AWNYAH TODAYSAY Ann living in the Republic of Ireland and it is not a good thing. We have now ratified the EU convention on the rights of people with disabilities, yet we failed in ratifying the optional protocol, allowing us ability to make complaints to the EU under the convention, with little facility to do so in our own country. We go unheard in every sense of the word. This is unjust and leaves us more vulnerable and open to abuses. We are suffering. I am suffering.
Monday, May 4, 2015
awnyah todaysay: the twins situation has become serious
awnyah todaysay: the twins situation has become serious: hello all, its been a while since i have posted up. before i go any further can i ask you to support this plea which i am now copying and ...
the twins situation has become serious
hello all,
its been a while since i have posted up.
before i go any further can i ask you to support this plea which i am now copying and pasting up:
https://secure.avaaz.org/en/petition/County_Wicklow_HSE_Provide_appropriate_powered_wheelchairs_for_Kennedy_twins_Greystones/?cFFiTcb
its getting very serious.
i will say why it is....simply....we are broken.
we are shattered tired from the fight of it all.
begging is a horrible feeling and we want an end to it.
when you look at our lives, it hasnt been good.
yet its really a struggle to get anyone to emphasis with our plight.
we are not cutie twins with polka dot ribbon bows in our hair.
we are wringly old toothless individuals, who are losing our lives though a chronic progressive disease.
despite this it isnt enough to engender he help of any one globally.
we have tried our best to inject that belief that we are worth it.
evidnetly we are not, despite our quest we find the cash flow in four years has been minimal.
in all it will only buy us a wheel or a bit of padding on our weelchairs we would like to get.
so if anyone, absolutely anyone feels they can or could, would you please sign the above, to get our government to make a compassionate effort to see twins who cannot walk far get the wheelchairs they need and also if you yourself feel good or could or would, i would welcome anything towards this end to the account i place here on this particular flyer.
recently i 'trialled' an All Terrain Powered wheelchair.
with this on trial for a few hours i made the accent to the top of the world so to speak, this is my heaven, my home and my soul land. Like the cherokee indian, the land and sense of place is what sustains me.
here it is, after ten full years of never seeing from this vantage point i see it again about ten days ago, for half an hour and down i had to come.
please help me make it again soon, in my own wheelchair.
this is replacing legs, therefore its not a luxury its a right, its a prostises to help me use wheels instead of legs.
is it that i am now, as a disabled woman not allowed experience joy again or adventure or travel or even experienc itself.
am i banished to the home, with a smll trip to the corner shop for the milk and tea bags?

its been a while since i have posted up.
before i go any further can i ask you to support this plea which i am now copying and pasting up:
https://secure.avaaz.org/en/petition/County_Wicklow_HSE_Provide_appropriate_powered_wheelchairs_for_Kennedy_twins_Greystones/?cFFiTcb
its getting very serious.
i will say why it is....simply....we are broken.
we are shattered tired from the fight of it all.
begging is a horrible feeling and we want an end to it.
![]() |
| sweet cutie twins - then |
when you look at our lives, it hasnt been good.
![]() |
| very sweet adults who gave a lot to society despite all - now |
we are not cutie twins with polka dot ribbon bows in our hair.
we are wringly old toothless individuals, who are losing our lives though a chronic progressive disease.
despite this it isnt enough to engender he help of any one globally.
we have tried our best to inject that belief that we are worth it.
evidnetly we are not, despite our quest we find the cash flow in four years has been minimal.
in all it will only buy us a wheel or a bit of padding on our weelchairs we would like to get.
![]() |
| every little drop counts said the wren when he peed in the sea |
recently i 'trialled' an All Terrain Powered wheelchair.
with this on trial for a few hours i made the accent to the top of the world so to speak, this is my heaven, my home and my soul land. Like the cherokee indian, the land and sense of place is what sustains me.
here it is, after ten full years of never seeing from this vantage point i see it again about ten days ago, for half an hour and down i had to come.
please help me make it again soon, in my own wheelchair.
this is replacing legs, therefore its not a luxury its a right, its a prostises to help me use wheels instead of legs.
is it that i am now, as a disabled woman not allowed experience joy again or adventure or travel or even experienc itself.
am i banished to the home, with a smll trip to the corner shop for the milk and tea bags?
| this was in 2013 the HSE, our health service attempted to take away an 11yr old banger which finally went into a wall, when it lost its wheel. |
| the twins lying in a hospital in the UK waiting after investigative surgery to find out what could be wrong that we cannot walk |
| he very much cared this singing ambulance man |
![]() |
| can you help? would you help? |
Sunday, April 5, 2015
remembering hilda from the social housing unit and the system from doomsday
It is never good to think back.
Now at the age of 62 little things start the grey
cells networking like mad to remember.
A simple quiet luncheon with an older sister
yesterday first flooded memories of where i had once lived.
It was related to my hearing. Doing without help my twin sister and i
were disadvantaged from the beginning.
It did impact on our lives. Cause and effect with the difference
too between two nations on us as we separated in adult years.
Where one was literally set free the other twin,
my self became entraped in a horrible system, a draconian system which
virtually meant the mind and body withered so much i became lost to the world.
