AWNYAH TODAYSAY Ann living in the Republic of Ireland and it is not a good thing. We have now ratified the EU convention on the rights of people with disabilities, yet we failed in ratifying the optional protocol, allowing us ability to make complaints to the EU under the convention, with little facility to do so in our own country. We go unheard in every sense of the word. This is unjust and leaves us more vulnerable and open to abuses. We are suffering. I am suffering.
Saturday, May 21, 2016
when the expert professional has been caught with his knickers around his ankles
it is the only way to live, not subjected to abuse consistently and be disempowered..... |
I WAS ENTERING A DAWN OF CREATIVITY WHEN STUNTED BY THE IRISH HEALTHCARE SYSTEM. |
vive la difference! |
Looking back in time an occasion happened three
years ago that opened my eyes on Irish ‘progress.’
The mental health system has been struggling. The ‘Vision for Change’ to which i was
an expert withness and contributor never got off the ground. Each new year sees more and more taken from the budgets of
mental health in ireland and also sees crisis in the services for younger
adults, troubled teenagers and also adults who are sucidal and mentally unwell.
There is little being done, if nothing at all.
Pharmacology remains the root of all the evils in
terms of getting people back on track, it remains the only option open when
across the globe recognition that many of these medications are not only
dangerous, injurous to long term physical health, leads to violent tendencies
and shootings in America (see Dr. Paul Breggin), is of little therapeutic value
if any at all.
Even as we speak, anti-depressants are viewed by
many experts as nothng short of placebos and fob offs.
The pharmaceutical industry is triving on the
backs of very sick people and the list of ‘mental health “diseases” rises all
the time.
For instance, grieving for a departed relative is
now classed in some instances as a disease/disorder.
Children not being able to sit still as ADHD when
in fact they may be too bright to be able to sit in a boring classroom when
they should be given more stimulation.
They also do not get the chance to ‘run wild’
physically as once we used to be able to do.
So society is changing.
The thinking behind mental illness and disease is
shifting drastically from the pathological to the emphatic, but the stigma is
getting stronger and the pharmaceutical industries are being relied on far more
than ever before.
There are more dumbing down medications and less
of any efficacy at all.
So while the thinking is growing apace with
modernity, the age old standards of antiquated methods remains and are
increasing at an alarming rate, including the use of ECT which is barbaric in
my view.
When thinking sees that security, love, less abuse
and bullying, more empathy and
more productive activity and self confidence building would allievaite a
tremendous amount of the levels of pain of the psychological/mental kind today
in the world. No one is putting in
place ways and means to bring about this holistic structure and care.
Popping a pill remains so easy, the patient then
is virtually ‘out of it’ and by default, out of society and has been labelled
which will remain with that individual to the day he/she dies.
it is the only real way to live, not be subjected to abuse and disempowerment, consistently. |
In ireland today i have been long out of the
mental health services, but was deeply entrenched for decades. I was to all intent and purposes
vulnerable and remain so, but todays thinking as above would have gone a long
way and when it came, i blossomed out of the ethos and the prejudice to be able
to hold myself high in confidence and join the world that frightened me so
much. I have alot to be thankful
for and love being now, part of the world.
But then, back then we were still in an economic
stalemate, the whole state was
held in a paralysis of stagnation and nothing was moving forward towards
becoming a modern way at all.
The mental health services relied on mediation,
containment, but no real therapies or constructive involvement with people ever
took place.
It was in fact quite destructive.
Group therapy sessions had a group of the unwell,
the least able and also the depressed for very minor and some major life
events, but none really were so unwell that they could not function, many were
very intelligent, articulate, had children and were functioning.
MAKE NO JUDGEMENTS |
What wasnt done for us distressed was enlightened
ways around whatever got us in this situation in the first place.
Group therapy relied on the participants to pick
holes on each there in that circle.
It was uncomfortable and negative.
People were queried why they had odd socks on –
which today even professors manage to get away with but not so if you were in
the mental health system in the 70’s.
Why did a poor art college student have one single
ear ring rather than two – this took up a full hour of debate and arguement
between the psychiatrist and the patient, me!
This obviously had a deeper meaning other than i
was too poor to get both done at the same time and had doubled up with an art
college student friend and we shared the cost.
The debate raged as i a young person was pitted
against the unreasonable arguements placed by the psychiatrist but none the
less we know whose opinion would have won on that day.
People who never were married were pitching at
another woman who complained constantly about the state of her marriage.
