Protesting is Normal

Being a disabled person doesnt mean that political activity is not part of the remit.
Indeed it is more part than not so with a zest and zeal like none other, the pink hatted twins stepped it out, well half and half really.


We desperately tried to manually push a wheelchair with our bodies in it, this isnt easy with a muscle wasting condition.
we then desperately attempted to push a wheelchair with our bodies behind it, step by hot step on a very hot day.
I could not sustain that pace and commondaired a passerby, very obliging, hansome man.

I look back at the times when i was a volunteer with Friends of the Elderly in the 70's.
How i thought the old ladies and men's adoration for us young ones so sweet and endearing, and did so rather patronising the frail beings who gave us the confidence to do what we did.
- i felt all good inside to help.

-I am surre my handsome young felt all good too, but i personally sank an inch deeper in my  wheelchair and felt a little less sure, a little less confident.

This confidence, can be eroded by dependency.
small acts can bring it home in a very embarrassing manner.
the day we hobble out in pink with bowlers, all pink all identical and doubling up as only we can do.  for being disabled for me, means my right hand man/woman is also that as well.
its cringe stuff when depending on others in such a massive way.
In other words, for all the bravado and the reality of the fun which is it, its major cringe and major distressing - denotes -
Disability.

Its a fact of reality that someone has to do the job.
being a person with a disability, that is.
Without us, there wouldnt be a fair bone in anyones body.
Why, because we are seen and people learn a thing or two.

Protesting with disability shows the world, 'Oh Lord, they can do THAT?'  "Oh Lord, yes we can"
Of course we can.

a Protest is good for the soul if it yields results, which the last weekend did.
Its good for everyone's soul for the very reason i mention above.
It is not a matter of cringe pathetic to watch disabled people protest so we get results.
its a matter of personal inability to deal with severe government cuts and what it means to us.
We had to do it, and you cannot put disabled people down.
Nor, can an institution ignore this fact that the disabled, like the poor will always be without.

why in gods name do people once in government begin to feel that you can actually destroy a human being in this manner as if worthless.
the polititian of today or yesterday may well have been the young good looking chappie who did a bit of social awareness when they were green under the gills.

this time the reporting of protest is, we made a punch of effect and had a proposed cut withdrawn.
Independent living or lack thereof withdrawn.
but like an onion there are layers to this thing called provision of care for the vulneralbe

My family rounded on me a day later.  and it was devasting to hear the sort of thing that seemed to be the crime in the act of protesting.

To actually do it, as one of the siblings said, 'looking for attention.

so explained written i end with a steep pull up and put down,  WE are Worth The Protest and most effectively - WE GOT THE RESULT!
as for family - THEY SHALL BE FORGOTTEN FOR NOT APPLYING THE CHRISTIAN MESSAGE ANYWAY.
now, shoes, "Did i hear anyone say something about shoes?"

Add caption shoes

Not just a teeny bit of it! RED!

to write once prompted is to speed up a voice and activate RED, upon RAGE and Roar RED.

when a chance to say a word, or two is paralleled with a prompt and paralympics and a debacle as an adaption grant application for a disabled person all come together - on one day, on one page, the story is Hot and getting hotter.

Ann has Rage, once prompted by injustice, decades of it,  Rage is a response to abuse, neglect, abuse, dismissal and now a shell of a home.  In the name of disability grants for the disabled.
We (I) got a grant for adaptions that are not needed in this moment in time.
yet some manager, somewhere, here, i have not met nor even know its gender or medical qualifications.
I have been told a disabled bathroom for a person with paraplegia or quadraplegia is my requirement (i walk, even if badly).  My request for adaptations covered the gammut that are my disability.  The inability to sustain walking when my legs have atrophied, are in pain, coupled with chronic fatigue brought on by neuro-degeneration and many autoimmune diseases.
I have a spanking bathroom whether i like it or not.
i have a ramping of concrete practically encircling my new bungalow costing over E1,000 whether i like it or not.
I have, due to inability to cover the rest of my need, floor space for wheelchair because i have had to biff out a bedroom (planned for in-home care) and this leaves me with a shell, of a usable home for a wheelchair but no storage, no floor covering, no paint inside and out, no bedroom for a carer, a tiny add on extension to give more room around the bed but mostly cos of the massive bathroom that THEY said i needed.