It all could have been the same for my twin
sister, but making a strong decision to get out and away was the best way
forward and could have been for myself if i even knew what i wanted to do on
leaving school.
Going to a major city of the world London, an
imperial master with wealth, experiance and having an advanced culture and
progressive thinking ideas with global interconnections gave my twin some
opportunity whereas a small country in my day going no where fast left those behind with no clear path at all.
If you are troubled too, its was disaster.
My twin was troubled, but the way of handling this
was so different.
She was encouraged that she could and would make
it, she could and would do it.
She was encouraged that yes, its possible.
With myself i was encouraged to stay away from
people.
I was told i would not make it.
I was encouraged to simply plod along and do what
i could the best way i could.
It was so different too for choices, there were
none in ireland.
While i was queueing for the food mountain beef
and cheese and barely surviving on the dole and then disability, my twin was
preparing upward for a career.
What career even could i think of and how on earth
could any be funded if i did?
University was for the elite then and only
families who could afford it could attend.
I wasnt one of them when our dad had retired when
we were twelve.
But this difference sparked off another.
The unheard of difference of social housing,
effects of deprivation being a whole new ball game to a middle class psyche and
mindset
I was sitting with a university professor’s wife
who mixed in these types of educated, elitest and high octane groups.
Philantropy only really occured in Freshers year,
thereafter abandoned for the intellectual persuit of excellence to devour
knowledge but little else ever happened when it came to the working classes.
This was evident when i could only get so far in
my tales of experience in the lower end of the social strata.
It had become unpleasant to the professor’s wife
and ‘lets talk about something different’ as she shifted uneasily in her sit.
Grant it we were supposed to be having a pleasant
luncheon out as three siblings.
But difference created in my world meant that i
saw difference for decades and absorbed that culture readily as none other was
available.
It wasnt myself going down the ladder in life, it
was placing myself where i could only be.
Through deafness, disadvantage, depression,
economic stress and lack of culture or programmes set up like in the UK.
There was nothing in the Ireland of the 70’s.
I was encapsulated into the social housing units
which were lethally dangerous for their tenants.
They were tenaments when i was in them first, real
tenaments and condemned as such soon after i arrived, four years after in fact
but i had to endure tenament life.
But funnily or ironically they were freedom
setting for myself.
People really cared and i loved it.
I embraced the fact i could do nothing better now
and just tried to do what i could, as the psychiatrist was encouraging me to
do.
There was no vocational training, no grants for
third level training and no collage for disabled adults who could never go
mainstream anyway.
To tell my sister that i had many a regret for
being in the psychiatric system and how it let me down we began speaking of the
person herself who was actually trapped in its grip more than myself.
But for us, us weak people or so we were
effectively told, we didnt know it at the time, this sort of system was
destroying our every chance to advance even as much as Ireland could allow, and
in certain respects, most of us could have done better. it was killing off all avenues and there were tiny ones open
but psychiatry effectively stopped you growing in ireland.
The usual way of course was through medication.
Ireland was not effectively well trained in what
to do with psychiatric medications.
As now where all these pills and potions were
being dished out for even weeeping when grieving (now), we were then in full
belief of the efficacy of the potion and pill.
They were the cure all for all.
It isnt so and it doesnt work this way and never
did.
The media and the ways of media were beginning
post 60s’ alongside the way messages were getting through by the first TV sets
and the LP’s and Radio, so media as a skill was becoming a way of finding out
information for the masses, including the brill effects of LSD and cannibes and
all manner of mind bending drugs.
But mind bending drugs were not only the illecit,
all mind drugs are bending.
And this is incredibly forceful and persuasive in
telling a group’s educated that these drugs are firstly safe, and secondly good
medicine.
Erosion of this fact is not actually getting
through to the masses now where more babies, toddlers, preschoolers and
kindergarten kids are on the very same medication i was on when i had first hit
them at 21yrs. And this was the norm
then but now the big pharma is attacking all classes, all creds and all social
groups with mass media promotions of the brilliance of the pill.
![]() |
| growing up in the tenaments was in the main a happy affair. |
I met in social housing in Ireland of the day a
systemic abuse of power for us lowly and this is well documented by the late
mary raftery as she exposed the truth that was ireland in her last documentary
‘behind these walls’
A decade prior to my birth or actually during my
growing years Ireland as a nation had more individuals and young locked away in
the lunatic asylums than the whole of the rest of europe put together!
This is quite staggaring considering our size
population wise.
So we knew about difference well.
![]() |
| washing day mean all the clothes were washed by hand. |
Ireland does and it doesnt take much even now to
be demonised instantly,
My difference of course was my lack of educational
choice and a personality wired for depression and a different way of
thinking. That all for another
essays analysis.
Let me get back to how i let a sister quirm and
why it had this effect on her.
She is a full decade older than myself.
She grew up the priveledge daughter to get to
university and then marry her student lad who went on to become a professor.
Her life was good, entertaining, enrichment
educationally and culturally and no sign at all of depravation or class shifts.
My shift to the lower end of the ladder made
uncomfortable listening.
