, when she cannot provide for herself, would any other country leave such a sick person in this manner and does any other state then tell the patient that the Healthcare provider is seeking funding from charity to get her a bed!</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This right to contact your TD's and state the obvious is blurred by the healthcare provider being believed by our state own Department of Health.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Yet, i doubt the Department of Health is in a happy bed with the HSE at all, but do not show correct morality in this by supporting the patients, the sick, the dying and the disabled and elderly.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It's wrong for any one to be told by the state workers that you are complaining and always complaining.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>you have a right to healthcare and if you do not get it, you complain.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The Law says you have no rights to healthcare, but the upholding of the fundamental rights to healthcare remains valid and enforceable.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>you are not allowed damage a person by neglect, this is more to the point, damaging a person by not providing disease specific treatments, oversight by medical consultants is called neglect. It is against the law to bring harm, do harm or ignore the sick and thus bring harm.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>you complain about that.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdeYxNuIqXsSib8kOQZTNVK7JZH3y9Zh_vP_xUQeov9S-vB51mQ9GckpI5xq-J2BjNvMEwP4npIn7dsnq2inIKifZS5oY_6_b8G4Fo_y8GPLNpvxLeAK5UtfKElDAv7V3iPWshju5QJRAt/s1600/seven+years+of+hse+hell+damages.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="873" data-original-width="1559" height="223" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdeYxNuIqXsSib8kOQZTNVK7JZH3y9Zh_vP_xUQeov9S-vB51mQ9GckpI5xq-J2BjNvMEwP4npIn7dsnq2inIKifZS5oY_6_b8G4Fo_y8GPLNpvxLeAK5UtfKElDAv7V3iPWshju5QJRAt/s400/seven+years+of+hse+hell+damages.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>how can anyone in their right mind be 'grateful' for such neglect leading to serious decline way over and above the disease process they have already. this is the image of pure and intentional neglect and trauma caused by the state healthcare system.</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i am not grateful for lack of care.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i cannot say i am grateful for ten years down the road in a fight for the care i need when those who can afford it here can pick up the phone and make the appointment, see the consultant, be treated well and get on with a quality of life which is respectful of the person's right to have that quality of life.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>https://www.herald.ie/news/calling-disabled-twins-serial-complainers-is-unacceptable-says-td-35401611.html</b></span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>No one believes for a minute that those who have no healthcare should also have no quality of life and die sooner than the rest, the wealthy. This is what happens though, many cannot see this knock-on effect at all.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The distain towards the poor is unpresidented now in modern society.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Lord knows the world has never known anything other than members of the human race being disadvantaged, we have always had the poor on this planet, and it would be a bad world if they didn't exist, its right and good they do. It brings out the best in the rest and it has proven to be so, without that feeling of goodness within and tapping into it, you cannot enjoy a quality of life.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>part of making people feel good about living is also wrapped up in the ideal that in 'giving you recieve.' a Known fact being, people who give, actually feel better than those who grab and take and steal.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Lacking the ability to see good in the poor from many angles is leading the world towards the ultimate extermination of those we do not seem to want - again.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Vowing we would never see another Hitler, every single modern state right now is under a far right agenda of kill the bastards, kill the jews, kill the blacks, kill the gay people and exterminate the defective and the muslim and arabs! we do not have ONE hitler, each country has its own 'type' of it, own version and insidious and with one thing in mind.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We do not care a toss about each other - really.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Back to the basics of a small island nation, ireland.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Of the country i know best, its getting as bad as any other country, we held once a type of morality. It was a form that we saw and underneath it was pretty terrible, with the magdelene laundries, the asylums and the christian brothers and also the workhouses and mother and baby homes. we had a vicious society.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>we seemingly cannot move away from such viciousness.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>To have a minister's office staff tell me that despite what the constitution says about the rights to my own home because I am not paying for the adaptation to it, the state forces can enforce you do things to it against your wishes.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Actually it can't. The state still takes it upon itself to 'see no harm' in forcing its citizen into damaging and restructuring their home against their wishes as viable but its against the constitution! Being made do something against your will, fact, its against the law.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>because you are not paying for it you shut up and do as you are told.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>That is the society we have formed. The secretaries of Ministers today tell you this, i was told this. i was told i should be grateful to the grant to adapt my home, which i was, but i also had to be grateful to having my home biffed to bits on the ordering of a healthcare official i never met. Sorry mate, thats against the law!</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>There is nothing gracious or good about this.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The HSE have broken the law in my home, I know it and the state knows it.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The state also knows that you do not make such judgements as 'serial complainers' out of two very sick women who at the end of their life have had ten years whipped away from them because they are trying to get the care they need.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>we still haven't got it.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It's against the law to neglect the health of the state's people.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>That is the fundamental right of every citizen to be cherished as equal.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>But because you are poor, you can have even the state labelling you 'serial complainers' you can have the state's minister for health secretary saying 'you always ring up here complaining.'</b></span><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"><br /></b>
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">And I will say to the Minister himself, i will complain against the HSE injustice to leave us rot at home as they are doing, you can call me what you like, the whole of Ireland can call me what you wish.</b><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"><br /></b>
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">I will say nobly and with truth, the state is killing me and the state doesn't care.</b><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">The HSE doesn't care and its our only healthcare provider. </b><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">The state carries out its own extermination programme and we twins are on it.</b><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">we have no neurologist, no rheumatologist who deals with serious mixed connective tissue diseases and we have no consultant advised therapies, because we rely on the HSE to provide that and they do not.</b><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">That my friend is my complaint.</b><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"><br /></b>
<br />Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-13231306299530734572017-12-08T22:38:00.002-08:002017-12-08T22:38:42.811-08:00<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">A modern society grows out of words: <i>‘compassion for our fellow man’<o:p></o:p></i></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">To see each individual as
unique is a chance for the human spirit, the morality of a nation to shine.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">To treat each other badly is
a retrograde step and anyone who shows contempt for those least fortunate, most
vulnerable and easily attacked is a person who lacks an ability to care enough or even at all.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">In attacking anyone who is
not as ‘big as yourself’ so to speak, is to behave like a bully.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">All bullies go for the
jugular of those who they feel they can attack easily, and such bullies are weak, lacking spine to do the same to those who would cut them down to size they go for the weaker, or smaller fry. <o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">History has this fact well sussed.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">When it comes to our doctors
being bullies, I think Ireland takes the biscuit.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">No one becomes ill purposely,
and no one benefits from being ill.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">No one fakes illness unless
they have a serious mental illness and that Is incredibly rare.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">But Women are deemed to have
this more than most and male doctors appear to judge any woman from being on
this spectrum.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">my belief is firmly rooted in the source of a male hating a woman.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I believe too that such
professional bullying is corrosive to best practise and a male's distaste for treating female patients,
who they have a contempt second to none.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">When I became ill with crohn's disease in the early days, i met this phenonomen first, I was made to be psychiatrically assessed before I was
treated.<span style="mso-spacerun: yes;"> </span>This could even be at a time
when the psychiatrist was on holidays, I still did not get attended to before
she came back.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I have had doctors say to me
‘you don’t have parkinson's, you just want it' ,yet a decade later I am on
parkinson's medication.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Also another one claimed ‘I
am going to prove nothing is wrong with you and do tests to prove it.’<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Only yesterday after about my
third visit to a male doctor at my surgery I had a waving angry man cry out,
‘hey how many doctors are you going to, I am not referring you to any more
doctors.’<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">You wouldn’t think that I had
a multi-systemic progressive neuromuscular disease process and that the doctors
I do attend I need.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Given that I have absolutely
NONE at present its important that I go to those that actually will help me
after disasters in Ireland second to none.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">You never get better at
facing such ignorance but I rounded upon him with my own type anger towards the
male doctor species.<span style="mso-spacerun: yes;"> </span>‘you are not
telling me who I will not be seeing, I am attending that doctor.<span style="mso-spacerun: yes;"> </span>You wont have to refer me I have already been
referred and he, did more for me than any Irish doctor who left me for dead
years ago.<span style="mso-spacerun: yes;"> </span>If it wasn’t for him I would
be still rotting in my flat as I was.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">This doctor I have to explain
is in the UK, he was the first I saw who treated me exceptionally well. i am travelling through the 'cross border directive.'<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">He was and remains wonderful.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">No Irish consultant ever
responds to emails, this one responds to them all and has actively encouraged
me to return to him for the help I need.<span style="mso-spacerun: yes;">
</span>He knows how badly I am faring here and has insisted i return to Queens square London to see the Prof. of Neurology there.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">He said to me that I had
arrived at him in a ‘mess’<span style="mso-spacerun: yes;"> i</span>n 2008.<span style="mso-spacerun: yes;"> </span>At a time when the Irish wouldn’t even do one
single test, he diagnosed me quickly with mixed connective tissue disease and sjogrens syndrome.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Given I have not seen a
consultant for this condition in two years and I am deteriorating, would you
wonder I want to leg it across the Irish sea. No Irish male of any profession is going to stop me access medical care.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I have never been diagnosed
with any disease here In Ireland apart from my hypothyroidism and my crohn's
disease, which I think the Irish can just about handle.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">What they failed to look at
was my neuromuscular disease.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Even though we have geneticists
here in Ireland,no one ever referred me.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">No one has done a thing.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">So once I got to the named
doctor above, they then discovered I had a muscle myopathy and the path was set
for a host of issues that accumulated alarmingly and to the present day, Ireland
doesn’t care a toss and is doing nothing to assist me at all.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Finally I have a diagnosis of
sorts, but a bit of a way to go yet, I wont depend on Ireland to go that extra
mile with me either and I anticipate a fight second to none to get that help I
do need.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I have a neuromuscular
disease which is considered very rare.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I need tests to determine why
the muscles are dying.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Only recently two phone calls
to the UK consultants, gave me hope.<span style="mso-spacerun: yes;"> </span>One
at a centre of excellence<span style="mso-spacerun: yes;"> </span>and (I remind
Ireland we are far from creating any centre of excellence for any diseases in
Ireland yet, that can be recognized by the EU as one), said do not give up
trying to find the cause of the muscle wasting disease.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I wont.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Another doctor in Ireland on
hearing of my case,which many have, said the Irish doctors have a difference of
opinion on how to treat us twins.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I bet they do as I have
already heard about it.<o:p></o:p></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">A tad bit of palliative care
and that’s it.<o:p></o:p></span></div>
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<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">But the UK doctors are very
different.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">They name the tests we should
have and name the therapies we should be having.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It is now ten years since the
therapies that were required for me were ever clinically advised.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Ten years on we have not had
these implemented.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Nor have I had at least four
different tests advised done, for a complex postural issue at night time plaguing me during
sleep and causing severe distress of a physical kind.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Many doctors in the uk and
some here too say I need tests to determine what is going on and have their
ideas, but nothing is being done.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">This could have resulted in
one stroke thus far when I got ignored by the Irish consultants, I found out I
had a stroke in 2013 and was never told.<span style="mso-spacerun: yes;">
</span>How did I discover this, on my FOI files.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I can make judgements too.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I judge that the Irish
consultants will never treat their patients as partners in their own care and
treatment but will bully them to a pulp and say he will do no more and down
tools when he is in his pesky childish, arrogant mood.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">And all this comes with a
link to whether you are a private patient or public.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It will happen if you are
public,and possibly never if you are a private patient.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The difference is utterly
stark so it is.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I hate the way the men of the Irish medical confraternity are continuing to get away with such harassment of
women at a time when they are at their most vulnerable – when they are sick.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Do you think there is a way
to get them to behave better?<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">All ideas accepted.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I for one think they should
be a way to name and shame them.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
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Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-26654658195448777522017-12-06T08:40:00.001-08:002017-12-06T08:40:20.048-08:004am I want to be dead i say silently<div class="m-2945635404073541819gmail-msonormal" style="background: white; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">4.30 am is not Dawn<o:p></o:p></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpuiwvfguQzERWgm_C_GiUdopmyW3V7Hy1Rvl38KSb8yEO7BbVQDf0w27GWk7hhqI89YwJ_ofWorVoAVjUv2CIsMCrbER_U9ncNSZyoT9Gi1TPnPPY2drIaji38R1XvrmnEvaoqxewLSIN/s1600/IMG_0141.jpg" imageanchor="1" style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large; margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpuiwvfguQzERWgm_C_GiUdopmyW3V7Hy1Rvl38KSb8yEO7BbVQDf0w27GWk7hhqI89YwJ_ofWorVoAVjUv2CIsMCrbER_U9ncNSZyoT9Gi1TPnPPY2drIaji38R1XvrmnEvaoqxewLSIN/s640/IMG_0141.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: magenta; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">an old dog and a sick woman2009<br />i was left for dead then,i am left for dead now.<br />uk doctors gave me back some semblance of living until HSE smashed all that</span></td></tr>
</tbody></table>
<div class="m-2945635404073541819gmail-msonormal" style="background: white; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="background: white; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">4.30 am is not
Dawn. It is not even early morning. It’s dead at night.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">One bright young Chihuahua had heard something outside and I was
suffering pain inside.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I slip off the bed.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It is too silent for me by far and I hear my own teardrops and
the crying inside, the weeping outside and the snippy barking beside.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Two little girls are lifted off the bed, one light and one
heavy.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">They eagerly want to leg it up the garden path.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Something is prowling they try to tell me. I pretend I
understand.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">They go for it.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Flash zipping past a naked old lady they fly. I certainly
do not.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The air feels wonderful on my achy body, naked. I listen
for human life, there is no one.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I move back in and find a light switch, a cup of tea will go
down nicely, this I do know.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The Chihuahuas patter back in. Their paws pattering with
scrappy claws always make me giggle.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">They come to an abrupt full stop by my toes. I look
into alarmingly cute big eyes looking up at me like innocent children who have
been naughty and fear being caught.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I laugh.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">They get their piddle treat, and if they don’t know the
connection I do not mind, the piddle is done they get the reward.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I can only presume though.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I don’t go chasing phantom intruders or puddles of piddle.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I am utterly weary and spent.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">My back hurts and the bed is very uncomfortable.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I am on fire all over and I am bone weary of my life right now.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The expectancy that it could be any different has too been the
phantom of ten years.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The Santa Claus has been around and brought not the gift of my
life back in total. L I would ask each year, and am exceedingly
disappointed.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It’s not up to Santa, we know. But we can hope that by
even wishing on that star something might fall into my lap. (Life).<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">All seems to crumble year after year.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Tea in hand, Chihuahuas on bed again nestling and burrowing into
fluffy blankets I clamber on board and find my own space between dominant
bodies already deposited with ease.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">‘I want to die,’ I exclaim out loud to no one in particular.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">‘I just do’.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The rest of the night is fitful and teary.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I ache for dawn and hope by then the deep depression will have
subsided. It hasn’t. In fact it has worsened as the day breaks.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The sky is blood red and beautiful. My soul and my
experience match it not.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">‘I just want to die right now’.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">A mournful piece this, I think as I tap.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It is for sure and ten years of mourning would be right so can I
type that? I decide I can and I will. With the Santa in
between and the birthdays and the days, and the nights and all those tears, an
awful lot of experience, all negative.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Can I take much more of this I ask myself and start to say I
simply cannot.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I tap frantically on to the mediator. “No more,” “No
more.” “I cannot take any more.”<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Evil words for an this system follow fast and furious.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">We have a heinous beauty in our midst. It is a beast of a
caretaker more of graves, than births.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Abandoned is the role of succor and security, calm and soothing,
giving and nurturing and holding sick and vulnerable.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The caretaker walked off the job and left the wolves to the
pickings as they crashed into the life of a person who is too ill to run far.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">‘This is an obscenity’ I mutter. All know this but few are
brave to change it.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Notice comes quickly apace my flying words via broadband.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The emails are met with further unsettling thoughts from another
and the mediator is not happy with the way my psychological state is reacting
to the way this is all going.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The advocates name it for what it is, torture for two, they say.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It has been and it is.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Ten years of it.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Never ever get angry with the caretaker.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">But get angry at your country for allowing such abuse to occur
all too readily and pervasively.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">We have absolute undesirables in our midst.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">An organization as powerful as the mafia exists on this fair
land of ours. The leprechaun land, full of large leprechauns
and little ones.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">If you are a little one you have no hopes here.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">If you are a large one, lets not forget other countries
recognize leprechauns incredibly well. They recognize the myth of
it all and the derogatory intonation and words once the labeling has taken
place.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Leprechaun thinking<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Leprechaun country<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Land of the ‘do-lally leprechauns’.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">They are right!<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I do feel sorry for the little ones all the same.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The message has been typed out and it turns a page or so in my
head and that of others.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">We all have reached that point of anger so great no one can take
this a another day.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It is all obscene. All knowing that line of civility
has passed and we realize that a different way needs to be taken on this case.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Elderly women should not have to endure a week more of this
indecency, all agree.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The ultimatum was thrown down yesterday – deliver the promised
thus far or we will not attend on Monday.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">That is actually quite a stance in light of no delivery and
little leprechauns against pretty big ones.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">We get armed for a fight second to none, the nonsense done, the
delivery none.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">We arrange for assessment tools that are healthier than ‘is she
able to button her clothes.’<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">We seek out assessment tools for living, for quality of living,
for need over pathetic obligations of buttoning clothes, washing hair and
wiping up after toileting.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Living is made of Living we say.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Not having your life sliced up into hour-by-hour, basic tasks
and numbered and fractioned into help given if any at all after the tools have
been assessed.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It doesn’t matter to me when I eat, whether I dribble, wash, button
or I can swipe a wipe.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">What matters is to laugh again, run with help and be engaged in
the land of the living.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Not in the caretaker’s bone yard with one foot in the grave.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I weep again more at the closed off room at the top of the
stairs with the psychologist.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">‘Have you got assessment tools for quality of life?’ I
ask. She bustles off. I limp my ataxic waddle to the toilet. No
need of her help to blush and flush.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">We sit down with three sets of tools.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">PTSD, alongside quality of life along with one or two
more. Measuring normality against the obscenity we both are going through
right now.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Assessment tool for the dead:<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">What time do you get up?<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">What time do you have lunch?<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Will you need help chopping your food?<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">To be replaced with:<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">When I am old, I shall wear purple, and spit.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I shall sit down on the pavement when tired and I shall rattle
my stick along the railings.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">In other words, I care not a toss about you knowing when I arise
and when I am full and when I am dirty or clean.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">No, it also is not normal having three professionals glare by
the doorway to my bedroom at my own private sleeping arrangements. Three
people who are not relatives, who couldn’t care a toss and have less skills
then they believe.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">They are doing ‘an assessment’ of need.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I ask ‘is this normal?’<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">“Would you have three people standing in your bedroom discussing
a bed with you or do you get a measuring tape and decide on the bed and then
get it?” I ask angrily.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">“Do you need three medical (sic) professionals to consider where
the furniture goes?”<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">‘No,’ they admit.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">“This isn’t normal behavior,” I say.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I want them gone.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">A letter is swiftly written when they depart.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">“No health official enters this home of mine again without
permission.” I bang down the keys. <o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I feel good. They are gone. I have stopped it.
