HSE medical treatment and personal history made pathological

i have nothing to hide, nothing to be ashamed of and know i have a chequered history.

it is when this history becomes pathologised then i will speak out.
when i say that all should be aware of something before it ever happens because sure as eggs is eggs when it happens its very difficult to deal with.

I was born with severe deafness and was very shy young lady on leaving school.  i didnt do well when i left a sheltered environment and its because of my profound deafness that both my skills as a diplomatic communicator was nil, but also my social communication was so poor i was left out of everything.
i became depressed about it all.
we were in the 70's then, not a particularly enlightened era (but then what i am experiencing now tells me this era isnt either!)  i entered the psychiatric system as there wasnt any such thing as psychology then, psychiatry was the only discipline open to us who were finding life tough to adjust to.
decades of medications and not a lot of living i left that and went for therapy, i was  fifty.

fast forward again i became very ill and pretty much no one knew what was happening and i was a bit of a mystery.
i was told to take the anti-depressants and with that left at home with not a lot else being provided.
i did receive an apology from the psychiatric services, they tell me i should never have been there.
i asked why was i and if they realized nothing much was changing for me why didnt they change their heavy regime of  over medicating.
they had no answer to that.
with the apology i asked the director of care did she not think it was a bit late, i now was unable to walk much and was on sticks and i then graduated to wheelchairs and more besides.

but i did get far with therapy and began to feel far happier.
nothing prepared me then when i became so physically unwell.

it is ongoing.
there is inuendo as to my past history.
doctors with a specialty of neurology and rheumatology regularly state stuff about suggesting i attend psychiatrists and i do refuse these suggestions and have a right to.  this is seen both negative but to suggest it in the first place is out of order for i am not mentally ill and never was.
the rheumatologist puts down my breathing issues as possibly my underlying anxiety disorder but i never was diagnosed with this either, either when young or now and i see no one now who have the skills to determine this so how on earth are these statements ending up on my medical notes?

they should nt be.
but my history dictates that all within the medical field can say it with conviction when they know once i was and maybe now i need it as i had once before, but i can say i was offered an apology.

no, of course that too isn't believed.

what makes it even more alarming i seem to have some condition that doesn't make sense and no one seems to be able to determine why i am so ill.
now i have already been told i may never know.
but i do want to.
because unless i know the innuendo will remain that this is some kind of fabrication.

when you get notes under foi which you are legally entitled to do, you could weep so you could.
the jury has been signed in, the executioner is whatever medical discipline i have been to and sentence passed without any proof nor without any expert opinions being sought.

the sentence is read out by the least qualified of the courts, the head of the jury but the judge of course has already directed the jury.

i remain pathologized.
and unless i can find vindication from somewhere i don't think i can live in an archaic system where such things are allowed that mistruths, suspicions around sanity, reality and pathology are blurred.

to me there is one way of dealing with a symptom and there is only one way of dealing with it.
you tell a person who is best to advise what it may be.
you ask for help and you are so friggin naieve that these 'experts' will believe you that you trust them to find out why you are having the issues you are having.

but when the doctors fail to care for you, fail to advocate for care and fail to write letters on your behalf and conducting tests to rule out certain things then we know we are in for a terrifying end of life scenario, this is little ireland.
the doctors are mini gods, you simply cannot question them and most don't.

but that doesn't also make it right for them to imply that anything i should say is either psychiatric or anxiety disorder,  neither of which i have and never did.

i was a shy young immature lady in my twenties, extremely deafened and already been sexually abused so i was frightened of entering adult life, again these do not make one mental, nor anything near it.
talk about counting five plus five make five hundred?

but this is ireland.
it could very well be every other country because those who enter psychiatry can never get away from their history.
try being a self injurer as i was then.
well that is instant loopers status, even though i am now in my 60's it still means i am permanently loopers because i show permanent scars.
what say anyone that i got out of that behaviour and took charge?
what if this is what happened, and it did happen, can you ask others to believe you or even by demonstrating responsibility for ones own life can you prove it you have taken charge.
not at all.
you will and always will be the looper.

this is pathologizing an individual to death.
and that worries me because i see i could die from this.
i could be ignored and could die.

it does and can happen and i am an extremely worried woman.
i have that right to be.
i believe i have every cause to be.