Voicing what i had met to sort of expect my sister
to realise what i had seen when i had basically dropped out of society was my
way of feeling regrettful that i was in that level for so long and also in
psychiatry for so long.
I regretted not being able to cut the noose of
entrapment by pills and indoctrination of very basic medical practises which
were all inclusive whether you were a lonely young woman as i was or a paranoid
schizophrenic we were all lumped with the same package.
I regretted i told them of how one woman could do
this.
Keep you held in a circle and i cupped my hands in
such a shape as not to let the light shine through.
It was that.
No light shone for me and no hope ever was given
in any shape or form to a brilliantly intelligent person.
It was our culture between being a country way
behind any other through its nations own downfall after the famine and during
colonisation.
It was our culture to expect that most would be
put away who were different.
It was our culture not to accept difference and we
still have that culture and i feel i know why.
But trapping a sister who could have had potential
if shown the way, by another who was as advantaged as us in the same schooling
system was wrong.
It was in effect ignorant thinking and ignorant
education for a profession that was not well understood at the time.
I met horrible experiences and some i recalled to
my sister.
How many cannot presently cope with the shutting
down of some institutional fall back.
Citing incidents such as Hilda being found drunk
and walking down the middle of the tenament blocks in the cold in her bare feet
i recounted how i brought coffee to her home, i told her of what i had seen
there, choas, filth, dirt vomit and a woman left to it, by all.
That would include state, health, family and
society.
She wasnt coping and she was not the only one.
This was toward the time i was beginning to find
my feet where i was far more open to helping the others now so much worse than
i but not so different to my own personal hell in the beginning.
Pouring coffee into a drunken sad woman was
pitiful and all the while with permission taking images of the state of her
place.
Noting the electric guitar her soulmate proped by
the bedroom door and the beautiful woman of the eighties jamming in the pub as
a jazz singer was a far cry to how the lady had fallen.
And why so?
Because she too knew of potential but also too of
sadness like myself which she could not handle.
Being in an institution, having children and not
being able to cope would have done it in my eyes.
As it had for Hilda, sending her into a personal
spiral of doubt, self doubt and unimaginable confusion.
Having children herself probably started a ball
rolling of ‘who am i? Where do i
come from?’ for Hilda had not known.
Hilda could never know for state and church to
this day will not release any details for all the women and men of ireland who
were given up for adoption or put away or into institutions of where their
roots were, where their parents were and who they were themselves.
Unless the adult in the relationship at the time
would consent to being exposed as the mother or father of the adopted the
children, now adults had no right whatsoever, by state or church to know and to
know what to tell their own children where they came from.
Hilda ended on scrap heap treated as a hopeless
alcoholic unfit for living even.
Trapped again in a system of getting blind drunk
and blotting out memories of being in an institution, being abused in one and
getting money off the Redress board for being so.
Blotting out all this, the medics then said to the
guards and to me ‘there is nothing we can do for her,she is an alcoholic’ and
repeatedly sent her back to a small social housing unit with memories of hell,
without her children who had been taken off her and left ot drink again to
drown the sorrows.
It began a group think, Hilda was useless and a
hopeless case.
But the electric guitar and the fantastic
attractive lady jamming with a jazz group told a different story.
She herself reluctant to tell this part of a
positive life so much was she drowing in her hell of again i say my hell the
hell we get into when we are drowning in trouble.
Our own deep shit.
But to state, to the neighbours, Hilda was the
alcoholic.
She wasnt the person Hilda.
I saw it by the way the state even refused her the
use as she pleased of the money she got off the redress board, as compensation,
it was hers by right, but she was made a ‘ward of court’ and had to beg the
solicitors for the right to some of it piecemeal.
That is imprisonment all over again, but of a
different name but again state power and state abuse of power.
The same goes again for her choices of uplifting
her living. There were none.
You were left.
| with no gardens you went down to the street for 'air' |
When they began to start a programme of saying the
right way to go with mental health was to treat people in their own communities
and not hold them in institutions, didnt mean throwing them out on the street
and abandoning them lock stock and barrel.
When i was being put in the psychiatric hospitals
in the 70s up to the 90’s there were no security men at the door of the
hospital.
There was free flow of patients and their visitors
and the institution was a hub of a collective.
Now it may not have been very modern to do all
this have so many there but a good deal needed it.
When i brought hilda up there after one of her bad
bouts of drinking to be cared for for a while i found no one in the huge
canteen but a lone security man having a cuppa on his own.
I saw another with a chain of keys hovering by the
front desk, and i was flatly told i couldnt leave her there.
I was already very sick with crohns and it was
getting late. I needed my own sick
bed.
What happened next can only be documented as
having happened but it is in disbelief that it did and people are astounded.
Out came the security guy, oh yes he could have
been any non national that is now doing work the irish wont, but he was there,
this security guy came following me to the van, the adapted van in the
disability bay, i have a mobility problem to name but one.
He slapped himself against the back of the van.
Of course he didnt mean to be mince meat but i
tried to, not literally but i did force him from there by slowly backing the
van out, he shifted to the side and slapped his body against the side, his arms
outstretched and then did the same to the front.