It’s really good.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">As far as this old lady feels right now, this moment in time.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I am tired of them all, and beg to be released a relationship of
complete dysfunction and disharmony.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">This is the land of leprechauns like none other, in a world
where time stood still and a land forgotten stuck in a time warp of incredible
ignorance and a notion of grandeur beyond their station.<o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">A Macbeth like moment I scream inside with determined defiance
“out damn spot, OUT damn spot” and lets hope I won’t go mad rubbing the skin
off the wasted bones. <o:p></o:p></span></div>
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span></div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><o:p></o:p></span><br />
<div class="m-2945635404073541819gmail-msonormal" style="-webkit-text-stroke-width: 0px; background: white; font-variant-caps: normal; font-variant-ligatures: normal; line-height: 19.2pt; margin-bottom: .0001pt; margin: 0cm; orphans: 2; text-align: start; text-decoration-color: initial; text-decoration-style: initial; widows: 2; word-spacing: 0px;">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Ann do not end poetry with the word, wanton!<o:p></o:p></span></div>
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Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-1157054134862891852017-11-27T12:32:00.000-08:002017-11-27T12:32:10.320-08:00the ducks are taken to resus to quack again<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Today tribes
met<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">There was
little or nothing achieved as I had suspected, the ‘armed forces’ were there to
‘cover up’ in utter grand scale.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Nothing is
ever done in Ireland, well.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Nothing is
simply ever done.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">A case of
sexual transgression was heard in 2010.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
complainant was a disabled lady in Ireland<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
complainant was asked to write a good reference for the assailant so he could
keep his job.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">He kept his
job.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Only a few
years later, on advice the complainant reported this a second time in 2014.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">This was
‘sat upon.’<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Many
registered letters were sent.<span style="mso-spacerun: yes;"> </span>It
continued to be dismissed as never before being heard about until 2015.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">By this time
this case was complained about to the Department of Health, they noted the
seriousness of it, and passed it on to the HSE.<span style="mso-spacerun: yes;">
</span>They barely acknowledged the offense and passed it on to the
perpertrators bosses, who then smothered it until forced to look at it.<span style="mso-spacerun: yes;"> </span>It was also sent to the charities regulator
who dismissed this as well.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">No one was
going to take charge of this I could tell.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Denial of <span style="mso-spacerun: yes;"> </span>complaint being made before 2015 is shocking.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It was made
in 2010 and 2014.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">What
happened so?<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">In 2010 when
it was brought to the attention of a very large organization funded by the
state, the person who should know ‘policies on protection of vulnerable adults
and children’ enticed the complainant to make no complaint but give a good
reference.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Nothing was
written down, it went no further.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
assailant continued his job.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">In 2014 the
complainant was in serious difficulties facing the wrath of the state in charge
of healthcare services and was seriously depleted and on the verge of a
breakdown.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Suicidal
ideation was mentioned more than once.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Not a lot of
help was offered at all.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Discussing
one day the life and times of the individual the advocate advised the
complainant to report, as this was considered serious.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><span style="mso-spacerun: yes;"> </span>assured today that once known the perpetrator
was monitored.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">But all
concerned were not allowed know how or by who or by what method as his work was
at the coal face ‘one to one’ and never ‘two plus one’<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">When the
complaint was made in 2010 not only was it not written up as a serious incident
(s) or reported to gardai, neither was the assailent suspended upon
investigation nor was any higher superior officer ever told of what had
occurred.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">No
investigation took place.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">No superior
officer was enlightened to the transaction of complaint.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The person
to whom the complaint was made, mentioned in 2015 that they remembered it being
reported in 2010 and this was brought to the attention of the next manager who
met with complainant and the overseer of the assailent’s work load and job
description.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">This never
happened and was effectively a lie.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">This was
confirmed by the investigator today, the manager had confirmed no such meeting
had taken place.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">We move
forward.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
investigator informed a group today that the complaint was not brought to the
attention of this superior officer, a very superior office, a CEO in fact until
mid 2015.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Where was
this complaint hiding when made again a few times in 2014 – 2016?<span style="mso-spacerun: yes;"> </span>Registered letters had been sent in.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Finally the
investigation began and was completed within six months.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">This was an
incredible ‘tour de force’ of ineptness.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
complainant was never interviewed during the course of this time.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Six months
is not a huge amount of time and for the complainant who was going through
physical ill health and transport issues with a banjaxed van, missing four
opportunites to meet to discuss doesn’t mean that the chance has flown and the
investigation go on without the main witness.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Indeed, in
the meantime the full HSE teams, both area managers – all area managers were
informed, we are speaking of all managers including senior social workers.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">No senior
social worker approached the vulnerable adult.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">No area
manager of any description approached the vulnerable adult in this case during
this period yet all were discussing the case.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It was known
throughout social protection and further.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It was known
to the department of health and considered a serious complaint by them.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It was known
to the HSE officer who was in charge of vulnerable adult and child protection
policy whose only remit he claims today was to make sure the organization got
its ducks in a row in the future.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Where were
the quacks in the past?<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">They were
drowning but people were pulling the drowning ducks up and all were briefed and
sent to resus and quacked again well and quaking.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
complainant still was not heard, seen, saw any individual from the department
of health, the hse or the organization and it was hard to even get as far as
discussing it all.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
complaint anyway was wrapped up neatly after the investigator felt that four
attempts to meet was ample so wrapped it all up as duty of care had to be
upheld for the accused.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Don’t mention
the complainant who had a very good withess of the facts who also was not
interviewed in this bizarre case.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It was heard
that the case was handled very badly and all must learn a lesson from this but
all spoke of moving on and forward and learn the big lesson.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
complainent has learnt a very big lesson, there is corruption at the coal face
and finally caught all will agree it was badly handled, a few raps on knuckles
and advice given that lessons are duly learnt.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">We look to
how the complainant tried to explain cause and effect and the intrigue and
effect on her personality and psyche as she was torn to shreds by this
organization.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
complainant, was told by the vulnerable adult and child officer that we were
not there to discuss that but the actual complaint.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
complainant reminded the officer if a vulnerable adult was trashed then that
had to be part in context with the way this was dealt with.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Capitulation
of sorts, the complainant tearfully told her story.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">But still we
must move on and lessons must be learnt.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
humdinger of a lesson should be learnt I feel as we were all assured that the
assessments and policies are far greater than in 2010, the complainant asked
how so because less than a year ago the complainant received what can only be perceived
as a rather strong and threatening rebuff from the organization that they would
have to think seriously about the provision of care given to the vulnerable
adult in light of the complaint.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">So lesson
here being – don’t bloody make a complaint again or you are out.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Or, shall we
more likely say ‘you are now under our cloud and being watched and therefore we
are taking stock as to whether we can deliver care to you.’<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Or, which is
another neat way of putting this, we interviewed everyone who ever worked with
the complainant during this investigation – no idea why or what for or who and
what questions were asked, but the victim wasn’t interviewed so that is also
very threatening and ‘telling.’<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">This
statement could be a bit of a porkie for the complainant swiftly asked all
workers from this organization working for her had they been ‘approached.’<span style="mso-spacerun: yes;"> </span>They had not.<span style="mso-spacerun: yes;"> </span>So again that was a statement designed to
bring fear of gods to the vulnerable adult.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Where do we
stand now.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">They are
looking at the language of the last paragraph of the investigation of the
investigator statement that they would have to consider if care could be
offered in light of the complaint made by one of their vulnerable adults about
one of their staff’s transgression, which to all is considered serious.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
vulnerable adult and child protection officer said the case was not complex and
his duty was to the organization, to ensure they had their ducks in a row, for
the future.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Didn’t seem
to care a toss about the complainant, a vulnerable adult.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">He denied
that.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
vulnerable adult may be vulnerable but she isn’t stupid.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">So where was
the area senior social worker and area manager in all of this – that is FOR the
vulnerable adult, I guess their role was to support the organization to resus
and get them quacking again as discussed above as discussed and discussed
without any recourse to discuss or ever actually going to be discussed with the
claimant.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Everyone
walks on neatly and out.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">That’s done
and dusted to everyone’s satisfaction, but the complainant of course.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">What the
organization can do is apologise, they didn’t.<span style="mso-spacerun: yes;">
</span>they agreed the investigation was flawed, the outcome was
‘inconclusive.’<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">So if both
should it be done again?<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">To set the
record straight, or should we all learn from this and make sure mistakes will
not happened again and no one will be threatened if they complain again.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Or?<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">A very
quaked out country this.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">A very
fidgety vulnerable adult and child protection officer who admitted that
perception of the client’s disabilities were being wrongly perceived.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">He denied
labeling the disabilities, until the client stated fact ‘how else can you claim
calling a deaf person verbally abusive if they shout?’ is that labeling the
disability or the client, or is this a case of mistaken perception or a hurt
little boy being shouted at by a very deaf individual who he is chastising in
the name of ‘I will not put up with being verbally abused.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Who talked
about being verbally abused?<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The
complaint maker was distressed, is that abuse if she is very deaf.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Fast forward
to labeling again of Asperger and brain damage in any which way other than
Asperger and brain damage.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">So the
intelligent client complainer about sexual transgression suggests to this team
in front of her that she would like the opportunity to set the record straight
on labeling disability in all terms other than the person has a disability, one
too many in fact.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">All consider
this a grand idea and have gone away to think about that as neat.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">There was
one very exhausted client,whose van had clapped out againand had to get home in
the freezing cold in a open ended wheelchair.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">The lesson
has been learnt, but for one which lesson that is, is unclear.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<br /></div>
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Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com1tag:blogger.com,1999:blog-3570848227107227695.post-72646367158093039812017-11-04T11:58:00.000-07:002017-11-04T12:04:23.870-07:00Ann v's Beds V's Health care system in Ireland<a name='more'></a><div class="MsoNormal">
<b style="mso-bidi-font-weight: normal;"><u style="text-underline: thick;"><span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Ann V the Bed V the Health care
services<o:p></o:p></span></u></b></div>
<div class="MsoNormal">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Words such
as <i>‘<b>complex serious neurodegenerative disease</b>’</i> and it being a ‘<i><b>heavy disease
burden</b></i>,’ cuts no ice with any single person in the Republic of Ireland.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">It means
nothing to consultants or care givers. there is no understanding about what this means, what it entails and how it effects for the sufferer.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Does
<b>morphine</b> and <b>cannabis</b> ring a bell as we scream for Cannabis to be
legalised?</span></div>
<div class="MsoNormal">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Does it mean anything in
relation to pain and suffering and the alleviation of such suffering?</span></div>
<div class="MsoNormal">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span></div>
<div class="MsoNormal">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"> – yes, I
think the meaning behind Morphine and Cannabis does ring a bell with people.</span></div>
<div class="MsoNormal">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Lets say two
women aged 64 are on Morphine and one has received Cannabis through a pain
management clinic, that is the level of pain and that equals suffering. (the cannabis was taken off the market because big pharma priced it off the market). it was a cannibis substitute so you can see where all this is going in the legalisation of the real thing can't you?<o:p></o:p></span></div>
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<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Bring on the
Bed, or in our case the lack of.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">This saga
takes on <b>Norse tale</b> proportions as the enemy apparently being Beds has been ongoing
now for over five or six years.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">It is
getting to serious proportions.<o:p></o:p></span></div>
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<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span></div>
<div class="MsoNormal">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">You can read
in all the best manuals on health care and prevention the benefits of a good
nights sleep – here is one, for instance, <b style="mso-bidi-font-weight: normal;">from
Harvard University</b> no less, copied and pasted from their website:</span></div>
<div class="MsoNormal">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span></div>
<div class="MsoNormal">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><o:p></o:p>http://healthysleep.med.harvard.edu/healthy/matters/consequences/sleep-and-disease-risk</span></div>
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<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<b><span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">At
a Glance<o:p></o:p></span></b></div>
<ul style="margin-top: 0cm;" type="disc">
<li class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i style="background-color: lime;">The cost
of poor sleep is much greater than many people think: it may have profound
consequences for our long-term health.<o:p></o:p></i></span></li>
<li class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i style="background-color: lime;">Research
has revealed that people who consistently fail to get enough sleep are at
an increased risk of chronic disease, and scientists are now beginning to
understand why.<o:p></o:p></i></span></li>
<li class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i style="background-color: lime;">Treating
sleep as a priority, rather than a luxury, may be an important step in
preventing a number of chronic medical conditions.<o:p></o:p></i></span></li>
</ul>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial;">
<b><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i style="background-color: lime;">The Relationship Between Sleep and Health<o:p></o:p></i></span></b></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial;">
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i style="background-color: lime;">Not getting enough sleep can have profound consequences on a
daily and potentially long-term basis for your health and mental well-being.<o:p></o:p></i></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 14.4pt;">
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i style="background-color: lime;">We all have some sense of the relationship between sleep and our
ability to function throughout the day. After all, everyone has experienced the
fatigue, bad mood, or lack of focus that so often follow a night of poor sleep.
