Sunday June 8th 2014
the wind is raging, the air is chill.
i wake in awful pain but i wake too thinking of the hated HSE.
i get out of bed with extreme difficulty and in extreme pain.
i just feel in shock.
i am awake yet stunned.
i am awake and the pain of displacement, abandonment is so great i feel in a fugue.
there seems no release even after six years of hell on earth.
there seems no recognition of our struggles and what we have done here.
no uplifting other to hold the hand of those who have fallen down psychologically.
i really am talking about er, FAMILY.
yes, i know we live in very different times.
but surely to god not so different that women who are sparky and spunky, intelligent and warm should be left alone to deal with the muck we have to deal with - alone?
surely to God we didnt commit such a crime that we are left like this.
Seemingly we have.
when i think of Family and some will sneak in here and view for the tattle of anger does filter around from one to another i think of the word 'charity'
How many of you have sat down with an old lady and tried to calm her pain of depression.
how many have gone into a social housing unit where there is deep distress and difficulty.
How many have brought sweets to an anorexic lady of overt 80 slowly dying in the lost and forgotten row upon row beds in a back hospital ward?
how many of you have seen the slums and worked there
Charity is about loving enough.
I do not mean the celeb balls, the leaflet dropping nor the offerings box at mass.
i talk of real people eye ball to eye ball contact.
suffering - face it.
One day you will be alone with this sort of stuff.
maybe you will have a person there at your side most do but if not then think ahead of how you will wake weary day after day with no human contact from your family.
how you will wake in shock at the abandonment for there is no other way to feel but this.
take every religion known to man from the day we humans had time to write, reflect and consider each other.
every known philosophy has at its basis, sharing love and kindness spreading equality and community, giving and uplifting.
none advocate walking on by, none advocate, turn the other way, and none add 'judge first and spit next.'
we talk of staying that little while and help so that even a year would be better spend after a month of giving.
even a day would be better spent after an hour of giving.
this is called uplifting relationship with the family of origin.
meanwhile my blog extends its tentacles to many countries now. this i am pleased because i speak from the soul and heart after a life of disadvantage.
I say to my family who yes, i love and yes i yearn to see and connect with, come visit, come help and come laugh alot.
its myself extending out my hands in friendship.
i cannot do much more, but all have known where i am, all know who i am but all chose one thing, to do the very opposite to what good people have considered as the art of being a human being.
if this hurts or sends a dart, its meant to be a plea to reflect on one thing only 'there but the grace of god go i.'
and i would never abandon those who have had it tough in such a thought out way as my family have.
All who live within a tweny mile radius, all who drive and all upwardly mobile.
you can do it, you chose not to.
AWNYAH TODAYSAY Ann living in the Republic of Ireland and it is not a good thing. We have now ratified the EU convention on the rights of people with disabilities, yet we failed in ratifying the optional protocol, allowing us ability to make complaints to the EU under the convention, with little facility to do so in our own country. We go unheard in every sense of the word. This is unjust and leaves us more vulnerable and open to abuses. We are suffering. I am suffering.
Sunday, June 8, 2014
Saturday, June 7, 2014
HSE (Health Service Executive) and secret meetings
i wish to say catagorically, that secret meetings about citizens in this state should NEVER TAKE PLACE!
we have rights here. Well we thought we did, until i for one discovered a secret meeting had taken place about me, well maybe i had long since rejected the idea that i had any rights at all, actually!
I was outraged.
it was summoned by the HSE which is the Republic of Ireland service for the sick.
it provides health cover throughout ireland as in care, respect, assistence, hospitals and other.
to hold a secret meeting as a team, that is Physiotherapy, Occupational therapy and GP, is outrageous.
this being done without the client/patient ever finding out or even being asked to be present or have a representative be present.
Of course, i shall contact my solicitor. Of course i shall seek legal advice and of course i shall request who was there, what was said and why it was done in such an underhand way.
my gp, general practicianer said it was unusual as it hasn't happened this way before and he has been to these team meetings where the client was always present.
have we stooped to a new low then?
or is it just the area where i live, which is in Wicklow Ireland.
Yes, of course i say who it is.
its the Wicklow HSE community and primary care teams, who now have some answering to do, to me!
there are only very few situations where this can happen.
in an emergency of life and death.
if a person is in danger
if a person is suffering dementia
if a person is too ill to be in attendence.
but certainly it should never happen if a person is alive, is of sound mind and has always advocated transparency above everything.
i demand explanations.
i have been through a brutal three years in Wicklow with this team and i want them out of my life, period.
no one should be brought to the verge of cracking under the stress and strain of this service.
no one should be reduced to nightmares about the HSE when the HSE primary concern is health yet its destroying mine!
i have asked the local area member of Dail Eireann to look into this.
I have asked An Taoiseach's office to look into this.
we cannot start having such situations where control is being visited upon persons in this state which leave a person powerless and helpless.
but we have already seen a secret pact in wicklow from the local elections between the two main political parties.
so we know ireland has a long way to go.
transparency is not our greatest asset.
we have the Tuam babies now, which is horrifying the world audience.
we have the catholic church scandals of abuse rampant in an ireland of not yesteryear but only recent and near recent.
we also now are finding out about secret drug testing on unsuspecting babies and children born out of wedlock or placed in orphanages.
there is no excuse i feel to carry on such shananigans in todays world.
Ireland has truly shown its colours
each citizen has his/her own tale.
each citizen has a violation that they can recall instantly if they want.
what can you say openly now?
i say i have had nurses in my bed in hospital.
I say i have been raped in a hospital grounds in Dublin in the 70's not just once but a few times.
i now can say i have had a secret meeting about me.
to determine my need for a powered chair.
now remember, well you cannot for i am unsure if i ever told you...
no medical expert knowledge had been given to the HSE prior to the end of last week, so this meeting was held without any medical information, although in recent days i have passed over this, before i heard of this meeting taking place, but after it had taken place.
the HSE have overstepped the mark by a mile here.
i feel like a worthless pummelled bit of shit.
abused when i should have felt safe.
abused and witch hunted when i should be finding peace.
i am saying right now i am not that in love with the Wicklow HSE.
we have rights here. Well we thought we did, until i for one discovered a secret meeting had taken place about me, well maybe i had long since rejected the idea that i had any rights at all, actually!
I was outraged.
it was summoned by the HSE which is the Republic of Ireland service for the sick.
it provides health cover throughout ireland as in care, respect, assistence, hospitals and other.
to hold a secret meeting as a team, that is Physiotherapy, Occupational therapy and GP, is outrageous.
this being done without the client/patient ever finding out or even being asked to be present or have a representative be present.
Of course, i shall contact my solicitor. Of course i shall seek legal advice and of course i shall request who was there, what was said and why it was done in such an underhand way.
my gp, general practicianer said it was unusual as it hasn't happened this way before and he has been to these team meetings where the client was always present.
have we stooped to a new low then?
or is it just the area where i live, which is in Wicklow Ireland.
Yes, of course i say who it is.
its the Wicklow HSE community and primary care teams, who now have some answering to do, to me!
there are only very few situations where this can happen.
in an emergency of life and death.
if a person is in danger
if a person is suffering dementia
if a person is too ill to be in attendence.
but certainly it should never happen if a person is alive, is of sound mind and has always advocated transparency above everything.
i demand explanations.
i have been through a brutal three years in Wicklow with this team and i want them out of my life, period.
no one should be brought to the verge of cracking under the stress and strain of this service.
no one should be reduced to nightmares about the HSE when the HSE primary concern is health yet its destroying mine!
i have asked the local area member of Dail Eireann to look into this.
I have asked An Taoiseach's office to look into this.
we cannot start having such situations where control is being visited upon persons in this state which leave a person powerless and helpless.
but we have already seen a secret pact in wicklow from the local elections between the two main political parties.
so we know ireland has a long way to go.
transparency is not our greatest asset.
we have the Tuam babies now, which is horrifying the world audience.
we have the catholic church scandals of abuse rampant in an ireland of not yesteryear but only recent and near recent.
we also now are finding out about secret drug testing on unsuspecting babies and children born out of wedlock or placed in orphanages.
there is no excuse i feel to carry on such shananigans in todays world.