Never before have i experienced such behaviour.
Seeing a man in a suit without his jacket so
thinking he was of authority (i later found out he was from the ‘accounts’
department, i kid you not)! I
opened the door and exclaimed ‘what is going on?’ well he told me, by his actions.
He reached inside and whipped the keys from the
ignition.
And left me there!
Half in the disability bay and half out i was now
kidnapped, and what he did, as i heard later from a lawyer was ‘technical
tresspass’ and there i was sitting
in the dark wondering how the hell i resolve all this.
I rang the Irish times and also the guards.
‘will you just come up here and see what has
happened?’ i was aghast to think
ireland could come so far as to deny a person free access to her car to leave a
state car park to a state/privately run hospital. The great St. John of God!
I couldnt believe it.
But things were changing in ireland, for the
better.
When i told my sister she sat rivoted to her seat,
she couldnt believe it, she hasnt
seen that side of life.
She hasnt had to rescue lowly neighbours in such
troubles.
She also hadnt to live in tenaments that had steps
to them which are now pronounced utterly illegal, see Ireland is moving
forward, the modern way.
But alas, they do not care for the sick as they
once had, because they were now moving forward the modern way (of course
failing to do anything about the people out in the community isn’t the modern
way). They failed them.
They did not think this one through.
No extra community nurses were allocated in fact,
now all the displaced sick were jotted everywhere out in the community alone
and forgotten, except by the guards and people like myself and sometimes the
church.
But forgotten, pretty much now like those who have
lost their homes.
But also the homes that those tenants had in back
streets were still the slums. They
were dressed up a bit and had
running hot water put in and also had a bath put in or a shower, this now meant
they were hitting the european targets for a better place to live.
They forget though that these people had to enter
and leave their homes, one way or another, and that meant stairways, illegal
steps.
You now have to in law for decades, design
stairways so that you can put a full foot on a step as you go down the stairs
or up the steps.
Not so in these, tiny boxs the stairs were step
and tiny, there was no space in the 18th century homes still used for the lower
classes.
What happened of course were broken bones, meaning
nurses who lived there and some did were left open to broken bones, and one had
a compound fracture to her wrist and elbow from such a fall and never worked
again, a valuable source of income to a poor family.
So too did a male given full custody to two young
boys he adored. Falling down those
stairs he lost his life and was found when they broke down the door lifeless
with a broken neck.
Bones broken by many on my street and also to a
learning disabled feeble man who broke a leg and wrist, who actually wore
calipers and was living in an upstairs social housing unit (nb they are never called homes),
he spent months in the hospital and then sent straight back up to the flat, in
his seventies, with calipers, he
wasnt given a downstairs easier place to live, there were none. It was offered a drug riddled street as
i was offered an alcoholic fueled cul de sac. He refused and stayed, i accepted and ran like a war victim.
| eight floorboards between fireplace and sofa where my twin slept for eight months with a diagnosis of parkinsons disease meant not even a manual wheelchair could be unfolded - this was an 'upgrade' for a disabled woman? also placed alone amongst male alcoholics - all of them in one cul de sac? insane |
| alcohol so much in abundance in a lower social housing unit without stairs mean a huge change was about to occur, running away like a victim of state abuse, which it was |
We were the forgotten.
| we were forgotten as people, human beings, we were forgotten |
I
lament the past. The life of psychiatry my first notable
imprisonment and then the social housing which couldnt have been more
dispiriting to a bright and educated person, but i did accept both, more so
social housing for i was with people i loved.
You couldnt even begin to forgive psychiatry and
their ways for destroying my life entirely and i place the blame there for now
being in my 60s i am percieved as this sort of lunatic.
But as i go back to the beginning of this essay,
this is what ireland does with difference, we are good at classing people and
by very small margins of clarifications all roiund. It doesnt take alot at all.
Friday, April 3, 2015
In this blighted house: Stations of the Cross for Caring people
In this blighted house: Stations of the Cross for Caring people: Jesus is condemned to death Let us take a few moments to think about and pray for all those condemned to death in prisons worldwide. M...
i think this is a beautiful piece of writing and wish to share it with all on this day for everyone to reflect on the modern life and lifestyle. where humans also come to grief and into conflict.
amen
i think this is a beautiful piece of writing and wish to share it with all on this day for everyone to reflect on the modern life and lifestyle. where humans also come to grief and into conflict.
amen
Tuesday, March 31, 2015
a bad day in the setting of a village turned town
who could blame me in hating where i live?
