amazing hse policy documents

well, looking for my Crawford College of Art results which was akin to the cert my twin has just completely i pulled out reems of paper.
they were HSE policy documents.

these make fascinating reading, utterly fascinating.
talk about shooting themselves in the feet!!

Risk and incidents that can harm, will harm, does harm etc et al.

• safety Incident Management Policy comes under Dr. Philip Crowley's office!
• integrated Risk Management Pollicy 
• risk assessment tool and guidance (including guidance on application)
• vexatious complaints - dealing with policy- actually used against me but complaint upheld and i received an apology

Trust in Care - DFI  2005 I am unsure if this still is policy or has been replaced by another, highly possible as the HSE adore their policy making.

Mobility aids

• HSE policy on provision of powered mobility equiptment (PME) for adult

Referral & Waiting list management in care of older people

(i will refer back to this)

Referral & waiting list management for appliances

Waiting list management in COP physiotherapy services

I WOULD COME UNDER PRIORITY P2 FOR MANAGEMENT IN COP PHSYIOTHERAPY SERVICES YET GET NONE AT ALL and all should be screened for class work, eg gym based balance classes (giggle giggle)  group seated exercise classes regularly as time permits ie once/twice a month following individual assessment and screening (giggle giggle)

Upper limb classes with Senior Occupational therapists (giggle giggle)

• 5.3 Priority P1/Urgent waiting list clients should, where possible be seen within 1-3 working weeks of receipt of referral due to current staffing levels.  FASCINATING - HOW MANY FALLS FROM BADLY FITTING SHOES DO YOU NEED NOT TO BE URGENTLY SENT TO A SPECIAL SHOE AND GAIT ANALYSIS AND FOOT AND SHOE CLINIC AND NOT REPEATEDLY BACK TO AN ORDINARY PODIATRIST IN THE SMALL VILLAGE

as i do not come under PI i receive care as standard, which means none at all!

References :  National Health Strategy-Quality and Fairness 2001

                      European Core Standards of Physiotherapy Practise (2008)

                      European Physiotherapy Services Standards (2003)

I have the European core standards of Physiotherapy which is a reference for us in ireland

i also have - wait for it - Quality and Fairness - a Health System for YOU!

Primary Care - a New Direction.  these two documents came in with Bertie and also Michael martin as minister for health - er, was he ever minister for health?  god i forget!

anyway these are all tomes, and yes the first few bar the last two are in date, whatever happened the second two, i believe are still in operation as i received them from HSe.

so they must be or else, i am being lied to again by having them sending me the flotsam lying around their offices.

when we look at the physiotherapy time frames etc of the HSE, these are reviewed and signed off by all in this area, but also in my last area, because i know the managers.

if this is the case then all would have been able to get all the details to my malaise and circumstances through correspondence because they are so intrinsically inter-connected indeed the two areas of Dun Laoghaire Rathdown and Wicklow were and remain under the same primary care team leaders.

two separate individuals both men made contact with me today, both with grieviences with the HSE.

both suffering.

both inform me that the HSE lie, that they do not trust the HSE.

so its not only myself.

its endemic that the HSE is that big baddy all hate so much, yet why are they not trying to make it better.

well for instance, i am in constant contact with what i percieve and see as a 'good guy' in the office of Dr. Pat Crowley, but if he is in the same office in charge of quality and risk and therefore risk assessment as it states risk assessment is then why isnt he doing something about all i have spoken to him about, if the primary oversear to risk and quality is this office my complaints are not being therefore dealt with and i am in no better a situation and i am continually being harmed.

eg four pairs of shoes harmed me, therefore i am at risk from the HSE and still am!

i rest my case furious.

with the HSE and i am not the only one calling them liars at all!

a petition- please sign - save our healthcare system

i think it important to say - not a day goes by when something adverse occurs within our hopsitals, something negative happens, more negatives than positives, a healthcare service in crisis, a healthcare service, pretty much terminally ill, and a healthcare service that is positively dangerous, if you cannot afford to pay.
the great divide now is public v private, those who can afford it will live, will get help and can benefit with a longer life expectancy and security, knowing that they could never be let down and abandoned in the face of a poverty of services for us in the public healthcare system.
we are endangered by our care services, for us it barely exists and where it does its minimal and crisis of health means, no cover for that.
we need signatures to get the message to the Minister for Health.
Health is our wealth, you are not robbing that as well as everything else, sir.
sign, share and get the word out there.
thank you, i do appreciate this, i trust my followers of my blog.

https://www.change.org/p/minister-for-health-leo-varadkar-minister-for-health-leo-varadkar-ireland-save-republic-of-ireland-public-health-services-now?recruiter=74154797&utm_source=share_petition&utm_medium=copylink