What many people do not realize is that a lack of sleep—<o:p></o:p></i></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 14.4pt;">
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i style="background-color: lime;">especially on a regular basis—is associated with long-term
health consequences, including chronic medical conditions like diabetes, high
blood pressure, and heart disease, and that these conditions may lead to a
shortened life expectancy. Additional research studies show that habitually
sleeping more than nine hours is also associated with poor health.<o:p></o:p></i></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial;">
<b><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i style="background-color: lime;">Researching the Link Between Sleep Duration and Chronic Disease<o:p></o:p></i></span></b></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial;">
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i style="background-color: lime;">There
are three main types of study that help us understand the links between sleep
habits and the risk of developing certain diseases. The first type (called
sleep deprivation studies) involves depriving healthy research volunteers of
sleep and examining any short-term physiological changes that could trigger
disease. Such studies have revealed a variety of potentially harmful effects of
sleep deprivation usually associated with increased stress, such as increased
blood pressure, impaired control of blood glucose, and increased
inflammation. <o:p></o:p></i></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial;">
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i style="background-color: lime;"><br /></i></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">so that is the experts 'take' on poor sleep for the education of the the common man or woman here.</span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">We
now have absorbed the research on the benefits of good sleep, quality sleep <b>back
to the Norse tale, in Ireland.<o:p></o:p></b></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><u>Two
women V.<span style="mso-spacerun: yes;"> </span>terrible beds.</u></b><o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Most '</span><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">normal' and 'average' people take bedding very seriously.</span><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"> </span><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">They actually do know a thing or two about
the benefits of a good night sleep.</span><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"> </span></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Workers who get up early would never bed down on ghastliness in order to
prepare for work, the effects are dangerous, from bad driving, death and poor
performance at work (and in bed)!</span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Bedding
is big business and an enormous amount is spent on sleep studies and bedding to
bring about maximum profits for the purchaser and also the companies involved.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i><b>What
if you are on morphine or cannabis and have no money, and I mean no money?</b></i> <u><b> </b></u></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><u><b>Like NO MONEY!</b></u> </span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">(don’t mistake a posh voice, a background in
a station above that which one is presently in, and a history of drippin' wealth
in a bygone age and generation). <o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Posh
voices, do not amount to “she must have money”</b><span style="mso-spacerun: yes;">
</span>eg on HSE OT files “we believe she is of independent means.”<span style="mso-spacerun: yes;"> </span></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Yes, the person who wrote that was regularly riding at my sister's major riding establishment. But, I am not that sister and never was or
anything near it. I was in social housing (to the embarrasement of both family and my links to my Killiney upbringing and education). Independence from family and society brought poverty on a power second to none. Queuing for the EU food mountain beef and cheese, (where has that gone to by the way, we could do with that stuff again)?</span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"> We laughed amongst ourselves that it was most likely horse we got to eat in them plastic bags we were taking home) and we were all dirt poor. you did not look a gift horse in the mouth.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i>The
posh individual though dirt poor is not ignorant on the need for good sleep.</i><o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><i>She
also has first hand knowledge of terrible sleep, terrible beds and terrible
mattresses.</i></b><o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Why
so – all who live through experience, learn from experience, and not by looking
at a book or a list on any auxilliary healthcare manual of items for giving to the sad community.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I
live with dystonia which is painful. I trash horribly lying down and go into spasms.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I
live with parkinsonism, this is akin to the real m'coy but not quite, but you
still do a horrible dance lying down.<span style="mso-spacerun: yes;">
</span>And there is the non-motor effects at night mentioned by the UK
specialist who suggested it may be interfering with my sleep.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I
have raynauds and everyone who has that will be able to report through
experience what that means, pain/boiling up feet and hands and then icy cold
feet and hands, tell us about it please, <i><b>well I could if you would listen.</b></i><o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Who
has fibromyalgia, now this is even recognized in Ireland, that is the Republic
of Ireland and I was diagnosed with it by an eminent professor no less. It's not
makie uppie, its very real.<span style="mso-spacerun: yes;"> </span>Who has
asked me in the medical field or primary care what this does to you at
night?<span style="mso-spacerun: yes;"> </span><i><b>No one.</b></i><o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Right
on we go in this tale of beds.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Did
I tell you the one on having no temperature control?<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Or
the one on having osteoarthritis, rheumatoid artritis, nerve entrapment and a
very painful and dodgy back,all proven from scans?<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Did
I ever tell you the one about stress of what I am going through right now that
has me on high alert, weeping and a chronic insomniac haunted by the vagaries
of a less than caring health service?<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i><b>Well
yes, I have told you about that one.</b></i><o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">And
have I told you about the one where my gp says the crohns is active because of
the stress?<span style="mso-spacerun: yes;"> </span>No, I didn’t.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Did
I tell you the NORSE TALE?</b><o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Ah,
coming to that.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">The
Health care provider was told over six years or more ago that I was in deep
pretty shit sleeping on the bed I had.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">By
this time I was broke because I <b><i>fled a gun slinger in social housing </i></b>and no one
helped me so I had to help<span style="mso-spacerun: yes;"> </span>myself
leaving me broke, <i><b>stoney so.</b></i><o:p></o:p></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjy3CFq9KsGkKnCHjlX-X86mvHFOB_-Qio35VWn6TxZAA9YfkhrE6n9yxAQoOCWnN6IEGfrXC7IOHxSPTCHGXXXDEF1AifRYH1zRz6eioztcW7YSGfc84ersHeN-vJNy0Ybl2Xp-2jeynZ4/s1600/twin+sleeping+on+the+floor+early+morning.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><span style="background-color: lime; color: red;"><img border="0" data-original-height="488" data-original-width="325" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjy3CFq9KsGkKnCHjlX-X86mvHFOB_-Qio35VWn6TxZAA9YfkhrE6n9yxAQoOCWnN6IEGfrXC7IOHxSPTCHGXXXDEF1AifRYH1zRz6eioztcW7YSGfc84ersHeN-vJNy0Ybl2Xp-2jeynZ4/s400/twin+sleeping+on+the+floor+early+morning.jpg" width="266" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b style="background-color: lime;">god forbid this was truly hell, on the floor is my twin sister as the tiny sofa was too uncomfortable (she had a diagnosis of parkinsons disease ffs) -she came to live with me when we sold a tiny town house to get me away from 'gun slingers' in this social housing enclave, the council said by doing so she jepardised my social housing status and i could have been flung out, would ya look at the dump - would you put a dog in this place? well they do, apparently according to the last ed of Prime Time</b></span></td></tr>
</tbody></table>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I
engage with the services to try and get a better sleep, as too does my twin but
her norse tale is for her to tell.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I
get foam toppers.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Please
refer to above and ‘heat’<span style="mso-spacerun: yes;"> </span>and more
besides.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Do
people fully understand memory foam?<span style="mso-spacerun: yes;"> </span>Do
you want<span style="mso-spacerun: yes;"> </span>a lesson, well it can really be
said in two sentences – <b>it cannot dispense heat and it holds it making you boil
up.</b> <span style="mso-spacerun: yes;"> </span><b><i>It also lets out toxic chemicals,
which irrates.</i></b><o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">And
the astronauts didn’t bring it to the moon, no they didn’t. Latex was the miracle invention through the Nasa Program.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">But
also it was the first synthetic sophisticated attempt to bring comfort after
the horse hair and the springs, it doesn’t work well with a lot of people.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">What
about air then, you know inflated with or without machines.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">They
are encased in plastic, that too does nothing for a person who over heats
anyway, and air does strange things, it can move in ripples and you wait for it
as you attempt to sleep and of course as you wait you fail to sleep, it hits ya in the middle of your back as it ripples up and down, and how anyone can sleep waiting for it i don't know.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">The
machine hums madly but as I am deaf that wasn’t a worrying factor, it just was
so lacking in support I couldn’t bare it.<o:p></o:p></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8c4NXs2J08H4FjcSyZJhuZIOm4VyNyZQD3ZxlKjjarkENdc4PjzLnlbWSpwOpof7QXEbmzpz6tS0eanGS0doqXUQkDRB0mz6LIS84a93yaNcBpDlTHerML4W-coPPv6hAAKm9xfxNeqv3/s1600/thumb__MG_8752_1024.jpg" imageanchor="1" style="background-color: lime; margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="724" data-original-width="1086" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8c4NXs2J08H4FjcSyZJhuZIOm4VyNyZQD3ZxlKjjarkENdc4PjzLnlbWSpwOpof7QXEbmzpz6tS0eanGS0doqXUQkDRB0mz6LIS84a93yaNcBpDlTHerML4W-coPPv6hAAKm9xfxNeqv3/s400/thumb__MG_8752_1024.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b style="background-color: lime;">it came as an awful surprise that so many foam toppers i still had about the house, as i strung em up to hand back!</b></span></td></tr>
</tbody></table>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Five
years of varying types of these, foam in all shapes and forms, but all made of
the same material and ditto air bags all made of the same material but coming
in different shapes and forms.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i><b>My mental health state was worsening by the day, so I flung the last air mattress down to the
health centre.</b></i><o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I
now was in a state of post traumatic stress disorder phase and the mention of a fantastic
new idea from the HSE on a foam that...had me sweating in terror, that yet
another form of foam was going to be produced.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">It
was.<o:p></o:p></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_bnyRvIUcHAaqS4B28OooXxgv_ASP2YfZ2h-WmiXIBJliGytC0MwfoNZPKuWKMOJLtW9pR3BO8lGxS48Gefw8KHqVDpmhSvihquNvA4Zl4aAQsFq0ut7ODEEEmYy3RdjEomdTsdNXka4F/s1600/_MG_9988.JPG" imageanchor="1" style="background-color: lime; margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_bnyRvIUcHAaqS4B28OooXxgv_ASP2YfZ2h-WmiXIBJliGytC0MwfoNZPKuWKMOJLtW9pR3BO8lGxS48Gefw8KHqVDpmhSvihquNvA4Zl4aAQsFq0ut7ODEEEmYy3RdjEomdTsdNXka4F/s400/_MG_9988.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b style="background-color: lime;">Yes i flung the mattress back and left with the carcass now - months</b></span></td></tr>
</tbody></table>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Five
years down the road, I flung the stuff back into the health centre, and over
six or seven months later I have nothing to lie on.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">So
I bail out at twin's place but the bed still proved not great at all, but
certainly it was not a squished up miniature single bed.<span style="mso-spacerun: yes;"> </span>It was a double which allowed a fair bit of
tossing room for me, which was great.<o:p></o:p></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7cYKcgYKA14dWj_ViUx62aGgjQncqod9OXxxAQfcTIhJXjyfJnLfpDY_7PzyLWYH7XDzE5bUQQwqEv0Ng5jBZm04Obun2mFFRdPvg0lLiO5yTYwArh-oBL_S2xbgfQ3OGfOfQQB8VE8Yp/s1600/somewhere+there+is+my+bed.jpg" imageanchor="1" style="background-color: lime; margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7cYKcgYKA14dWj_ViUx62aGgjQncqod9OXxxAQfcTIhJXjyfJnLfpDY_7PzyLWYH7XDzE5bUQQwqEv0Ng5jBZm04Obun2mFFRdPvg0lLiO5yTYwArh-oBL_S2xbgfQ3OGfOfQQB8VE8Yp/s400/somewhere+there+is+my+bed.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b style="background-color: lime;">the sick dog belonging to my twin sister loved that double bed too, for stretching about as she slept, but lordie what a mess she made of it.</b></span></td></tr>
</tbody></table>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">But
I wanted to come home.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I
came home.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">The
small version of a single bed was mattressless but there was a spare bed in the
extension with a camp bed mattress given to me by a PA who was dispensing with
it.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I
put the rail that hoists up the blankies off my skin so I could sleep, blankets
hurt,even the fluffy type.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">But
it shifted the mattress to a side slant and I rolled last night and nearly hit
the deck, meaning the floor.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Today
two very tired woman dragged two bases of a double bed into an adapted van
without the wheelchairs in it, to my home.<span style="mso-spacerun: yes;">
</span><b>This isn’t funny and make no<span style="mso-spacerun: yes;">
</span>mistake about it, its far from funny.</b><o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">That
was put in the extension and the same camp bed mattress was put on it, but at
least I wont roll off, but I have had to split the bed cradle in two so that
one is on either side in case I actually do.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I
now have a double bed, a single mattress, a converted blanket cradle into grab
rails and a knackered body preparing to sleep again on not the right surfaces
at all.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><span style="mso-spacerun: yes;"> </span>I need a sleep system, but although where I
can get this is a <b>National Centre of excellence </b>the Health caring professionals
are denying me access.<span style="mso-spacerun: yes;"> </span>I am unaware
where the denying comes in if the centre advertises itself as a National centre
with self referring being an option or through any medical person. I have
been to the centre before and so they give the like of me a chance to get there
quicker, but not if the HSE has anything to do with it.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">It’s
the only centre that does sleep systems!<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Nothing
makes sense to me anymore in this small country of mine.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">If
the lengths both the health care professionals have gone in trying to get me a
bed and the length I have gone hasn’t produced one either we simply cannot seem
to sort a basic.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<o:p><span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"> No wonder Apple are pulling out, due to not sorting our Planning Laws!</span></o:p></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I
have had more professionals grouping around a single hospital bed in<span style="mso-spacerun: yes;"> </span>my bedroom, with and without its mattress and
staring at the bed but nothing further done.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I
have tissue integrity nurses and nurses denying me a bed that suits my diseases
because she needs to be sure it is capable of tissue integrity to which I
inform her tissue integrity will not be an issue for me unless I am dying as I
fling like nuts around the bed through my various diseases.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">It’s
a bit like the long term solution for bathing, the bloody hole in the ground –
which they insisted I had and which I resisted and won and six years later I
still can get in the bath and glad I can because it’s the only therapeutic aid
that relieves me some of the terrible pain.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime;"><br /></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I
am sick of it.<o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">You
can tell.<o:p></o:p></span></div>
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<span style="background-color: lime;"><br /></span></div>
<span style="background-color: lime;"><br /></span>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: lime;"><br /></span></div>
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<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><i>But
will someone tell the HSE that the next stop will be St John of God if they
don’t sort this mess.</i><o:p></o:p></span></div>
<div class="MsoNormal" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 18pt;">
<span style="background-color: lime; color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Its
not right and its torturous.<o:p></o:p></span></div>
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<span style="background-color: lime;"><br /></span></div>
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Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-64803913229950356402017-10-15T01:48:00.001-07:002017-10-15T01:48:16.825-07:00Healthcare in Ireland - not for identical twins- rights and evidence of RIGHTS to healthcare denied to Twin sisters in Ireland<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the fight has been 'unreal' and our needs have certainly NEVER been met here.</b></span><div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>On all levels we have been let down and consistently so.</b></span></div>
<div>
<a data-ft="{"tn":"-U"}" data-lynx-mode="async" data-lynx-uri="https://l.facebook.com/l.php?u=http%3A%2F%2Fwww.independent.ie%2Firish-news%2Fhealth%2Fsometimes-we-think-of-ending-it-all-we-are-terribly-weary-of-fighting-36228032.html&h=ATO-6wbE3OP8cuuGcxDU_4Fnfq1csx5ycPegjEMuu6rG9F5gzTdd68lXhxchJIPAKUfyFSO7pHpNbyfPp56Tgy2PQ8EgTIYmncEtMAwY3kbuHAcLkWCNB85SWBQKGZMfz5uszcw1eTS9Xzqvrs5b9Rc7qAvvVlIB4iIqnXnJ9tx1eOHzxf7jABPaUiKSa2MvbyhHBDVxYcRIDLvPYxoUmccp162erxIKjkzZqqJBfj8qKLG1pY96JnB29Ni8Im6Ff_9drqSVneFbepl8EHVIVh7nnQHmgY4uBY2x" href="http://www.independent.ie/irish-news/health/sometimes-we-think-of-ending-it-all-we-are-terribly-weary-of-fighting-36228032.html" rel="noopener nofollow" style="background-color: white; color: #365899; cursor: pointer; font-family: "Helvetica Neue", Helvetica, Arial, sans-serif; font-size: 14px; text-decoration-line: none;" target="_blank">http://www.independent.ie/…/sometimes-we-think-of-ending-it…</a></div>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj82OEP90Gl4B8LvRYSFW3qb7tAsz4c_lDN3yntrCidkvNatEpiXEKBtQ3dJ0W_sLG1kkDDIYt6gTsuzBSgZbE4K753osbEmQBVIjpmSitxNuuzRq8FOp8vBIt6f5b7VUFMhIHvmTYZVBmG/s1600/19575203_1596229843743177_626286675827556874_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj82OEP90Gl4B8LvRYSFW3qb7tAsz4c_lDN3yntrCidkvNatEpiXEKBtQ3dJ0W_sLG1kkDDIYt6gTsuzBSgZbE4K753osbEmQBVIjpmSitxNuuzRq8FOp8vBIt6f5b7VUFMhIHvmTYZVBmG/s640/19575203_1596229843743177_626286675827556874_o.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;">my journey has been 'unreal' left like this for two years (dated circa 2007) before i was allowed over to UK to find out why i was so ill and could not walk at this stage - though i taught myself to walk again after this first "out."<br /></span></td></tr>
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</b></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipUsD9k6ugNBhUbfh8iHHySJngbRP9yXsq7h82OZZ2XRcW4HnRIa_et-qMQaHPIr9ArqIU4ggOOTgyLHDRcnG8U4O_WrYRqX0anonyo_ZBqpG22uqlt0Kk5lJy1YKbRUPYnP9S2h65pcYu/s1600/21753065_1682530161779811_1323907694725756822_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipUsD9k6ugNBhUbfh8iHHySJngbRP9yXsq7h82OZZ2XRcW4HnRIa_et-qMQaHPIr9ArqIU4ggOOTgyLHDRcnG8U4O_WrYRqX0anonyo_ZBqpG22uqlt0Kk5lJy1YKbRUPYnP9S2h65pcYu/s640/21753065_1682530161779811_1323907694725756822_o.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>first image was 'then' (2008) and this is 'now' (2017) - the fight within has to be for all sick and disabled, as we had planned a camp out but gave up, too ill and it did lack organisation, next time it won't! Should we have to do this in Enda's so called 'modern society?'</b></span></td></tr>
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<div>
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b></div>
<div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>a level headed piece in the Sunday Independent today, really encapsulates needs which </b></span><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;">doesn't </b><b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"><div class="separator" style="clear: both; color: blue; display: inline !important; text-align: center;">
<b>seem to be too much to ask given the complexity, i will share its link here</b></div>
</b></div>
<div>
<a data-ft="{"tn":"-U"}" data-lynx-mode="async" data-lynx-uri="https://l.facebook.com/l.php?u=http%3A%2F%2Fwww.independent.ie%2Firish-news%2Fhealth%2Fsometimes-we-think-of-ending-it-all-we-are-terribly-weary-of-fighting-36228032.html&h=ATO-6wbE3OP8cuuGcxDU_4Fnfq1csx5ycPegjEMuu6rG9F5gzTdd68lXhxchJIPAKUfyFSO7pHpNbyfPp56Tgy2PQ8EgTIYmncEtMAwY3kbuHAcLkWCNB85SWBQKGZMfz5uszcw1eTS9Xzqvrs5b9Rc7qAvvVlIB4iIqnXnJ9tx1eOHzxf7jABPaUiKSa2MvbyhHBDVxYcRIDLvPYxoUmccp162erxIKjkzZqqJBfj8qKLG1pY96JnB29Ni8Im6Ff_9drqSVneFbepl8EHVIVh7nnQHmgY4uBY2x" href="http://www.independent.ie/irish-news/health/sometimes-we-think-of-ending-it-all-we-are-terribly-weary-of-fighting-36228032.html" rel="noopener nofollow" style="background-color: white; color: #365899; cursor: pointer; font-family: "Helvetica Neue", Helvetica, Arial, sans-serif; font-size: 14px; text-decoration-line: none;" target="_blank">http://www.independent.ie/…/sometimes-we-think-of-ending-it…</a></div>