HSE and Consent

i want to make a few things very clear.
this is so that others know and understand their legal rights.

YOU DO have rights in Ireland, they are there and lets not be blinded by the facts that are placed out there  in the lives of many a sick person here in ireland.

I am going to concentrate on the ones that failed me and for which i suffered very badly and because of this i want to warn others of various ways of finding out your rights.

Ok, so you or your loved one is sick or disabled or elderly and wish to apply for an adaptation grant to your home.
up until recently this grant applied for all with a disability, not just to certain brackets as those who use a wheelchair.
these included those with sensory issues, learning disabled, asperger syndrome and mental illness, they also covered problems within the living spaces that are not confined to the bath areas, they include adaptations to the whole home, whether it be the bathroom, the space, the lack of space and the various type of illness disabilities you are applying under.

If you are sick and disabled you do need advice, but be sure you know its advice you need and remember NO state body can ever tell you what you have to do to your home in order to avail of this grant aid.
there may be stipulations, but the ROLE of the Occupational therapist, and you are advised to get one on board, is just that ADVISORY, its not compulsory, there is no compulsory order for you to biff out your home according to his/her plans (HSE OT) and especially without your consent.

they have no rights in law to decide what you have to do with your home and there is no law to disallow  you be present during discussion regarding your own home.
this is actually totally illegal.
they CANNOT ban you from being present at any meeting that takes place when your home is being discussed, this is illegal.
(it is also illegal if they attempt to keep you out of decision making regarding a relative, a sibling or about care or otherwise, you are the important person when it concerns you and your own family, you are not allowed be usurped by the HSE for any reason whatsoever, at all times you have legal rights to be present at meetings and your consent is enshrined in law.
they cannot ban you from the health centre for any reason whatsoever, this is a public place.

they cannot send in any plans regarding your home, any reports regarding your home without your prior approval, your input and without due regard to both your wishes and your disabilities, in total your wishes and disabilities, not concentrate on one.

Remember at all times you DO NOT have to get the public OT on board even to do the advising, you can get a private OT, and there is a short supply of public OT's so a private one is just as acceptable, at least then, the state will not collude against your wishes.
remember, its happened to me and it is illegal.

Fact 2 regarding dealing with the HSE

try and get a second person on board to help you at all times when negotiating around health and health care, there are many good organisations out there and many good people usually alongside a second relative its good to have these people on board, but remember most are being paid by the HSE so trod with extreme caution.

we have both the Centre for Independent Living, Inclusion Ireland and the Disability advocates within the national advocacy service.

also refer at all times to the Citizens Advice Bureau and if in doubt make an appointment to see a solicitor there at the CAB offices in your area or contact Free Legal Aid.

Keep every single piece of correspondence you make with the HSe.

Date all documents you write and keep a copy filed accordingly.

Register every single letter you send and if you speak with an official follow it up with a letter regarding content of this vocal dialogue.

Never meet a HSE official on your own, ever.

Insist repeatedly on getting copies of your file notes under FOI you have this right and you have the right to have this sent to you by a certain time frame and if you have not you are legally entitled to know why and make complaint about this and seek legal advice.

remember too, know the limits placed on you where you can complain to because consistently the complaints processes are not adhered to, half undone if done at all and there is also a legal time frame you can take a case of injury against the HSE.

that is not to say all issues you have can be dealt with as you wish they could but other avenues remain open, you can contact media, make vocal and video recordings of your experiences after the fact, you can place on video your feelings about the wounds and the hurt and the injustice as they are being played out, remember to to 'voiceover' time, date and when and where they occurred.

one day your voice will get heard, those who persist will be heard.

as i write this i am very aware that i put my URL on the bottom of every single email i send including to the HSE.

they come in here i have no doubt.

they know me and they know that i will never let up until justice is seen to be done.

do not get despondent, do not believe just because we have not sanctioned the Human rights convention for the rights of those with disabilities that in law you have no rights, you do.

you have them under the Constitution of the land, look this up in every case of mishandling of your affairs.

you have the 'fundamental rights' which Ireland is a signatory and within the EU you have also rights because we signed up to the EU charter and many laws there, apply to us too, we have rights.