We, as young people should not be in a position of
such power as to tell this woman to get a divorce, which i told her to do.
This is wrong. This was actively encouraged.
The woman who complained so openly about this
marriage needed marriage guidance, not a troubled young person telling her to
divorce the man she obviously had a grudge against.
Also exercises were designed in such a way as to
denegrate one individual over and above another.
Asking each patient to put themselves in a line,
againts the person you feel more fortunate to in the ‘depression’ or ‘mood’
stakes means that the one who ends at the end of the line, feels the damning
judgement that they are by all accounts the most sick, the least happy and the
most helpless, whereas the schizophrenic, who ended at the top of the line was
the happiest, but possibly the sickest!
LOVING AND BEING EMPHATIC IS CALLED BEING HUMAN, NOT ANYTHING ELSE. LOVING AND BEING EMPHATIC IS CALLED BEING HUMAN, NOT ANYTHING ELSE. |
This is a type of ideal far from perfect and it
was degrading.
Each day for hours on end, the group of mentally
ill patients then did what was called ‘industrial therapy’ in other words, factory work. (i remain unconvinced that the vast
majority of us were nothing more than sane with issues needing addressing).
We had there many individuals who had been to university
and college and many who were journalists, business men and of high callibre,
all in one type of work of packing three black plastic bags inot one labelled
bag and thrown then into a large box for collection by the company at the end
of the day or week.
For this we got paid no more than 50 shillings a
week, thats half a pound note in them days.
What happened to this money?
Well i was the only one allowed out of the
building during the day there. So
i gathered all this up and got everyone their cigarettes, their sweets and
whatever at the corner shop.
It didnt go unnoticed to the staff either that
crisis occurred all too often.
Penning in people without anyway out, either of
the mental anquish nor their physical constraints of a small house in an estate
labelled a ‘day centre’ led them and me to desperate boredom, monotony and
anxiety.
We
barely knew each other and because we knew where we were, the depression we
went there for to get help with (and were not getting that help) made it worse
for us, knowing we were in a mental health care facility, indefinitely.
The
relentless despair was palpible and explosive behaviours against both injustice
by others naming us either in group therapy or doing stupid exercises got to us
in a major way.
One day i was informed that seven of the patients
that day had managed to take a blade or other sharp instruement to themselves
and causing blood to be drawn, myself included.
Is this heathy?
Was it.
It most certainly was not.
But three years ago after decades away from this
archiac and demeaning environment, i went and had to go to the psychiatrist
locallly in order to be referred to psychology.
The sway of the shrink in ireland is vast, remains
incredibly steady and incredibly strong, so labelling is about as much as you
get and this is accepted.
The general forms of ordinary behaviours are
always pathologisted by these professionals, always without a shadow of doubt
they have lost their way to seeing normality at play.
I duly got to the place, the door was locked and
opened from the reception and i was let in, only to be locked in after i passed
the treshold.
I was early so i wandered about, to a vast
cavernous area akin to a warehouse with tressle tables. Absolutely no comforts at all, none.
Its was the most run down institutionalised shed i
have ever seen for the sick and forgotten. these people there today were elderly.
It was ghastly. This was the uninviting, dismal, pathetic effort
called mental health care and it was
degrading and outdated and poor in extreme.
I then went to sit in a small waiting room. A young girl came in and sat down and
opened a book.
She was out of her tree on medication, she had
head bent over the opened pages and the eye lids were closing as she appeared not
to be able to keep them open. Basically
every few minutes she was falling asleep.
There was no way she was going to read that book.
She was drugged too much.
A male nurse came in and called out her name
cheerily, the lady looked up in slow motion as if not to either see, understand
or even hear. But she was young
and pretty and i do not feel was intellectually incapacitated, just too drugged
to have normal responses and reflexes to the stimulation that her name being
called required.
‘here mary!’ cheerily, ‘here mary is your morning
medication!’ cheerily.
I watched in utter horror as more drugs were
poured into her cupped hands and she was helped to lift that hand to her mouth
by the nurse, and with his other hand, he poured water from a plastic cup down
her throat.
One pill fell on the floor, he picked it up and
gave it to her.
Surely to god she had enough to keep her zonked
for the day that was in it, rather than pile on more?
Reasoning here was not evident.
I was so appalled i had to get out of that room
and back to the cavournous metal shed with tressle tables, endless tressle
tables.
I came across two people opposite each other, an
older lady and an older man.