I do hate it.
this was to be the last and final resting place for myself and my twin sister.
but it isnt going to be, for me anyway.
i think after all this time which is five years, its been loathesome from the beginning til now with very little let up.
when i say from 'village to town' i mean that, in the context of the irish village to town.
i was virtually lynched.
my poor twin had to withness this and watch it, feeling helpless and rather guilty, but she had no reason to feel this, but she sure was left feeling helpless and dragged down by it all.
does anyone understand how it feels to feel afraid to go into one's own magnificent garden that you bought, nurtured and created?
i do.
does anyone understand how it feels to walk a couple hundred metres and wonder who my neighbours are, what they think when they see me and for what reasons?
i do.
so does my twin.
if others say 'what matters what people say.'
well it does to me, because i am sensitive and i have had a poor life living in high low self confidence and self esteem.
but before i came to this village, i was high on self esteem and confidence.
i had trancended difficulties that many wouldnt even have to attempt to surmount.
i did it and was tremendously pleased with myself.
until i came to this village which ripped my soul asunder.
when i say this village has nearly destroyed me, i say this with my hand on my heart and i am not the only one who can vouch for this, apart from my twin many can vouch for it.
i want out.
and i want out fast.
meaning asap i need to get back to kindness and care and something of comfort, a town i can feel part of and feel lifted up not constantly put down and put upon.
i wish i could be more explicit but right now i cannot.
because i still have to live here.
i have promised those who live in this town i will tell them why i feel the way i do when i leave.
but before i do i want to tell both the townspeople, and many others, enter this parish at your peril.
remember they will inspect you instantly and ask questions later.
they could label you immediately without finding out whether they are right or wrong about it, i mean now of the defamation kind.
there are rules here like none other, certainly i hit 59yrs of life without ever thinking this sort of thing existed.
they can tell you five years later, actually there is no policy for what we did there, (HSE).
and there is no solution to it becuase no one feels its worth solving, not for them anyway but it doesnt care whether i feel its worth it, which i do.
one of the first thing i wish i could do is rip down the bloody notice at the entry to this village, that of 'the best place to live in 2008'
do they not realise its 2015 and certainly things have changed for my experience is anything but offering flavour of the month or year here, because its been the exact opposite.
anyone been afraid of facing the mainstreet unless absolutely necessary, eg going to bank or getting pension.
as for the doctor i have now, two visits and my first that would accept me here after four years is another example of well pretty horrid i have to say.
this was withnessed as i brought someone with me.
and it continues.
what people find so delightful here is anyones guess because as an educated person who has lived all sorts of lives, i see nothing polished and good about it.
to me its a nasty little hub, maybe terrific for some, but how long do you have to be here before it is?
five years seems a lifetime and its not getting much better in fact for me its become more and more unbearable.
how i ask for help to get out is also another thing.
how do i?
and would could.
would anyone be at all interested?
i doubt it
I do hate it.
this was to be the last and final resting place for myself and my twin sister.
but it isnt going to be, for me anyway.
i think after all this time which is five years, its been loathesome from the beginning til now with very little let up.
when i say from 'village to town' i mean that, in the context of the irish village to town.
i was virtually lynched.
my poor twin had to withness this and watch it, feeling helpless and rather guilty, but she had no reason to feel this, but she sure was left feeling helpless and dragged down by it all.
does anyone understand how it feels to feel afraid to go into one's own magnificent garden that you bought, nurtured and created?
i do.
does anyone understand how it feels to walk a couple hundred metres and wonder who my neighbours are, what they think when they see me and for what reasons?
i do.
so does my twin.
if others say 'what matters what people say.'
well it does to me, because i am sensitive and i have had a poor life living in high low self confidence and self esteem.
but before i came to this village, i was high on self esteem and confidence.
i had trancended difficulties that many wouldnt even have to attempt to surmount.
i did it and was tremendously pleased with myself.
until i came to this village which ripped my soul asunder.
when i say this village has nearly destroyed me, i say this with my hand on my heart and i am not the only one who can vouch for this, apart from my twin many can vouch for it.
i want out.
and i want out fast.
meaning asap i need to get back to kindness and care and something of comfort, a town i can feel part of and feel lifted up not constantly put down and put upon.
i wish i could be more explicit but right now i cannot.
because i still have to live here.
i have promised those who live in this town i will tell them why i feel the way i do when i leave.
but before i do i want to tell both the townspeople, and many others, enter this parish at your peril.
remember they will inspect you instantly and ask questions later.
they could label you immediately without finding out whether they are right or wrong about it, i mean now of the defamation kind.
there are rules here like none other, certainly i hit 59yrs of life without ever thinking this sort of thing existed.
they can tell you five years later, actually there is no policy for what we did there, (HSE).
and there is no solution to it becuase no one feels its worth solving, not for them anyway but it doesnt care whether i feel its worth it, which i do.
one of the first thing i wish i could do is rip down the bloody notice at the entry to this village, that of 'the best place to live in 2008'
do they not realise its 2015 and certainly things have changed for my experience is anything but offering flavour of the month or year here, because its been the exact opposite.
anyone been afraid of facing the mainstreet unless absolutely necessary, eg going to bank or getting pension.
as for the doctor i have now, two visits and my first that would accept me here after four years is another example of well pretty horrid i have to say.
this was withnessed as i brought someone with me.
and it continues.
what people find so delightful here is anyones guess because as an educated person who has lived all sorts of lives, i see nothing polished and good about it.
to me its a nasty little hub, maybe terrific for some, but how long do you have to be here before it is?
five years seems a lifetime and its not getting much better in fact for me its become more and more unbearable.
how i ask for help to get out is also another thing.
how do i?
and would could.
would anyone be at all interested?
i doubt it
Monday, March 30, 2015
will it end...when will it end...can myself and twin sister find peace and a bit of happiness?
both of us are tired today, very.
