unfortunately far too many rumble around during the night making me restless and wrecked.
most of it is described in one word really, that is 'Disbelief.'
nothing prepared me for living in Ireland with a disability.
Nothing prepared me for our healthcare service providers, these are the agents of the state who are funded by the state to care for the sick, elderly, disabled and young and mentally ill and learning disabled, frail, vulnerable and poor.
now with a brief like that you would begin to think that they would have skills in one department anyway - empathy.
But also its the largest employer in the state too.
So there are thousands there, providing care for sick, elderly, disabled, young and mentally ill, learning disabled, frail, vulnerable and poor.
given that many of us will land in one or more of these categories, i fear for the future under a regime that is but that, a torturous regime of trying to Live in Ireland at all under this regime.
they understand one word usually - its 'No.'
what i cannot quite get my head around is this....the budgets.
if we have categorized budgets how is it that vast swathes of people are saying either on secret forums on facebook, in the media (which isn't secret) in letters to the media, which also are not secret, in research papers, at conferences and through ceo's of many disability organisatons, through campaigns from charities, organisations supporting various groups that care is non-existant.
if it is non-existent - where is the money actually going?
we have more people on waiting lists for medical proceedures than ever before.
more people lying on trolleys in A'E waiting for a bed than ever before.
the stuff of a healthcare service that people simply cannot source and cannot source in droves are the following and i badly need an explanation from the state why are all the people of ireland suffering so severely now when we once didn't do so badly at all.
- major waiting lists for routine surgery
- scans as in mri, dat, ct, ultrasound
- dental care
- wheelchairs for growing children
- safe wheelchairs for adults
- respite (no-existent)
- neurology (there are more neurologists in mongolia than ireland)
- dietitian (we have very few)
- meaningful occupation for learning disabled adults once they leave school
- no place for same group to go to once they leave school, and all service provision stops when they reach 18, all that they had cease with a number, their age.
- no human rights whatsoever
- no neurorehabilitation (ongoing campaign at present with NAI
- no social workers for the most needy.
- no take up of posts in psychology and social work in many areas for years. Leaving adults and children without these vital services (my area being a case in point).
- PA's cut backs
- home help cutbacks
- home care packages cutbacked.
- nursing homes - severe shortage but at least i am pleased about that, for in these places you just wait to die, they are nothing more than holding pens and prisons.
- we have rampant abuse in the following places reported daily or almost daily:
- nursing homes for the elderly
- residential care for the learning disabled
- abuse of individuals in foster homes
- abuse and lost children in care of the state because their families can no longer care
- abuse in the community (yes i have heard of a many cases)
- abusive practise that children who are mentally ill are put in adult services and hospitals for mentally ill.
- abusive practises of young offenders being locked up for hours
- abusive practises of young offenders not getting food for over 18hrs. (i never offended and was left without food for 24hrs because the hospital couldn't get their head around the fact i am ceoliac, so they didnt have it, so didnt provide!)
- a full legal department within the HSE whose sole job it is to defend every little wrong move the HSe make, and i mean every single iota of documentation is scutinized by this legal team, especially if there are complaints against the HSE, it begins a roll on forever that everything has to be seen and done via the legal teams.
- taxi fares for employees of the HSE is marked as millions a year for them, yet all transport help has been denied every single sick person in ireland today.
- charity CEO's are earning extraordinary wages, i mean astonishingly high wages.
- ten per cent more managers now in the healthcare system than ever before and its worsening by the day
- ann has smashed into a granite wall opposite the hospital she was making for when the wheel fell off (they had been affixed by the wrong bolts so the report stated)
- margaret had been taken for a very unwanted ride into a massive cluster of nettles, missing a steep gully by inches when all manner of things were found wanting on a ten year old lethal banger of a machine.
- ann has slithered twice away into sides of paths for no good reason other than the wheelchairs were basic and only meant to go collect milk and bread not go and enjoy the nature of the changing colours of autum.
- we have had split tyres and left stranded in the capital, stranded in a different county.
- full panels of a wheelchair falling away as one was crossing a road.
- a wheelchair jack knifing off a ramp because the arm became lose suddenly as one sick older lady was guiding it in, she could have been seriously injured, same woman who ended in nettles rather than down a gully with the wheelchair on top of her.
- throttle knob coming away in sick persons hand when guiding it out of a van down a ramp.
- left without a means of getting out and about for a full summer.