I looked closely at small boxes all around them
and to my shock/horror staggering disbelief the elderly gentleman was picking
up a sanitary towel one by one and putting them in these small boxes.
A man in his late 60’s or early 70’s who could
have gone his whole life leaving the ‘women’s affairs, ‘ to the women is now
face to face with items of course, he knew from his life but was handling items
that were taboo in irish culture as ‘unclean’ and probably still is in many
parts of ireland today.
I had had enough and seen enough.
I was long out of mental health care with indeed
an apology given for ever being there, but this was not going to give me my
life back and all i had lost and time wasted in this regime.
I still remained to see this psychiatrist that
day.
BE VERY CAREFUL OF WHAT COMES OUT OF THE SHADOWS - especially - THOSE HOLDING THE POWER IN THEIR HANDS |
I saw him, a dashing hansome guy with golden skin
and longish hair. This is
the man i have watched at the public health centre who had the charisma of
jesus over the women sitting in a row to see him for their five minutes and
have their mediations topped up. The look of those women, their adoration, their hearts
missing beats was obvious. The draw
to the shrink is very strong in Ireland and there are elements of love from
patient to doctor which still isn’t being discouraged, the doctors love this
type of sick adoration and its endemic.
But when i saw this man, far younger than i, for
the first time on that day in the shed i was enraged by half an hour wandering
around and lost the plot enough to tell him i thought we had all moved on from
the dreadful days of the 70’s.
Alas we had not it seems and i was expressing my anger especially about
the drugged young lady and the older man packing sanitary wear for mentrating
women!
He asked me in all honesty did i need a course in
anger management.
As he leaned towards me i also leaned towards him
and announced, ‘i think you will find that a course in up to date clinical
therapy from your end is needed, not my anger management course.’
‘i think you will note from the tone of my voice
that i am angry at what you are making these people do and take all that
medication, even a decade after i personally was subjected to this outmoded
method of so called mental health care which i had though had become at least
more sophisticated.’
Stuff the doctor i flew out of the building and
never forgot the actually pathologising of anger from a woman who had her eyes wide
open that day.
This is so easy. You do it though the descriptive narrative of believing
anyone who is angry and is facing a shrink must need anger management,
instant. So instant it can be said
in ten minutes, whe the indivudal is angered by what she had seen and rightly
so.
Anger management is suggested after a far longer
period of time of knowing a person, not in ten minutes.
Its also akin to another professional stating
after even less a period, ‘aah no, she doesnt have Asperger syndrome.’ This woman was a pyschologist who
attended one meeting at the time, and saw me for no longer than fifteen
minutes, but who never knew me, my history or where i had received this
diagnosis.
She just spat that out as her expert clinical
judgement, which was to stand over and above a professor of trinity college
dublin while she was stuck in a situation in a village setting where her role
would not be normally to either diagnose or treat or care for anyone in the
primary care sector who had an autism spectrum issue.
Inhumane and degrading treatment in Ireland is
pervasive, and spans from the time of the instigation of the state.
There is no way forward yet, in modern thinking
around pathology, disease, mental health issues or equality.
A person is very much what the professional will
decide.
The decision can take as quick as ten minutes and
last a lifetime.
Certainly no
one escapes once in mental health services.
The docuemntation on an indivdiual in the mental
health services today is kept for longer than a murderer.
Yes, this is true. The files have to be kept until you have reached 70 at least
or dead.
THE DAY YOU FLY FREE IS THE DAY YOUR OWN SPIRIT SOARS. NEVER ALLOW ANOTHER TAKE FROM YOU ALL YOU KNOW OF YOURSELF, EVER. |
You can walk away from the mental health services
and get then proper help and begin knowing who you are finally and how to
conduct your life in a mature manner, even if limited fashion as in having
asperger and profound/severe hearing loss.
You still can be a fully fledged human being in
your own eyes, you can hold responsibility and you take this with pride. You show care and empathy to the least
able and you work for community as best you can at all times.
But behind closed doors, many professionals who
have opinions are making these very openly even if they never see you as has
been the case, have only met you once, and that is then sort of sent by zip wire, ‘findlater style’
along all the branches of the weightiest healthcare system in europe, the most
dysfunctional one and the most dangerous.
There is no way back if you live in Ireland with a
healthcare service hell bent in making you out to be who you most definitely
are not.
There is no way back either when these giants get
in on your life and decide for you against your wishes all manner of things.
There is no where to hide, and no equality of arms
for justice.
