important to record

in the context of world change a person is only as truthful as the records they keep as life moves on...this way the truth is presented fresh at every recounting.
note taking is a guarantor that truth does not become distorted over time..
as long as you are truthful in the first place.

lets watch how note taking can go.....

how many times did the HSE discuss your adaptation grant with you...the circular amongst the professionals being that contact with awww was 17 times.

maybe so but what does awww say...she says, contact was made seventeen times..for what...the first was introduction to the area, followed by broken wheelchair followed by two broken scooters followed by a crashed van and so on and so on, also to try out the powered wheelchairs and to arrange the time of day and the day that all came so it could be done.

that makes 17...did you discuss the adaptation grant?
yes...how and when?
well i met the OT to discuss it.
did you discuss.
sort of.
what happened then...i said what i wished for to help me in the home...
do you think you were heard
no
why
she stayed about ten minutes and said she only ever did bathrooms and kitchens and she had not done them in a long time
out the door and a verbal recount with Dr. Raging Wheels
what has happened with the grant
well...i got it
has anything been done
no
why
 well they only ever did bathrooms so they demand i get a whack of a wet room
do you need it
no
i have other disabilities that could far better be served with this small amount of grant
ah so.
well nothing then
ah so.........er no..........nervous breakdown looming
regarding professional speak one has to be very precise and reasonable.
why do you need a wet room and twin never needed this and had two bathrooms escaping the glance of the OT on the trot
well see, you (that is me) have a neurodegenerative disorder your sister has parkinsons.
i kid you not!
ah yes soooo.
eh then, is parkinsons not a neurodegenerative disorder?
or did the note taking go a bit array and my neuro used the word 'degenerative' and her's
'parkinsons.
note taking accurately is so important but more useful if you tell the truth and have your facts right and actually know what you are talking about

my note taking today consists of
-rang the neurologist
rang the rheumy in London.  i get an answer from them, still waiting for the neurologist.
then i rang the health centre
will we go 'why?' again?
ah yes.
i collapsed;
i got no return call back
nor from the hse whom i also called
i went down to the health centre
they cannot do nothing about being unable to put in place my five hours a week home help/
i am funded with the funding for the under 65's and twin is funded from the fund for the over 65's/
i kid you not!
why
well.....heeeeeheeeee  heeee heee (wait for it)
she has parkinsons and i dont!!!
now if you are still with me and understand note taking and understand the above, please let me know.
i am now off to have the nervous breakdown with my chihuahuas on top of me and a one eyed teddy needing loving.
i am also saving on the electricity bills.......get a chihuahua or two, especially one that is prone to bite...a hse official.