Torture, human torture is what the HSE ireland is skilled in - 100 years after banishing our oppressors (!)

i cannot believe my fight for a meaningful and peaceful end to my life is still ongoing.

that is, for the Irish HSE to help me in my chronic, significant disability of having a progressive, neurodegenerative, neuromuscular disease.

every way i try i get twarted, over and over i tell them, over and over they ignore what i have to say.
it all started after this...
here my twin is...standing in my 'sitting room'  this was a unit for one individual who HAD NO disabilities, the argument was that it was meant for a person with a disability, already a wheelchair user, with a progressive disease and likely to get worse....this whole debacle started by the glorious OT manager in my area overseeing my healthcare needs, i was persuaded to ask for rehousing, she had contacted the council, she had spoken to the council, yet the council put me here....unfit not only for human habitation but in an area of men, prodominantly drinkers, and i was single, older and sick.  i couldnt have coped.

there were eight floor boards from fire grate to sofa, the only item i could fit in this unit and i had to get rid of a brand new one and buy a second hand as my nice one wouldnt fit, i was downgraded from a two bed to a one bed.  argued by three different medical consultants not to move me, argued by the OT about my housing needs..

my belongings stuffed everywhere, just everywhere.  there was so little room

look at the dirth at the base of this toilet, for a woman with immune difficulties, this was the better room all the rest had to be redone due to rot, mould, carpet pins left sticking up and dirt.
it was so small i couldnt even open a manual wheelchair in order to sit in it, and i was rehoused due to my disability, words fail me even still.

this individual is now legally of age where i can put this up, this was the incident that saw me leave, i was physically shot at after far more harrassment before this point, i knew she was there above me, i was below her on a swingseat and she had this gun i found five pellets by the swingseat and two more by the back door

the chaos had me in a personal hell and in awful pain- a state i am still in

with no help for me at all coming from social services with whom i had been with all my adult life, margaret and i sold what we had as capitol a small tiny town house, margaret moved in with me, slept here on this short sofa for over eight months with a diagnosis of parkinsons disease, yes of course we have family, they turned away, a blind eye and they could have helped and had the means to.  now due to my circumstances my twin coming home sick and disabled herself ended on this, i have to say the shock for her was enormous, yes we have family, if they read this
-WHERE THE HELL WERE YOU?  WHERE WERE YOU EDUCATED?  DID THEY GIVE YOU THIRD LEVEL SCHOOLING AND A POSH SECONDARY SCHOOL TO TEACH YOU TO TURN THE OTHER CHEEK AND LEAVE US ALONE IN ALL OF THIS?  IF THEY DID, THEN DO YOU THINK I CAN OWN THAT SORT OF MIDDLE CLASS ETHOS, NOT ON YOUR NELLY I COULDN'T.

this photo and an article ended in 'journal.ie' after which i was promised better shoes, its now 2016 and i am still without supportive shoes for deformity of feet and weaker ankles and muscle wasting, i have fallen and snapped both my shoulder muscles completely, torn an achilles tendon, torn a shin with a gaping wound taking months of dressings and time to heal, i have fallen and been in so much foot stress i am now to have my hands and feet re x-rayed for nucleur scanning found anomolies where the dye seeped into the bones of the foot, heels and also wrists, this is called fracture seepage, and the feet are agony, still no shoes.

i move to a new area and still have trouble with the Irish HSE, the same OT manager who illegally interfered with my adaptation grant, also made me give this back before she allowed an engineer fix a 13yr old banger of a wheelchair.  it had gone into a wall opposite st. vincents, losing a wheel, they refused to fix it until i returned this, there are no policy documents to say i couldn't have both, many do and i had just paid 450e for having this scooter repaired, no of course i never saw the money!  but they took the item hardly worth that much anyway, they still insisted on it back.

this is me on the swingseat the day after i was shot at.  it reflects my present state, my physical shock and my mental despair.
i am hounded by the hse, i am out of the county i loved so deeply, i am alone, left and abandoned knowing no one here at all, just despair and the HSE do not feel any sense of duty towards me at all, none.
this is called our famous HSE, our healthcare services.

if you intend to come to ireland during our fabulous 100 years of celebrations for being a 'banana' republic, enjoy the schenary by all means, but do not stay, especially if you are sick or intend becoming disabled, incapacitated or in any way unwell.  because this ISNT the 'world's goodest country'  its a hell hole.

if you want to do anything, condemn our standards of healthcare, our human rights violatations, for which we are legend including being only one of two european countries who have not ratified the human rights convention for equality for those with a disability.
the irish state is not a state. it is lawless, it is corrupt, it is perverse in every shape or form.  it is beautiful.  very beautiful, we laugh alot, but maybe thats all the beer but we also have a high emmigration rate, an even higher homeless problem and a worsening poverty problem, we have a state in chaos and a healthcare system which is terminally ill.

it is not a safe state by any stretch of the imagination.
like another very catholic country it is ran on mafiosi principles.