Ireland has truly shown its colours
each citizen has his/her own tale.
each citizen has a violation that they can recall instantly if they want.
what can you say openly now?
i say i have had nurses in my bed in hospital.
I say i have been raped in a hospital grounds in Dublin in the 70's not just once but a few times.
i now can say i have had a secret meeting about me.
to determine my need for a powered chair.
now remember, well you cannot for i am unsure if i ever told you...
no medical expert knowledge had been given to the HSE prior to the end of last week, so this meeting was held without any medical information, although in recent days i have passed over this, before i heard of this meeting taking place, but after it had taken place.
the HSE have overstepped the mark by a mile here.
i feel like a worthless pummelled bit of shit.
abused when i should have felt safe.
abused and witch hunted when i should be finding peace.
i am saying right now i am not that in love with the Wicklow HSE.
Wednesday, June 4, 2014
How to become a world Super Power!
well my friends, a commentator states to me that Ireland is a backward nation and the trouble is we do not realise it.
I am trying to think aloud here when i analysis this statement.
We are a small nation trying to be of imperial status.
we can never be.
ever.
we have not 'the history' of experience behind us.
we have not the 'education' over generations behind us.
we have not had TIME to stabilize the way we run our nations business.
We have little confidence in our own ability.
we are trying to be something we can never be - at this stage in our development and history.
but we do have SKILL.
Ireland is KNOWN for all things other than being a super power.
we are trying to get known to being Super!
We are not.
that said, come back to what we have and how we use what we have and use it well -
We produce some of the finest doctors and research scientists in the world.
they move away to be creative workers in the third world and in the top research centres of america and other centres of excellence internationally.
They do not stay here, due to mainly i think, utter chaos of organisation here.
We produce the most loved pop musicians in the world.
they never stay and become tax exiles. this is a waste.
We also produce the finest designers of clothing and hats whose work is desired by leaders, pop stars, hollywood and others.
We have people working in materials which are home grown that would be relished in other nations portfolios.
we have people who understand colour, design, using materials and crafting.
People working in metals, silver and sculpture.
we produces some of the finest writers and poets.
we have some of the best farming land in the world, with farmers who understand the land.
we simply cannot MANAGE.
As a country importing raw materials is a horrendous cost and burden on enthusiastic workforces.
the basic workforce demands too high wages for a small country to sustain and compete with 'super powers.'
We use TIME badly and this is not cost effective.
WE use Communication badly and duplication is all over the place and everywhere, the public service being a case in point.
when we have the setting up of review bodies after review body when things go wrong we are duplicating on costs.
when we get things wrong we incur further costs.
when we do not have solid law and law reforms, things can go very badly wrong.
when we employ 'experts' and yet have people being paid to govern, we are wasting valuable money and it leads to lack of learning, because someone else will do that for us.
We are expecting far too much too soon.
We must learn to use what we have NOW, not expect to be something we cannot be, without experience, history and centuries of trial and error.
We are losing our best through inefficiency of management and greed, expecting high wages of european standard and actually in a lot of cases we pay the workforce far greater amounts here than other countries.
In some instances cannot attract anyone to the top jobs because the chaos of management is so great no one will come and work here and our young people will be attracted to efficient use of their time where harassment, chaos will not be visited upon them, unnecessarily.
We sit on 'policies and proceedures' for decades without passing the laws, agreements and other which will allow us move on and inch closer to modernity and experience.
we have a cultural, skillful, educated brain drain, costing us in economic terms billions.
we cannot continue to sell off our state assets without actually looking at the present moment and seeing how we can retain a force of educated people who leave as soon as ireland has spent millions doing the educating of these people!
When we look at supplying equiptment in the health system -
you can get for half price, wholesale walking aid for those who need walking aids for less than HALF of what it presently costs the HSE to buy ONE!
proven, we have done it, and told this by a member of the HSE.
In Africa a very poor nation, they make their own hearing aids, using the sun to power them. I kid you not, these are cheap and work for a nation that can not afford the top end of the market.
we have skills here in Ireland to do just this in so many other ways.
we can teach a workforce to make all manner of expensive appliances. Not continually repair and repair ones beyond their 'sell by date.'
this too, creates employment and a skilled workforce.
working in metal we can powered wheelchairs, i see no reason for the young are interested in all manner of mobility aids, eg the fast cars, the motor bike and as the young men do, have their heads under the bonnets for hours, tinkering.
this tinkering can become a very useful skill.
Poor products never last!
proven.
maintaining poor products to work on string is not cost effective.
For every doctors appointment you can get two letters stating time and date of these, two instead of one.
Always.
The raw materials ARE in Ireland.
Education.
Skill
Creativity
Brains
Willingness.
We have poor management.
Useless forms of communication.
In some cases we still do pay rolls for a large organisation using a pen and paper fgs!
How long has the computer being invented?
is it used in Ireland?
Yes it is!
so use it to programme the pay rolls in half the time!
paper and pen caveman like is taking up weeks of an educated persons time, when her skill can be utilized to operate more effectively in the job she is trained in.
defunct laws and laws not adhered to.
we prevaricate implementation of most things through utter fear and lack of confidence in our own judgement.
But most of all we have the legacy of 'the brown envelop' or the borrowed cow.
Its a system of 'you scratch my back and i will scratch yours.'
The legacy of poverty and dominion when we needed those who could do us a favour, 'kill the calf and i will clothe you tomorrow' mentality.
This isn't the modern way of doing things.
In modern terms it is called crookery now and we should be past this, 'favourtism' and chronism.
Also, in farmyard parlance we want to put the cart before the horse. It never works.
We cannot expect to be as the UK is for instance.
They ruled the world since time began, and learned along the way.
We ruled nothing and still don't.
So how on earth can we expect ourselves to move on with crookery as our best bedfellow?
How can we maintain our workforce and not lose them immediately they qualify.
Where should we be using our present skills.
Here of course.
We get it right for the workers and we stop creaming the people to pay super powers when we crook our way to the top and it goes pear-shaped on a grand scale.
We do things in a dignified, less devious way and we become confident that learning well and working out how we can do it will in the long term be the best plan rather than being as we act now.
We act as if we want all NOW!
We want to be the super rich super power modern society.
Well, Enda stood up and said 'we are a modern society.'
Sorry Enda, you forget a few things.
We put more people away in lunatic asylums in the 50's than the whole of Europe combined and we still sanction ECT when this is a barbaric method of treatment rejected by most modern societies now.
This is in modern terms, today and yesterday.
We also dump babies in slurry pits and tanks and manage to try and persuade the people that these babies are only resting, we always intended giving them a decent burial!
we do not know how many people we are killing (HiQUA - May 2014)
we are NOT a modern society.
This is the starting block.
not being something we probably never can be or will be.
we have a delusional power base here and a crooked one.
all milking the system rather than improving a country.
If any one had the chance to walk through government building or our Parliament workaday floors, you would be shocked at the opulence.
i have done this on a few occasions, i am astounded at the dripping wealth in architecture, flooring materials and wall coverings.
you think we had an oil rig planted somewhere and the drums being sold to pay for a style that none of Ireland is used to or ever had in their entire life.
we are, as the nuns once told me as a a child during a case of misdemeanour 'acting above your station!'
also in my enthusiasm to get to a hockey pitch i ran hell bent through the school until pulled up short by a nun.
Walk! Ms. Kennedy WALK!
I am trying to think aloud here when i analysis this statement.
We are a small nation trying to be of imperial status.
we can never be.
ever.
we have not 'the history' of experience behind us.
we have not the 'education' over generations behind us.
we have not had TIME to stabilize the way we run our nations business.