a meeting - red letter day, we had on para day on a photo shoot day-a bloodletting day of curdling proportions.
Tears and no understanding that three men, one professional, one disabled professional and one disabled, all trying to justify a stance that leave the red blooded roarer in the wheelchair in tears as none of the ruddy work that has now been planned completes for me a home that is actually a home for a disabled woman!
we will have a concrete moate, minus the flowers so magnificent the estate i am in think in wonder of the wee little woman who put it there now deceased and a whacking great bathroom and no money left to even put on paint or floor covering.
my red rose day of red roaring ruptured soul and spit and men in trousers dictating and a woman with a clipboard.
oh and i know about the clip board bit.
the one who tells me she doesn't remember what i had spoken about when moving here and applying for an adaption grant and then did it matter anyway because some Manager somewhere had decided before i ever arrived.
Also the Liberation of paras worldwide, in an age of enlightenment sees a paralympics sponsored by an organisation that has been co-opted to lop off 50,000 english disabled persons from any grant or living allowances they were entitled to and made them all go back to work, even if you are on dialysis they can say this, and that one person i know of died within a year of losing all her support grants.
that crowd is floating on the wisdom of newton and coloured umbrellas with singers in prison overalls, co-oped to sing the national anthem to the Queen of all Queens overseeing the overhauling of cuts on an olympian scale who according to the anthem will uphold its laws of the land.
can i cope.
well who cares, who asks and who bothers.
colour - umbrellas, wisdom, newton and aesthetics.
One thing for absolute sure, the message was uplifting, the show was dynamic, better by far the fumes of slavery and the industrial age.
but it is sickening overshadowed by the underworld of heavies in our society who are determined that every disabled person on the planet will have life made just about as hard as they can make it without discrimination, realisation or even asking or inquiring do they mind or do i mind.
I do, mr. umbrella of wisdom, newton and hic or whatever they wonderously discovered recently.
it wasn't humanity and that i do know.
Anyway sorry.  Thats considered a Rant to able bodied minds.
its considered the truth to a disabled body and beautiful mind of an intelligent woman.
 To prove the beautiful bit and what Red can do, remember folks the red rose of tears, on the days that was in it, in the bushes crying at Harold's Cross, Rehab and Hospice after a consultant - (male), had informed me, in no einstein experiment of medical examination that my muscle wasting was due to inactivity and lack of exercise - yep, did he ask me my lifestyle, nope, but he deduced it.
yep, by seeing the mobility scooter by my bedside, for which he clarifies his diagnosis on, again the red rose blood bellied froth of anger at another abuse of power who abused his power by telling me that i am lazy and my muscles had died because of it.
This my friend, despite it been proven, medically, in another country, that i had a condition of muscle wasting that was consistent with disease not laziness.
we have an enlightened age for disability, especially when it rains ...or even if it doesnt, the colours go up anyway.
wise eh, well, just in case.

i will ask my friends who own colour of any hue of place, emotion or other, say it, share it and it will be a better more colourful place by far.

i thank http://www.travelsupermarket.com/c/holidays/capture-the-colour/ for sparking in me a written response that sparked a creative response coupled with imagery on the road rather not travelled today, the red road to the lion of sparkling grey tin of utter ignorance of stuffing.
Not even wanting to be any different either.

Sarah Henderson, Chrissy MacNeill, Margaret Brown, Doreen Kennedy, Keith Hern and Michelle O'Neill, all magnificent photographers, all with either an illness or disability or vulnerability who want to change a world by making a difference through creativity.  Share and copy,

Say it with Flare, say it with colour.  Never fallen, or faded, tis RED by any colour, tis.

I am on the RED letter Roaring day.

witty? No, but Oh!