What's another Year? Post 2015

happy New Year - from ANN!

Happy New Year from Mags + Saffi!

Well, exactly...'what's another year?'  when this song won the Eurovision song contest i was in hospital for an entirely different reason, but said the same to myself then...'bloody hell, what IS another year'.

Fast forward to the age of 63 in Ireland, during austerity, commercialism, capitalism and lack of decency and any democracy that i can see or tell.
In the Ireland of utter abandonment by its government, by its public health care services.  We have the young ones, with intelligence and in despair leave these shores - yet again.
Over and over again Ireland exports most of its talent, generation after generation.

We fail to keep them here.
We fail our very own.

But for me personally, what can i say about 2015?
I can say it was a dreadful struggle.

Its been so bad that suicide has been thought more about than ever before and my life has taken on a cast of, sort of despair rather than any consideration for joy, living and purposeful engagement.
Most of the year was attempting in despair to get some care about my health demise and this takes every day of the year.
Unfortunately i found it impossible to move things forward, as did most people.
I am not the only one being abandoned.
the sick just are not being considered at all. And disappointingly, we are not considered by the family either.

it's important to remember, before being sick and disabled i had what is classified as - A LIFE - as an accomplished Artist.

 WENT TO A FABULOUS PLACE CALLED 'THE KIELDER TRUST' TWO HOURS NORTH OF NEWCASTLE.

they had cottages there for rental but in the main area they had a large cabin style building dedicated to the disabled.  The disabled, that was,  who were going into respite.  This was indeed the most fabulous respite care centre i have ever seen in my entire life.  Not to mention, its 'HOLIDAY'  more than respite in a beautiful area about two miles from Newcastle.
the young people who worked there were truly dedicated and terrific.  During the day nothing was too much for them.
the food too was top class.
the sick and the dying and the disabled were cared for VERY WELL, they were in 'respite' but really on holiday.  At night they opened a real 'Bar' so the sick could drink, real drink and have wheelchair races drunk and disorderly, style.
here now really, respite is considered three weeks in a bed, a hard one, with strict regimes of very little other than the bed away from home, be it at an end of life centre or rehab centre,but it ain't no adventure sports respite centre.
Here in Ireland these places are run by nurses, health and safety is Paramount, hardly the patient counts at all, its boot camp style and orderly.   This place was run by skilled healthy young people all ready and at the ready to please, chat, take photos, get wet (!) and do a lot of hard work.

zip wiring on a warm end of summer day was done by all, my twin and self included.
the mentally ill zipped, the damaged from surgery zipped, those who had cerebral palsy zipped and so too did many with terminal illness and paralysis.  The place was geared to make sure all had experience if they chose to, amazingly we all chose to.

When coming back to Newcastle and you tell the neurologist, she would mutter 'mother of god, not on your life!'
But life is so SHORT.

ZIPPING DOWN A WIRE IN PINK FLUFFY SLIPPERS DID NO DAMAGE TO ME AT ALL....

A VERY SHORT WALK IN THE GARDEN IN SHOES PROVIDED FOR FOOT DEFORMITY RIPPED MY TOENAIL OFF!

Well i enjoyed zipping so that is a big + and my next trick is abseiling down Dalkey Quarry cliff face, if we can work a way of getting to the top first!

EVEN THE TWIN, ZIPPED ON THAT WONDERFUL DAY.

Health again (but then i am consumed by health issues), i have managed to get a large organization of the IMP International Mitochondrial Patient group to come to Ireland at the end of 2016 to give a conference.  This now has to start in earnest, that is the preps for it have to start in earnest.
it is a coup for me and a really good thing for those who have mito disease in Ireland, for the families, the children and of course the many adults who are missed out now in the age of YOUTH.

But the distinction on youth v. aged is for another blog.

i also won a scholarship to Netherlands for a mito conference, that too is a coup, it will be for me a regular junket out of misery and a learning and networking experience.  I won through writing an inspirational piece, now that is so cool!
i intend to learn ALOT from it to bring back to Ireland, both on how to organise a conference and how to be a diplomat!

so it will be very skills based.

I do not think there were many pluses.
I had a holiday
I lived in despair
but also learnt a lot and will have a junket and learn more.
AND, my arch by the shed was resurrected by Darragh Stokes and John Bloomer  just before Christmas when storm Clodagh (it would be a girl) blew it down and nearly killed it altogether, well the wrens nest is gone, but the arch is up again and maybe the wren can do a bit of lateral thinking when it discovers its place of preference has been napped by the winds.

i will see a second European country for only the second time in my life.
all because of health issues, as was the first time out to Finland.
i hope to make some lasting friendships, as i had in Finland.