We have little confidence in our own ability.
we are trying to be something we can never be - at this stage in our development and history.
but we do have SKILL.
Ireland is KNOWN for all things other than being a super power.
we are trying to get known to being Super!
We are not.
that said, come back to what we have and how we use what we have and use it well -
We produce some of the finest doctors and research scientists in the world.
they move away to be creative workers in the third world and in the top research centres of america and other centres of excellence internationally.
They do not stay here, due to mainly i think, utter chaos of organisation here.
We produce the most loved pop musicians in the world.
they never stay and become tax exiles. this is a waste.
We also produce the finest designers of clothing and hats whose work is desired by leaders, pop stars, hollywood and others.
We have people working in materials which are home grown that would be relished in other nations portfolios.
we have people who understand colour, design, using materials and crafting.
People working in metals, silver and sculpture.
we produces some of the finest writers and poets.
we have some of the best farming land in the world, with farmers who understand the land.
we simply cannot MANAGE.
As a country importing raw materials is a horrendous cost and burden on enthusiastic workforces.
the basic workforce demands too high wages for a small country to sustain and compete with 'super powers.'
We use TIME badly and this is not cost effective.
WE use Communication badly and duplication is all over the place and everywhere, the public service being a case in point.
when we have the setting up of review bodies after review body when things go wrong we are duplicating on costs.
when we get things wrong we incur further costs.
when we do not have solid law and law reforms, things can go very badly wrong.
when we employ 'experts' and yet have people being paid to govern, we are wasting valuable money and it leads to lack of learning, because someone else will do that for us.
We are expecting far too much too soon.
We must learn to use what we have NOW, not expect to be something we cannot be, without experience, history and centuries of trial and error.
We are losing our best through inefficiency of management and greed, expecting high wages of european standard and actually in a lot of cases we pay the workforce far greater amounts here than other countries.
In some instances cannot attract anyone to the top jobs because the chaos of management is so great no one will come and work here and our young people will be attracted to efficient use of their time where harassment, chaos will not be visited upon them, unnecessarily.
We sit on 'policies and proceedures' for decades without passing the laws, agreements and other which will allow us move on and inch closer to modernity and experience.
we have a cultural, skillful, educated brain drain, costing us in economic terms billions.
we cannot continue to sell off our state assets without actually looking at the present moment and seeing how we can retain a force of educated people who leave as soon as ireland has spent millions doing the educating of these people!
When we look at supplying equiptment in the health system -
you can get for half price, wholesale walking aid for those who need walking aids for less than HALF of what it presently costs the HSE to buy ONE!
proven, we have done it, and told this by a member of the HSE.
In Africa a very poor nation, they make their own hearing aids, using the sun to power them. I kid you not, these are cheap and work for a nation that can not afford the top end of the market.
we have skills here in Ireland to do just this in so many other ways.
we can teach a workforce to make all manner of expensive appliances. Not continually repair and repair ones beyond their 'sell by date.'
this too, creates employment and a skilled workforce.
working in metal we can powered wheelchairs, i see no reason for the young are interested in all manner of mobility aids, eg the fast cars, the motor bike and as the young men do, have their heads under the bonnets for hours, tinkering.
this tinkering can become a very useful skill.
Poor products never last!
proven.
maintaining poor products to work on string is not cost effective.
For every doctors appointment you can get two letters stating time and date of these, two instead of one.
Always.
The raw materials ARE in Ireland.
Education.
Skill
Creativity
Brains
Willingness.
We have poor management.
Useless forms of communication.
In some cases we still do pay rolls for a large organisation using a pen and paper fgs!
How long has the computer being invented?
is it used in Ireland?
Yes it is!
so use it to programme the pay rolls in half the time!
paper and pen caveman like is taking up weeks of an educated persons time, when her skill can be utilized to operate more effectively in the job she is trained in.
defunct laws and laws not adhered to.
we prevaricate implementation of most things through utter fear and lack of confidence in our own judgement.
But most of all we have the legacy of 'the brown envelop' or the borrowed cow.
Its a system of 'you scratch my back and i will scratch yours.'
The legacy of poverty and dominion when we needed those who could do us a favour, 'kill the calf and i will clothe you tomorrow' mentality.
This isn't the modern way of doing things.
In modern terms it is called crookery now and we should be past this, 'favourtism' and chronism.
Also, in farmyard parlance we want to put the cart before the horse. It never works.
We cannot expect to be as the UK is for instance.
They ruled the world since time began, and learned along the way.
We ruled nothing and still don't.
So how on earth can we expect ourselves to move on with crookery as our best bedfellow?
How can we maintain our workforce and not lose them immediately they qualify.
Where should we be using our present skills.
Here of course.
We get it right for the workers and we stop creaming the people to pay super powers when we crook our way to the top and it goes pear-shaped on a grand scale.
We do things in a dignified, less devious way and we become confident that learning well and working out how we can do it will in the long term be the best plan rather than being as we act now.
We act as if we want all NOW!
We want to be the super rich super power modern society.
Well, Enda stood up and said 'we are a modern society.'
Sorry Enda, you forget a few things.
We put more people away in lunatic asylums in the 50's than the whole of Europe combined and we still sanction ECT when this is a barbaric method of treatment rejected by most modern societies now.
This is in modern terms, today and yesterday.
We also dump babies in slurry pits and tanks and manage to try and persuade the people that these babies are only resting, we always intended giving them a decent burial!
we do not know how many people we are killing (HiQUA - May 2014)
we are NOT a modern society.
This is the starting block.
not being something we probably never can be or will be.
we have a delusional power base here and a crooked one.
all milking the system rather than improving a country.
If any one had the chance to walk through government building or our Parliament workaday floors, you would be shocked at the opulence.
i have done this on a few occasions, i am astounded at the dripping wealth in architecture, flooring materials and wall coverings.
you think we had an oil rig planted somewhere and the drums being sold to pay for a style that none of Ireland is used to or ever had in their entire life.
we are, as the nuns once told me as a a child during a case of misdemeanour 'acting above your station!'
also in my enthusiasm to get to a hockey pitch i ran hell bent through the school until pulled up short by a nun.
Walk! Ms. Kennedy WALK!
Sunday, June 1, 2014
The Care and Mobility show
this is aimed at the Irish Health Service, both the Health Service Executive and Minister James Reilly and Kathleen lynch who has special responsibility for disability services.
in 'Mature Times' yesterday i see Minister Lynch proudly standing beside a beautiful young lady in a wheelchair, claiming that disability doesn't have to impair quality of life.
OUr Minister is telling us this but who has she heard this from?
MOST in the disability field are telling the MInisters of the day that Quality of Life has gone down the tubes in Ireland for the disabled sector of society during our austerity years.
With blanket wiping out of mobility grants and motorized grants, plus major increases in cost for prescriptions and no provision of adaptive aids the health service is causing hell to all with disability.
Our system is not the same as other countries.
Private health care and insurance goes a long way in most countries, if people can afford this.
Here in ireland we pride ourselves in being able to provide for both those in the public health system and the private health system, but it seems glaringly obvious that both are faulty with the departing CEO of HIQUA stating that 'we do not even know how many people we are killing'
This is frightening.
it should be the destabilizing factor for the Irish population.
Surely if nothing else, knowing that a top inspectorate believes we have a dangerous health system, even capable of killing its patients without even knowing how many we do kill is enough to have many screaming to Dail Eireann gates with open mouths crying. Save ourselves from being killed, those of our loved ones and more besides, from the vagaries of the health service provided in Ireland.
We have such criteria for health that is so low at its base that arguing for the scraps from the table seems the way forward, and reducing a client/patient to shreds in the process.
Reducing patients to near nervous breakdowns is counter to good health, and should be seen as such.
it also should be seen as a human rights issue.
we should not be forced to feel near crack-up, like torture, when we beg for services regarding help and appliances in issues of disability. Disability is not bought over a counter from the sweet jars, its sort of crashes to a person, usually giving an awful fright, but when the services to help do even more and give more fright then we are in deep trouble.
we should not be subjected to vitriol for attempting to plea for aid, as in powered wheelchairs, medication, physiotherapy, support and services.