Margaret came with me to my new GP.
i was terrified of her after my first meeting with her. today she announced that they do only one set of bloods per year, i presume that is for public patients. that actually was a shock to me, i have never heard of this before.
don't get sick then and ask for bloods if you have had one in a year.
this is actually bizarre i have to say.
moving on twin and i had a bit of a tiff.
the stress of where we are and what we are going to do, how to make decisions when options are so little and we have next to no help in making them or having ideas materialise for us.
we feel incredibly alone and frightened.
i think with good reason.
again the bloody issue of the wheelchairs, still four years on not sorted.
again too the unhappiness i feel down here and our weariness to decide what to do about it all.
this is all a result of one very large organisation.
the HSE.
yes, i know some of them see my blogs and bother to come here to read.
few are willing to help us.
few care.
but why then do they do the jobs they do?
why do they pretend to care and get paid to care when they do not?
to me more are now so unhappy with the hse it beggars belief.
litigation is through the roof.
not only now are the HSE shoring up funds to support their losses, but also sending back others when they fail to spend designated budgets.
its so crazy.
in between the patients are lost entirely.
Ireland now is only one of two countries in the EU not to ratify the convention on the rights of those with disabilities, this leads to strain and unequal treatment for those of us disabled.
so they basically can do anything to us.
this of course is against human rights but without this clause that they support our rights, we have no rights.
there is nothing to stop the government not ratifying the convention so say the lawyers at Galway University.
there is nothing impeding this, except the wish that the government want, to have us under their control so we do not have a say.
but we can have a say when it comes to the election.
more then the disabled will vote with the vote.
we will walk away after deciding that we need this government out of our lives, for downright betrayal full square betrayal both of our need and our rights as citizens of this state.
still further more are asking, if the economy is improving, well where is it improving?
whose lives are further enriched in recent times by the economy improving.
i hate to tell them, no one i know either workers or non workers, the struggle is the same and more at the food banks and soup kitchens.
like never before.
our last soup kitchens were set up by the Quakers during the famine.
we have a famine here for most of the poor but none of the rich, who are getting richer.
i still say no matter what way you look at it, solving budget overspending by giving out eleven year old cobbled together old wheelchairs, that go into walls with a patient in it, is not the answer.
there is an answer.
i doubt the hse is so skint they cannot provide for us.
it just that they cannot manage either the service or the budgets.
they lack that skill, and its a skill.
there is duplication and overkill on bureaucracy.
they have a bank for the lawyers who are employed by the HSE and another for the litigation, another for the 'just in case' and leaving none for the 'urgent cases and the needy cases.'
this is the way they operate.
rather than have the lawyers and the litigation cases, why not have best practice which will kill off the lawyers need and the litigation need.
if you work well then you wont be sued.
it works in theory, but also in practise.
everyone knows its all a shite shambles.
even the HSE know that.
its hell to be at the receiving end and hell to work within it.
its a case of man bites dog.
but suffering is now endemic and dangerous.
we have a serious case here.
we have too many serious cases and i am extremely worried.
oh, as i got up a few stairs today to see the doctor she exclaims aghast, why do you need wheelchairs, you got up those stairs, i tell you i despair, and its very much a case of
'Jesus wept.'
my twin and i limped exhausted back to the van with our two sticks apiece, if only people could FEEL the pain, the tiredness and the sickness.
since when are the only group of people seen to need a wheelchair those with snapped spines.
come on, will you try at least to pretend to be educated.
| tired tired tired tired tired tired |
| Newcastle UK test which discovered why we are so tired all the time, but not the cause and not the answer. |
i was terrified of her after my first meeting with her. today she announced that they do only one set of bloods per year, i presume that is for public patients. that actually was a shock to me, i have never heard of this before.
don't get sick then and ask for bloods if you have had one in a year.
this is actually bizarre i have to say.
| my twin is tired, tired, tired, tired.....too. |
moving on twin and i had a bit of a tiff.
the stress of where we are and what we are going to do, how to make decisions when options are so little and we have next to no help in making them or having ideas materialise for us.
we feel incredibly alone and frightened.
i think with good reason.
again the bloody issue of the wheelchairs, still four years on not sorted.
again too the unhappiness i feel down here and our weariness to decide what to do about it all.
this is all a result of one very large organisation.
the HSE.
yes, i know some of them see my blogs and bother to come here to read.
few are willing to help us.
few care.
but why then do they do the jobs they do?
why do they pretend to care and get paid to care when they do not?
to me more are now so unhappy with the hse it beggars belief.
litigation is through the roof.
not only now are the HSE shoring up funds to support their losses, but also sending back others when they fail to spend designated budgets.
its so crazy.
in between the patients are lost entirely.