<div>
<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: red; font-size: x-large;"><b></b></span><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguL5UXVdYYTxwgSFLGFLOX5OsIY1nsG9Jme1Lx2GCvvgkK3GVMaG_-RB2RR54jJI7bldHXnKw6pY4qy18-raWS-e07khsT864WINbY-H4WD8JiVvWBeDFqgrBLwR-ctuWe52N872cQPHr6/s1600/22449882_10155654440362348_2772564099464203668_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="184" data-original-width="274" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguL5UXVdYYTxwgSFLGFLOX5OsIY1nsG9Jme1Lx2GCvvgkK3GVMaG_-RB2RR54jJI7bldHXnKw6pY4qy18-raWS-e07khsT864WINbY-H4WD8JiVvWBeDFqgrBLwR-ctuWe52N872cQPHr6/s1600/22449882_10155654440362348_2772564099464203668_n.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b style="font-size: xx-large;"><div class="separator" style="clear: both; display: inline !important;">
<span style="color: red;">this image that goes with this latest article belies the pain beneath this facade, the facade is a 'truth in personality' if allowed, we want to live life with a sense of fun and happiness, but this image belongs to the time to come, not the present experience as we feel it right now.</span></div>
</b></td></tr>
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<tr><td style="text-align: center;"><img border="0" data-original-height="724" data-original-width="724" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_WqucwX70mSH2uF41L8v5JXkz7eeatIoRgPS1HAM9utrucx_wL7Wp1_3C31UaGsP3U3ecC1B6FraQy3gV1XNhFdsF9gCi0u3o6ZUp5VIoqbmrEhi3CIhS5NLUYJSU0JFMb_lUf5KT7Hnu/s640/18739886_1561214907244671_2340791577107976699_n.jpg" style="margin-left: auto; margin-right: auto;" width="640" /></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>an obscene situation to be trapped in Ireland like this, taken this year in dire distress at decline and no care here</b></span></td></tr>
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<div class="separator" style="clear: both; color: blue; display: inline !important; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_WqucwX70mSH2uF41L8v5JXkz7eeatIoRgPS1HAM9utrucx_wL7Wp1_3C31UaGsP3U3ecC1B6FraQy3gV1XNhFdsF9gCi0u3o6ZUp5VIoqbmrEhi3CIhS5NLUYJSU0JFMb_lUf5KT7Hnu/s1600/18739886_1561214907244671_2340791577107976699_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_WqucwX70mSH2uF41L8v5JXkz7eeatIoRgPS1HAM9utrucx_wL7Wp1_3C31UaGsP3U3ecC1B6FraQy3gV1XNhFdsF9gCi0u3o6ZUp5VIoqbmrEhi3CIhS5NLUYJSU0JFMb_lUf5KT7Hnu/s1600/18739886_1561214907244671_2340791577107976699_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a></div>
<div style="color: blue;">
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMbhQz7nSy0BoCMl9-P4TWhgLaqYUFsQR8z28l6gRmOQw8y5fw2DUti8xFnYaAr2vU_kuVy-vqmhcV76AmVjj8wdqkzU-aCBGijRk6NXLIeAP7lYdaMVSMYLPqKNAhsuSLMl7_UwF1gVrT/s1600/21688075_1682528061780021_669138152522971349_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMbhQz7nSy0BoCMl9-P4TWhgLaqYUFsQR8z28l6gRmOQw8y5fw2DUti8xFnYaAr2vU_kuVy-vqmhcV76AmVjj8wdqkzU-aCBGijRk6NXLIeAP7lYdaMVSMYLPqKNAhsuSLMl7_UwF1gVrT/s640/21688075_1682528061780021_669138152522971349_o.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>should very sick old women have to nobble the Minister Finian McGrath outside the Dail about the ratification of the Human rights convention and more besides, and get an equally consistent fob off for our efforts?</b></span></td></tr>
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<div style="color: blue;">
<b>i have consistently fought my corner for the care i know we should be getting and faced the state with very real disadvantage for those of us at the lower end of the economic strata who have to use the public healthcare system here.</b></div>
</b></span></div>
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<b style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: xx-large; text-align: center;"><b><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdvYJ_SFJT0aL-s_Za3qhJKVO4AvdepqYMSvPW3kC3iTlex02HM8DDONrLJdKHA8dOBuzU2j78HfvNY0LJzFOZiPjrw09goC3yM_VTbqm-py5E0ca6wqOWhZpu64cAzKFoLEEAMqsqCsaL/s1600/16300058_10154857311057348_9111248214581476649_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdvYJ_SFJT0aL-s_Za3qhJKVO4AvdepqYMSvPW3kC3iTlex02HM8DDONrLJdKHA8dOBuzU2j78HfvNY0LJzFOZiPjrw09goC3yM_VTbqm-py5E0ca6wqOWhZpu64cAzKFoLEEAMqsqCsaL/s400/16300058_10154857311057348_9111248214581476649_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>it was and has been an 'obscene' battle of wits pitching very sick people against a massive organisation - this time the bullying that forced this article as they threatened to take away the wheelchair i had</b></span></td></tr>
</tbody></table>
</b></b></div>
<div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
<div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Public Healthcare is for people who do not have insurance.</b></span></div>
<div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>this means we are being provided for as is our right as citizens, but what many do not fully realise - very few are getting the care they need, lists are huge now, dangerous practises are at play and unqualified staff are doing complicated surgery way beyond what they are trained to do.</b></span></div>
<div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>this is 'guinea pig' style healthcare where 'anything goes' for the poor.</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
<div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i am fighting this injustice.</b></span></div>
<div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i have a limited life left and i experienced a packed full life of hardship and abuse but i never expected any of this to stem from our state systems, this was a real eye opener that the abuse we had had to overcome through our younger life is multiplied when you become so ill at the end of a difficult life span and face large faceless organisations who are in complete denial of their remit to care for the sick and the vulnerable.</b></span></div>
<div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
<div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>fight on i will.</b></span></div>
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<b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvtwcb5QcmGwqlfpDWnfCB5H1dOCt3MbRu3Vma1vWbyO6ivm9xW4MjSGdAfPY46bLzzUinc6eOsaPY0ygHitluO0VAcLQUiW0TOgxNRbgm47RvRrtX5mVHE19rP3RbperpsU7KzBMnZLYf/s1600/16388003_10154857320202348_5573816790216419968_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="720" data-original-width="960" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvtwcb5QcmGwqlfpDWnfCB5H1dOCt3MbRu3Vma1vWbyO6ivm9xW4MjSGdAfPY46bLzzUinc6eOsaPY0ygHitluO0VAcLQUiW0TOgxNRbgm47RvRrtX5mVHE19rP3RbperpsU7KzBMnZLYf/s640/16388003_10154857320202348_5573816790216419968_n.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>watch this phrase <u>'persistent complainers' </u>and look for it on <u>your</u> files, because those who fight their corner can be labelled this and thereafter you will be ignored. they made this stance unknown to us under their 'vexacious complaints' policy, thankfully we won our case against this awful terminology and with that the engagement with the HSE has begun, but its very slow and far too slow to sort a veritable mess.<br />condemnation of this accusation came from many groups and politicians.</b></span></td></tr>
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</b></div>
<div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>looking at the fabulous expansive detail in policy that has been enacted which must have taken yardage and funding to produce remains that sophisticated papers still take ink but after that we have what appears to be 'impasse'</b></span></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
<div>
<br /><div align="center" class="MsoNormal" style="background-color: white; font-family: arial, sans-serif; text-align: center;">
<span style="color: red; font-size: x-large;">Standards of care for people with disabling (progressive and static) neurological conditions in the hospitals and community<u></u><u></u></span></div>
<div align="center" style="background-color: white; font-family: arial, sans-serif; text-align: center;">
<span style="color: red; font-size: x-large;">2008<u></u><u></u></span></div>
<div align="center" style="background-color: white; font-family: arial, sans-serif; text-align: center;">
<br /></div>
<div align="center" style="background-color: white; font-family: arial, sans-serif; text-align: center;">
<span style="color: red; font-size: x-large;">the Rare Diseases Plan<u></u><u></u></span></div>
<div align="center" style="background-color: white; font-family: arial, sans-serif; text-align: center;">
<span style="color: red; font-size: x-large;">2014<u></u><u></u></span></div>
<div align="center" style="background-color: white; font-family: arial, sans-serif; text-align: center;">
<br /></div>
<div align="center" style="background-color: white; font-family: arial, sans-serif; text-align: center;">
<span style="color: red; font-size: x-large;">Plans devised by Experts spanning 7 years.<u></u><u></u></span></div>
<div align="center" style="background-color: white; font-family: arial, sans-serif; text-align: center;">
<br /></div>
<div align="center" style="background-color: white; font-family: arial, sans-serif; text-align: center;">
<span style="color: red; font-size: x-large;">Action thus far – zero – for Ann and Margaret Kennedy in the context of complex disabling progressive neurological conditions (in the hospitals and community) and the Rare diseases Plan of 2014</span></div>
<div align="center" style="background-color: white; font-family: arial, sans-serif; text-align: center;">
<span style="color: red; font-size: x-large;"><i><br /></i></span></div>
<div style="background-color: white;">
<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"><i>we contend that NO diseases specific care, treatment, oversight, diagnostic tools have been use in the past two years and some date back to lack of disease appropriate treatment and therapies have ever been implimented as first recommended in 2009.</i></span></div>
<div style="background-color: white;">
<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"><br /></span></div>
<div style="background-color: white;">
<span style="color: red; font-family: arial, sans-serif; font-size: x-large;">this is a violation of our rights to healthcare.</span></div>
<div style="background-color: white;">
<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"><br /></span></div>
<div style="background-color: white;">
<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"><br /></span></div>
<div style="background-color: white;">
<span style="color: red; font-family: arial, sans-serif; font-size: x-large;"><u>THE EUROPEAN CHARTER FOR PATIENTS RIGHTS</u></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">The Nice Charter of Fundamental Rights will soon be part of the new European constitution. </span><span style="color: red; font-family: arial, sans-serif; font-size: x-large;">(i believe it already is)</span><span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"> It is the basis of the declaration of the fourteen concrete patients’ rights currently at risk: </span><span style="color: red; font-family: arial, sans-serif; font-size: x-large;">the right to preventive measures, access, information, consent, free choice, privacy and confidentiality, respect of patients’ time, observance of quality standards, safety, innovation, avoidance of unnecessary suffering and pain and personalised treatment, and the right to complain and to receive compensation. </span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">These rights are also linked to several international declarations and recommendations, issued by both the WHO and the Council of Europe. They regard organisational standards and technical parameters, as well as professional patterns and behaviour. </span></div>
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<span style="color: red; font-family: arial, sans-serif; font-size: x-large;"><u><b>THIS CHARTER FURTHER CLAIMS:</b></u></span></div>
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<span style="font-family: arial, sans-serif; font-size: x-large;"><span style="color: blue;">The Charter of Fundamental Rights, </span><b><span style="color: red;"><u>(we have signed up to this)</u></span></b><span style="color: blue;"> which will represent the first “brick” in the European constitution, is the main reference point of the present Charter. </span><span style="color: red;"><i><b>It affirms a series of inalienable, universal rights, which EU organs and Member States cannot limit, and individuals cannot waive. </b></i></span></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">♦ Article 35 of the Charter provides for a right to health protection as the </span><span style="color: red; font-family: arial, sans-serif; font-size: x-large;"><i><b>“right of access to preventive health care and the right to benefit from medical treatment under the conditions established by national laws and practices”.</b></i></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Article 35 specifies that the Union must guarantee </span><span style="color: red; font-family: arial, sans-serif; font-size: x-large;"><i><b>“a high level of protection of human health,” meaning health as both an individual and social good, as well as health care. This formula sets a guiding standard for the national governments: do not stop at the floor of the “minimum guaranteed standards” but aim for the highest level, notwithstanding differences in the capacity of the various</b></i></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">♦ In addition to Article 35, the Charter of Fundamental Rights contains many provisions that refer either directly or indirectly to patients’ rights, and are worth recalling: </span><span style="color: red; font-family: arial, sans-serif; font-size: x-large;"><i><b>the inviolability of human dignity (article 1) and the right to life (article 2); the right to the integrity of the person</b></i></span></div>
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<span style="color: red; font-family: arial, sans-serif; font-size: x-large;"><i><b>(article 3); </b></i></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"><b><u> 2.Other international references</u></b></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">The fourteen rights illustrated below are also linked to other international documents and declarations, emanating in particular from the WHO and the Council of Europe. As regards the WHO, the most relevant documents are the following:</span></div>
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<span style="color: red; font-family: arial, sans-serif; font-size: x-large;"><i><b>- The Declaration on the Promotion of Patients’ Rights in Europe, endorsed in Amsterdam in 1994;</b></i></span></div>
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<span style="color: magenta; font-family: arial, sans-serif; font-size: x-large;"><b><i>PART TWO: FOURTEEN RIGHTS OF THE PATIENT</i></b></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">This part proposes the proclamation of fourteen patients’ rights, which together seek to render the fundamental rights recalled above concrete, applicable and appropriate to the current transitory situation in the health services. </span><span style="color: red; font-family: arial, sans-serif; font-size: x-large;"><i><b>These rights all aim to guarantee a “high level of human health protection” (Article 35 of the Charter of Fundamental Rights), to assure the high quality of services provided by the various national health services. They must be protected throughout the entire territory of the European Union. </b></i></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">1-Right to Preventive Measures</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Every individual has the right to a proper service in order to prevent illness. </span><span style="color: red; font-family: arial, sans-serif; font-size: x-large;"><i><b>The health services have the duty to pursue this end by raising people’s awareness, guaranteeing health procedures at regular intervals free of charge for various groups of the population at risk, and making the results of scientific research and technological innovation available to all.</b></i></span></div>
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<span style="color: red; font-family: arial, sans-serif; font-size: x-large;"><i><b>Every individual has the right of access to the health services that his or her health needs require.</b></i></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">The health services must guarantee equal access to everyone, without discriminating on the basis of financial resources, place of residence, kind of illness or time of access to services. An individual requiring treatment, but unable to sustain the costs, has the right to be served free of charge.</span></div>
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<span style="color: red; font-family: arial, sans-serif; font-size: x-large;"><i><b>Each individual has the right to adequate services, independently of whether he or she has been admitted to a small or large hospital or clinic. </b></i></span><span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Each individual, even without a required residence permit, has the right to urgent or essential outpatient and inpatient care.</span></div>
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<span style="color: red; font-family: arial, sans-serif; font-size: x-large;"><b>An individual suffering from a rare disease has the same right to the necessary treatments and medication as someone with a more common disease.</b></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">3-Right to Information</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Every individual has the right to access to all kind of information regarding their state of health, the health services and how to use them, and all that scientific research and technological innovation makes available. </span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Health care services, providers and professionals have to provide patient-tailored information, particularly taking into account the religious, ethnic or linguistic specificities of the patient. The health services have the duty to make all information easily accessible, removing bureaucratic obstacles, educating health care providers, preparing and distributing informational materials.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">A patient has the right of direct access to his or her clinical file and medical records, to photocopy them, to ask questions about their contents and to obtain the correction of any errors they might</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">contain. A hospital patient has the right to information which is continuous and thorough; this might be guaranteed by a “tutor”.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Every individual has the right of direct access to information on scientific research, pharmaceutical care and technological innovations. This information can come from either public or private sources, provided that it meets the criteria of accuracy, reliability and transparency. </span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">4-Right to Consent</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Every individual has the right of access to all information that might enable him or her to actively participate in the decisions regarding his or her health; this information is a prerequisite for any procedure and treatment, including the participation in scientific research.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Health care providers and professionals must give the patient all information relative to a treatment or an operation to be undergone, including the associated risks and discomforts, side-effects and</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">alternatives. This information must be given with enough advance time (at least 24 hours notice) to enable the patient to actively participate in the therapeutic choices regarding his or her state of</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Health care providers and professionals must use a language known to the patient and communicate in a way that is comprehensible to persons without a technical background.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">In all circumstances which provide for a legal representative to give the informed consent, the patient, whether a minor or an adult unable to understand or to will, must still be as involved as possible in the decisions regarding him or her.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">The informed consent of a patient must be procured on this basis.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">A patient has the right to refuse a treatment or a medical intervention and to change his or her mind during the treatment, refusing its continuation. A patient has the right to refuse information about his or her health status.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">5-Right to Free Choice</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Each individual has the right to freely choose from among different treatment procedures and providers on the basis of adequate information. The patient has the right to decide which diagnostic exams and therapies to undergo, and which primary care doctor, specialist or hospital to use. The health services have the duty to guarantee this right, providing patients with information on the various centres and doctors able to provide a certain treatment, and on the results of their activity. They must remove any kind of obstacle limiting exercise of this right. </span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Ann and Margaret Kennedy believe this fundamental right has been quashed through prevarication, stalling and claiming 'ignorance'</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">A patient who does not have trust in his or her doctor has the right to designate another one. </span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Ann and Margaret Kennedy contend this should NOT take over a year and a half to deliver! it therefore contravenes their right to treatment in a timely manner consistent with their disease burden</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">6-Right to Privacy and Confidentiality</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Every individual has the right to the confidentiality of personal information, including information regarding his or her state of health and potential diagnostic or therapeutic procedures, as well as</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">the protection of his or her privacy during the performance of diagnostic exams, specialist visits, and medical/surgical treatments in general.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">All the data and information relative to an individual’s state of health, and to the medical/surgical treatments to which he or she is subjected, must be considered private, and as such, adequately protected. </span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"> 6</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Personal privacy must be respected, even in the course of medical/surgical treatments (diagnostic exams, specialist visits, medications, etc.), which must take place in an appropriate environment and in the presence of only those who absolutely need to be there (unless the patient has explicitly given consent or made a request).