Oh my!  i have not written since June but then i heard from Chrissy O'Neill and then i was spurred...on by...a link.
Yes, she sent me a link so we investigated right and proper, and it was to  http://www.travelsupermarket.com/c/holidays/capture-the-colour/
so really how could i NOT write a blog?
I am here to speak, yes for today i say i have an image.
I think it is nice but then i took it and so i have to remind all that we (I) can be either selective, right or biased.
I possibly am all three to be honest.

Now i look at it i see a small bee buzzing, and bet its out of focus.
it would be.
er, no pun intended.
i was perched on a mobility scooter in a rehab centre for those with chronic illnesses.  I escaped this evening as sun was fading and the light was really wonderful.
To the Roses i go each day here, a Rose garden within a complex of a rehabilitation centre for Rheumatology conditions and also a Hospice.

My escaping was wonderful for i did it daily more than once.
I escaped at Dawn, mid day, middle day, afternoon, middle afternoon and eve.
and sometimes, i cried there.  Sometimes i sat and was all melancholy and quiet.
But mostly i was within a zone of complete and utter peace, smell magic, see beauty, surrounded by calm, leaves, colour, and more so and forever.
I was at one with nature, myself, my being and my many conditions.  To escape pain, escape confrontation of illness, escape encasement within alien environments that only hospitals and peaceful dying rooms can be.
to escape turmoil, as only i know it and knew it then.
the sort of frantic wish to escape and a need to see if beauty can actually do this sort of magic trick of transcending.
It can, and it does.  Look at my white, pure with butter colour touch?
see a small bee, kiss as lightly on the edge of sweetness.
can you hear the buzz?  I can.
Can you smell the dusk approaching?  Oh yes, i can.
What say you of the Peace then within.
Oh, oh. Oh, i can.  that is all that is to say of it.
No more.
I have a glow, a petal glow of fragile safety within a fractured soul.
I have found the capture for me alone, in this world, alone capture for soul and being, a fragrant flower, drawing me to it, the bee and all together gather, shrouded in leaves and shelter, i am here now. At a whiteness of peace to me.
I am ok.
All is ok and for the space i give myself in the rose garden with my camera, i can be alone but aware of wonder.  It is always so. A link together a creative need to stay linked to nature and aesthetics and wonder, to transcend pain, a lot of it.
i invite my friends all photographers to join in this blog, find an image and place within this competition and capture their colours.  GO, Capture the Colour i invite
 Margaret Brown,
 Michele O'Neill
 Doreen Kennedy

Lois Davies and Sarah Henderson to come and see what Ann is saying to you and about what and with what and how....

Ireland will let us die

without a doubt my country will let us die...i speak of my identical twin and myself - two women with a rare condition - Congenital Rubella Syndrome.
Dr. Raging Wheels is my twin.  You will get to know her too - if either of us remain alive in a health system that is simply euthanizing the useless, aka the disabled.
My twin and i - for instance.

We reel from one crisis to another.
we live but a quarter of a mile from each other or less and we cannot even get to each other easily.
we are promised electric wheelchairs which we have tried out.
like carrots teasingly tempting us to sit, we then see em packed away in the white van that brought them to our doors, we now wait on a list.