ALL the requirements that patients with disability need are basic for living.
a means to get around - wheelchairs/ adapted vans, motorised grants, etc.
a means to keep the body healthy and well - proper physiotherapy.
means to feel less pain - appliances, splints, special shoes, eating aids and wheelchairs.
we are NOT talking about open heart surgery, the fine hands of the top surgeons.
we are not talking about transplants or brain surgery.
we are talking about hardwear and some physio.
it isn't a lot.
surely to God it isn't?
The Irish health service is non existent.
This is fact.
Known to be fact.
Feels fact.
Is fact.
waiting three years for a proper wheelchair and all along the way mountains of paperwork, even more requests for documentation and more anger, bitterness and bitching takes its toll on the body, the mind and the psyche.
waiting all the while for services that never come.
It's 'on the edge stuff'.
When i see that the difficulty of the European bank crisis has been paid for through the irish tax payer to the tune of 42% then we have to look at our Health Service as being a European one.
the EU effectively took it away and demand more cuts.
This, Minister Reilly says we cannot do and so the Haddington Road agreement will not be able to be adhered to.
We will again have an overrun of our budget, we already do.
Who can stop this farce that is a european construct and an irish population base of only 4million trying to bail out the whole of the european banks and losing not only our soverignty but also our health?
We can stop this tomorrow, i believe.
We can fight back.
We can demand that change should be made.
We have to stop this fiscal drain from our country leaving resources so depleted we cannot sustain the good health of the nation.
we have to stop Europe being so demanding that they are crucifying us.
in turn our own workers on the ground, in the health service and Minister Reilly's office and Kathleen Lynches office, literally 'lynching' us, the sickies and the disabled.
i am angry at the lack of response, the lack of urgency around issues of health in ireland.
i am also angry at many on say the social media ''facebook" creating such anger if health is even mentioned as to slit throats of those who speak of it, or complain about how bad it is, and it is!
The self righteous attitude of Minister Lynch telling us that disability should not impair our quality of life when she has made our lives a virtually misery!
The self righteousness of those on social media, those of family and those well healed telling all who speak of their health issues to 'get a life,' there are far more worse off.
Well when you and they all say 'get a life.'
All with disability are asking for this, 'to have a life' and many did until austerity and we were crucified during this period and its not letting up.
In times past people did care.
I for one do not feel this now nor does my 87yr old neighbour.
No one does care.
This is why the health service is being diluted and services for those with disability also.
You wont be doing anything but complaining and moaning and crying and screaming if you end disabled in this country of ours.
it is not something that you lie down under believe me, when you feel it, you scream.
I scream.
When i see or talk to those at the Care and Mobility show next weekend i will speak plain speak and say how MInister Lynch, MInister James Reilly have both turned away from two sick, very sick individuals and hardly had time to write or help in any shape or form whatsoever.
I will say this.
I will speak of the state of my present powered wheelchair. This was given almost two years ago, it was then ten years old. It lost a wheel this time last year and died last week, only to have an OT ring and ask if she would send a person to repair it - again, when the technicians report was damning saying it wasn't worth doing that, yet the OT saying thats what she wants done! It was already terminally ill when given to me in the first place!
Irish health, service certainly is never with a smile.
in 'Mature Times' yesterday i see Minister Lynch proudly standing beside a beautiful young lady in a wheelchair, claiming that disability doesn't have to impair quality of life.
OUr Minister is telling us this but who has she heard this from?
MOST in the disability field are telling the MInisters of the day that Quality of Life has gone down the tubes in Ireland for the disabled sector of society during our austerity years.
With blanket wiping out of mobility grants and motorized grants, plus major increases in cost for prescriptions and no provision of adaptive aids the health service is causing hell to all with disability.
Our system is not the same as other countries.
Private health care and insurance goes a long way in most countries, if people can afford this.
Here in ireland we pride ourselves in being able to provide for both those in the public health system and the private health system, but it seems glaringly obvious that both are faulty with the departing CEO of HIQUA stating that 'we do not even know how many people we are killing'
This is frightening.
it should be the destabilizing factor for the Irish population.
Surely if nothing else, knowing that a top inspectorate believes we have a dangerous health system, even capable of killing its patients without even knowing how many we do kill is enough to have many screaming to Dail Eireann gates with open mouths crying. Save ourselves from being killed, those of our loved ones and more besides, from the vagaries of the health service provided in Ireland.
We have such criteria for health that is so low at its base that arguing for the scraps from the table seems the way forward, and reducing a client/patient to shreds in the process.
Reducing patients to near nervous breakdowns is counter to good health, and should be seen as such.
it also should be seen as a human rights issue.
we should not be forced to feel near crack-up, like torture, when we beg for services regarding help and appliances in issues of disability. Disability is not bought over a counter from the sweet jars, its sort of crashes to a person, usually giving an awful fright, but when the services to help do even more and give more fright then we are in deep trouble.
we should not be subjected to vitriol for attempting to plea for aid, as in powered wheelchairs, medication, physiotherapy, support and services.
ALL the requirements that patients with disability need are basic for living.
a means to get around - wheelchairs/ adapted vans, motorised grants, etc.
a means to keep the body healthy and well - proper physiotherapy.
means to feel less pain - appliances, splints, special shoes, eating aids and wheelchairs.
we are NOT talking about open heart surgery, the fine hands of the top surgeons.
we are not talking about transplants or brain surgery.
we are talking about hardwear and some physio.
it isn't a lot.
surely to God it isn't?
The Irish health service is non existent.
This is fact.
Known to be fact.
Feels fact.
Is fact.
waiting three years for a proper wheelchair and all along the way mountains of paperwork, even more requests for documentation and more anger, bitterness and bitching takes its toll on the body, the mind and the psyche.
waiting all the while for services that never come.
It's 'on the edge stuff'.
When i see that the difficulty of the European bank crisis has been paid for through the irish tax payer to the tune of 42% then we have to look at our Health Service as being a European one.
the EU effectively took it away and demand more cuts.
This, Minister Reilly says we cannot do and so the Haddington Road agreement will not be able to be adhered to.
We will again have an overrun of our budget, we already do.
Who can stop this farce that is a european construct and an irish population base of only 4million trying to bail out the whole of the european banks and losing not only our soverignty but also our health?
We can stop this tomorrow, i believe.
We can fight back.
We can demand that change should be made.
We have to stop this fiscal drain from our country leaving resources so depleted we cannot sustain the good health of the nation.
we have to stop Europe being so demanding that they are crucifying us.
in turn our own workers on the ground, in the health service and Minister Reilly's office and Kathleen Lynches office, literally 'lynching' us, the sickies and the disabled.
i am angry at the lack of response, the lack of urgency around issues of health in ireland.
i am also angry at many on say the social media ''facebook" creating such anger if health is even mentioned as to slit throats of those who speak of it, or complain about how bad it is, and it is!
The self righteous attitude of Minister Lynch telling us that disability should not impair our quality of life when she has made our lives a virtually misery!
The self righteousness of those on social media, those of family and those well healed telling all who speak of their health issues to 'get a life,' there are far more worse off.
Well when you and they all say 'get a life.'
All with disability are asking for this, 'to have a life' and many did until austerity and we were crucified during this period and its not letting up.
In times past people did care.
I for one do not feel this now nor does my 87yr old neighbour.
No one does care.
This is why the health service is being diluted and services for those with disability also.
You wont be doing anything but complaining and moaning and crying and screaming if you end disabled in this country of ours.
it is not something that you lie down under believe me, when you feel it, you scream.
I scream.
When i see or talk to those at the Care and Mobility show next weekend i will speak plain speak and say how MInister Lynch, MInister James Reilly have both turned away from two sick, very sick individuals and hardly had time to write or help in any shape or form whatsoever.