</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">7-Right to Respect of Patients’ Time</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Each individual has the right to receive necessary treatment within a swift and predetermined period of time. This right applies at each phase of the treatment. The health services have the duty to fix waiting times within which certain services must be provided, on the basis of specific standards and depending on the degree of urgency of the case. Ann and Margaret Kennedy contend that this is about the most serious error of protocol within these rights for time is of the essence and the protracted prevarication to offer and deliver service has endangered both their physical health and their psychological wellbeing</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">The health services must guarantee each individual access to services, ensuring immediate sign-up in the case of waiting lists.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Every individual that so requests has the right to consult the waiting lists, within the bounds of respect for privacy norms.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Whenever the health services are unable to provide services within the predetermined maximum times, the possibility to seek alternative services of comparable quality must be guaranteed, and any costs borne by the patient must be reimbursed within a reasonable time. Ann and Margaret Kennedy contend that there has been NO effective oversight, care or delivery of treatments, diagnostics for the past two years and this is far too long and we have the RIGHT to seek althernative services of comparable quality and this must be guaranteed</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Doctors must devote adequate time to their patients, including the time dedicated to providinginformation.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">8-Right to the Observance of Quality Standards</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Each individual has the right of access to high quality health services on the basis of the specification and observance of precise standards.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">The right to quality health services requires that health care institutions and professionals provide satisfactory levels of technical performance, comfort and human relations. </span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">This implies the specification, and the observance, of precise quality standards, fixed by means of a public and consultative procedure and periodically reviewed and assessed. We have been denied this right</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">9-Right to Safety</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Each individual has the right to be free from harm caused by the poor functioning of health services, medical malpractice and errors, and the right of access to health services and treatments that meet</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"> To guarantee this right, hospitals and health services must continuously monitor risk factors and ensure that electronic medical devices are properly maintained and operators are properly trained.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">All health professionals must be fully responsible for the safety of all phases and elements of a medical treatment. </span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">we believe we have been harmed by both the delays, the hospital lack of care and lack of being allowed question the safety of all phases and elements of a medical treatment - eg sticking needles in my head forming a blood clot from a registrar who had no patients. eg not being told i had had a stroke. eg no delivery of a care plan and admitted as such from the primary consultant who has left us in a horrible situation of no care whatsoever</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"> 7</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Medical doctors must be able to prevent the risk of errors by monitoring precedents and receiving continuous training. my rights to have addressed complaints made to a hospital and by a doctor have been ignored, this is wrong and violates my rights to medical safety and clarity of information and discourse and communication</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Health care staff that report existing risks to their superiors and/or peers must be protected frompossible adverse consequences.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">10-Right to Innovation</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Each individual has the right of access to innovative procedures, including diagnostic procedures, according to international standards and independently of economic or financial considerations. </span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">we had always known this and no one should tear asunder a process that is available in protocol of rare diseases and complex cases and prevent us from leaving the county leaving us prisoners of the state</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">The health services have the duty to promote and sustain research in the biomedical field, paying particular attention to rare diseases.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Research results must be adequately disseminated.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">11-Right to Avoid Unnecessary Suffering and Pain</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Each individual has the right to avoid as much suffering and pain as possible, in each phase of his or her illness.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">The health services must commit themselves to taking all measures useful to this end, like providing</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">palliative treatments and simplifying patients’ access to them. </span></div>
<div style="background-color: white;">
<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"> Our suffering for the past ten years with no implementation of a plan and for the past two years with no oversight, doctor and an ability to use new pathways for assessments, overviews, evaluations and diagnostics has been denied and we are in severe pain</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"><br /></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">12-Right to Personalized Treatment</span></div>
<div style="background-color: white;">
<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"><br /></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Each individual has the right to diagnostic or therapeutic programmes tailored as much as possible to his or her personal needs.</span></div>
<div style="background-color: white;">
<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">The health services must guarantee, to this end, flexible programmes, oriented as much as possible to the individual, making sure that the criteria of economic sustainability does not prevail over the right to health care. we had known this to be our right</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"><br /></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">13-Right to Complain</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Each individual has the right to complain whenever he or she has suffered a harm and the right to receive a response or other feedback.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">The health services ought to guarantee the exercise of this right, providing (with the help of third parties) patients with information about their rights, enabling them to recognise violations and to</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">formalise their complaint. A complaint must be followed up by an exhaustive written response by the health service authorities</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">within a fixed period of time. this has been denied both Ann Kennedy and Margaret Kennedy who has received not one single response from the hospital, consultant nor the CEO or the HSE regarding our complaints, that feedback and the right to both make a complaint and receive a response. Please note there are outstanding complaints placed to the HSE itself which have received absolutely no response, investigation or feedback</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"> 8</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">The complaints must be made through standard procedures and facilitated by independent bodies and/or citizens’ organizations and cannot prejudice the patients’ right to take legal action or pursue alternative dispute resolution. Margaret and Ann are aware of this and we must receive due process</span></div>
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<br /></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">14-Right to Compensation</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">Each individual has the right to receive sufficient compensation within a reasonably short time whenever he or she has suffered physical or moral and psychological harm caused by a health</span></div>
<div style="background-color: white;">
<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">service treatment. The health services must guarantee compensation, whatever the gravity of the harm and its cause (from an excessive wait to a case of malpractice), even when the ultimate responsibility cannot be absolutely determined. Ann and Margaret Kennedy believe this to be the natural next step if by not adhering to the above and sorting our situation swiftly and well we shall activate recompensation without prejudice to the present proceedures undertaken right now.</span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">we cannot go on indefinitely in such a manner and it has caused severe harm to us. </span></div>
<div style="background-color: white;">
<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;"><br /></span></div>
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<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">I wish these to be studied and by the end of this week for resolution forthwith on Neurology care input as of end of week.</span></div>
<div style="background-color: white;">
<span style="color: blue; font-family: arial, sans-serif; font-size: x-large;">unless this is forthcoming the activation of legal process will have to take place.</span></div>
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<span style="color: #3d85c6; font-family: arial, sans-serif; font-size: x-large;"><b>the denial of care, treatment and diagnostic pathways in operation is a denial of our rights and medically entraps us in a state that is inert to our issues and difficulties and causing severe harm, physical decline and psychological harm, distress and suffering.</b></span></div>
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<span style="color: #3d85c6; font-family: arial, sans-serif; font-size: x-large;"><b>it is untenable</b></span></div>
</div>
Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com1tag:blogger.com,1999:blog-3570848227107227695.post-32826830934534611772017-10-13T22:44:00.002-07:002017-10-13T22:44:43.281-07:00an Irish way of sorting a very difficult situation<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>when we entered a process to sort out a mess, we never anticipated years on from that date nothing being sorted.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Yes almost two years of talk has produced talks on talks but no real evidence of change in my life.</b></span><br />
<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>my twin and i had been left for a full ten years in severe and agonising fall out from suffering by an organisation, the largest in the state.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>only feisty women fight this level of chaos, suffering visited upon them and try to sort it through a process to find that more of the same is occurring.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>this is so wrong and abusive.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it amounts to torture and at least we have ratified that convention.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>if you agree to sort a mess -the full idea of sorting such a situational mess is to sort it swiftly and move on for waiting in the wings is surely even more of the same.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Nothing in Ireland happens as 'once offs' and if it happened to us, its happening to too many others.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the idea was as the aggrieved to place on the table what you feel will aliviate the suffering, pain and trauma that resulted.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>what you get is very different.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the usual word is 'no.'</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>or the usual word is 'we will look into that and come back to you on that.' meaning they will give this some thought.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>but that too can take forever here, most Irish people know this.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>we have sorted nothing in this process.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>my life has been turned upside down by this very powerful organisation.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i am lost in this mess.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>this sense of 'loss' they love, because if a person shows that they are struggling they will keep up the pressure hoping to break you down.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i am not for breaking down on this, but certainly it is all robbing my quality of life and any life at all.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Life has come to a standstill for ten years.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>three filing cabinets later and all the documents tabulated and searched i have a book in there that will equal any McCabe case or 'grace case.' I see it as another.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>what i have seen on file would make your hair curl.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>right now i want this organisation to stop playing games with my life, the only life i have and need.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>if people come to ireland to work or spend time, be warned.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>things turn sour if you need the help of the healthcare system, public that is, because its rotten to the core and dangerous territory to enter into, so beware it will never serve you, ever.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it has no capacity or will to do so.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>this also includes many consultants in the hospital settings who treat you as equally dirt like the rest of the public directed services to serve the sick here.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>remember we are not a sophisticated nation.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>we may have a lot of laughter, wit and intelligence, but that doesn't equate to sophistication.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>everything about the healthcare system is dangerous.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>but it doesn't have to be that way.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>there is no reason for instance to prolong the agony of a mediation process taking place as agreed when they can then walk on by to the next mess they need to sort.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>there is something strange in the psyche that to argue over two ants dancing on the head of a pin, consistently and constantly for a protracted time is utterly perverse.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>time is money.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>time is money when you sent three professionals to a house of a single woman to look at her bedroom, stand at the doorway, look in and see a bed frame with no mattress.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>three health care professionals wondering if they gave you a bigger bed would it fit in.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>did anyone hear of a measuring tape?</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>this seems like a war and again it doesn't have to be. many officials on the ground are decent people, so we have to start looking at the famous managerial groupings to wonder how it all comes about that people act the way they do.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>so after coming to look at the bed only they then take themselves off to a public pool to test the water temperature!</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i kid you not.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>they are unable to provide proper hydrotherapy for two woman with progressive neurodegenerative disease and a complex and rare one so they are going to see if the local swimming pool is warm enough for us.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it isn'</b></span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>t.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it never has been.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>its freezing.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>my sister asked on the local forum how did people find this pool.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>variations on the theme and word 'freezing' came back as an answer.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the harbour is warmer one said, before deleting the comment probably worried about a slating at the pool, this is a small community.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i am still banned from that forum.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>ireland remains a toxic country.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it is toxic to those who cannot pay to get out of trouble once they are in it.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it is toxic for the poor, the sick the vulnerable, the isolated and alone and the needy.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>its a tiny slice of USA and trumpitism.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>its a tiny slice of UK with the extremes of conservatism killing thousands of their sick and disabled with their pips.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>its not a nice place to be and you can feel very trapped and alone here with no ally in the right places.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i hate it.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it may consider it second to the vatican in holiness, but thats not the same as godliness.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it stinks.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>not a nice thing to say of your country.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com1tag:blogger.com,1999:blog-3570848227107227695.post-24837218504777768542017-10-07T09:46:00.002-07:002017-10-07T09:50:18.641-07:00NO way to run a health (caring) service - THE HSE - refusal to treat<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLw9V85i7nT2haI3aCCiqqMGMch1_kqm7HgQEmaFpCeQdl7hvrjphO8cjOBn1himpsjnmNmhkJsoU3ZMvFLJt_ML4y6ReCUOOslIst5oRsaPkmVILlYcM4pEQ6AUcaQ_aUx7uBCNvfDumc/s1600/16836028_1457235697642593_2451275484681383985_o+%25281%2529.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1067" data-original-width="1600" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLw9V85i7nT2haI3aCCiqqMGMch1_kqm7HgQEmaFpCeQdl7hvrjphO8cjOBn1himpsjnmNmhkJsoU3ZMvFLJt_ML4y6ReCUOOslIst5oRsaPkmVILlYcM4pEQ6AUcaQ_aUx7uBCNvfDumc/s400/16836028_1457235697642593_2451275484681383985_o+%25281%2529.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: "times" , "times new roman" , serif; font-size: x-large;"><b>i was 'turfed' out of the hospital where the neurologist had ditched me from but a week later ended in another hospital, CRP rising from norm of 4.0-5.0 to well over 350!</b></span></td></tr>
</tbody></table>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Difficulties arose around Neurological care for me in the public system in Ireland through lack of communication and lack of 'follow-through' of clinical recommendations from many consultants, some also neurologists and some other disciplines.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Notes under FOI sought i found shocking information including a fact that i had had a stroke and no one had informed me.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">coupled with suggested tests for:</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">DAT</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">MRI following raised troponin T</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Tests recommended for Dystaumonia and was told to my neurologist.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Tests recommended for 'Auditory Brain Stem potentials'</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Tests recommended for pulmonary function.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">suggestions regarding CARE PLANS also left completely untouched even though these came from centres of excellence never implemented.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">If a person has a stroke, a person a sick person should be told. the stroke occurred in 2013 no less and this was discovered through FOI in 2016.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Also found on file was an ovarian cyst for immediate attention - this was in 2011 and nothing done until 2016. the cyst has doubled in size and the consultant i showed this to say 'well, if it was cancer you would be dead by now.'</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">i do not find that very uplifting.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">the stress of also not knowing what was going on in the diagnostic fields and no clarity of those tests either had me stressed to the hair roots.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">i was asking major questions and getting no responses.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">i still have been stone walled.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">All my complaints to the hospital group ignored.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">HSE have not sorted any of this and i have been sacked by the consultant neurologist who blamed my personality over his lack of interest, care, communication, follow through and his laissez faire attitude to clinical care and governance.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">i was sacked and left.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">i have been left now for well over 18 months.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">the recommendations from the UK still remain undone.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">diagnostic tests still remain undone.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">the idea now is to go home and die.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">the HSE also have their own way of dealing with my healthcare governance.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">they have ignored all recommendations for clinical auxillary care too.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">'its not going to happen' when they hear the consultants have recommended 'ongoing physiotherapy.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">I say 'it hasnt happened' when the clinical experts recommended hydrotherapy in 2009 and its 'not happening.'</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">The suffering is extreme.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwEMKP3NCNUbPJQFmwdbTE0JjtKZkqhGC5-83zAKxfaIOu_KLJ5MZlRvhrPdpomup-pJT-1rnjllzEE-4WoxvPBYrP4MdVTK-YarRpchR-3zhXhhfJuePKhPtVK4QzuPsbTNam_PiHcInp/s1600/waiting+list.jpeg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="862" data-original-width="633" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwEMKP3NCNUbPJQFmwdbTE0JjtKZkqhGC5-83zAKxfaIOu_KLJ5MZlRvhrPdpomup-pJT-1rnjllzEE-4WoxvPBYrP4MdVTK-YarRpchR-3zhXhhfJuePKhPtVK4QzuPsbTNam_PiHcInp/s400/waiting+list.jpeg" width="292" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-large;"><b><span style="color: red;">this reads " you are currently on the Neurology waiting list since 20/12/2016. the current wait time is 41 months for a new patient appointment</span><br /><span style="color: #38761d; font-family: "arial" , "helvetica" , sans-serif;">what it fails to recognise the medical council clearly states a patient cannot be ditched when there is a dispute, but should be transferred for continuity of care, but here the neurologist 'referred' and therefore i am now being punished by this neurologist in an unseemly manner and it has caused me much pain and distress. I have been under neurology care for over ten years,now nothing.</span></b></span></td></tr>