and so it is with most things.
we reek with conditions, as each of our body parts crumbles due to an invasive virus Rubella which my mum caught when expecting us.
we have not hit 60yrs but I bettya Ireland is sure we wont.
We dont have the wheelchairs but what else do we not have?
we do not have CARE, period.
Little or none and what there is is chaotic, unpredictable and predictably AWFUL.
what is left at 'fallout' end is two exhausted women shocked to the core that any european nation could do this.
Most people in this society rely heavily on the extended family - what if there isnt one, or one that can be or is willing to be caring or even recognise our distress, what then in holy ireland?
if we do not have this extended family we are finally in the custody of the state, which is bankrupt.
Neurology for instance, has cover the lowest in europe.
and my twin and i do not even register on the richter scale even though we are supposedly being cared for in this system.
we have not been jotted or noted in our chart for two full years, that is, no note has been made of us being in that system and yet we have and yet we see and dont see a result.
we see the consultant on no set regular expected consult, we have to hope and wait, and wait and wait that someday it will be decided for us to be seen.
we also do not even know what we have, for the jury is out on that...well...to us it  as no formal diagnosis has been made, again, nothing has been formally documented-nothing being written in our notes.
if we ask, we are considered pesky and persistent and irritants.
We do not easily slot into Post-polio, dystonia, parkinson's, ms or als.  we have some and not the other and none of them but all of them, whatever.
we are dystonic and parki and have a post rubella.
but what is the definitive diagnosis and how are we to be cared for with it?
does one of the twin's come off her parkinson's meds and why is the other hardly been medically controlled of her jigs jerks and dystonia.
we get the botox jab in my neck and twins foot/ankle but is that dystonia due to dystonia or parkinson's.
we both tested positive for parkinson's on a DAT scan which is considered 97/% accurate.
we don't get considered as having it and half the jury is hung or out and we are slashed and drawn in confusion and dispair.
what about the other...the endo who discharged one back to gp, that is the senior reg discharged the twin without even consulting the professor of neurology who referred her to him.
that is 'out on your ear, mate,' without further ado.
 that is, us being sent to the consultant of endocrinology,  (we haven't seen though, due to the rarity of the situation), sent for the expert opinion but in the opinion of the registrar, not yet a consultant one twin has been  shifted back to sender.
Deformed feet with special shoes, well yes, but two years ago funding dried up for them and so i hobble, now one foot has collapsed and i am working with fallen bones.  I also have a short leg but as the shoes went so did the lift, that is all of two years ago.
what about physio, well, yes, i get four blasts every six months.
that is my friends, about half hour at most working on generalised dystonia and then after two hours every six months i am told to get on with it.
any expert nurses around for the following - ceoliac, crohns, sjogrens, raynauds or arthritis?
no, you join these sort of support groups for the support grouppie advice.
that is the sjogrens associations, the raynauds etc.
these are non medical conglomerations of well meaning and charitable organizations who do trojan work, but they cannot interfere with the medical supervision of the various conditions they are trying to support.
we don't have the medical supervision and we have all of these, well i do anyway!
you can get all the advice in hell on these but you need to have the provision, advice without such is useless.
how about deafness and blindness - well none of that is much public health concerned as the public health hearing aids are just about useless for those of us who are touching on only having 35%.
we have a shortage of just about everything.
and just about everything my twin and i have with just about nothing by way of care, family, support, apparatus, funding and access to transport or other.
We will die.
I personally who had the misfortune to be in the psychiatric system will surely die, as i am shunted to the virtual wards as soon as i arrive in A"E anyway.  that is ED to a lot of countries, but here in Ireland these are documented to be seriously dangerous for your health and fatal for psychiatric patients, known to be.
without family to watch over you, no one can call a halt to maladministration of health care for the least able.
how can one person with parkinson's disease who is recovering from radiotherapy help the other who has generalized dystonia once in the psych system who ends in A'E/ED with a crohns blockage, both deaf, both women, both in wheelchairs, both clapped out help one from dying of crohns blockage/peritinitus?  well, we lost one sod in southern ireland whom they left too long and who died, sure i am surely going to be next as he was abled bodied and had two small chizlers, whom he left behind.
we are forgotten in the melee.
who do we want to hear this?
well who will hear?
and who will cry out and not allow Ann and Margaret, the terrible twins to suffer this indignity at the age of only 57yrs.
it is no good making documentaries on a wonderful woman who pulled out all the stops for the atrocious treatment of learning disabled in the west, when now, she is receiving pretty similar and more and more, and watching the same happen her twin, myself.
it is no good plastering my cute wee chihauhuas and self on the front of HealthPlus Irish times, 2010, documenting my story for the curiosity of it all and then abandon lock, stock and barrel, the three day wonder.
and then the bit of curious floss dragged in to the bosom of a caring professional because of curiosity and then told 'ah but you are a spirited lass.' but what next, 'get back to where you belong.'
and soon it will be to Holy Ireland of the dreadful bloody fiscal fiasco who will carve our graves with enthusiasm as they embrace the words of my taoiseach who states 'we are a modern society.' he that says he isn't tolerating what the church has done to its children and vulnerable adults.
well you did, over in the West, remember, and someone found you out, that of the HSE, remember and then remember how you embraced through tv documentaries and Irish Times articles, well no you don't.
cos we are still here, but not the way you think, we are here, jerking and jigging and hospital hopping and chaotic crisis riddled individuals, left in the melee of Holy Ireland and modern etc.
well we are here,
if you read this and care enough to give us your last rolo, as in - DO NOT STAND BY AND LET RARE AND SPIRITED AND WORTHY INDIVIDUALS DIE IN A COUNTRY THAT HAS NEGLECTED US.