IN IRELAND THEY SAY 'HANDS-ON' PHYSIO IS NOT SUITABLE FOR MY BODY...IN FINLAND, THIS FINAL YEAR PHYSIO STUDENT HAD TO TAKE ME FROM THE CONFERENCE TO WORK FOR ABOUT AN HOUR ON MY BACK WHICH HAD GONE INTO SPASM - IT WAS TERRIFIC, AND I ENDED PAIN-FREE.

so i guess i have to show the start of the new year as the happy clappie plus addict that all want me to be.
well, how long will it last?
That depends on all manner of things, primarily on the provision of proper health care in Ireland.
 That is a huge battle for all of us sick here.

SPOT THE DIFFERENCE - HEALTH CARE IN FINLAND OFFERS A PROPER SOPHISTICATED WHEELCHAIR FOR THE SAME DISEASE, IRELAND MAKES YOU 'WALK THAT HORRIBLE WALK OF EXHAUSTION, PUSHING A CHAIR YOU CANNOT MANUALLY USE IF SEATED IN IT!

WHEN I SAY 2015 PRODUCED NO HEALTH CARE HERE, I MEAN, NONE, THIS FOOT HAS BEEN UNSUPPORTED, UNTREATED FOR ALMOST A DECADE IN IRELAND IT BELONGS TO MY TWIN SISTER.  IRISH HEALTH CARE WHERE ARE YOU?

I WANT YOU TO LOOK AT THIS VERY CAREFULLY - THIS IS MY TWIN SISTER SPEAKING IN BRUSSELS - SHE IS AT THE TOP OF HER CAREER HERE.  TELL ME, WHY SHOULD IRELAND, ITS HEALTH CARE NOW TREAT HER SO BADLY SHE IS WALKING ON THE SIDE OF HER FOOT AND HAS NO SUITABLE WHEELCHAIR?

i am damned if i do and damned if i don't....talk about it, for sure as eggs is eggs, we are going no where fast in improvement.  The care system is dangerous and becoming lethal and terminal rather than a functional healthy care system that cares.
To be honest, i believe it's classed as the worst in Europe, therefore i don't think it can go down the tubes any further.

DOUBLING UP - FOR FAN BENEFITS!

I just wish the sick can get cared elsewhere, anywhere but here because you worry as i do.
We have the Cross border Care initiative, i hope those who read my blogs and are concerned, will view this directive, its useful but they are failing us by not telling us about it all.  i have discovered it.

well now i am at the end of this blog so i better clap for the happy moments.
clap for those shites who do not want to talk on health care and advocacy for better health care
and clap for those bought over the fence who are in health care and wouldn't dare speak out because they are paid by the system.
And also clap for the one who doggedly try for their own kindred who are disabled and take on that responsibility of actually caring, now this is worth the clap for the end of this blog.
i know two women by name who are dealing with the trauma of health care issues so that makes four i know by name which includes that of my twin sister and myself.
I know groups sent up for those also fighting a battle they feel they are losing fast.
I know too many groups of people fighting a battle they feel they are losing.
I have heard gut wrenching agony stories i know to be true, they couldn't possibly be lies, they visually are so 'in your face' you gasp wondering if its possible, but in Ireland it IS possible.

I want to clap for those who will fight hard and faster, namely the universities, Flac, NUI Galway Centre for Law and Disability, Limerick OT Rosie Gowran and her fight for the acquirement of wheelchairs suitable for the disability that people actually have as well,  and others, all capable of fighting but you hear little from them, who may put people first before profit and do some good.

We need more doctors who will put themselves on the line, as did Prof. Crown in 2013 and also Prof. Orla Hardiman about the only present doctor in Ireland who will give out hell about the services.
The rest are sitting back saying nothing.

Is this weak or is this powerful?
Is it that they have too because of been bought off and bought out?
The same ones who will not offer care in the public service as they too have been told to cut back due to expensive public systems, but they get paid enormous wages in the private sector so Ireland is a two tier system.
The doctors do this now as a business,  they work to earn as much as they can any way they can and if that's for the private posh then they will push for that.
If it is for the poor they not only give hell to us they treat us badly, i do know on this one.
They also refuse care, i believe more often than not they do this.  I feel i know this one too.

so clap clap clap for the plus in life.
and my mathematics is not answering the call that one is better than the minus in life.

i just hope 2016 will be better and less hard.

SO YES WE SAY -
HAPPY NEW YEAR TO A HAPPY
2016 - FOR ALL - EQUALLY - EVEN DOGS!

AH SPEAKING OF DOGS......C'MON NOW GAL..............