I will say this.
I will speak of the state of my present powered wheelchair. This was given almost two years ago, it was then ten years old. It lost a wheel this time last year and died last week, only to have an OT ring and ask if she would send a person to repair it - again, when the technicians report was damning saying it wasn't worth doing that, yet the OT saying thats what she wants done! It was already terminally ill when given to me in the first place!
Irish health, service certainly is never with a smile.
Sunday, May 18, 2014
Waiting to die in Ireland
today i woke at 5.30am.
Dawn had come, all were asleep except I.
walking in the garden so early, with the help of a stick so i wouldnt fall over with sleepy eyes i was profoundly lost.
Here i was in a creation of mine.
Lovely, in every way.
I had constructed from nothing a beautiful garden adored also by the birds which i love so much.
each nook lovely crafted and planted.
a magical shed at the end for all garden sheds are that, they are imagination givers.
but as i wandered in the silence i noted this.
silence.
i smelt moist air, beautiful air but within and without there was silence.
my heart felt empty and broken up.
i felt a lost soul.
In Ireland, for the past decade things happened way beyond my understanding personally.
In Ireland though severely traumatised by events both social, physical and communal i received no help at all.
We vote soon.
where will i place myself in the context of being Irish.
No one should have been battered by state in such a manner as i have and also my dear twin sister.
No one can say 'we are a modern society' and yet in such leave a sick, a single abused woman between alcoholic men to live out her days with a disability.
but not only this, the social housing unit was so tiny no wheelchair would fit, least of all be opened fully in any room.
to place a single woman alone in an enclave of alcholics was wrong.
but morally wrong to leave her when she was subjected to bullying, harrassment, attack and finally being shot at.
appeals for help from state, government, local government, family and church plus the health service all went unheard.
deafened as i am and for which i fully understand its meaning.
i was left work it all out for myself the best way i could.
when i did, by leaving like a war victim i came to a county where further abuse happened.
this times at the hands of the HSE.
a person buying a first home after years in a social housing unit and a person who becomes excited at doing so, believe peace is nigh should not then be made change the structure of it, design of it to suit the health service executive.
No person who spends over 200,000k for her home should be bullied again to do this.
This is exactly what the HSE made me do or wanted to make me do.
after a bitter and drawn out fight i won, because its illegal, simply that, its illegal so someone saw that it was and removed this demand of the services, which is paid by my govenment and allowed by my government to run ruckshod over sick people.
the HSE didnt like losing this battle and now pitch a vengance on a sicker person, a sadder person and a person who wants only to flee again, away from this county that never welcomed me, where i do feel utterly displaced at the end of my life.
the HSE had the power to offer me psychological support, has the power to offer both my twin and i a social worker to help us cope with trauma, change and severe disability.
they also have the power to give us physiotherapy, specialised shoes and proper powered wheelchairs.
they deny us ALL OF THESE.
when i wonder around my beautiful garden in a county where i know noone, where the chance of this are slim because i am tired, burnt out and feeble, and feel no energy left to start all over again, i think of the local and european elections.
i think of Ireland and its choices after selfish, greedy, government abetted rich people burnt out my country and then sold it to the europeans lock stock and barrel what do i feel being here at this time of fatal destruction of a small country.
i feel Ireland betrayed its own.
it cut out vast swathes of its people to the hope of living even half way decent.
it raised the cap on its own earning and lowered that of more vulnerable people.
in essence, the rich are getting richer and the poor are getting poorer.
also at 61 i fully realise that no one does care anymore.
placing a video experiement gone viral in france of what would the reaction be of a man collapsing in the street be of passers by.
we see the actor dressed as a tramp in one and as a well heeled man in another.
we know what happened.
there was no good samaritan.
for the tramp.
they walked on by, all walked on by.
i put this up on a young persons page on face book, i was immediately rounded upon and unfriended.
he objected by whatever i wished to infer by putting it there.
i didnt wish to infer anything, i asked him as a young person to make a comment thats all.
but what he then chose to do delete it, just abouts makes the comment!
we have a society now that doesnt like such major questions of themselves.
who cut throats if anyone mentions social concience, disability or vulnerabilty online.
you are not to speak of it.
only who can mend a washing machine please or does anyone know of a local plumber.
but talk of bigger issues it isnt allowed for all this is so not nice in a world that has enough misery.
actually by acting on all that is so not nice we create a world less full of misery.
getting back to the Ireland of the day, its citizens power of the vote etc.
what Ireland?
what country?
who am i in all of this?
as a person who lived a full 61yrs of dreadful life from cradle to now, with no assistance at all from anyone when ever i was down on my luck and i was down often, i dont exist.
should i vote then.
why should i when i am so abandoned waiting to die in this god forsaken country and county.
well i will, because i believe in it.
i also believe that if you hate something badly enough you will want to change it.
its a loathesome situation we have here in ireland for the 600,000 people with disabilities.
it isnt for the people who object about being asked to make a comment on a social experiement of tramp v. rich.
its dire here for us.
depression for us is just a waking experience and if in pain you dont get away from it in sleep.
you dont get away from the fact that you know, today and tomorrow not a friend will ask if you ok, not a family member will visit maybe with a cake and not a government department will act decently toward you.
but i vote to make change for others now.
if enough cared it would be a better society.
but we have puffed up penquins around now.
those who are too posh to puch.
those who believe only they themselves count
and those who believe the only thing worth acquiring is money.
the falsies have arrived in full and place them there online as selfies.
i vote for change.
i will vote this blasted crowd that ruined lives OUT.
Dawn had come, all were asleep except I.
walking in the garden so early, with the help of a stick so i wouldnt fall over with sleepy eyes i was profoundly lost.
Here i was in a creation of mine.
Lovely, in every way.
I had constructed from nothing a beautiful garden adored also by the birds which i love so much.
each nook lovely crafted and planted.
a magical shed at the end for all garden sheds are that, they are imagination givers.
but as i wandered in the silence i noted this.
silence.
i smelt moist air, beautiful air but within and without there was silence.
my heart felt empty and broken up.
i felt a lost soul.
In Ireland, for the past decade things happened way beyond my understanding personally.
In Ireland though severely traumatised by events both social, physical and communal i received no help at all.
We vote soon.
where will i place myself in the context of being Irish.
No one should have been battered by state in such a manner as i have and also my dear twin sister.
No one can say 'we are a modern society' and yet in such leave a sick, a single abused woman between alcoholic men to live out her days with a disability.
but not only this, the social housing unit was so tiny no wheelchair would fit, least of all be opened fully in any room.
to place a single woman alone in an enclave of alcholics was wrong.
but morally wrong to leave her when she was subjected to bullying, harrassment, attack and finally being shot at.
appeals for help from state, government, local government, family and church plus the health service all went unheard.
deafened as i am and for which i fully understand its meaning.
i was left work it all out for myself the best way i could.
when i did, by leaving like a war victim i came to a county where further abuse happened.
this times at the hands of the HSE.
a person buying a first home after years in a social housing unit and a person who becomes excited at doing so, believe peace is nigh should not then be made change the structure of it, design of it to suit the health service executive.
No person who spends over 200,000k for her home should be bullied again to do this.