we do say but what can we DO!

yes, we do, scream and rant and say coherently of our thoughts and values, in society.
Many want improvements, many want change and most people have difficulties effecting such change.
For myself i feel i do say and my voice is valuable.
but i want it to SAY enough to effect the changes i see as needed.
When you read Irish headlines as in today, that 80% of our disabled kids are not being assessed adequately within the legal time frame what on earth does one feel and then say and follow with DO?
This is a human rights crime my friends.
I have said before, standing up and castigating the church on its human rights violations and claiming my country will not tolerate sexual abuse by clergy because, we are 'a modern society' well Enda, what is modern about neglecting the kids in this way?
or is that, - our modern society, aka modern world?
Methinks the word 'modern' means progressive and regressive.
we have lost souls, through the church abuse and through greed in money.
we do not care, how can i say this and effect change.
can i grab a teenager and train em up to care properly, drag him/her away from the infernal computer, which in my dotage is taking over my life as well (but thats for another days blog), can i open my door and scream about injustice to be considered 'ah that the mad woman again' (another days blog), or do we all endure what 'modern society' is doing to our kids, our pockets and our lives?
I am furious with my government, who are so smug and yet do nothing for the least able.
NOthing.
Our consultants are some of the highest paid in the European zone and treat most patients as if they are a burden not the source of their weekly wage. more so those of us who are disabled and challenged in life, we get it in the throat when sitting in front of one of these human intelligence machines, whose soul went out with the toilet water my friends, because at present i do not see no soul around my parts.
Yes, we have cuts.
do they tell us where?
and why?
so that i too know not to ring a consultant for the overdue appointment that is badly needed.
Not to ring a consultant to ask about rheumatology difficulties.
well i email, out of this country, into another.
and get an answer!
yet cannot get one of my dignified educated elite, whom i am paying, to answer any dialogue i attempt to make in order that I personally have a better quality of life.
to be educated is enough, but to not to use it for good advantage and that of others is wrong.
when PAID, its dreadful to ignore those who need care.
Modern society we are not and Enda, we never were and will never be in my lifetime anyway.
get up and act on words we all feel and know and understand.
Disadvantage stinks, and its messy and horrible.
I am in that place along with others,
we have the voice but not the means to effect change.
those who have the means to do this will you please here this voice as i type from the horizontal.

Fiscal, Europe, Mental'n all

it is indeed a very difficult world to live in now and a difficult world to make sense of.

it seems that the 'money' element is so prominent in all countries that trying to balance the books means the people get left out.
those that cannot take the strain end up in all the major rivers and waters of Europe right now, the Rhine, Danube and Liffey all drag out the bodies of the despairing.

the moans and groans of utter discontent and the hating of governments across the globe is evident and you cannot get away from that.  Never now.

where are the people though and what are they doing?
(apart from trying to sort economics, personal and global)?
I mean, where is my neighbour, where is my church and where are my family and friends?

This is something i just cannot understand at all.
The reasons are many but yes, i too am caught up in the mess of a personal life.
How much of the mess was my fault is open to debate, as is the world's troubles.
When does the responsibility lie on your shoulders alone?
And should it be lonely and loveless and hard work alone?
Should we not expect the neighbour, the church and the friends and family?
I hear my contempories saying to me that 'well, they are young, all doing their own thing.'
This is the biggest cop out i have ever heard and explains nother about the concepts of moral thinking other than there is no emotional or intellectual thinking going on!
for what can you do with the above sentence?