</tbody></table>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">A neurologist who will not engage in clinical oversight and governance and make sure he informs his patients when they have strokes can dismiss a patient rather than answer the serious questions around all of this.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">this leaves me and my twin now without any medical or auxilliary care for neurological rarity disease/no diagnostics continued and no oversight for a serious mixed connective tissue disease as well.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhFZ7l9sWqMIVkX3OnWYFC3E7LWIa0MQbjAaEd9M4yJ21Xp200UWhRMqd13QYUcgxBWgDcw8YkNLZtcaY1V7Wzgsu2qwWhODAccHmzyPCkFUrHU09YCwZYgCTrKXVM9V78SoZw_lhRIJksW/s1600/17917237_1512262728806556_63611329233464567_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="724" data-original-width="1086" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhFZ7l9sWqMIVkX3OnWYFC3E7LWIa0MQbjAaEd9M4yJ21Xp200UWhRMqd13QYUcgxBWgDcw8YkNLZtcaY1V7Wzgsu2qwWhODAccHmzyPCkFUrHU09YCwZYgCTrKXVM9V78SoZw_lhRIJksW/s400/17917237_1512262728806556_63611329233464567_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "times" , "times new roman" , serif; font-size: x-large;"><b><span style="color: red;">it absolutely does mean that for two years we have had no clinical oversight for any of our conditions for all this time and now we are imprisoned in the state unable to move.</span><br /><span style="color: #38761d;">this amounts to 'refusal to treat' and 'neglect'</span></b></span></td></tr>
</tbody></table>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">we are also now trapped in a country providing no care whatsoever and trapped away from the expertise i can get abroad because of one neurologist behaving badly.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">but then who else is behaving badly.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">this is a copy and pasted information intro to our National Hospital for Neurology.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg68ChjDyNVF791MpCNfHOmcPOJ0O6SdW8MX3SYv6FaCFOR0GevZwP0wJiE02PpfvWjEzvpBtIQqng-pgurp1VLjRDqBDmXaRUZErAqpoTULqYTONW9sJFr3RJ6LWXmjvrNAlogaFjtpab2/s1600/beaumont+intro.jpeg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="861" data-original-width="623" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg68ChjDyNVF791MpCNfHOmcPOJ0O6SdW8MX3SYv6FaCFOR0GevZwP0wJiE02PpfvWjEzvpBtIQqng-pgurp1VLjRDqBDmXaRUZErAqpoTULqYTONW9sJFr3RJ6LWXmjvrNAlogaFjtpab2/s400/beaumont+intro.jpeg" width="288" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-large;"><b><span style="color: red;">'we're known countrywide as the centre of National Neurosurgery and Neurology'....'as a result of this our staff are treating patients on a daily basis who are referred from all corners of Ireland'</span><br /><span style="color: #38761d; font-family: "arial" , "helvetica" , sans-serif;">they are refusing to treat us, twins with a rare complex disease at a specialist neuromuscular clinic which we do not have access to locally.</span></b></span></td></tr>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">they will not take me on saying i only need a general neurologist and its only 'special' if we need surgery and we are outside the catchment area.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">this is poppycock, because there is no such thing as 'catchment areas.' in any acute hospital.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">the HSE refuse to allow us go to another National Centre even though they advertise as taking people from across Ireland but the HSE demand we stick in this area which is not our wish.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">the National centre have a website describing who they permit to come to use their clinics. they take referrals for all over.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Here is a cut and paste from the website:</span><br />
<span style="color: #38761d; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">Again this flies in the face of the new <b><i>'social model' </i></b>and engaging the patient in an equal role of say in their personal care, it doesn't exist. It may be policy since 2011. It may be so, on paper but in actuality, they do not listen, don't care a toss and demand you do as they say while showing the politicians and europe they are forward thinking in adopting the social model and announcing to the world we have also adopted <b><i>'NOTHING ABOUT US WITHOUT US (THATS US, PATIENTS)! </i></b></span><br />
<h1 style="color: #c9054b; font-family: "Open Sans", sans-serif; font-size: 24px;">
Assistive Technology and Specialised Seating (ATSS)</h1>
<h2 style="color: #c9054b; font-family: "Open Sans", sans-serif;">
Who we see</h2>
<div style="border: 0px; color: #666666; font-family: "Open Sans", sans-serif; font-size: 12px; font-stretch: inherit; font-variant-numeric: inherit; line-height: inherit; padding: 0px; vertical-align: baseline;">
Children and adults with a primary physical disability who use wheelchairs in their daily lives. We give priority to people who</div>
<div style="border: 0px; color: #666666; font-family: "Open Sans", sans-serif; font-size: 12px; font-stretch: inherit; font-variant-numeric: inherit; line-height: inherit; padding: 0px; vertical-align: baseline;">
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<ul style="border: 0px; color: #666666; font-family: "Open Sans", sans-serif; font-size: 12px; font-stretch: inherit; font-variant-numeric: inherit; line-height: inherit; margin: 0px 0px 0px 20px; padding: 0px; vertical-align: baseline;">
<li style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">Have a progressive condition</li>
<li style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">Are already attending CRC services</li>
</ul>
<h2 style="color: #c9054b; font-family: "Open Sans", sans-serif;">
Who we accept referrals from</h2>
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<li style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">Adults with physical disabilities</li>
<li style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">Parents or carers</li>
<li style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">Medical consultants</li>
<li style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">General practitioners</li>
<li style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">Other healthcare professionals</li>
</ul>
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<span style="border: 0px; font-family: inherit; font-size: small; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;"><span style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: 24px; margin: 0px; padding: 0px; vertical-align: baseline;"><br /></span></span></div>
<div style="border: 0px; color: #666666; font-family: "Open Sans", sans-serif; font-size: 12px; font-stretch: inherit; font-variant-numeric: inherit; line-height: inherit; padding: 0px; vertical-align: baseline;">
We give priority to people who</div>
<div style="border: 0px; color: #666666; font-family: "Open Sans", sans-serif; font-size: 12px; font-stretch: inherit; font-variant-numeric: inherit; line-height: inherit; padding: 0px; vertical-align: baseline;">
<br /></div>
<ul style="border: 0px; color: #666666; font-family: "Open Sans", sans-serif; font-size: 12px; font-stretch: inherit; font-variant-numeric: inherit; line-height: inherit; margin: 0px 0px 0px 20px; padding: 0px; vertical-align: baseline;">
<li style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">Have a progressive condition</li>
<li style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">Are already attending other CRC services</li>
</ul>
<h2 style="color: #c9054b; font-family: "Open Sans", sans-serif;">
About our catchment area</h2>
<div style="border: 0px; color: #666666; font-family: "Open Sans", sans-serif; font-size: 12px; font-stretch: inherit; font-variant-numeric: inherit; line-height: inherit; padding: 0px; vertical-align: baseline;">
<a href="https://crc.ie/?page_id=1808" style="border: 0px; color: #ff5821; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;" title="ATSS">CRC Assistive Technology and Specialised Seating</a> is a national service. It accepts referrals from all parts of Ireland. Clients will be seen for assessment in the clinic closest to where they live.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkTd_pK8hi42YE81sY7DCA5tIPtYRR6yGdTiw6cZSnqW49gQBipDWh2004UZgzBNDbN6h3kHAJPyAotdkMROCaSOc36ASLzlp5rQG2bFLBFNm7Rsg-PsjBqW626jK97YkN3cop9oxHZF5X/s1600/seven+years+of+hse+hell+damages.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="873" data-original-width="1559" height="358" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkTd_pK8hi42YE81sY7DCA5tIPtYRR6yGdTiw6cZSnqW49gQBipDWh2004UZgzBNDbN6h3kHAJPyAotdkMROCaSOc36ASLzlp5rQG2bFLBFNm7Rsg-PsjBqW626jK97YkN3cop9oxHZF5X/s640/seven+years+of+hse+hell+damages.jpg" width="640" /></a></div>
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<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large; text-align: center;">its been a night mare of a journey.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">one i cannot get my head around at all.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">the HSE offer an independent psychologist and three months later 'pull it.'</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">the whole system is in chaos, but there is fallout as i am suffering.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">there is not one single part of my life covered by expertise in healthcare right now.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">not one.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">while stretched centres deny us care on very spurious pretexts we fight on to get a morsel from the tables of public healthcare when all the consultants really want is an easy life and money from the private sector.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">after that the public are shits, causing shits and too expensive for the HSE, the government and when you are older you can go home and die.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">it is outrageous and it has been an obscene journey for the past ten years.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">i charge both the hospital groups and the HSE for 'refusal to treat' also 'neglect' and wreckless endangerment of my life.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">we have signed up to the law against torture.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">we have signed up to constitutional rights to healthcare.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">well i am not getting it, in any shape or form.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">someone has to be held responsible and accountable for a MESS on a grand scale.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">we literally are being refused healthcare.</span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;">if you cannot get it, and are being refused it, thats called refusal of healthcare when once we were in the neurology services we have been pulled from it in a horrible nasty way by an errant neurologist who wouldnt and couldnt answer serious questions.</span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><br /></span>Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-51001910916687607282017-09-30T09:23:00.002-07:002017-09-30T09:24:27.934-07:00To be back again - still fighting oppression <div class="separator" style="clear: both; text-align: center;">
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<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>never rocket science to me</b></span></td></tr>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Where did i go? </b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Away - in my head and physically i was and remain tired, too tired for words.</b></span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>a huge groundswell movement has been reawakened recently at a gathering to remember our fallen warriors of the Freedom movement for those with disabilities.</b></span></td></tr>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>i feel saddened at what is happening in my small country.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>As we face a new and harsh, wet winter the housing crisis gets worse by the day and the government has not really carved out a proactive engagment on this major crisis.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>the Healthcare system is breaking down, but then it has been broken a long time now but daily further reports are all the cracks, the detris of a public healthcare system and no accountability to the people of Ireland, those who cannot or will never be able to afford Private Health Insurance.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>i want to see massive changes.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>i see and believe change only comes about by the use of the words, 'citizenship' and community, rarely does change come through political ideology because at present the shift to the right is causing an imbalance to what all we once loved especially here in a tiny island.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I want to say to my government - we can never compete for greatness on the world stage.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>what we can do is provide a peaceful, community based environment where all are respectfully health in care, community, health and equality.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>this isnt about politics its about the people.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>its about our need for links with each other irregardless of political class and ideology and irregardless of great world movements and disarray.</b></span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>to bring back an Irish approach of watching over each other, a loss to a small island i say.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>We have lost so much here because we wanted to be equal in wealth, power, prestige and bond with a far more powerful world that has far more in terms of resources and centuries of maturity and skills we simply have not achieved and wont for a very long time.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>i see harm being done to the sense of togetherness that we had.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>it worked in all our times of hardship.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>we helped our neighbours, we helped each member in the family, those getting old, those unable and those being born.</b></span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>now we have a society based on well, individuals and what they can grasp when young and then forget about all else.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>it doesnt really work that way because even if you become a wealthy person will that bring you any closer to the young we are driving away from the land?</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>Would it be a far greater achievement to have moral integrity and care for each other.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>civil justice, equality and fairness.</b></span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>what we are creating is a monster divide.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>during the difficult years 2% was taken out of the economy financially yet Ireland has more millionaires now in the time of fierce austerity 2006-2011.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>it did matter where they cut the costs and who were effected.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>so few of the middle classes were ever hit as badly as the sick, disabled, vulnerable, and home ownership.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>when we got hit it was a very big hit.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>when we fail to care enough not to do this, then we can call ourselves human beings again.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>scathing approach to the opposition in Dail Eireann recently made me sick.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>a egotistical attack on the opposition in Parliment shows an insecurity and bolshi ideology of absolute arrogance rather than debate well, it was attack first.</b></span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>the debate was about the way forward, how disability is seen and used and whether it is about equality or civil justice and citizenship</b></span><b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large; text-align: start;"></b></td></tr>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>this isnt the approach we call 'the modern way.' it is the approach of bully boy tactics.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>i certainly would like to hear why the Banks like AIB will be tax free for 20 more years and making billions in profit each year.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>but woe to the person struggling to pay a morgage and massive rental on a dingy hole of what is called a home for a family or for anyone.</b></span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>to me, the bullies are wedded to a greed second to none.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>where it comes from is europe and massive waves of indignation that a feeling of the poor and sick are filching the country dry when in fact no poor person became a millionaire during the austerity times.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>it was a witching out and on the very needy which once we considered a big really duty to care about.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>now we see a lynching, hate crime and a selfishness, that to me is sickening.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I am disabled with an acquired disability through an illness i have yet to find out it may be exactly.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>at present the government and the healthcare system do not care a toss and i am a prisoner here and yet a pathway in theory is carved for people like my twin and myself.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>that pathway was used to great effect but for the past two years we are without any care whatsoever and fail to be able to use this pathway again.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>this is a deterioration in standards and belief that we have rights.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>is this because of our age as we approach 65yrs?</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>is this why all help has stopped.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>a very real question and a reason to be very worried, and that is for all citizens of the state.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>i have heard older people claim that their consultants will not care for them, that they are abusive, denegrate and berate the elder, usually woman patient.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>but then i have been on the receiving end of that too and know so well it happens here and happens far too often.</b></span><br />
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>i have a major wish for my country.</b></span><br />
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<span style="color: red; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>speaking the 'lived experience' of "difference" in an indifferent society is what we should be listening to and more so than ever before.<br /></b></span><br />
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<span style="color: red; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><b style="color: blue;">I wish all to embrace the ideas around community and civil justice for all, to </b><b style="color: blue;">forget about money and greed, but think of human beings again like we once did. T</b><b style="color: blue;">hat would make this an honourable country, not a corrupt, greedy safe haven for the greedy of the world.</b></b></span></div>
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<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br />it soon won't be a country worth living in.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>it will become dangerously cruel, individual with a dangerous crooked way at looking at certain sectors of society.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>the beginning of an evil intent to disallow the vulnerable be part of this new horrible world in ireland has now been established for a good while.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>i want to see this mould and trend well and truely broken.</b></span><br />
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>I think all need to love again, in the real way and decent way.</b></span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b>we badly need music</b></span></td></tr>
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<b style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="color: blue; font-family: "arial" , "helvetica" , sans-serif; font-size: x-large;"><b></b></span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>we so badly need MUSIC!</b></span></td></tr>