This is exactly what the HSE made me do or wanted to make me do.
after a bitter and drawn out fight i won, because its illegal, simply that, its illegal so someone saw that it was and removed this demand of the services, which is paid by my govenment and allowed by my government to run ruckshod over sick people.
the HSE didnt like losing this battle and now pitch a vengance on a sicker person, a sadder person and a person who wants only to flee again, away from this county that never welcomed me, where i do feel utterly displaced at the end of my life.
the HSE had the power to offer me psychological support, has the power to offer both my twin and i a social worker to help us cope with trauma, change and severe disability.
they also have the power to give us physiotherapy, specialised shoes and proper powered wheelchairs.
they deny us ALL OF THESE.
when i wonder around my beautiful garden in a county where i know noone, where the chance of this are slim because i am tired, burnt out and feeble, and feel no energy left to start all over again, i think of the local and european elections.
i think of Ireland and its choices after selfish, greedy, government abetted rich people burnt out my country and then sold it to the europeans lock stock and barrel what do i feel being here at this time of fatal destruction of a small country.
i feel Ireland betrayed its own.
it cut out vast swathes of its people to the hope of living even half way decent.
it raised the cap on its own earning and lowered that of more vulnerable people.
in essence, the rich are getting richer and the poor are getting poorer.
also at 61 i fully realise that no one does care anymore.
placing a video experiement gone viral in france of what would the reaction be of a man collapsing in the street be of passers by.
we see the actor dressed as a tramp in one and as a well heeled man in another.
we know what happened.
there was no good samaritan.
for the tramp.
they walked on by, all walked on by.
i put this up on a young persons page on face book, i was immediately rounded upon and unfriended.
he objected by whatever i wished to infer by putting it there.
i didnt wish to infer anything, i asked him as a young person to make a comment thats all.
but what he then chose to do delete it, just abouts makes the comment!
we have a society now that doesnt like such major questions of themselves.
who cut throats if anyone mentions social concience, disability or vulnerabilty online.
you are not to speak of it.
only who can mend a washing machine please or does anyone know of a local plumber.
but talk of bigger issues it isnt allowed for all this is so not nice in a world that has enough misery.
actually by acting on all that is so not nice we create a world less full of misery.
getting back to the Ireland of the day, its citizens power of the vote etc.
what Ireland?
what country?
who am i in all of this?
as a person who lived a full 61yrs of dreadful life from cradle to now, with no assistance at all from anyone when ever i was down on my luck and i was down often, i dont exist.
should i vote then.
why should i when i am so abandoned waiting to die in this god forsaken country and county.
well i will, because i believe in it.
i also believe that if you hate something badly enough you will want to change it.
its a loathesome situation we have here in ireland for the 600,000 people with disabilities.
it isnt for the people who object about being asked to make a comment on a social experiement of tramp v. rich.
its dire here for us.
depression for us is just a waking experience and if in pain you dont get away from it in sleep.
you dont get away from the fact that you know, today and tomorrow not a friend will ask if you ok, not a family member will visit maybe with a cake and not a government department will act decently toward you.
but i vote to make change for others now.
if enough cared it would be a better society.
but we have puffed up penquins around now.
those who are too posh to puch.
those who believe only they themselves count
and those who believe the only thing worth acquiring is money.
the falsies have arrived in full and place them there online as selfies.
i vote for change.
i will vote this blasted crowd that ruined lives OUT.
Saturday, May 17, 2014
we have an election my friends!
We have an election folks.
the Local elections and the vote for our representatives in Europe take place next week.
This time it is important.
As a disabled woman living in Ireland i can say how it feels to be 'under' the cloud of austerity and 'under' this present regime.
To me nothing is clearer....we do not count to the government of the day, even though many have voted them in, voted them their salaries, their pensions and top ups, for LIFE and yet what do they do when in, they decimate the life style, equality and living standards of practically most at the bottom strata of society.
These being, the sick, the disabled, the vulnerable, the elderly and the children,
How do i know this?
Because i fit into many of the above categories here. Disabled in Ireland means i am terrified as each new day passes.
How has it been then for me in the past few years - what have they cut that was vital and what have the cut that was inconsequential.
Of the latter, nothing.
of the former just about everything.
Medication now is almost beyond what i can afford and as i pay, its a huge cut out of a fixed income, an income never likely to rise even if the cost of living everywhere is rising ahead of it.
ceoliac foods have been sliced from the prescription list
mobility, this is the van, this van takes two very sick and weary individuals who use mobility scooters/wheelchairs/rollators or sticks depending how depleted we are on the day.
I used to get the tax back on my petrol. this is no longer so. this was a huge perk because it also made me save this as it came back to me in lump sum, and went towards Insurance of the van or servicing of the van.
Now i hear that the Primary cert for those most effected by ill health will no longer be a qualification to get that TAX and VRT exemption on a van or transport vehicle, this too was enormous and helped get the next when your own clapped out.
presently mine has and the worry has shot through the roof.
Lets stay on mobilisation for the while.
my twin and i have tried in vain to work with the so called Department of Health, namely the HSE.
Health service, operative.
the faceless and nameless admin who have been bullied by central government, aided and abetted by Europe and Angela Merkle to cut their cost and budgets have turned their angst and distress directly back to the customer, the disabled in the community.
we, my twin and i have a very rare condition.
do you think we can have a normalised conversation about mobilising with the HSE?
No we certainly can not.
They have been told to cut their budget, it doesn't then matter a feck if that saving is at the cost of two older women who need powered wheelchairs, for a multi systemic condition and muscle wasting.
it is almost two and a half years or more since i was given a clapped out powered chair which only months later went into a wall opposite the hospital i was trying to get to to see my neurologist.
then after that battle royal with the HSE and bullying to hand back a mobility scooter, because i cannot have both at the same time.
well the clapped out wheelchair had such a dire report of it by technicians just before Christmas i am now left with a lethal machine of 11yrs old which loses body parts regularly and the hse couldn't care a jot if i go into more walls, under cars or tip out of it.
Yet despite a so called moving towards a universal health charge and demanding everyone has an insurance policy i already do!
it isn't fancy and its the last year i will have it, again central government in their brilliant ways have stopped a subvention to the insurance company and almost doubling my insurance payments. so i wont be able to afford it.
yet i do have it presently, i tell the hse this insurance can get me about three quarters of a wheelchair, they would only have to pay a quarter.
this is called effective cost cutting measure especially as its replicated by another saying she will do the same.
in over six months or more we cannot get the hse to discuss this although they say they could but then 'who would own it?' i guess to them they say they do, just like the scooter for which i had paid over 450e to maintain it yet forced to hand back to hse without any reimbursement.
we need the wheelchairs.
no assistance have they offered to date on this.
nothing. zero.
impossible to do business with them.
that my friends is due to austerity, the cuts, what the gov of the day in cahoots with Merkle has done to us here on the ground, very much on the ground.
We will stay on health for a minute.
just in case American people may not understand how the health system works here.
we have a public health system for those who cannot afford health insurance.
but some have both.
for fear mostly because there isn't anything left of a public health system!
as a person who has had significant amount of trauma in past three years i cannot get psychological support, the help of a social worker, physiotherapy nor shoes.
i still have no proper supportive shoes, almost six years, and i have deformed feet.
its not for the faint hearted to beg and battle for all of this.
they begin then to hate you with a passion and withdraw more just for spite.
if you say professionals would never do that, come live in Ireland and see how it works.
a society very much based on 'you scratch my back and i will scratch yours'
i think i have strayed a bit.
ELECTIONS
i cannot keep up with the onslaught of charges, extra taxes and stuff.
water charges for a person with crohns, dystonia and severe pain.
house insurance.
prescription charges
all the help with transport gone.
ditto for the elderly they cannot get to hospital appointments without going on bus, dart and then walking, even if 90yrs old, one gentleman has to do this regularly around these part.s
i cannot keep my body safe or in tone or tune with its decline.
i have no professional physiotherapy,
no shoes and no support.
i am in pain, a lot of it.
Minister for health with his delightful set of measures which Ireland cannot sustain at all is firing on all cylinders to basically bring down the health service.
hospital waiting list rocket.
casualty closes with 90 people one night and no where to treat or put them.
a single relative cannot sit now with a sick person in the A'E room, how ghastly to face terror there alone without one family member by your side. this is obscene.
we have homelessness like never before.
food banks which never existed before.
repossession without almost any way round this other than turf people out of their homes.
children have lost assistance in the classrooms, speech and language therapies, special needs kids go without and its never ending.
we have this German company now asking 'has your child still got Downes Syndrome' or 'has your wife still got Muscular Dystophy; i kid you not.
the country has bottomed out under this government.
nothing left here for anyone and the best are going in droves.
we have done this entirely to ourselves without a squeak from the populace.