You will remain a speck, a piece of shit for the
rest of your days, even if you are far more honest, accountable for your good
character and personality, trustworthy and a helpful citizen. If the irish healthcare system do
not like you attempting being equal eg the consultants can get rid of you or
the primary care teams can label you.
The day you face an irish healthcare official with
these words, ‘no i will not.’ Or
‘why will YOU not.’ Is the day you start to land in deep water.
They dont like it.
Nor did the psychiatrist like me say that the
emperor was wearing no clothes.
When you remind them of all this, they become
heated and judgemental.
Its sort of the reactive force of the Irish
dynamic and usually only happens those they know they can attack.
If they feel they will be compromised by
opposition, they shut up and say nought.
Certainly a single Irish older lady is no more or
is also less meaningful than the clinical professional and is easy fodder for
abuse and bullying.
I AM ENTERING THE DUSK OF DAYS UNDER THE HEAVY WEIGHT OF THE IRISH HEALTH CARE SYSTEM - HAS ANYTHING REALLY CHANGED AT ALL? |
Believe me i know more than the clinical
professional who has only just been caught with his knickers around his ankles.
Monday, May 16, 2016
HSE, arts award & photography
THE ONLY THING YOU CAN REALLY DO - IS - 'PRAY FOR IRELAND' |
WHEN RIGHTS ARE NOT UPHELD IN OUR STATE |
ITS NEVER PRETTY TO LAY YOUR COUNTRY BARE IN ANOTHER JURISDICTION - ITS NOT WHAT I EVER THOUGHT I WOULD BE DOING |
SUCH AN EARLY START - TO DUBLIN TO HEAR WHAT GENEVA HAD TO SAY ON IRISH HUMAN RIGHTS. WE HAVE TO KNOW...I HAD NO WHERE TO PUT MY HEAD, I FELT GREY |
this i am well aware of, i have enough telling me their stories to know something is very wrong here.
it just seems to take on a life of its own.
torture would be the word i would use.
just torture.
yet another story from Sligo of a woman speaking of how she feels so broken trying to get help for her disabled young boy. left by all as useless, worthless, blind and unable to go to school or out of a wheelchair, the lady is a strong individual who felt all so differently.
today the child is walking with the help of neurosurgery in the USA.
today the child can see, thanks again to surgery
today the child is not intellectually disabled, but normal. in all things normal as opposed to be so poorly disabled worst case scenerio was laid down for the parents.
not so, but in Ireland so little is being done now, they will say there is nothing that can be done.
OUR RECORD ON HOW WE THREAT THOSE WITH DISABILITIES, HAS TO BE THE WORST IN THE EUROPEAN UNION |
NOWHERE TO PUT YOUR HEAD, THE WHEELCHAIRS ARE INSUFFICIENT FOR OUR TYPE OF DISABILITY. |
the boy has got his new school clothes and lunch box but cannot get to school now as he would need two care assistents there and the HSE say they cannot provide.
the child cannot be with his peers to learn his letters, math and to socialise.
he needs a 'child protection' adult as second carer for toileting.
how on earth did we manage before child protection came in?
certainly i didnt and i was abused without any one bothering at all.
although its not so bad that i wasnted to be die as the young lady in Holland (i disapprove of her being put to sleep like a dog, because of her personal invasion by an abuser). All need help.
but life is changing for everyone.
no one has the time to bother or care, and yet the invasiveness of 'all else' in our lives is evident.
the only way they will not get involved is in a positive manner.
but they will get involved.
kill you and persuade you you are fecking useless.
they will ban you from school for protection, but fail to see a triving child is one who meets his own kind and lives in life not shut away protected from all harm.
they will interfere in your home as they did to me, stating that I MUST do such and such to it, in order to receive state aid, this isnt true actually. we are all disabled, but as with the state it gets too involved in lives.
all states around the world seem to think that to interfer in a person's life is always for the good of that person.
it usually turns out to be for the very worst.
i can clearly state here, the day i met the HSE , that is our healthcare system, is the day i personally died.
in so many ways i died.
my life wasnt my own.
i couldnt make decisions, couldnt hold my head up high, be proud of my achievements, be responsible for my own first home and be responsible for deciding how i should live out the rest of my days.
there seems always another who tells me that i have to do it 'just so.'
but if you are healthy, this isnt the case.
its actually against the law to interfere in peoples affairs, if you do not want them in your life.
but if you are sick, disabled, vulnerable, they can walk all over you.
the worst about this being, there is no redress in ireland.
the state has scuppered your chances of finding the justice you deserve.