The human rights commission is considerably watered down under the present government and in my mind are in complete and utter disarray.

the Ombudsman's office ditto, its been weakened and there is less cohesion there too i feel.

The equality tribunal is not equal, unless you have pots of money to fund a solicitor you have little right to equality in law here because the hse will descend on you with a ton of bricks and can legally run all  over you in the space of a minute because they have a very weighty legal department and its the largest employer in ireland so in terms of equality its very unequal and you are but a fly in the ointment.

remember too there are places to go to find out rights.

NUI galway and a disability and law unit and many there are incredibly helpful.

most disability organisations will be able to tell you how to cope with the hse and manage your dealings with them.

but be warned, its a very very hard road, and they want you to give up.

they want you to fail.

it is about being true to yourself and your integrity.  if you have been harmed the truth will come out, someone it will and someone will bring it out even if you feel it never will be heard, it will.

never be afraid.

many are in the same boat.

and to make sure you are going to improve the state of hte nation, do not vote this present government back in because what they have done to the legal system, the human rights commission, the equality tribunal and how they weaken the citizens who have least ability to fight is a crime against the citizens of this state.

angry, you bet i am.

about consent:  this is the national policy regarding consent on all levels of healthcare;
Know your rights.

National Consent Policy

What is Consent?

Consent is the giving of permission or agreement for an intervention, receipt or use of a service or participation in research following a process of communication about the proposed intervention.

Why is Consent important?

Consent must be obtained before starting treatment or investigation, or providing personal or social care for a service user or involving a service user in teaching and research (all defined as ‘interventions’ for the purpose of this policy). This requirement is consistent with fundamental ethical principles, with good practice in communication and decision-making and with national health and social care policy. The need for consent is also recognised in Irish and international law.

Other than in exceptional circumstances, it is important to note that treating service users without their consent is a violation of their legal and constitutional rights and may result in civil or criminal proceedings being taken by the patient. Such exceptional circumstances relate primarily to emergency situations where it is necessary to intervene in the absence of consent in order to preserve the service user’s life or health, or where the service user lacks capacity to give personal consent and a decision is made in his/her best interests.

What are the requirements for a valid consent?

In general terms, the constituent elements of a valid consent are:

Decision-making capacity
Disclosure of information
Comprehension
Voluntariness
Agreement
In everyday health and social care practice, circumstances arise which may challenge frontline staff in seeking informed consent from service users. These may relate to, for example, carrying out an assessment of the capacity of the service user to give consent, uncertainty regarding the age at which consent may be given, what legal issues arise regarding children of unmarried or divorced parents, children of minor parents, wards of court, and so on.

What is the aim and scope of the National Consent Policy?

The National Consent Policy provides one overarching HSE policy to guide staff. The need for consent, and the application of the general principles in this policy, extends to all interventions conducted by or on behalf of the HSE on service users in all locations. Thus, it includes social as well as healthcare interventions and applies to those receiving care and treatment in hospitals, in the community and in residential settings. How these principles are applied, such as the amount of information provided and the degree of discussion needed to obtain valid consent, will vary with the particular situation.

Further information

Link to National Consent Policy and guidance documents

Who can I contact for more information? 


Quality & Patient Safety Division

OWN UP....WHO STOLE IT?

today is Tuesday 3rd November 2015, doing a bit of mathematics here i am on this planet now nearly 63 years!  just think of it, thats a long time.
ok then.
i will tell you another fact of MY life, its not a life!
ok then.