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Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-28637224534743090782017-08-14T15:32:00.001-07:002017-08-14T15:32:16.824-07:00most basic right and need - is to sleep<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b> basic rights and need of any human being is to be able to sleep well.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Most of course do not succeed.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Most will give themselves every opportunity and set up in order to achieve a human right when the body repairs itself and sets one up for the following day.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>this is even more important if the body is ill, chronically ill and disabled.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>those of us who are so, need our 'beauty' 'health providing' sleep.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it is when we sleep that the body repairs itself of damage, decay and battle.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>what if the night is the battle ground as well as in my case.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>five full years this battle ground is both day and night with the healthcare provider.</b></span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEie3czmgiy_yR5_iWSIZmNcYHdLnFSooo0Eq6_NPjJDyOd-ROz-dmU2CHtZELPgrMIJacV-ugvWAon9fnvzWyJdEbCjpvdazHZaR5YedjvTX-oklSC9aZ-XZQUkrIoWHUEhOY3FKaEkkPkC/s1600/thumb__MG_8750_1024.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="724" data-original-width="1086" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEie3czmgiy_yR5_iWSIZmNcYHdLnFSooo0Eq6_NPjJDyOd-ROz-dmU2CHtZELPgrMIJacV-ugvWAon9fnvzWyJdEbCjpvdazHZaR5YedjvTX-oklSC9aZ-XZQUkrIoWHUEhOY3FKaEkkPkC/s640/thumb__MG_8750_1024.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>IT IS SOMETHING YOU CANNOT EXPLAIN, JUST LOADS OF FOAM THROWN AT ME. THATS ALL - ITS CALLED 'FLINGING'</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>lets say, most provide themselves with a good bed and mattress, its a given you all want to sleep on the best for the 'rest.'</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i am no different.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the only issue being the HSE took all my assets by their mismanagement of my case.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>therefore when all the savings i had were used in fleeing a housing situation from hell (which never should have happened) i have become more beholden to the state for every need, including the bed.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i prepared for my future, in the sense i never envisaged what did happen and i never thought i would be penniless.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>thus is the stuff that they take and so they do not give a damn that this has happened.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i squarely tell the HSE, if they had left well enough alone i could have been fully independent.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i am now not so.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i am dependent.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>and that also includes providing for a sick body.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i flung the last item back in the health centre, i was at wits end.</b></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgy0t3TnEWEXjHcMCzIn4FRHS8B34sVIkNjDo8iJP9w8mce-96Ms2p7nHrtTdRGhhsZLHPgQKiZ6n7gvmOxUePLBwiuvyTIBCiaMtx8xYEDgoXRFAoH-Yd959_tjMVy9EO8Dwft6rTcbKwf/s1600/thumb__MG_8752_1024.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="724" data-original-width="1086" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgy0t3TnEWEXjHcMCzIn4FRHS8B34sVIkNjDo8iJP9w8mce-96Ms2p7nHrtTdRGhhsZLHPgQKiZ6n7gvmOxUePLBwiuvyTIBCiaMtx8xYEDgoXRFAoH-Yd959_tjMVy9EO8Dwft6rTcbKwf/s640/thumb__MG_8752_1024.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>THERE ISNT A LOT YOU CAN SAY ABOUT THIS LOT. JUST A LOT OF FOAM, THATS ALL AND THATS IT.</b></span></td></tr>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the thing they flung at me to sleep on is not suitable and never was - yes they have given me similar, so similar that they have 'in stock' two types of mattresses for the sick, air beds and foam toppers and mattresses.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>these do one thing only, relieve bed sores.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>something i am unlikely to suffer from as i trash like hell in my bed.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>so they give me heat creating surfaces, that are ill supportive and painful and do more harm than good.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i do a small video today. i place it here to show my mood, it isnt good.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the frame of a very small hospital bed is in my bedroom, there is no mattress and there is no body lying there.</b></span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>i am taking up space elsewhere on an equally bad mattress but certainly better than the one given to me by our healthcare provider.</b></span><br />
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span>Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-52945680533191367132017-07-26T09:26:00.002-07:002017-07-26T09:26:26.556-07:00the little people - the enemy of the state - IRISH HEALTH CARE<div class="MsoNormal">
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The ABC or
the ABC and DEF of Healthcare and HSE<o:p></o:p></b></span></div>
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<tr><td><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-KWtPXHgWcaH06htQAAHnnePS4i6zJ_zaz-Of7rdojlCFsHmrqoIIeHfKLgkApq_qlAU84v-RNxINctUk8xauN8NOnvA5XsmO7Qyk-o5UoI9Bnx1FExWiSgVOeAXako2954Rjh7VnWIEh/s1600/MVI_0037.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="240" data-original-width="320" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-KWtPXHgWcaH06htQAAHnnePS4i6zJ_zaz-Of7rdojlCFsHmrqoIIeHfKLgkApq_qlAU84v-RNxINctUk8xauN8NOnvA5XsmO7Qyk-o5UoI9Bnx1FExWiSgVOeAXako2954Rjh7VnWIEh/s640/MVI_0037.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="font-size: 12.8px;"><span style="font-size: x-large;"><b><span style="color: red;">so sick in ireland</span><br /></b></span></td></tr>
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</b><div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I contend
that to understand the crisis of the Irish healthcare system it is mandatory to
be poor, vulnerable, a woman and single or have spent a dash in psychiatry as a
patient.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>All will
qualify you to understand the Irish systems we have at present and indeed
getting worse.<o:p></o:p></b></span></div>
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<br /></div>
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<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You only
need an extra tutorial in having an Insurance policy that is next to worthless
but it will teach you a little extra that adds to the PhD.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Lets be
fair to the Public health care system and say the crisis is not with the
public.<span style="mso-spacerun: yes;"> </span>That is, the vulnerable, poor,
sick, single, female or those with a smash of experience in the psychiatric
system.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Lets be
fair too, it’s not the fault of the Private Healthcare system that they too are
under pressure.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I wish to
place the blame first so we get that out of the way – and thus pave the way for
the ‘voice of the expert in all of this – the poor, sick, single lady who once
spent an errant jaunt in the mental health system of Ireland’ (which also
requires a lengthy tome in its dysfunctionality).<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The blame
is governance and inequality and a certain belief beyond which we seem unable
to go.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Governance
has to be blamed for if it was good, we would not have such a crisis and such a
mess.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I also put
squarely the blame on allowing the divide to exist or co-exist of inhumane
inequalities in the rights to having healthcare in the country where the
constitution claim we all as a nation have equal rights, yet we do not.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>There are
no equal rights.<span style="mso-spacerun: yes;"> </span>It isn’t there and
there is no legal structure in place to say we have the right to healthcare at
present.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You can
have healthcare if you are wealthy and the rest is by a sort of ‘stroking’ and
discretion.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Be wary
though of upsetting the consultants, they have the full power to deny your
fundamental rights to having anything at all, and they will make you sweat for
everything despite a tad bit of lick arse.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The divide
between public and private care is huge, but now increasingly the flocks once
in the public sector are swamping the private sector.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This now
leaves many of us with no place to go. It is also made wider with the ability
of Insurance suppliers demanding exhorbitant monies for policies riddled with
loopholes and ‘get out’ clauses for the care you need.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We should
never put in place a means to get healthcare by payment alone.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The country
is not a wealthy one per se and I see this as a cohersion by the state through
fear.<span style="mso-spacerun: yes;"> </span>We have every right to be fearful.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>To say if
you can pay you will get healthcare falsifies the principals, which the state
was founded upon.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The country
a republic, was for all the citizens of the state.<span style="mso-spacerun: yes;"> </span>We had been through oppressive oversight from
superior empire state control.<span style="mso-spacerun: yes;"> </span>We
recognized the right to be free.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Yet we, now,
do not recognize the right to be free of inequality.<span style="mso-spacerun: yes;"> </span>We do not see healthcare as a republican
ideal and nor as refusal of freedom from oppressive oversight.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It is NOW
mandated that unless you have money you will not be cared for in this state of
the Republic of Ireland.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>If you are
vulnerable, female, single, and poor you are open to abuse which is a societal
tactic the Irish are so well used to by now having been abused for centuries
before the foundation of the state.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We cannot
yet call ourselves free if we cannot ride ourselves of the culture of abuse.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>When we
have waiting lists for a consultant leaving sick on lists for years some lists
touching six years in fact before you face an expert we should know we are in
deep trouble.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>When we see
that if you can pick up the phone give over your insurance policy number an
appointment can be arranged at best within a week or at worst within a
month.<span style="mso-spacerun: yes;"> </span>We know we are in trouble.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The idea
you can use austerity as the excuse that cuts have to be made is also erroneous
and wrong.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>If you cut
healthcare now you are shoring up even worse physical and mental health
problems in the future.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Each person
ignored and denied healthcare will get worse quicker and some do not get better
if left too long, at all.<span style="mso-spacerun: yes;"> </span>This is a burden
on the state but has been sanctioned by the state.<span style="mso-spacerun: yes;"> </span>The state will eventually pay out far more to
support these very sick individuals sooner rather than later and more so rather
than less so.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This, the
state has been informed about.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>They know
what they are facing by the lack of healthcare now and the crisis we have
allowed presently means all this is to become.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The biggest
fall out to the crisis of healthcare has been to the individual sick.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I class
those at risk being the vulnerable, isolated, unsupported mainly single women
and mentally ill as being particularly prone to being virtually attacked for
being sick and demanding of health care and requesting their needs be met.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Countless
examples of abuse of power can be named and documented through articles we see
daily on disability forums, online journals and through other paper media.<span style="mso-spacerun: yes;"> </span>The litany of abuses are rife, and you will
find those subjected to abuse are the category I name alongside the
intellectually impaired.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>There is a
great degree of ‘cherry picking’ now within the confraternity of the
consultants base.<span style="mso-spacerun: yes;"> </span>They can and do
without sanction, dismiss a sick person for being demanding, demanding to have
personal needs met and their own personal healthcare put in place.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>In a
structure of chaos mistakes are being made daily in the system and wise
patients staying on top of their personal file can see where mistakes are made
and if they are serious will mean you face the consultant with these mistakes, <span style="mso-spacerun: yes;"> </span>you are then subjected to prompt dismissal and
labeling and abuse.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>These are
all tactics to protect the powerful against their negligence and their need to
keep a well paid job and do a job unhindered by the pesky plebs.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>If they do
a bad job there isn’t anything you can do we are rudderless through legislation
for our rights.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Again we
have no legal structures in place to face a very powerful body of men usually,
who do bad things against the innocents in this state.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Within the
structure of healthcare we also have a very close knit community of specialists
and they have the means to process information which can be subject to deep
suspicion from the client base.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>If you are
personally wronged, and you face the consultant they can pick up the phone and
lambast you to anyone.<span style="mso-spacerun: yes;"> </span>Its proven the
bad blood built up between sick and their doctors is one which should never
occur but does all too regularly, simply because you ask to be cared for, the
system is chaotic mistakes are made and the system is chaotic there are no
rules anymore or guidelines or doctors to deal with it all.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Mistakes
should not be made, there should be a mechanism to resolve painful issues of
relationship dynamic and all move on to greener pastures.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This
doesn’t happen.<span style="mso-spacerun: yes;"> </span>There is no mechanism
to allow an easy working bond between patient and doctor in Ireland.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It is wide
open to vast abuses of power and there is a gulf of ‘them and us’ I have not
seen in other countries at all to date.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The culture
of ‘tell all’ to your peers here is huge.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Anything
can go from the lowly small time pros to the big shots at the speed of concord
and so a single lady very ill can be perceived in a shot as a person to be
avoided.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>No one will
ever believe her.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>They tend
to blame at a rapid rate, the usual culture of abuse so very easy to use, so
readily instinctually drafted by genetic processing down the generations of abuse
by others visited upon the Irish state and mentality.<span style="mso-spacerun: yes;"> </span>Oppression was viewed then as being so well
done by the british we have adopted it.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We have
allowed the abuse of power seep through the pores by osmosis and allow it to be
an acceptable tool to oppose your little worthless patients and it allows
alarming power.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The level
of power now of consultants is huge.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>In fact
this power is so great not only consultants have it as a tool but everyone in
the health system has it.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">Backed
against a wall of dysfunction there is no tool left for the state to use other
than abuse the power they hold over the citizens.</span><o:p></o:p></b></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhp8P3WBWC3lOjO6fjZYkCyFfqmz8c-H_GA8qh6DWOwBcaws9b8icsqJoCvvIr5Jy1nYMZ-hMoicpYamd0viLTHGMZD8YkGNbkSTtqjAadgubjjTiGFF45LopaG2AyJgFy4ceEJgS62iIJ7/s1600/969250_10151754546257348_1646139754_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="533" data-original-width="770" height="442" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhp8P3WBWC3lOjO6fjZYkCyFfqmz8c-H_GA8qh6DWOwBcaws9b8icsqJoCvvIr5Jy1nYMZ-hMoicpYamd0viLTHGMZD8YkGNbkSTtqjAadgubjjTiGFF45LopaG2AyJgFy4ceEJgS62iIJ7/s640/969250_10151754546257348_1646139754_n.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>fighting back is the only way</b></span></td></tr>
</tbody></table>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It denies
us any rights to fair practice.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The human
rights and equality commission has been decimated of personnel and function in
recent years.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We have no
real human rights for those who are disabled and sick.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>There is no
legal framework to fight abuse<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We have not
even got this fully enshrined in the constitution.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You cannot
face them in any shape or form, nor can you go to the courts and do it either
because the court system is also based on money and ability to pay for the
justice you deserve.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You cannot
go to Europe because they require you to exhaust the avenues open in the state of
origin, but if you cannot use these as the first steps you cannot use European
laws and no one here will assist the poor to do so.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We have now
in Ireland a state that allows a basic ‘free for all.’<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">Over and
above those who are secure knowing that they can walk in and get help because
they have power or money the rest can rot in hell and considerable pain and
anquish with no quality of life at all.</span><o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It doesn’t
even work in the private sector either because having a policy is not
necessarily a safe guard that you will get the help you need.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The
policies are wrapped around ‘add ons’ and ‘exceptions to the rule.’<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You may be
able to afford the famous policy but cannot afford the consultants fees and can
only get back a certain amount, or may be restricted what your policy will
cover.<span style="mso-spacerun: yes;"> </span>It’s a very cleverly designed
document allowing the insurance companies to maximize their gains allowing them
the right to minimize their costs offset by the cost of the policies.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">They are
racking in the money.</span><o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpNk-OHXkP9hF-g0iWEhllyhlq8B14L5EuANAcXsoB0jZQV_u3xmgkV0cEGMK2NQj7Qb75-JZe7rxx7fRbjqFSlPcfPHiwD-aPaNzwnL3FfKe7uUV7cxXkbB-bS0wI1C84Mn1tD-m9DwDc/s1600/_MG_9808.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpNk-OHXkP9hF-g0iWEhllyhlq8B14L5EuANAcXsoB0jZQV_u3xmgkV0cEGMK2NQj7Qb75-JZe7rxx7fRbjqFSlPcfPHiwD-aPaNzwnL3FfKe7uUV7cxXkbB-bS0wI1C84Mn1tD-m9DwDc/s640/_MG_9808.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">stats will show where we stand and its not looking good. It is becoming harder and more chaotic</span></b></td></tr>
</tbody></table>
<div class="MsoNormal">
<b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiq1bSRNH1Znu5h-o3c3OdOS7AAlF3lYfTUEELqNxRdxm0SJu4aN6ZY-FfCJW2rP1U5VK2Cq2rEDaDBFTdlGTZO2viXUSguG9jKmdc2PlVgEx1xMwm6ucJznaLWH0ZWJbLp6O8-BL4XMd0F/s1600/_MG_9805.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiq1bSRNH1Znu5h-o3c3OdOS7AAlF3lYfTUEELqNxRdxm0SJu4aN6ZY-FfCJW2rP1U5VK2Cq2rEDaDBFTdlGTZO2viXUSguG9jKmdc2PlVgEx1xMwm6ucJznaLWH0ZWJbLp6O8-BL4XMd0F/s640/_MG_9805.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the stats say it all, watch out for holy ireland in these, expert documented stats</b></span></td></tr>
</tbody></table>
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<span style="color: blue;"><b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>This
country is not being served well by this awful divisive divide.<o:p></o:p></b></span></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It doesn’t
work.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">It will and
cannot ever work.</span><o:p></o:p></b></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhD-J6XC9jboy6TTnQeqU0hMLX3AgqhYJJ2BrTHxnrNTNWuZbDjfWGMYpuoWBPgxyn1XgyVDJiU7DIb7eDZ1_rzPfNMoGpxpPisbF_2ayfrzsEsJ15fF-hT2EqwY5zaMQrXvBpvKvPP-5jn/s1600/IMG_0108.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhD-J6XC9jboy6TTnQeqU0hMLX3AgqhYJJ2BrTHxnrNTNWuZbDjfWGMYpuoWBPgxyn1XgyVDJiU7DIb7eDZ1_rzPfNMoGpxpPisbF_2ayfrzsEsJ15fF-hT2EqwY5zaMQrXvBpvKvPP-5jn/s640/IMG_0108.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>once we were happier, hopeful and engaged. at my twins conferring for doctorate i see her being bullied and butchered by the irish state healthcare systems. This is not what she was used to in the UK, ever.</b></span></td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYzftuwcesmpRizN46zinZJFv7iOLArtLrAYH9qq4NinuwzR6538QdhEoMOeUcNdzcW4QXt71d1DIaCAPjHxJaBOnNF-ZWFtiQsNJSh9kvbcQSLz7ZG6bFT5JpgrHP4cgL-uc5E0LzBL-V/s1600/IMG_0102.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYzftuwcesmpRizN46zinZJFv7iOLArtLrAYH9qq4NinuwzR6538QdhEoMOeUcNdzcW4QXt71d1DIaCAPjHxJaBOnNF-ZWFtiQsNJSh9kvbcQSLz7ZG6bFT5JpgrHP4cgL-uc5E0LzBL-V/s640/IMG_0102.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>I can tell you for sure, she doesnt think it fortunate to come home to the country she loved and left 45yrs to abusive practise and a terrible dangerous healthcare system. she has instant regrets about coming back.</b></span></td></tr>
</tbody></table>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Health is
one such thing that cannot be a commodity or a money making racket.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It has
become an obscene racket and at any cost to state, power, abuse, insurance,
economics and dynamic.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It doesn’t
serve best healthcare.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>People like
myself go through life on the edge.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You are
very sick and powerless.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You have an
insurance policy and yet it gives you little and you can use it infrequently.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">You have to
rely on a public service which is discretionary and you can be years trying to
find a way to even get a diagnosis because consultants can withdraw the ability
to allow a diagnosis if peeved by their patients, see above.</span><o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_B86PyH2L1qmnHBxxybfS0KZ9UL5flIKQgbPLMRky2cesErSopteTrIXylGnc_CJXUNLIOx7MGN6XVi9cxyGoZvU1-cqv4hSr3bt5K77uUdV25FryS2TULX0EZ-Go_tGmJD1OrHXYfIEL/s1600/IMG_6050.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="270" data-original-width="360" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_B86PyH2L1qmnHBxxybfS0KZ9UL5flIKQgbPLMRky2cesErSopteTrIXylGnc_CJXUNLIOx7MGN6XVi9cxyGoZvU1-cqv4hSr3bt5K77uUdV25FryS2TULX0EZ-Go_tGmJD1OrHXYfIEL/s640/IMG_6050.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">left to lanquish in pain, forgotten and poor</span></b></td></tr>