the Human Rights Commission has been reduced funding by 35% since it was initiated two years ago, and in Geneva last week every state in the world congratulated Ireland for setting this up!
what do they know then?
do they know it contains so few resources it can hardly take a human rights case for the people of this state.
there is no pro bono arrangements for the poor, so they will never see justice.
there is no healthcare systems either.
they trash you in the hospitals and dump you in the street. literally. if you can afford to pay, you get to stay for the tests you need.
if they do not like you they write you off and today i heard i have been sacked by my neurologist!
yep, he is gone, or at least he tells me not in so many words.
i informed him i didnt want him writing to my GP. he can write things that i do not find appropiate on my files, but what does he do, he writes to her against my wishes.
i object to this.
the fact that when i give permission, i give permission. other than that, he didnt get my permission to write to her, but he did it anyway.
how is this country working.
well you can applaud us for the scenery because its fantastic.
all the rest you can forget about.
we are corrupt to the eyeballs.
i tried to carry on and have been doing a bit of photography and also applied for an Arts council award to make a film.
a mentoring award to keep me sane and productive in something wholesome that isnt health related or HSE related.
to destroy my soul, the essence of who i was and once thought of myself is evil.
they have to know this.
they have to understand that killing a person slowly by torture is wrong, anywhere in the world it is deemed wrong, this subtle type, the ones where they write stuff on files, interlink and groupthink about your personality, character and you have no recourse to stop it, is torture.
to deny you healthcare is wrong, if they do not like you in ireland that is what they do.
they simply do what the neurologist does, write against your wishes and state that 'the relationship has floundered' well it certainly has when he has done nothing to advance the care i so badly need, how long do you have to put up with going to a consultant every six months year after year and nothing happening.
how long can anyone take that?
i can't and i lost the rag with him, because i tell him as it is, he doesnt like it.
but he can get rid of me just like that.
and we have so few neurologists in ireland that there are more in outer mongolia than here.
so i am chucked now without a neurologist in sight, without a specialist nurse for a rare disease, without anything in fact.
i am sick to the back teeth of bloody ireland, the land of saints and scholars, celebrating the centenary of our liberty.
we are not liberated but trapped in a vice of the evilness of our own to our own, not imperialists british anymore, our very own doing this to our own small population.
elder abuse in nursing homes has risen by 30 %. the trolley crisis in A'E (ED) is worsening by the day. the care is dangerous and stated so by the medical council of ireland.
MARGARET LISTENS TO EACH COUNTRY CHASTISE IRELAND ON ITS HUMAN RIGHTS - TO BE HONEST, I THINK RIGHTLY SO. |
i am not saying in my blog anymore i am proud of ireland i am ashamed.
also ashamed of the EU which has let us down so badly that we find ourselves in debt and chucking our own onto the streets every day of week, we did not gamble the banks finances, they did that all by themselves.
the people in ireland did not know what was happening.
when the state tells us to put up, shut up about austerity that we did this to ourselves and have to pay our debts.
no we did not!
we were led up a large, windy path by the government and the bankers of the day, telling us how brilliant we were the richest country in the EU, celtic tiger my arse.
they were gambling and telling us one thing and knowning another, we were drowning in the shit done by the banks, against its own people, its called gambling with lives, all lives in ireland
my life included.
there are more people on the streets homeless since the foundation of the state.
more children going to school hungry
we are the last to sign the human rights convention on the rights of people with disabilities.
we are up to our ears in debt in our health service and the new government minister has said he wants free care for all under 18 and improve the food in the hospitals.
yet, we cannot attract doctors, nurses or specialists, our A'e are dangerous and most of the care is inadequate, most of our best brains have left, leaving us with those who want to stay close to their families and muddle along for a fair enough wage but they are not the cream of the crop, we dont have a crop anymore.
the dirth of specialists is dwindling daily as emigration to top centres continues apace.
so you would be afraid to be in ireland, the land of the saints and scholars.
we are the land Europe forgot, but not forgot to take our money we badly need, we are feeding a bank!
not our own children, not our own people.
we are paying a debt we didnt create as we didnt know what the banks were doing behind our backs.
we didnt bring this upon ourselves, most were sold porkies and wanted the best for ourselves, our own lives, we leave the high finance to those we entrusted to do that job.
so we didnt get invovled in high stakes gambling but it isnt them that are in jail, its those who do not pay their tv liscence in the prisons, no banker has been jailed for the ruination of this state.
and we are ruined now well past the time i part this world.
there is a great evil being done to our country right now.
from within and from the EU.
i hope with all my soul that the UK exit the Eurozone, i think its the only thing to do, break the conglomerate up and start afresh.
i want that.