If this is the FACT of my Life at 63yrs of age i want to ask my friends who come peek in and see what i have to say, to have their say on it all.
it matters.
on many levels it matters.

well, for starters MY Life matters to ME if not to anyone else, it does to me.
It matters because experience outside of my own might be the very experience i need to move this 63yrs on to 64yrs as a happier adventure.

the criteria for your ADVICE as in 'the bloggers agony aunty and uncles write back' are many.
To be considered....are.....
1.  the blogger is sick....i mean....very sick.
2.  the blogger tires easily....that effectively means she is flat on her back, sleeping alot
3.  the blogger gets depressed....(no, one of your suggestions cannot be head straight to the psychiatrist, can't stand the breed and believe they are more dangerous than the Life itself).
4.  the blogger is cash strapped....in common language....the blogger is basically out of cash.
5.  the blogger has a sister, twin in fact.
who is..
1. 2. 3. (same applies) 4. and 5.

This blogger needs to regain her joy, the joy of life, the joy of being, the joy of where i am, where i live, etc.

so its a tough task i have set you all.

Find my life and give it back to me.
i have lost it.
many years.
i know its not under a stone or yet under the gravestone or headstone.

its just gone missing a while for a bit.
a bit too long, like.

i kinda want it back.
so i am asking for a road map, as in Treasure Island style, not for money, for my Life...Back.
Ideas.  A task force for Ideas.

the world is spinning as we speak and as i know it is, so too is time.
its running at equal earth shattering speed and before i collapse with a menieres attack i want to live a bit better.
Joy its called.  Well, i think its called that.  it was called that the last time i felt it.

but it may not be here anymore as also i think i am not the only one losing their joy, but then in real terms, the task is to help this one blogger find hers.
it may seem selfish to ask for my life back please, but i think its important.

It cannot be found under a stone (i don't think) because it was never there, before now.
it was up there with blue skies and sunny days, in the head department.
its gone to me boots.

What can I DOOOO.....................................to get my life back?.....................Please.

If your life depended on it, will you suggest how to find my life, give me the road map.
(or two even)
there is a shortage of road maps.
I have two on the ledge above the drivers seat of my van, but they are no good.
i need yours.

have you got one to spare then?
i hope the hell you won't say 'no, i haven't.'
i hope its because you are not the equally selfish git and won't allow me in on it or into a type of Joy thats gone missing from my road, map and life.

i want a sort of "how to build"
I want a sort of "where to travel"
I want a sort of "how to find friends"
or something like, Life on a shoe string,"  "Life with no life at all"  "Life with dogs"  not "its a dogs life life, but with dogs"

I want the sun over my head (not strong now cos i don't like strong sun) but there nonetheless.
i want blue skies too.
Not gray, and don't bother telling me i am asking for too much because we are heading into winter, one that the experts advise will be the worst in living memory.
i tell you it couldn't be worse.

I am going to give you a few pictures to sort of help you on your way with the Ideas and road maps.
everyone likes pictures.
everyone loves pictures.
so after i show you some pictures to give you ideas, i then want yours.
as in send back your ideas for me by way of comments and you could get another picture.
you will get a 'thank you blog'  (doesn'

I understand, yes i do, i REALLY do!

And i love you very much...

DON'T YOU WORRY ANA, I HAVE YOU BY THE PAW

BACK TO BASICS - WHEN THE HEAT GETS TOO MUCH - WE CAN SHARE THE FAN

VICTORY WAS SWEET, JOY BRIEFLY BUT WHY OH WHY DID EVERYONE CRASH OUT AS WELL AS WIN THE BLOODY MATCH!

THAT'S A FLOWER, AH I TOLD YOU I LIKE FLOWERS.  DIDN'T I?

WHEN I GOT SICK FRST I HAD MY TEETH, JOY AND TWO DOGS, THERE IS ONLY ONE THING I CANNOT EVER GET BACK - THAT'S THE TEETH!