Ireland now is only one of two countries in the EU not to ratify the convention on the rights of those with disabilities, this leads to strain and unequal treatment for those of us disabled.
so they basically can do anything to us.
this of course is against human rights but without this clause that they support our rights, we have no rights.
there is nothing to stop the government not ratifying the convention so say the lawyers at Galway University.
there is nothing impeding this, except the wish that the government want, to have us under their control so we do not have a say.
but we can have a say when it comes to the election.
more then the disabled will vote with the vote.
we will walk away after deciding that we need this government out of our lives, for downright betrayal full square betrayal both of our need and our rights as citizens of this state.
| we are both tired tired tired of it all |
whose lives are further enriched in recent times by the economy improving.
i hate to tell them, no one i know either workers or non workers, the struggle is the same and more at the food banks and soup kitchens.
like never before.
our last soup kitchens were set up by the Quakers during the famine.
we have a famine here for most of the poor but none of the rich, who are getting richer.
i still say no matter what way you look at it, solving budget overspending by giving out eleven year old cobbled together old wheelchairs, that go into walls with a patient in it, is not the answer.
there is an answer.
i doubt the hse is so skint they cannot provide for us.
it just that they cannot manage either the service or the budgets.
they lack that skill, and its a skill.
there is duplication and overkill on bureaucracy.
they have a bank for the lawyers who are employed by the HSE and another for the litigation, another for the 'just in case' and leaving none for the 'urgent cases and the needy cases.'
this is the way they operate.
rather than have the lawyers and the litigation cases, why not have best practice which will kill off the lawyers need and the litigation need.
if you work well then you wont be sued.
it works in theory, but also in practise.
everyone knows its all a shite shambles.
even the HSE know that.
its hell to be at the receiving end and hell to work within it.
its a case of man bites dog.
but suffering is now endemic and dangerous.
we have a serious case here.
we have too many serious cases and i am extremely worried.
oh, as i got up a few stairs today to see the doctor she exclaims aghast, why do you need wheelchairs, you got up those stairs, i tell you i despair, and its very much a case of
'Jesus wept.'
my twin and i limped exhausted back to the van with our two sticks apiece, if only people could FEEL the pain, the tiredness and the sickness.
since when are the only group of people seen to need a wheelchair those with snapped spines.
| here is my 'educated guess' i am sick! |
Monday, March 23, 2015
happy land - is it?
i have not posted in a long while.
i guess just very tired.
trying to sort messes isn't easy and its tiring.
trying to live in a mess is tiring.
the biggest exhausting issue i have remains living in Happy land, Ireland (huh?) with a disability.
the same, the same the same yawn yawn yawn and more like tears, tears and more tears and a major sleep disorder....i am not sleeping.
the lack of sleep is due to profound distress.
try it.
waking each day thinking of the HSE.
yes, this has been said before.
and its more of the same again, over and over.
what really astonishes me is that no one in Ireland is good at resolving complex issues, or any issues for that manner.
they just grow, like a septic boil, they grow.
nothing actually gets done here.
because certainly it takes forever to solve problems.
emails amount in their thousands.
letters almost the same, certainly the same amount of pages.
phone calls are double the first and second of above.
engagement with HSE officials rank in the hundreds.
engagements with departmental officials and departments rang in the hundreds.
ringing, emailing, letter sending to td's councillors and senators, also mount up to hundreds.
you can cite the websites as much as you like, because i have been through them all.
there are policies and procedures coming out of your ears, none are adhered to and its all a gloss over - nothing, nothing happens here.
we do have policies, we do have guidelines, we do have projections and prospectives and agendas, we have all that but they get lost in the melee of er, nothing.
nothing happens, nothing gets done, nothing gets followed.
you can find a place where you are exonerated, but you cannot find out how to get exonerated!
you can find anything but it leads er, nowhere.
we are talking of Ireland and we are talking about justice, health, equality, disability, ageism and economics.
we are talking about a crooked bent country hell bent on putting it out there we are a fab happy land with happy landers.
we are anything but.
the only good thing about Ireland is its beauty and its people, if you can over ride the undercurrent of deviousness and lack of willingness to engage in a purposeful manner in all things that need er, solving.
but we laugh, we drink and we have green lands.
lots of it.
we will be celebrating winning soon, that is winning our country from oppression.
we are inviting the oppressor to a fine multimillion slap up lavish celebration.
but we are now losing the country on a grand scale possibly even grander than when we first took hold of it, when we won it.
there are people here who actually see what is happening.
what matters though is, there are people here who actually see what is happening and say, er nothing...nothing happens see...in happy land.
there is this laid back, in case.
in case i get the sack.
in case i am disliked (not that is a biggie in the Irish context of things)
in case i get rubbished, or far worse.
but what could be worse than being honest?
why do people in Ireland not say it as it is.
well i will tell you why - its oppression.
the fact that people remain silent is because there is a backlash to goodness.
its called oppression.
we have known it before now we are doing it to our own.
there are good people there, but if you say, squeak about wrongdoing you are crushed.
we have a bloody inferiority complex that the outside (rest of the world, if they even know where we are in the world) should not know how corrupt we are.
well they DO, they are getting to know and what more, we are not getting better, we are getting better at being corrupt.
but for me, at 62yrs at the end of my life and i didn't have a life, not one that any would recognise as one, i am tired.
all i want is to see if it possible that i enjoy a decade out of my life of plenty of misery.