SPEAKER FROM THE VATICAN STATE |
AFTER A ROUND WE GET A CHANCE TO ANSWER |
WE GET A CHANCE TO ANSWER |
ORGANISED BY THE COUNCIL FOR CIVIL LIBERTIES IRELAND - DUBLIN CITY |
A FIRST CHANCE TO SAY IT IN NIJMEGEN - THE STATE OF IRISH HEALTHCARE |
MEET BROUGHT US TO HOLLAND, AND WE FLY THE IRISH FLAG, WE ARE PROUD IRISH, BUT ALSO SADDER IRISH FOR THE WAY THE STATE IS AT PRESENT |
Tuesday, May 10, 2016
noticeably absent for a reason...health in ireland
i have not been writing as consistently as i would have liked.
at present i feel personally over burdened with 'my lot.'
a very good example happened in the public hospital yesterday, waiting to see my neurologist i began to get very ill indeed, i thought i would vomit. i asked the nurse for some drenched paper towels and moved towards a window.
i felt i wanted to just flee.
i felt i was in a personal space of danger and wanted 'out.'
i am unable for this irish healthcare system at present.
its breaking me down and impacting on my physical health and my psychological health.
my wellbeing is extremely compromised, so much so i can barely enjoy an hour of the day at present.
i am overwhelmed and overburdened in extreme.
why i better answer this and what happened that was so bad waiting for the neurologist.
i have lost my faith in irish medicine.
i believe its dangerous.
i believe i am in a dangerous country that will not keep me safe.
i am now so fearful i wish i was any place but in my own country but can anyone leave it at my age when few connections exist in other places.
there are little enough in ireland for me, but if i left would i make myself even more unhappy and in pain?
i hardly think i could have it worse than here.
but loathe to shift right now from the land, its the earth and environment of ireland i adore.
not its people, its politics or its ethos or morality, they have all died.
they die when we celebrate 100years of freedom but watch men run down disabled man and biff a woman standing still and yet all the guards are standing watching this happen and no move is made towards the aggressor.
this sickens to the pit of my stomach.
hospitals too there is major aggression against public patients.
you cannot even ask anymore for a public consultant to look at a raft of bloods you had done, he will refuse.
you cannot get him to watch five minutes of a video at an expert foot/gait analysis clinic, he refuses.
you cannot get another refer you to a dietitian, but on the suggestion of a rare disease unit in the UK, what happens when this report is placed before him as collatoral and proof, he walks, picks up my files and leaves the room.
this my friend is blatent disempowerment and there isnt a sod thing i can do about it
when you cannot get an irish doctor to say to your face - you are not safe in this country, there is nothing here for a person with your cluster of diseases i will help you find a centre of excellence then you know you are in deep shit.
shoring up a hospital group as the consultants watch over a public private enclave south county dublin and are the major stake holders in such a group is not going to see the private consultants who have to do public patient work, ever on the side of the public patient.
the onus is to make the hospital group fully private and a business.
if the hospital group believed in the equality for all they would treat you as well as they do their private patients, but they treat you with utter contempt.
i also am at an all time low when the ability to find justice against the corrupt healthcare services is placed at the bottom of the pot at human rights levels and judicial levels.
the human rights & equality commission has been grossly watered down.
the juidical process which allows for free legal aid and pro bono work is hard to get, and no one will take pro bono work against another incredibly large state organisation the HSE which has its own legal department.
you are again in a sea of corruption and lopesided non equal status of the haves and the have nots, the power beasts and the bitsy people suffering in this country.
there is no way an unsupported individual of ireland can survive the power of state organised abuse here.
its prevasive and even the corruption stakes i believe are watered down grossly.
we do not believe we are squeaky clean as a nation yet we certainly are not considered the worst in europe.
i doubt the irish citizen would see it other than the very worst in europe.
by virtue of having the worse healthcare system in europe and being the last to ratify the human rights of those with disabilities, well then thats really corrupt.
because the ability to hold and honor all equally is proven then here.
if you do not want to see the sick and the poor be treated well, you stall on ratifying their rights, that is their human rights.
i have no human rights against the doctor i met yesterday. he has known me years and knows i have a complex condition, he has refused to implement the plans from a rare diseases unit abroad, and even though in theory he knowns my conditions and my illnesses when he was to examine my walking he asks me was i safe enough to walk the corridors.