Yes, to me most nowadays do not care a jot for others in trouble.
We just bail out and bail into our own personal lives and live in a microcosm of narcisstic pursuits and if cars are bashed up, drink taken and women made pregnant its all a 'mistake.'
Never anything other than a 'mistake' not a crime or a moral crime.

we are in difficult times of different moral thinking.
what about those who are over the age of the pole dancing floors and the enthusiastic sex in the flipping broom cupboards of europe.
As we age we matter less and less, but we are still alive.
we dont need the drink and the sex and we couldnt do much with poles.
my example of this is trying to dig a hole for a pea support is about as slippery and impossible as any pole going upward and nowhere.
but i am disconnected from society.

the inability really to engage either with peers and society has made me very sad and very confused as to 'meanings' in life.
for i see here my twin also struggling, no pole, no stakes but a stake in life until we draw our last breath.
we yearn for the small connections of a welcomed visit from the next generation who never seem interested, even if we show wonderful interest and concern.
we yearn for the person to ask at the door would you like to drop by for a cuppa, to maybe respond, 'well i wouldnt be able, but do come in if able, and we can share here.'
what about my wallpaper?
yes, what about my wallpaper?
See, duck egg and gorgeous drawing?
whatabout my Wallpaper coloured duck and grey?
well i adore it, see, but will you see, will you come see?
no, probably not and so i have to sit here with no affirmation and no real follow through of joy in a task hard thought out and needing the human consent on the result.
most people do, so i know i am not alone.
but some are more alone than others.

we struggle to eat with no knife and fork but spoons we cannot hold well at this stage of our neurodegeneration.
we struggle too with exhaustion and despair, for we have that in spades.
society has provided so little help its shocking in extreme.
while the young men go out to recapture the ideal world of wealth and fiscal balance, we struggle with the concept of our lives of decline, alone and then to the grave shortly and away with the fairies to be forgotten really.
the feeling -
that feeling of pointlessness of it all.
the bursting of enthusiasm for small jobs done and yet no one to share it with.\
we have ALL disabled people around the world struggle, all with mental health difficulties are terrorised with social bullying for the rest of their lives.
we have disabled and psychologically challenged traumatised and fearful about the next A&E visit and wonder will it be this time the virtual ward near the laundry will see a corpse or a doctor.

its worrying the way the world is going.
we need the people back, not to fight for the wrongs of the nations but to embrace the needy and the people struggling so badly.
it was done during world wars, so its possible.
anything is possible and so i lie here and wait and hope for the miracle that  of 'possible'
sadder and sadder you become in a tired life.