Merkle and wrangled her ways into Ireland affairs.
Kenny likes being liked by Merkle.
we cannot stand the sly little divil at all!
nor do i think our minister for health is a beacon shining in the dark, he is positively dangerous for health.
People are feeling the need to slash throats on the Facebook pages saying they are sick of the moaning about disability because we do this, we don't moan, its fact what is happening.
but they are sick of it!
they voted this, they didn't protest and the country as a result is on its knees.
everything that was precious has now been sold to the highest bidder.
china are here, America are here, so too German.
We are everywhere but not here.
Irish people excel everywhere but here!
we are famed the world over for intelligence, innovation, invention and much more and everything goes twinkle green for a day from Dubai to hong Kong.
but Ireland is still in crisis, never got out of crisis since it became independent.
so we have elections.
the MEPs are well, they don't actually work for the people that well.
We STILL have not ratified the convention on human rights for people with disabilities. about the only one not to.
they say they will help you so write to them.
three years on a certain wheelchair user as an MEP hasn't even so much as responded to my correspondence when i beg for help on wheelchairs.
Nessa Childers has asked me recently what is the prob but i told her many months ago but election time now do we get help, i very much doubt it but i am awaiting the surprise that i do.
we have a young lad going up too for the job of MEP, he does seem to be aware of disabled persons plight and is in government but never once voted against the cuts to people with disability, he is riding on the disability ticket.
i am not an idiot and neither is the rest of Ireland.
no amount of sweet talking gets my vote.
they have crucified me, my friends and more besides.
they have ruined a wonderful ethos of care that once was treasured in Ireland by acting way beyond this in a clinical, hatchet fashion of not an ounce of consideration for the least able in society.
you wont be getting my vote.
i want the lot of you OUT.
the Local elections and the vote for our representatives in Europe take place next week.
This time it is important.
As a disabled woman living in Ireland i can say how it feels to be 'under' the cloud of austerity and 'under' this present regime.
To me nothing is clearer....we do not count to the government of the day, even though many have voted them in, voted them their salaries, their pensions and top ups, for LIFE and yet what do they do when in, they decimate the life style, equality and living standards of practically most at the bottom strata of society.
These being, the sick, the disabled, the vulnerable, the elderly and the children,
How do i know this?
Because i fit into many of the above categories here. Disabled in Ireland means i am terrified as each new day passes.
How has it been then for me in the past few years - what have they cut that was vital and what have the cut that was inconsequential.
Of the latter, nothing.
of the former just about everything.
Medication now is almost beyond what i can afford and as i pay, its a huge cut out of a fixed income, an income never likely to rise even if the cost of living everywhere is rising ahead of it.
ceoliac foods have been sliced from the prescription list
mobility, this is the van, this van takes two very sick and weary individuals who use mobility scooters/wheelchairs/rollators or sticks depending how depleted we are on the day.
I used to get the tax back on my petrol. this is no longer so. this was a huge perk because it also made me save this as it came back to me in lump sum, and went towards Insurance of the van or servicing of the van.
Now i hear that the Primary cert for those most effected by ill health will no longer be a qualification to get that TAX and VRT exemption on a van or transport vehicle, this too was enormous and helped get the next when your own clapped out.
presently mine has and the worry has shot through the roof.
Lets stay on mobilisation for the while.
my twin and i have tried in vain to work with the so called Department of Health, namely the HSE.
Health service, operative.
the faceless and nameless admin who have been bullied by central government, aided and abetted by Europe and Angela Merkle to cut their cost and budgets have turned their angst and distress directly back to the customer, the disabled in the community.
we, my twin and i have a very rare condition.
do you think we can have a normalised conversation about mobilising with the HSE?
No we certainly can not.
They have been told to cut their budget, it doesn't then matter a feck if that saving is at the cost of two older women who need powered wheelchairs, for a multi systemic condition and muscle wasting.
it is almost two and a half years or more since i was given a clapped out powered chair which only months later went into a wall opposite the hospital i was trying to get to to see my neurologist.
then after that battle royal with the HSE and bullying to hand back a mobility scooter, because i cannot have both at the same time.
well the clapped out wheelchair had such a dire report of it by technicians just before Christmas i am now left with a lethal machine of 11yrs old which loses body parts regularly and the hse couldn't care a jot if i go into more walls, under cars or tip out of it.
Yet despite a so called moving towards a universal health charge and demanding everyone has an insurance policy i already do!
it isn't fancy and its the last year i will have it, again central government in their brilliant ways have stopped a subvention to the insurance company and almost doubling my insurance payments. so i wont be able to afford it.
yet i do have it presently, i tell the hse this insurance can get me about three quarters of a wheelchair, they would only have to pay a quarter.
this is called effective cost cutting measure especially as its replicated by another saying she will do the same.
in over six months or more we cannot get the hse to discuss this although they say they could but then 'who would own it?' i guess to them they say they do, just like the scooter for which i had paid over 450e to maintain it yet forced to hand back to hse without any reimbursement.
we need the wheelchairs.
no assistance have they offered to date on this.
nothing. zero.
impossible to do business with them.
that my friends is due to austerity, the cuts, what the gov of the day in cahoots with Merkle has done to us here on the ground, very much on the ground.
We will stay on health for a minute.
just in case American people may not understand how the health system works here.
we have a public health system for those who cannot afford health insurance.
but some have both.
for fear mostly because there isn't anything left of a public health system!
as a person who has had significant amount of trauma in past three years i cannot get psychological support, the help of a social worker, physiotherapy nor shoes.
i still have no proper supportive shoes, almost six years, and i have deformed feet.
its not for the faint hearted to beg and battle for all of this.
they begin then to hate you with a passion and withdraw more just for spite.
if you say professionals would never do that, come live in Ireland and see how it works.
a society very much based on 'you scratch my back and i will scratch yours'
i think i have strayed a bit.
ELECTIONS
i cannot keep up with the onslaught of charges, extra taxes and stuff.
water charges for a person with crohns, dystonia and severe pain.
house insurance.
prescription charges
all the help with transport gone.
ditto for the elderly they cannot get to hospital appointments without going on bus, dart and then walking, even if 90yrs old, one gentleman has to do this regularly around these part.s
i cannot keep my body safe or in tone or tune with its decline.
i have no professional physiotherapy,
no shoes and no support.
i am in pain, a lot of it.
Minister for health with his delightful set of measures which Ireland cannot sustain at all is firing on all cylinders to basically bring down the health service.
hospital waiting list rocket.
casualty closes with 90 people one night and no where to treat or put them.
a single relative cannot sit now with a sick person in the A'E room, how ghastly to face terror there alone without one family member by your side. this is obscene.
we have homelessness like never before.
food banks which never existed before.
repossession without almost any way round this other than turf people out of their homes.
children have lost assistance in the classrooms, speech and language therapies, special needs kids go without and its never ending.
we have this German company now asking 'has your child still got Downes Syndrome' or 'has your wife still got Muscular Dystophy; i kid you not.
the country has bottomed out under this government.
nothing left here for anyone and the best are going in droves.
we have done this entirely to ourselves without a squeak from the populace.
Merkle and wrangled her ways into Ireland affairs.
Kenny likes being liked by Merkle.
we cannot stand the sly little divil at all!
nor do i think our minister for health is a beacon shining in the dark, he is positively dangerous for health.
People are feeling the need to slash throats on the Facebook pages saying they are sick of the moaning about disability because we do this, we don't moan, its fact what is happening.
but they are sick of it!
they voted this, they didn't protest and the country as a result is on its knees.
everything that was precious has now been sold to the highest bidder.
china are here, America are here, so too German.
We are everywhere but not here.