i thought it bizarre that he doesnt even know how safe is my walking and yet will not put through a process which three neurologists in the uk will believe it will improve my walking.
when asked by the disabiltiy advocate are there implications to botox i believe he had no answers, there are no implications to botox, its a relative short lived stunning of muscle, long term effects possibly but i am on the way out anyway.
if it breaks the muscle tightness to allow me walk i see no harm at this stage of my life.
he wont allow me go for a second opinion but he wont stop me either but last consult he wouldnt refer me back to uk, and wouldnt be referrig me to a neuromuscular diseases centre.
when corruption also means that the human rights commission cannot fight for me when a large state run organisation runs ruckshod over you because the waffle response means, they cannot afford to support you in something that isnt simple and they may not win even if they do.
this is a situaton where they will risk the offer of legal assistance in my case because they have no idea if it could lead to a successful result, but it could well do, but the risk isnt worth the money.
i will rephrase that one, I AM not worth this money, and it oculd be drawn out as the complexity of abuse is overwhelming.
Law is not strong so they do doubt how far this can go.
so the commission isnt strong, the laws of hte land are not strong and i have no equal rights therefore n one will take a case.
shafting ireland for being the way it is is my duty and shows i care about vulnerable groups here.
saying it as it really is, as in lived experience has to be heard, no matter over and above ways that do this, because abuse is so normalised here the lines between correctness and corruption so blurred not even the judicial system has rules to deal with it.
when the law is not strong it could be very messy.
if you have one issue and run with one issue you have a chance.
running against a state funded run healthcare system is seen as dangerous to the purse by many.
the hse is shored up by a strong legal department and money it saves precisely to defend what i consider the indefensib.e
i do not like living in the Ireland of today and seeking a way of escape from the corruption over my right to equal healthcare even if an older person and poor.
shafting ireland means warning those who think it might be nice to come here to live.
remember if you come and get sick, you may have a very complicated and stressful life, not for the faint hearted.
you have to be a bull or corrupt to face all this, believe me facing it you must.
but though very down and in the gutter so to speak, i am still alive.
justice will be seen to be done and i will find to tell theis story from beginning to bitter end, for its a steep learning curve for me anyway.
i want to make sure no one has notions about ireland in a sentimentalised manner, the real truth will be the test of sickness, age and disability will have on your quality of life.
mine is zero.
the level a country can offer you in the quality stakes will mark that country as being suitable to live in.
quality of life for the sick, elderly and vulnerable is not an age old wisdom piece to protect all who are sick disabled and vulnerable.
in the ireland of the day, fighting your corner can be tough, and it will be if you live here.
i pray things will imporve, but i am not hopeful.
at present i feel personally over burdened with 'my lot.'
a very good example happened in the public hospital yesterday, waiting to see my neurologist i began to get very ill indeed, i thought i would vomit. i asked the nurse for some drenched paper towels and moved towards a window.
i felt i wanted to just flee.
i felt i was in a personal space of danger and wanted 'out.'
i am unable for this irish healthcare system at present.
its breaking me down and impacting on my physical health and my psychological health.
my wellbeing is extremely compromised, so much so i can barely enjoy an hour of the day at present.
i am overwhelmed and overburdened in extreme.
why i better answer this and what happened that was so bad waiting for the neurologist.
i have lost my faith in irish medicine.
i believe its dangerous.
i believe i am in a dangerous country that will not keep me safe.
i am now so fearful i wish i was any place but in my own country but can anyone leave it at my age when few connections exist in other places.
there are little enough in ireland for me, but if i left would i make myself even more unhappy and in pain?
i hardly think i could have it worse than here.
but loathe to shift right now from the land, its the earth and environment of ireland i adore.
not its people, its politics or its ethos or morality, they have all died.
they die when we celebrate 100years of freedom but watch men run down disabled man and biff a woman standing still and yet all the guards are standing watching this happen and no move is made towards the aggressor.
this sickens to the pit of my stomach.
hospitals too there is major aggression against public patients.
you cannot even ask anymore for a public consultant to look at a raft of bloods you had done, he will refuse.
you cannot get him to watch five minutes of a video at an expert foot/gait analysis clinic, he refuses.
you cannot get another refer you to a dietitian, but on the suggestion of a rare disease unit in the UK, what happens when this report is placed before him as collatoral and proof, he walks, picks up my files and leaves the room.