the personality dilemma

when i had typed the post's title i instantly thought, well are you right in stating this?
I was to talk about how prejudice around personality causes many sick persons finding it difficult attending doctors.
When i was referring to 'personality' in this context i was thinking more of 'difference' in the context of society's norms.
Society has a set of givens.  we have the 'extravert' and the 'introvert' but what if we have the 'depressive,' the 'manic' the 'hysteric' the 'sulky' and so on?
When does society say that a person has erred too far over on one side of the divide to be given much attention to?
That is, ignore and move on to one of society's acceptable people.
Not every one fits into the basic standard dress size.
Anyway there are always variations on the theme.
so what makes a person acceptable?
Is it...beauty, wealth, or just plain 'normal' or just plain 'plain.'
Does a person have to be a cardboard cut-out, that is, lack all personality to be acceptable?
Or does a person manage to overcome the difference by being different but wealthy or different and from an influential family?
because certainly if celebs say it all, they get it all, and mostly because they have the wealth to buy them just about everything, even if they are wild, drunken, rude, hysterical and everything other than plain plain.
Walking into a doctor's surgery is not for the faint hearted any day, for anyone.
Some seem to get away with the task better than others.
Many don't have to put up with the rudeness.
i have seen this.
I see it too often.
I also see and have seen how some people do have to put up with rudeness, being left until last in a clinic or being shunted to the 'virtual wards' on the side near the laundry baskets.
i will say which bracket these individuals belong to, they are the individuals who stand out from  the  accepting society's norms.
we have as i say the drunks, but here the POOR drunks.
we have the mentally ill, again the POOR mentally ill.
also those who are Not from high society families or who have the support of family who are high flyers.
if you have been rubbished by the family of origin and do not have them supporting you then well, you are also a complete gonner.
they have documented that to be poor and sick means you die younger and sooner.
That has now taken off a sizeable proportion of the people i happen to know.
so if they die off then i can quake with fear.
but mostly the persons who get it between the eyes of hostility are the persons perceived to be mentally challenged, that is, mentally ill or been in the mental health system.
this is all across the board and in not only holy ireland which is my country but all countries.
but being in Holy Ireland i have seen horrible things done to people here.
try this for size...i know a person who was not treated for physical presentations until psychiatrically assessed..that person was myself.
yes, i sat it out until i was and i was many times and all times found to be mentally sane.
what the sender to the shrinks saw was at varience to what the sender perceived or realised.
they SAW tram track slash marks on this person's body.  they immediately percieved madness.
well they were found to be wrong by the shrinks.
the shrinks had never seen me as mad or having a mental illness.
Tram tracks on flesh is not from madness, but say that to the ill informed.
Tram tracks means many things.  Abuse can cause it, neglect, vulnerabilty and also feeling isolated in crowds or not liking oneself, or not being able to express oneself adequately to be heard sufficiently for things to change.
it never is about madness.
but i have seen also mentally ill persons being so badly treated it beggars belief that medicine is about healing not destroying a human being.
You would rather think it would be more healing to lift up than slam down.
A doctor has the ability to do this in such a differnet way to most.
they are after all , the gods to keep us alive.
we depend on them to do this, keep us alive.
they then are 'God.' and believe me they chose to act it.
making judgements that are divine is their supreme skill but in the hands of humans it amounts to ignorance.
Tell me why anyone should be treated badly just because they are different?
tell me please why these people with difference too, should be less believed about their own feelings and bodies than those who have the money and the beauty and the sanity?
because when a person describes how their body feels, most if not all will say it as it is.
why would anyone say less or more, when they go to a doctor for help?
it is very few who are feigners, very few.
again the gods decide that a person with tram tracks are, and they get shunted to the side.
Every time.
they also get treated badly at every turn in medicine without exception.
there may be an individual doctor who will decide to believe you and i have had one or two, but one or two does not mean absolutely everyone.
we started on this blog about personality, and it is so all embracing, all consuming that it goes to the heart of what being a sophisticated species is.
the way to 'take animals' out is so much more sophisticated than the arrow or the mallet.
you simply treat them with rudeness and shunt them away, also shut them away.
the voiceless many as known particularly in this country when we shut more people away behind bars for being different than any other country in europe combined at the time and we are talking about a period of time, the 50's.
Irish people i feel, are far more prejudicial than most would be led to believe.
i put it down to being too long the under dogs.
i see it now having rebound again, just as we began to show hints of tolerance, i believe we may revert back to the dark ages.
mostly economic decline will see a hardening of attitudes, another 'survival of the fittest' tactic.
at the end of this blog i will say one thing clearly.
I DO NOT want to be the Plain PLAIN>
i do not want to be a shrinking person who has no say on matters, who has to grovel, who has to be 'important' in economics or beauty in order to be treated well.
i want to be myself, which is, DIFFERENT, by virtue of birth.
i have not wealth, status, age, beauty or sex gender on my side.
but i have Spirit, Spunk, Laughter, Hilarity and uniqueness that is particularly my own, and my own style.
does this sort of 'difference' along with my pain, my past, my vulnerability and my inability to withstand abuse mean that i am led to the slaughter each and every time i am found wanting by one person and another, those who are the 'acceptable beautiful people' of our society?
when society can be judged as truly sophisticated, humane and reaching out toward difference, then we can say we are nearer the God of Life than the God of destiny, the doctors.
and i see too many of them - for my sins.