Irish people excel everywhere but here!
we are famed the world over for intelligence, innovation, invention and much more and everything goes twinkle green for a day from Dubai to hong Kong.
but Ireland is still in crisis, never got out of crisis since it became independent.
so we have elections.
the MEPs are well, they don't actually work for the people that well.
We STILL have not ratified the convention on human rights for people with disabilities. about the only one not to.
they say they will help you so write to them.
three years on a certain wheelchair user as an MEP hasn't even so much as responded to my correspondence when i beg for help on wheelchairs.
Nessa Childers has asked me recently what is the prob but i told her many months ago but election time now do we get help, i very much doubt it but i am awaiting the surprise that i do.
we have a young lad going up too for the job of MEP, he does seem to be aware of disabled persons plight and is in government but never once voted against the cuts to people with disability, he is riding on the disability ticket.
i am not an idiot and neither is the rest of Ireland.
no amount of sweet talking gets my vote.
they have crucified me, my friends and more besides.
they have ruined a wonderful ethos of care that once was treasured in Ireland by acting way beyond this in a clinical, hatchet fashion of not an ounce of consideration for the least able in society.
you wont be getting my vote.
i want the lot of you OUT.
Wednesday, April 9, 2014
being shot at has destroyed my life
there is no doubt that when you are a victim of crime, as i was you get traumatised.
but this criminal was eleven years of age.
after shooting at me over five times, for thats the amount of pellets i found near my swingseat where i was lying and at very close range, you begin to wonder how such a young kid felt it ok to do this?
deaf and very tired i lay there with my two chihuauhuas, but i also had my camera in my lap and she and her wee boyfriend were tormenting me.
i lifted the camera and shot her shooting me.
this was a housing unit for a disabled single woman, abused twice in life by a priest and another and also been in psychiatry due to that trauma alone.
you can only take so much.
this social housing unit was offered to make my quality of life better and i was persuaded to move by a health official of the HSE, who wasnt even around at the time of the agreed transfer.
no health official available on the day for advice and i set myself in for mighty trouble.i
i didnt want to move EVER and certainly once i agreed i still didnt want to move far from where i had grown up.
where i had spent fourteen years of being a sick adult trying to cope.
against consultants wishes i was outted and badly outted.
then suddenly the HSE decided this was a housing issue not a health issue and closed the case.
so a health issue was a health issue at the start but once housed it ceased to be even though the housing was causing me to vere toward suicidal thoughts and a nervous breakdown.
simply put they got out and off the case for utter convenience and left me to sort the mess myself.
i did with the help of a sister with parkinsons.
we sold one property divided the money and bought two bungalows.
we left the county of my birth, the county i adored.
i quickly landed in further HSE trouble in my new country who then decided that i had to reconfigure my new home i had bought for my disability by having a hole in the ground for a bathroom when i needed a bath to soak dystonic and painful muscles.
they interferred again.
they didnt to the sister because she had once worked and had doctor in front of her name.
believe me we are in an evil society where health officials give sick people no peace whatsoever.
where officialdom refuse point blankly to stand up and be counted but would far rather kill people off than face blame for destroying lives.
i am speaking here strongly against the Irish HSE who did just that.
they killed me off.
they effectively detroyed my life, caused me pain beyond endurance and there is no letting up.
i meet one this friday for a seating assessment for a powered wheelchair, this worker's coworker gave me a wheelchair from hell that lost a wheel and careered into a wall and with me in it.
i fully am aware that daily i get more hits on my blog.
spread the word.
i want the HSE held to account for murder.
this is the truth.
murder.
no it isnt too strong a word.
when you kill a person to the point of just being a carcus that has a bit of blood in it but nothing more then you have destroyed a life, and they have done this period.
I will face the HSE and never ever pander again to their gross behaviours.
i say, get out of my life.
you are here to serve the sick.
you are here to serve ME, and i am not here to be bullied, intimidated and battered in fear, anxiety pain and grief.
you are an evil bunch and i have no difficulty making this statement.
you are evil.
because of you i lost the street i adored, the county i was crazy about and the knowing that people were there i could say hello to but here there is you and there is myself lost in a place i do not know, where i know no one and where i had hoped i would make a fresh start.
again you didnt even allow that happen.
to me, what i think of you i am stating here.
destroyers, evil and unaccountable.
feeling blameless as the type of files they write up amount to slander.
feeling blameless because if they cannot help solve a difficulty they get out of the heat.
feeling blameless because they refuse to acknowledge anything and will to their own dying day try to make others believe that they are lilywhite.
to me, black stone.
do you think i sound angry.
i do.
and am
but this criminal was eleven years of age.
after shooting at me over five times, for thats the amount of pellets i found near my swingseat where i was lying and at very close range, you begin to wonder how such a young kid felt it ok to do this?deaf and very tired i lay there with my two chihuauhuas, but i also had my camera in my lap and she and her wee boyfriend were tormenting me.
i lifted the camera and shot her shooting me.
this was a housing unit for a disabled single woman, abused twice in life by a priest and another and also been in psychiatry due to that trauma alone.
you can only take so much.
this social housing unit was offered to make my quality of life better and i was persuaded to move by a health official of the HSE, who wasnt even around at the time of the agreed transfer.
no health official available on the day for advice and i set myself in for mighty trouble.i
i didnt want to move EVER and certainly once i agreed i still didnt want to move far from where i had grown up.
where i had spent fourteen years of being a sick adult trying to cope.
against consultants wishes i was outted and badly outted.
then suddenly the HSE decided this was a housing issue not a health issue and closed the case.
so a health issue was a health issue at the start but once housed it ceased to be even though the housing was causing me to vere toward suicidal thoughts and a nervous breakdown.
simply put they got out and off the case for utter convenience and left me to sort the mess myself.
i did with the help of a sister with parkinsons.
we sold one property divided the money and bought two bungalows.
 |
| oh let me be here again and forever |
 |
| hugging Killiney |
they interferred again.
they didnt to the sister because she had once worked and had doctor in front of her name.
believe me we are in an evil society where health officials give sick people no peace whatsoever.
where officialdom refuse point blankly to stand up and be counted but would far rather kill people off than face blame for destroying lives.
i am speaking here strongly against the Irish HSE who did just that.
they killed me off.
they effectively detroyed my life, caused me pain beyond endurance and there is no letting up.
i meet one this friday for a seating assessment for a powered wheelchair, this worker's coworker gave me a wheelchair from hell that lost a wheel and careered into a wall and with me in it.
i fully am aware that daily i get more hits on my blog.
spread the word.
i want the HSE held to account for murder.
this is the truth.
murder.
no it isnt too strong a word.
when you kill a person to the point of just being a carcus that has a bit of blood in it but nothing more then you have destroyed a life, and they have done this period.
I will face the HSE and never ever pander again to their gross behaviours.
i say, get out of my life.
you are here to serve the sick.
you are here to serve ME, and i am not here to be bullied, intimidated and battered in fear, anxiety pain and grief.
you are an evil bunch and i have no difficulty making this statement.
you are evil.
because of you i lost the street i adored, the county i was crazy about and the knowing that people were there i could say hello to but here there is you and there is myself lost in a place i do not know, where i know no one and where i had hoped i would make a fresh start.
again you didnt even allow that happen.
to me, what i think of you i am stating here.
destroyers, evil and unaccountable.
feeling blameless as the type of files they write up amount to slander.
feeling blameless because if they cannot help solve a difficulty they get out of the heat.
feeling blameless because they refuse to acknowledge anything and will to their own dying day try to make others believe that they are lilywhite.
to me, black stone.
do you think i sound angry.
i do.
and am
 |
| It was so impossible to cope in a unit fit for a mouse. eight floor boards between fire and only comfortable chair. two rooms, to live in such a tiny unit you were not even able to open fully a manual wheelchair! |
 |
| the exhaustion etched on my dear twin's face as she helps me move out, even then there was no physical help for two women with chronic disease and life threatening illness. Disgrace |
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