this my friend is blatent disempowerment and there isnt a sod thing i can do about it
when you cannot get an irish doctor to say to your face - you are not safe in this country, there is nothing here for a person with your cluster of diseases i will help you find a centre of excellence then you know you are in deep shit.
shoring up a hospital group as the consultants watch over a public private enclave south county dublin and are the major stake holders in such a group is not going to see the private consultants who have to do public patient work, ever on the side of the public patient.
the onus is to make the hospital group fully private and a business.
if the hospital group believed in the equality for all they would treat you as well as they do their private patients, but they treat you with utter contempt.
i also am at an all time low when the ability to find justice against the corrupt healthcare services is placed at the bottom of the pot at human rights levels and judicial levels.
the human rights & equality commission has been grossly watered down.
the juidical process which allows for free legal aid and pro bono work is hard to get, and no one will take pro bono work against another incredibly large state organisation the HSE which has its own legal department.
you are again in a sea of corruption and lopesided non equal status of the haves and the have nots, the power beasts and the bitsy people suffering in this country.
there is no way an unsupported individual of ireland can survive the power of state organised abuse here.
its prevasive and even the corruption stakes i believe are watered down grossly.
we do not believe we are squeaky clean as a nation yet we certainly are not considered the worst in europe.
i doubt the irish citizen would see it other than the very worst in europe.
by virtue of having the worse healthcare system in europe and being the last to ratify the human rights of those with disabilities, well then thats really corrupt.
because the ability to hold and honor all equally is proven then here.
if you do not want to see the sick and the poor be treated well, you stall on ratifying their rights, that is their human rights.
i have no human rights against the doctor i met yesterday. he has known me years and knows i have a complex condition, he has refused to implement the plans from a rare diseases unit abroad, and even though in theory he knowns my conditions and my illnesses when he was to examine my walking he asks me was i safe enough to walk the corridors.
i thought it bizarre that he doesnt even know how safe is my walking and yet will not put through a process which three neurologists in the uk will believe it will improve my walking.
when asked by the disabiltiy advocate are there implications to botox i believe he had no answers, there are no implications to botox, its a relative short lived stunning of muscle, long term effects possibly but i am on the way out anyway.
if it breaks the muscle tightness to allow me walk i see no harm at this stage of my life.
he wont allow me go for a second opinion but he wont stop me either but last consult he wouldnt refer me back to uk, and wouldnt be referrig me to a neuromuscular diseases centre.
when corruption also means that the human rights commission cannot fight for me when a large state run organisation runs ruckshod over you because the waffle response means, they cannot afford to support you in something that isnt simple and they may not win even if they do.
this is a situaton where they will risk the offer of legal assistance in my case because they have no idea if it could lead to a successful result, but it could well do, but the risk isnt worth the money.
i will rephrase that one, I AM not worth this money, and it oculd be drawn out as the complexity of abuse is overwhelming.
Law is not strong so they do doubt how far this can go.
so the commission isnt strong, the laws of hte land are not strong and i have no equal rights therefore n one will take a case.
shafting ireland for being the way it is is my duty and shows i care about vulnerable groups here.
saying it as it really is, as in lived experience has to be heard, no matter over and above ways that do this, because abuse is so normalised here the lines between correctness and corruption so blurred not even the judicial system has rules to deal with it.
when the law is not strong it could be very messy.
if you have one issue and run with one issue you have a chance.
running against a state funded run healthcare system is seen as dangerous to the purse by many.
the hse is shored up by a strong legal department and money it saves precisely to defend what i consider the indefensib.e
i do not like living in the Ireland of today and seeking a way of escape from the corruption over my right to equal healthcare even if an older person and poor.
shafting ireland means warning those who think it might be nice to come here to live.
remember if you come and get sick, you may have a very complicated and stressful life, not for the faint hearted.
you have to be a bull or corrupt to face all this, believe me facing it you must.
but though very down and in the gutter so to speak, i am still alive.
justice will be seen to be done and i will find to tell theis story from beginning to bitter end, for its a steep learning curve for me anyway.
i want to make sure no one has notions about ireland in a sentimentalised manner, the real truth will be the test of sickness, age and disability will have on your quality of life.
mine is zero.
the level a country can offer you in the quality stakes will mark that country as being suitable to live in.
quality of life for the sick, elderly and vulnerable is not an age old wisdom piece to protect all who are sick disabled and vulnerable.
in the ireland of the day, fighting your corner can be tough, and it will be if you live here.
i pray things will imporve, but i am not hopeful.
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