i don't think this is asking too much.
but to achieve this would only occur if i took the greatest leap ever and got out of the country altogether.
because i am not convinced that the ways of the Irish can ever become so level that all will have an equal chance to an equal level of happiness and quality.
i do not believe in Ireland anymore.
i believe we don't own it, don't seem to want to own it and do not own the way we do business, the crooked way we do business.
this includes our ways of dealing with health.
its becoming like the economy.
fast bucks for Nada.
we do not seem to care and i am feeling all and every bit of this.
i also feel abused, neglected, harassed to death by the health care services.
when i leave wicklow and believe me i will, i will be hard pressed to feel able to take anyone down here again even to get a glimpse at its beauty.
i feel very betrayed by wicklow.
i invested my life in wicklow and certainly i got more than my fair share of utter grief.
its been so appalling words fail me.
but i have had Pm's on face book, that many times dreaded medium telling me that my feelings are their feelings, exactly.
meanwhile i am tired.
we are making so little progress here.
and i am still going through hell on earth, with the hse.
| this is called tiredness |
trying to sort messes isn't easy and its tiring.
trying to live in a mess is tiring.
the biggest exhausting issue i have remains living in Happy land, Ireland (huh?) with a disability.
the same, the same the same yawn yawn yawn and more like tears, tears and more tears and a major sleep disorder....i am not sleeping.
the lack of sleep is due to profound distress.
try it.
waking each day thinking of the HSE.
yes, this has been said before.
and its more of the same again, over and over.
what really astonishes me is that no one in Ireland is good at resolving complex issues, or any issues for that manner.
they just grow, like a septic boil, they grow.
nothing actually gets done here.
because certainly it takes forever to solve problems.
emails amount in their thousands.
letters almost the same, certainly the same amount of pages.
phone calls are double the first and second of above.
engagement with HSE officials rank in the hundreds.
engagements with departmental officials and departments rang in the hundreds.
ringing, emailing, letter sending to td's councillors and senators, also mount up to hundreds.
you can cite the websites as much as you like, because i have been through them all.
there are policies and procedures coming out of your ears, none are adhered to and its all a gloss over - nothing, nothing happens here.
we do have policies, we do have guidelines, we do have projections and prospectives and agendas, we have all that but they get lost in the melee of er, nothing.
nothing happens, nothing gets done, nothing gets followed.
you can find a place where you are exonerated, but you cannot find out how to get exonerated!
you can find anything but it leads er, nowhere.
| what is rotten about Ireland with not alot changed since this image was taken |
we are talking about a crooked bent country hell bent on putting it out there we are a fab happy land with happy landers.
we are anything but.
the only good thing about Ireland is its beauty and its people, if you can over ride the undercurrent of deviousness and lack of willingness to engage in a purposeful manner in all things that need er, solving.
but we laugh, we drink and we have green lands.
lots of it.
we will be celebrating winning soon, that is winning our country from oppression.
we are inviting the oppressor to a fine multimillion slap up lavish celebration.
but we are now losing the country on a grand scale possibly even grander than when we first took hold of it, when we won it.
there are people here who actually see what is happening.
what matters though is, there are people here who actually see what is happening and say, er nothing...nothing happens see...in happy land.
there is this laid back, in case.
in case i get the sack.
in case i am disliked (not that is a biggie in the Irish context of things)
in case i get rubbished, or far worse.
but what could be worse than being honest?
why do people in Ireland not say it as it is.
well i will tell you why - its oppression.
the fact that people remain silent is because there is a backlash to goodness.
its called oppression.
we have known it before now we are doing it to our own.
there are good people there, but if you say, squeak about wrongdoing you are crushed.
we have a bloody inferiority complex that the outside (rest of the world, if they even know where we are in the world) should not know how corrupt we are.
well they DO, they are getting to know and what more, we are not getting better, we are getting better at being corrupt.
but for me, at 62yrs at the end of my life and i didn't have a life, not one that any would recognise as one, i am tired.
all i want is to see if it possible that i enjoy a decade out of my life of plenty of misery.
i don't think this is asking too much.
| sitting, waiting, dreading returning home. |
but to achieve this would only occur if i took the greatest leap ever and got out of the country altogether.
because i am not convinced that the ways of the Irish can ever become so level that all will have an equal chance to an equal level of happiness and quality.
| waiting for the train to arrive |
i do not believe in Ireland anymore.
i believe we don't own it, don't seem to want to own it and do not own the way we do business, the crooked way we do business.
this includes our ways of dealing with health.
its becoming like the economy.
fast bucks for Nada.
we do not seem to care and i am feeling all and every bit of this.
i also feel abused, neglected, harassed to death by the health care services.
when i leave wicklow and believe me i will, i will be hard pressed to feel able to take anyone down here again even to get a glimpse at its beauty.
i feel very betrayed by wicklow.
i invested my life in wicklow and certainly i got more than my fair share of utter grief.
its been so appalling words fail me.
but i have had Pm's on face book, that many times dreaded medium telling me that my feelings are their feelings, exactly.
meanwhile i am tired.
we are making so little progress here.
and i am still going through hell on earth, with the hse.
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