SHE'S OK, TOLD YOU THAT, I WILL KEEP HER, THE ONE ON THE RIGHT, SHE IS A 'REAL' DOCTOR!I AM ON THE LEFT, ITS  MY JOB TO ADD 'COLOUR' BUT THEN ITS YOUR JOB TO TELL ME HOW - AGAIN!

I TOLD YOU, YOU CANNOT REFER ME TO THE PSYCHIATRIST, - I TALK TO DUCKS - SO?

JOY IS.......STICKING FAST TO WHAT IS GOOD FOR YOU!

JOY IS BEING ON THE TOP OF THE WORLD
(THATS A HINT)

JOY ISN'T - CRASHING THE VAN AND NEARLY ENDING UNDER A STONE.  JOY ISN'T PUTTING THE PICTURE IN SIDEWAYS AS IF IT (THE VAN) HAD TUMBLED, WHICH IT DIDN'T, IT JUST HAD A FATAL COLLAPSE, (SO TO SPEAK), IT DIED, ACTUALLY.

t have the same ring as 'thank you letters,' but then we are actually out of that time zone now for good i think).

i am praying now that the ideas will be good.

I like photography, people, sheds, nature, sea, driving, the sister and my dogs.
those are hints by the way.
i like sometimes, diy and upcycling and repurposing and tidiness.

I want a new van and a proper usable wheelchair.

after that my life is in your hands.
well before that my life is in your hands.

i will await.
for your Ideas.

'mustn't grumble'.......why not?

Is it particularly Irish to hold back and not grumble?
What is so awful about saying it as it really is?

If it is not like this, then you wouldn't need to grumble because then there would be nothing to grumble about.
therefore, Grumbling is, usually 'voicing a truth no one wants to hear'  rather than 'grumbling over nothing.'

A funny thing also about 'grumbling' those who 'grumble' are reminded by others, of the dying, the starving, the homeless and the cripples.
That is so you put things in perspective.
But 'Grumbling' is relative, as are levels of 'grumbles' and where one 'grumbles' and about what.

to me, as a person who has a strong social conscience, who hates crookery, deprivation, injustice and cruelty i still have issues.  I want to 'grumble.'
And why?
Because simply put we all have 'issues'  and some 'issues' are worse than others, but remain a grumbling troubling boil - on the bum-er of life itself.

Grumbling IS fair.
its not fair to compare for instance, pain which is caused by disease as against pain which is caused by a snapped spinal cord injury.
Has anyone ever heard this one 'now you would have something to grumble about if you were "Joe Blogs, he can't get out of a wheelchair."
Maybe he cannot.
I am not saying he is having the life of fun, hilarity and is anyway joyful he cannot get out of a wheelchair.  i think its fecking awful he cannot, but maybe he might see it differently, he might say he is bloody lucky not to be dead.
That's the difference.  We cannot presume someone is actually worse off.

therefore we also have to say the levels of grumbles are as variable as there are different continents on the planet and different ways of living and the troubles relative to the different people on the planet.
no two will be the same.
So end of lecture and the beginning of my grumble.

To me its a pretty big grumble.
I am profoundly depressed about it and i mean it.  I can say this in a depressing announcement or i can say it in a quirky way.
it doesn't really matter, hence the way one says it doesn't determine how bad it is.

to me to be honest i am falling apart at the seams.
I am telling my listeners what place i was in and how my life is panning out.  A decade ago it all began.
It wasn't that brilliant, but then i don't think any person has it plain sailing.
It certainly wasn't as traumatic as i am finding it now.

it was my home, my community, it meant the world to me

I was then settled in more ways than one.
i was happier than i was say, growing up. I was happier than I was when I tried and failed to work in the normal sense of the word.   I was as happy as I could be given the circumstances I found myself in.  I was in a real community that bothered and i bothered about them.   A lot.
I felt safe, I felt also needed and i felt  held by my community.

