Monday, January 30, 2017

'serial complainers' Ann and Margaret Kennedy

who wants to be smashed all over the newspapers and have the minutae of their distress displayed for all to see.
but sometimes it is recognition that wrong has been done that prominent public representatives and organisations have brought to book the terminology and labelling of twins aged 64 who asked for their medical and auxillary care to be met, meeting such annimosity that we doubt the relationship i s reparable, we ask for a Direct payment so that we can get on with our lives.

for those who missed this piece, i will copy and paste here the link.
Ann Kennedy (left) and her twin sister, Dr Margaret Kennedy

i wish to say that finding analysis of a further document regarding HSE Corporate Plan 2015-2017 which i personally anaylised over a year ago i find the following extraordinary in light of the above.
it implies that the HSE do have a remit and plan to build a high quality health service for a healthier ireland and that they are living and upholding their own 'values of Care, Compassion, Trust and Learning every day.'

if this is the case, lets bring it on, for we have reached 2017 and Ann and Margaret Kennedy are asking and valuing that too, a quality of life and a healthier Ann and margaret, this is the sole purpose of the Corporate plan, to make ireland healthier.
alas, we also did a bit of a slump way down past macedonia and others for our healthcare service but in terms of our lives, is it necessary to butcher it as i see this no where implanted within the corporate plan itself.

here it is:
Building a high quality health service for a healthier Ireland
Health Service Executive
Corporate Plan 2015-2017

Snippets from the HSE corporate plan 2015-2017

I particularly want to recognise our staff for their resilience and perseverance. I am hopeful that we are starting on a more positive journey, one where economic recovery is showing improved signs of a more stable financial environment for health in 2015 and beyond.

In light of the HSE resiliance – the moving forward on a positive journey should be all inclusive of the client base, for your resiliance was our horrorsville, while we had to deal with the tenacity of all your departments, hospitals included to use as mantra one word only “No”  and we were resiliant to get through that, so can we please have some signes of a more positive journey?

Our values bind us together We will try to live our Values of Care, Compassion, Trust and Learning every day and in all that we do. Our values influence our attitudes and behaviour towards those to whom we provide services and with whom we have professional contact. We must be more open to learning from our past mistakes and innovative in our drive for continuous improvement. We must prove our commitment to these values when things go wrong.

I would like to feel that this trust and learning, now that you have learned we have been treated so badly as noted.  We want you to prove your commitment to these values when things go wrong

Our Vision sets out what we want to achieve and how we
will organise and deliver our services over the period of the
plan. This plan does not set out in detail all we intend to do
but gives a broad sense of where we are going and what
we want to achieve. Each year the detail of what we will do
will be set out in our annual National Service Plan.

Your vision to achieve to do what you said you would do, has not produced a solid plan of action since we started mediation.
You ‘claim’ you want to make our lives better and that we should be having a better life.

Mission  People in Ireland are supported by health and social care services to achieve their full potential „ People in Ireland can access safe, compassionate and quality care when they need it „ People in Ireland can be confident that we will deliver the best health outcomes and value through optimising our resources

A  really good Mission – can we begin?

·      We will provide care that is of the highest quality
·      We will deliver evidence based best practice
·      We will listen to the views and opinions of our patients and service users and consider them in how we plan and deliver our services Compassion
·      We will show respect, kindness, consideration and empathy in our communication and interaction with people
·      We will be courteous and open in our communication with people and recognise their fundamental worth
·      We will provide services with dignity and demonstrate professionalism at all times Trust „ We will provide services in which people have trust and confidence „ We will be open and transparent in how we provide services
·      We will show honesty, integrity, consistency and accountability in decisions and actions
·      We will foster learning, innovation and creativity
·      We will support and encourage our workforce to achieve their full potential
·      We will acknowledge when something is wrong, apologise for it, take corrective action and learn from it We will try to live our values every day and will continue to develop them over the course of this plan

can we begin?

Your very first Goal

Goal 1

 Promote health and wellbeing as part of everything we do so that people will be healthier We want people to live fulfilled lives and to be as healthy as they can. We want the health service to have a positive impact on the health and wellbeing of everyone living in Ireland. We will support people to be as healthy as they can by promoting healthy lifestyle choices.

I would go along with all this – can we begin?

What you will do –

·      Deliver person centred community based services which support independence and choice for older people and people with disabilities

can we begin?

·      Increased levels of supported living in local communities

Is it possible to begin?

·      Improved compliance with Safeguarding Vulnerable Persons at Risk of Abuse Policy

can we begin?

Goal 2

 Provide fair, equitable and timely access to quality, safe health services that people need.  We must make it easy for people to access the services they need. These services must compare with the best other countries have to offer and be safe and available to people in the right place and when they need them.

As we do not have these at present the Rare diseases Plan, the E112 agreement are ALL there for those who cannot get ‘the best other countries have to offer and be safe and available to people in the right place and when they need them.’

WE had needed all this a long time ago.

We will deliver care around the individual patient and service user and put the patient at the heart of what we do. We will do this by developing a modern model of integrated care across our hospital and community services so that people are treated appropriately and conveniently to where they live.

WE would like you to begin, we are not being treated appropriately in either hopsital or where we live – this you admit, and we would like you to deliver this care around us, indivdual patients and service users.

