exciting new health developments in ireland and also UK

WE ARE VERY PROUD TO BE PART OF ATTEMPTS TO IMPROVE THE CARE OF DISABLED AND ALLOW THE DAIL TO SEE THE RESEARCH ON BEST PRACTISE IN THIS CASE FROM DR. ROSIE GOWRAN, MY TWIN SEEN HERE, LEFT DR. MARGARET KENNEDY SAYS TO MEMBERS OF THE DAIL HOW IT IS TO BE A WHEELCHAIR TOTALLY UNFIT FOR THE INDIVIDUAL NEEDS OF A OLDER PERSON WITH A NEURODEGENERATIVE DISORDER.

celebrations are in order.

meeting of the families who have mito children and adults with mito get together 

after a long journey of discovering and science the debate in the Parliament in the UK on three parent fertilization to avoid the continuing line of mitochondrial disease has been passed in the house of commons.

this is a major break through.  parents for which the mother is the carrier of the genetic defect can now attempt to have a healthy child by introducing mito cells from a healthy female.

it is not genetic engineering.
mitochondrial disease is devastating, many young mothers face the chances every day to dice with the idea of producing babies severely ill and on the death list the day they are born.
it is not a good situation and we all must agree that to by pass this is terrific.

i know many mothers out there now struggling with both severe ill health in multiple children and also mothers trying to decide with their partners will they attempt again a child and maybe they will be lucky this time not to pass on the gene.  following this the mito angels fly too soon leaving heartbreak and profound grief.

i am delighted for all child bearing mito mothers.
this at last is a chance they have been waiting for.

now for Ireland and one county has asked a question.

cllr. pat kavanagh Ind. wicklow county councillor decides to cut the legs off my twin sister as i too try to cut the head, but in truth we are crying out for services for those with disabilities, the cuts have been hurting badly, Jacqui johnson is also scissor happy on a day we watched enda 'smile on by' without taking blind bit of notice.

we protest because the state of provision of care and services is so very bad.

one county has bit the bullet to ask the question and beg and hope that many more will follow this train of thought when all councillors of the wicklow county council agreed yesterday that the HSE was not fit for purpose and the role of the client/patient under the Disability Act is in fact being bypassed and flaunted.

we protest because the right of  a disabled person is - nil.  we protest at the lack of provision of wheelchairs suitable for individual cases, a fact that WICKLOW COUNTY COUNCIL PASSED UNANIMOUSLY TODAY THAT THIS SITUATION OF LACK OF PATIENT INPUT AND EMPOWERMENT IS CAUSING CONCERN, THE FACT THE HSE IS NOT FIT FOR PURPOSE AND A REAL FACT WE HAVE TO LOOK AT ALL OF THIS NOW.

i congratulate cllr. Pat Kavanagh for drawing to the attention of the chamber such dreadful workings and client abuse in wicklow council and so as a motion being passed unanimously declares outright that the HSE is NOT fit for purpose and does NOT treat the patients/clients in their care well, equal or allowing them their rights to be heard about their care and needs.
well done wicklow.
to be clear what the motion was which was passed yesterday i shall cut and paste to you here:

I am delighted that my motion regarding assessments for disabled service users was passed unanimously at today's meeting of Wicklow Co Council and will now be passed on to the Minister for Health;

Notice of motion in the name of Cllr. P. Kavanagh (received 17.11.2014) (deferred from previous meeting)

‘Wicklow Co Council calls on the Minister for Health to review and regulate assessment policy and procedure by the HSE, and in particular HSE Wicklow, to ensure that those assessments are fully client-centred, timely and thorough, and that the rights and wishes of the client are respected and accommodated; that therapies, mobility aids and housing adaptations are fully agreed with the client before being issued. Furthermore, that therapies, mobility aids and housing adaptations are recognised as a Right, not a luxury, and defined as such by the World Heath Organisation (WHO) and Disability Act 2005 to facilitate independent living; that provision be made within the budget for therapies, mobility aids and adaptations which are of high quality and fit for purpose, and to ensure quality of service, that some form of client appraisal is factored into the assessment procedure.’