</tbody></table>
<div class="MsoNormal">
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-rdKa2PYlC73lRny-6f84TDoRjPoHkg48H6upFsAR1BCxoPOBAz50mqL183SrVHOcarkylV3hcy_S5FBBRA7mWI0o72ET9Ln_2d7Ob0HcyntB7B4eIxjAo1ZIyFy0bZD_eq8C2x2WQC66/s1600/_MG_6107.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-rdKa2PYlC73lRny-6f84TDoRjPoHkg48H6upFsAR1BCxoPOBAz50mqL183SrVHOcarkylV3hcy_S5FBBRA7mWI0o72ET9Ln_2d7Ob0HcyntB7B4eIxjAo1ZIyFy0bZD_eq8C2x2WQC66/s640/_MG_6107.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>not a figment of imagination, you feel it and spot it instantly.</b></span></td></tr>
</tbody></table>
<div class="MsoNormal">
<span style="color: blue;"><b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b></span><span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">This has
now occurred for two women facing a consultant with his faults, his mistakes
and his lack of interest.</span><o:p></o:p></b></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiRjqpZjEkaGMfYq5pnm5aQ4qqOlwHTkCk9sEMeafqDSKV-tkgJxtFmMhEYKP9PXm6mEkLjYGzCiMsII_L1kQMts5cur_56vRLzBO1Ar4e2L-W18dusyhKSu_XsOddTs0v8ultDXUGxsr7G/s1600/fran+veale+ann+and+mags.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="576" data-original-width="864" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiRjqpZjEkaGMfYq5pnm5aQ4qqOlwHTkCk9sEMeafqDSKV-tkgJxtFmMhEYKP9PXm6mEkLjYGzCiMsII_L1kQMts5cur_56vRLzBO1Ar4e2L-W18dusyhKSu_XsOddTs0v8ultDXUGxsr7G/s640/fran+veale+ann+and+mags.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>you seek it here, you seek it there, you seek it everywhere. at the end of the day a grind of a fight for medical and community healthcare services is taking its toll on us two. this is nothing short of neglect and abuse.</b></span></td></tr>
</tbody></table>
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<b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2JwdOZq0Z0vrRFCC-gXPu1zJ6f9QKgw9VLvlsUwhpZgzWQ1CIMMERN4qLF9gsqHDY5O0UYRcypkZxjMHB61A0LvEgNg3pxUkUE_6huP1blHfA9yxn8c28YuccviXkk3QQjwUbgkafVgRN/s1600/_MG_9919.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1067" data-original-width="1600" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2JwdOZq0Z0vrRFCC-gXPu1zJ6f9QKgw9VLvlsUwhpZgzWQ1CIMMERN4qLF9gsqHDY5O0UYRcypkZxjMHB61A0LvEgNg3pxUkUE_6huP1blHfA9yxn8c28YuccviXkk3QQjwUbgkafVgRN/s640/_MG_9919.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>you get through one but face another around the corner and another never ending fight.</b></span></td></tr>
</tbody></table>
<div class="MsoNormal">
<span style="color: blue;"><b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>It means in
essence he couldn’t care a toss and its no more than a paper exercise, he wants
an easy life, make money and move on.<o:p></o:p></b></span></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>You are but
a speck in his eye.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>There you
will remain.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The bond of
trust long gone in Irish healthcare by two women in wicklow.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Ireland is
sinking into an immoral depravity and we all see it and feel helpless.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">All the
scandals of the day are laid out in plain lingo from the Gards to the mother
and baby homes, Irish water but never healthcare.</span><o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhc7SYDEQp3RQpMXYWnm0-AU8jACtEsUZEPWnjxrd0aOwtq9p-j6SSNFVWSGS3H6c1jlT_97tqG1R9f65fc6mSnOdibMaAo9IHlFXnWtdRmLUCHgv4LlacapScWpJPrq6_CJKJh6ba-hcVn/s1600/IMG_0465.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhc7SYDEQp3RQpMXYWnm0-AU8jACtEsUZEPWnjxrd0aOwtq9p-j6SSNFVWSGS3H6c1jlT_97tqG1R9f65fc6mSnOdibMaAo9IHlFXnWtdRmLUCHgv4LlacapScWpJPrq6_CJKJh6ba-hcVn/s640/IMG_0465.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>permanently tired of it all, but with great company</b></span></td></tr>
</tbody></table>
<div class="MsoNormal">
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><br /></b></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3s1cXY3pV1gUTPzIec35pVTdMgt-Ff7EixnPlq-hqdBmQl-ePZ3bifbYq0a1sQCwGjJ-CmB6FJPvM6fUBeexblf75LL9FkJ_SRRYsjWO9cU3q_B_e4uVA0BdNgjw-QGW0UpP4sGGoP0ET/s1600/IMG_0396.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3s1cXY3pV1gUTPzIec35pVTdMgt-Ff7EixnPlq-hqdBmQl-ePZ3bifbYq0a1sQCwGjJ-CmB6FJPvM6fUBeexblf75LL9FkJ_SRRYsjWO9cU3q_B_e4uVA0BdNgjw-QGW0UpP4sGGoP0ET/s640/IMG_0396.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>you are barely able to function at time so harsh is the trauma. comfort comes in small parcels, furballs.</b></span></td></tr>
</tbody></table>
<div class="MsoNormal">
<span style="color: blue;"><b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We have
been squashed in protest.<o:p></o:p></b></span></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We feel
imbeciles to protest.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We feel
feeble in protest.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The people
have been crushed.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>They are
now accepting the crumbs from the table because there seems no answers.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The only
answer I see to the collective response of abuse of power and inequality is through
protests and civil disobedience.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">The poor people
of Ireland ejected the greatest power of world dominance the Imperial state of
the British Kingdom, we did this so we can do this too.</span><o:p></o:p></b></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0EJpuWo9L3-4EPvqbsinIyOmBukoCK4ANBCeMY5XNUu6AiTlePLpZXPleDh7Ynya_yUCordmXuO8BWGk4dTV7PUCZLU_XXwwaiAkGheQz1ivwnqU-zZ3DPjLfgVu5gIQssggDFTB3GSVX/s1600/two+feet+and+two+doves.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="749" data-original-width="1000" height="478" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0EJpuWo9L3-4EPvqbsinIyOmBukoCK4ANBCeMY5XNUu6AiTlePLpZXPleDh7Ynya_yUCordmXuO8BWGk4dTV7PUCZLU_XXwwaiAkGheQz1ivwnqU-zZ3DPjLfgVu5gIQssggDFTB3GSVX/s640/two+feet+and+two+doves.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>some kind of bird of what? as i trawl the darkness in the corridors at night in a strange hospital.</b></span></td></tr>
</tbody></table>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We are not
feeble in thinking.<span style="mso-spacerun: yes;"> </span>We have great powers
of persuasion and we are cute as the devil.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">We are so
cute I tell you we can persuade someone to believe that possibly the greatest
kingdom that ever lived is that of the Irish ‘land of saints and scholars’.</span><o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtF1UEjYEB5U0A-hqBF-RNyyXXY35PDPGlP9XVjyQ95azWgpxY5lXUnROSWgUOylQ872lDRwHaNaOCMKTGeUuwiUibT26PCI22uty5i28qpeHdMRJF3I-TgfQ-c0rTJ-JXHgFnxh63AVkO/s1600/DSC_0370.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1072" data-original-width="1600" height="428" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtF1UEjYEB5U0A-hqBF-RNyyXXY35PDPGlP9XVjyQ95azWgpxY5lXUnROSWgUOylQ872lDRwHaNaOCMKTGeUuwiUibT26PCI22uty5i28qpeHdMRJF3I-TgfQ-c0rTJ-JXHgFnxh63AVkO/s640/DSC_0370.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>there is a madness in your head, the despair thats in it. There is a madness on the heads of those who rule and there is a stuffed icon of Irish in the hilarity of pretence, we are but stuffed.</b></span></td></tr>
</tbody></table>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Scratch the
surface we are neither and never were.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We were
poor, we were dirt poor, we survived through a system of leeching off the one
even poorer or buttering up the one better off then oneself.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>Either way
we got our way through devious means, and we continue to do this at the highest
levels.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>The problem
is, when downtrodden and sick its hard to fight that hard in modern times and
powerful influences.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">We have
lost our moral code and ethical beliefs that all people are equal and
united.<span style="mso-spacerun: yes;"> </span>Some definitely count now more
so than others.</span></b></span></div>
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<b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLGU-zjc2iD_ZtXCGYUToRTTKmfkiUOiRFBFbKxQzzbntxya8V1btvGmMZClcRpICW2-zvNTeoaOx2yTK3OLszGf87gTlfcgsXnGIgVYwZMEzlDf5vlbuqBWR_z78YSk1zatffmB6AGpEk/s1600/DSCF0684.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLGU-zjc2iD_ZtXCGYUToRTTKmfkiUOiRFBFbKxQzzbntxya8V1btvGmMZClcRpICW2-zvNTeoaOx2yTK3OLszGf87gTlfcgsXnGIgVYwZMEzlDf5vlbuqBWR_z78YSk1zatffmB6AGpEk/s640/DSCF0684.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>you were a mess when you came to london last year, the consultant reminds me. this after my first 'out' he noted i had improved but declared i was a walking wreck so sick was i.</b></span></td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBAy4ELWgcjFzeOCvYvjpG4EBvox2m62xGzHPZrypt7FNv1X2at2UYyvzwIzz_FfFctnnhaYY5bJ1RRTQSBinONbMUgHUgteKj7GJao7IfOzsOSR4Z_-Q60EnA7ExfavZhkcV0YaUuvB33/s1600/IMG_7864.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBAy4ELWgcjFzeOCvYvjpG4EBvox2m62xGzHPZrypt7FNv1X2at2UYyvzwIzz_FfFctnnhaYY5bJ1RRTQSBinONbMUgHUgteKj7GJao7IfOzsOSR4Z_-Q60EnA7ExfavZhkcV0YaUuvB33/s640/IMG_7864.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>my first 'out' under the E112 gave terrific first diagnosis and furthered the knowledge of what is wrong, but still no definitive answers, such is the journey of those with rare diseases in ireland and the awful battles we have to go through</b></span></td></tr>
</tbody></table>
<b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6nQ_F2Tx0LcC-edSJ1aHPKydfgYJQzIef-83F1_0-vG-eOCs5KBp9nVBKAvgvdr1j_7gRMTk1zRrOVCAtGU1MihuoIvtHfEKUGhDakPzvmIA2jsN3OsNbxTKDfASh4OxohwF2xjJ2NiGp/s1600/DSC00139.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6nQ_F2Tx0LcC-edSJ1aHPKydfgYJQzIef-83F1_0-vG-eOCs5KBp9nVBKAvgvdr1j_7gRMTk1zRrOVCAtGU1MihuoIvtHfEKUGhDakPzvmIA2jsN3OsNbxTKDfASh4OxohwF2xjJ2NiGp/s640/DSC00139.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-size: x-large;"><b>lighting up the light in our three weeks state at a major hospital in the UK, still more work needs to be done they say - ireland ignores this advice for the past two years.</b></span></td></tr>
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</b><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2ybLx3x-tUqaUL7EN4-ctqyixSVTMqhhTJfZx1dV6dzoJgx3NgFKsV33XkI8cfAKZvqARCAKVw3nGc9Rs4Bld8x6GkeGs8MbKK9WUU3J5kCMDr1BL-q9dIFBV7VvlKo7H3kaxdl2aemjA/s1600/DSC00114.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2ybLx3x-tUqaUL7EN4-ctqyixSVTMqhhTJfZx1dV6dzoJgx3NgFKsV33XkI8cfAKZvqARCAKVw3nGc9Rs4Bld8x6GkeGs8MbKK9WUU3J5kCMDr1BL-q9dIFBV7VvlKo7H3kaxdl2aemjA/s640/DSC00114.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>the singing ambulance man in a top centre of excellence in London UK</b></span></td></tr>
</tbody></table>
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<b></b><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNcUYmixo-hoUeU_kNOJcm8z6Fh0-5_dqkb9uyX0bE1spYIhZOtlKSbV0bd4vE1Jc1BAGKXZWfwCk1ZLGN_7pl91O4Tx9cHks3p_N8wMDxwWN_dqFOOXNAO9kpWK7Qny5L-QVA62fJvics/s1600/DSC00121.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNcUYmixo-hoUeU_kNOJcm8z6Fh0-5_dqkb9uyX0bE1spYIhZOtlKSbV0bd4vE1Jc1BAGKXZWfwCk1ZLGN_7pl91O4Tx9cHks3p_N8wMDxwWN_dqFOOXNAO9kpWK7Qny5L-QVA62fJvics/s640/DSC00121.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>it is imperative you leave ireland to get the help you need, what if you are stuck and cannot get out again? our situation right now is Medical entrapment, emprisonment by the state consultants. we cannot get out at present - another fight, daily grind of fight</b></span></td></tr>
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<b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large;"></b><span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b></b></span></div>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbMFr4tdYIIMcT-eL209MpWqhqyXDbOPA7m7BvgiUagLUJZUi7Y7e8zlRmEggWRgeP_zi8x0DRHHGveqkYdQzA4WavqG0oecaW3QoSZRUO-cmTbyfZdclY_4_UX6ZZgz9v_6QOSbqbHPXZ/s1600/DSC00116.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbMFr4tdYIIMcT-eL209MpWqhqyXDbOPA7m7BvgiUagLUJZUi7Y7e8zlRmEggWRgeP_zi8x0DRHHGveqkYdQzA4WavqG0oecaW3QoSZRUO-cmTbyfZdclY_4_UX6ZZgz9v_6QOSbqbHPXZ/s640/DSC00116.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: red; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>in a UK hospital in a bed opposite myself is my identical twin, our need is the change of the diagnosis, which is our right according to the medical council of ireland but that is not what the consultants believe. we do not enjoy medical imprisonment in a state that doesnt care a toss.</b></span></td></tr>
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<b style="font-family: Arial, Helvetica, sans-serif; font-size: xx-large; text-align: center;"><span style="color: blue;">We are
moving and shifting to a dangerous place.</span></b><div class="MsoNormal">
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b>We are
moving away from the common good to the common bad.<o:p></o:p></b></span></div>
<div class="MsoNormal">
<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><b><span style="color: blue;">We are
moving over a precipice and it’s not a pleasant and easy ride.</span><o:p></o:p></b></span></div>
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Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com0tag:blogger.com,1999:blog-3570848227107227695.post-4687713291377847842017-07-21T16:27:00.000-07:002017-07-21T16:27:16.183-07:00Public v Private Healthcare in Ireland - the great divide<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Galway University Hospital did not get the seal of approval from any of its working consultants there, deemed it dangerous.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">wexford thousands are on a waiting list for 6-9yrs to see a consultant</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">over 150 doctors are upgraded to consultant status, even though they are not qualified to be at this grade.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Ann is in public healthcare and has a story - her story.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">its an extraordinary position to be in.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">aged 64yrs i have been seriously ill now for most of a decade.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i have a progressive neurodegenerative disease process which is rare, it has no name and yet visible deletions on the mtDNA have been found and alongside this many other issues have been found.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I suffer the following:</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Hypothryoidism</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">CRS (congenital rubella syndrome)</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">severe/profound hearing loss</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Glaucoma</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Macular degeneration</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Dystonia</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Parkinsonism</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Myopathy</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Crohns disease</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Gluten intolerance</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Raynauds</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Sjogrens Syndrome</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Menieres disease</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Pes Cavis deformity</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Rheumatoid Arthritis</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Oesteoarthritis</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Gall stones</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Kidney stones</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">My guts are failing and on nerve stimulant</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Dermatitis.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I have had one stroke </span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">(no one told me i had this in 2013, i only discovered i had when looking at hospital notes through FOI)</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Ovarian Cyst (no one told me that either)</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Comments made through the public health system and its consultants:</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">"You don't have parkinsons disease, you just want it." this after a positive DAT scan.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">"i am going to do tests and PROVE nothing is wrong with you."</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">"a movement disorder from some past trauma." (they mean here a psychological event causing a psycho-physical result, rubbished by a top Irish female neurologist when she heard this comment, thankfully!)</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I have had consultant not treating me as inpatient for a week until i was psychiatrically assessed.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">a consultant letting me out of hospital after a three hour surgery, major surgery for crohns disease with an infected wound, bursting three days later.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">3am this wound burst and a big wad of cotton wool plastered over the gaping wound, 6pm the ambulance came for me! i was in an old people's home, i was 47! no one would give me after care in the family setting.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">doctors walking out of the consultation room because you ask to go to a discipline recommended in the UK centre of excellence.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">now lets look at care, yep.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">CARE!</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I have no neurologist.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I have not seen a rheumatologist in over a year and a half, i have had a major flare in that time and had to get my knees aspirated when i drove myself to a hospital so ill that after a week everything 'blew' my knees swelling horribly.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">most of my teeth are now gone through decay through gum desease brought on by sjogrens syndrome which was not diagnosed for two years in ireland and only diagnosed when i managed to get out of ireland.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">NO neuromuscular tests have ever been done in Ireland.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">recommendations for further tests on muscles have been made two years ago to the Irish consultant but nothing has happened.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">recommendations for:</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">hydrotherapy</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">ongoing physiotherapy</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">neuro-physiotherapy and guided program by such.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">neuro-physiology work up</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">intensive work on muscle strengthening, gait and function</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Botox advised in the UK not done</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Psychologist advised by neurorehabilitation centre in 2009, only recently received - 2017.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">wiped off the lists of these disciplines:</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">gynaecology - even though i have an ovarian cyst and fibroids</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">ENT - even though i have menieres, chronic mastoiditis, deafness and persistent ear infections</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">refusal to be sent to an Endocrinologist, advised in 2011 and still not seen by 2016 but went privately to be told thyroid replacement not stable, it has taken over a year to set a replacement dosage that will stabilize the production of hormones.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">ill fitting shoes provided for pes cavis, causing toe nails to be ripped off, fall causing fractured rib and also two complete tears to my shoulder muscles, inoperable.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i have troubling symptoms requested to be investigated in Uk getting worse.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i believe its Vascular. A recent public consultation when finally getting to a top specialist in ENT surgery said the symptoms were not caused by my menieres or mastoiditis.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">do i actually have any medical cover right now.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">No, i do not.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i have good cover for my crohns and guts.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">That is it.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Nothing else, no neurologist, no tests, no support, no therapies, no oversight, no speicalist nurse. Nada.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Now, if i was in the Private system.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">All would be dealt with speedily, i would never be waiting over two and a half years for a surgeon to investigate troubling head disturbances.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">there is a great divide here in Ireland between public health care and private.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">those in the Private system would barely know what is happening in the Public.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">those in the Public system know it to be frightening and dangerous.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">its a scary place to be and a scary country to be sick in.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">we now have the worst healthcare system in Europe.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">there is nothing we can do about it on a personal level.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">It does not stop me telling my readers how awful it is, how terrifying it is, to know that at anytime sloppy medicine can kill me off in a second in this country.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I can even have a registrar stick a steriod into my head under the skin in A'E, a registrar who had no patients allocated to him so new he was to the hospital. this injection caused a blood clot.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Had he or my primary consultant (now lost) not been aware that my clotting rate is double that of the normal cohort.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">well if they did, they ignored it.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">I think they didnt bother to read my notes.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">amen to that.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;">i say.</span><br />
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>
<span style="color: blue; font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><br /></span>Awnyahhttp://www.blogger.com/profile/06537302262365469158noreply@blogger.com1