We will support older people by providing a range of
services including home care, day care, respite care,
short stay care and rehabilitation which will avoid the
need for admission to hospital.

Let me remind you – we have reached this stage
What we will do

·      Implement a number of key Integrated Care Programmes including older persons, chronic disease prevention and management, child and maternal health, and improve patient flow
·      Develop programmes to improve the quality and safety of mental health services for adults, children and adolescents
·      Provide a range of home and community supports to enable older people to live independently for as long as possible
·      Develop services for people with a disability so that they are supported to participate in society and reach their full potential
·      Provide palliative care services and compassionate end of life care

can we begin?

How we meausre success

Patients and service users are involved in developing their own care plan  
Clear and comparable information and advice available to support individuals and their families in choices around service provision  
100% of patients receive their day case or inpatient procedure within 5 months of referral

How Ann Kennedy and Margaret Kennedy measure success  - the same as how you measure success!

Tuesday, January 17, 2017

Week Two January 2017 - Roll on HSE fighting and for Healthcare

Well, its rolling on, so they say.
the new year has begun.
christmas is but a speck in the eye, and the HSE the bloody big log.

They too are still rolling on, so they say.
into - the new year.

Paddy Connolly Inclusion Ireland and I have a chat, a serious chat.
it is not so much about THEM, it is about US as equal citizens, but not so equal,  Margaret and 'the banner' for equality, freedom and independence.
On radio today my twin queries Finian McGrath TD with special responsibilities for Disabilities, about the reasons why our area doesnt allow 'Direct Payments' for personalised budgets, and also the issue around the utter embarrassment of not having human rights equal to the rest of Europe.
the same questions answered in the same way really.  He mentions that the budget for disability has been greater to the tune of 30million.
you are fooling me, my sister, the public and most of all - disabled people who continue to see a spiral downward of supports and care for themselves and their loved ones.

i can truely say my 'end of life' is no retirement.  I am not sitting quietly reading the novel i never read when too busy at 21.  I am not catching up on countries to travel to that i couldnt when bringing up children.
i am not writing the autobiography/memoir, yet.

i am fighting every day for the same things i was fighting for ten years ago.

alongside of which i am fighting consultants who ditch their patients at a drop of a hat against the ethical guidelines of the GMS, proven as i have rung them twice and given the same ethical evaluation of treatment - twice, by two different people.
you do not ditch your patients and leave them high and dry, months on end in high anxiety with no one to turn to with a progressive neurodegenerative disorder.
this you do NOT do.
you can request for the patient to be transferred and behave decently, civilly and professionally,  not like a spoilt brat peeved beyond what his hair roots can cope with.
Ringing the Qualities department of this hospital i asked a very nice kindly man how much do these doctors know about how patients cope with severe illness and the intrangigence of doctors?
how much do they fully understand for instance that before them is a severely ill person, coming to them as single individuals, no support with profound/severe hearing loss and also on the autism spectrum and who is worried and anxious about her future.
does it matter that the doctor is failing to offer healthcare that they need and should have.
does it seem to even make a difference to understand those who are not receiving care will become even more anxious and those on the autism spectrum, with far too much on her plate will one day begin to become far too distress to handle the blank face of the professional across the table, deliberately refusing care, deliberately not answering questions and deliberatly deciding not to understand what the patient is requesting or saying.

the fob offs are terrible.
no one said an austism spectrum disordered person is an idiot or lacks intelligence in my case.
most are not idiots, when we see neglect we see neglect.
i SEE neglect every way i look so i do.

some of these men in the hospitals need the course now being offered to HsE staff because sure as eggs is eggs they need some courses in patient relationship skills.

what does it matter how bright and brilliant they are if they are abusing both their power, their position and their expertise, by denying the latter and abusing sick people.  There is no higher power or excellence in this behaviour.

i hope all patients who are treated badly will begin to face these arrogant doctors we have in our system.  without censure they live and carry out a reign of terror on public patients, especially women.
they target those who are unsupported by the male species by husband or child.

they make the patient out to be some kind of demon, villian, or worse.
the patient ceases to be the sick one, the patient is supposed to treat a doctor with kindly words and kid gloves because they are fragile flowers who need to be stroked.

they are no more fragile than weeds.
they do not need me to stroke their egos, they do that amongst themselves.

it leaves a patient in agonising anxiety when she knows she has been abandoned.
Not in Ireland for sure, in a UK centre of Excellence, trying to determine why i am so very ill.......
i will end here by saying that finding out two lymphoma markers raised one in 2014 and one in 2016 and nothing done about them, had me in a spiral of depression, there are doctors caring for me who SHOULD have known about these and done something about them.

i have no solace that i am an equal citizen to those who have the full whack of vhi healthcare.
i am in the gutter, as we emulate America, god help us.
God help those who suffer in ireland today, the sick, the elderly, the fragile of spirit and heart, the disabled and the mentally ill.
all receive their fair share of horrendous abuse.
this abuse stems from the professional forces within, those charged with the care of the people of ireland no matter if well and able but also the vast majority older and some now very frail and needing the kindness, i for one, never knew love or kindness, i thought it might begin some day - soon.
it never did - it doesnt look as if it will come by here some day soon.