I didn't have a family, I knew really they didn't care, but did I need it (i did actually but even today I know that this may be a bit unrealistic though I need them more than ever), i don't think they are going to actually be there for me.
but i was happy then.

a new laptop awarded by the ADF which attempted to have me continue being creative.  It did until some eggit in the HSE decided i needed to move away from a place I loved

i got very unwell.
here is the biggest grumble on the planet.
i got so unwell i was using a wheelchair and a mobility scooter more and more, and i was languishing horizontal more then ever and the studio was gone and my painting days were over.

my older sister had died some ten years prior to this and my dad left me a tiny town house in a posh side of town, but why move when i felt really good in the secure community i was in.  It was also owned by my twin, who had her rights on this as well.

mags, my twin sister, when she was not yet unwell at the time, helped me decorate the home i loved when i lost my studio and became so very depressed about it all

but what happened next was like something out of a horror film.
there are two very large organisations in Ireland, both state funded therefore state er, funded.
the county council and the HSE.
Which is worse is anyone guess but definitely they have a very 'Irish thing' in common.
Responsibility and 'ownership of mistakes' isn't high on their agenda.

What happened next shouldn't have happened.
The person writing this blog wasn't in social housing for nothing.
I come from a rich and well educated family, so if i too am educated...and i am, it goes without saying that something must have happened.
we use the term in this little country as well, 'down on her luck'  but it was more than that.
i crashed out of living and life, i wasn't able for it.  i was drowning in society and now i understand why even if i didn't then.
so I became so unwell I nearly fecking died on the stairs of this social housing unit.
They were becoming too much for me.
Ending in hospital three times had the OT persuading me that my life wasn't worth living if i could be dead in the morning from them stairs.
Well that's fine i suppose and not a bad notion, in theory, that i could have been dead on them stairs, one poor man was and did die on them stairs across the way.
a 'unit' (that's what a home that is given by the state is called here, a unit ffs.)  came free downstairs.
it was similar to the one i had upstairs, so i didn't see it as much of an issue to move downstairs and ask to move downstairs.
well the council thought it a very big deal actually.

i seem to need AIR but this was before i knew why, i had developed Primary Sjogrens Syndrome, the first of a long list of ailments i went on to develop and Ireland left me to rot.  i had to leave the country to get this diagnosis and others.

they saw it as a big issue.
despite three consultants in medicine reminding the council and the HSE that  I would not deal well with change and  not to move me from a community i felt good and secure in and that my needs were such that i shouldn't be moved away from it.
well sod the consultants says the council, more or less because the did sod the consultants and moved me anyway.

I always loved nature, plants and always wanted a garden, but not at great expense, which was proven to be the case.  Sunflowers never thrived here with the cars and their fumes.  you have to give me some marks and them too for even trying.

and where was the HSE, well they were no where to be seen, they were once begging the council to leave me on the street i loved after that then they left me to it.

it played out like a bad dream.
it was a bad dream, far too bad.

I found myself alone, very alone.
There was  no one helping me move downstairs at all so much so i was shifted out of the area altogether.   Not only that i was shifted to an area which was all male.  I was a vulnerable woman, single, once sexually abused by a cleric was being moved there while most of the little vulnerable children were moved out.
so what is the difference between threat to a child and threat to an incapacitated woman in an enclave of alcoholic men i say?
well either could be dead, from any manner of issues.
i was dead really because as soon as i got there i was dead.

Finally i was shot at.
So the council says to the HSE that 'we didn't manage this well,'  like bloody hell they didn't.
the HSE said 'we am distressed by all of this.'
One thing though neither found it their place to shift me out of there once i was shot at.
oh and I have the evidence of a gun slinger on the wall, for i didn't know what was happening as i am very deaf except i was being harassed.   Up went my camera and i shot her.  Yep it was a girl gun slinger.

I hit her between the eyes.
she was a lousy shot for she left five bullets around my swing seat and two more by the back door.
I was target practise i suppose.
I wasn't dead but i wasn't staying there either.

so i got nine points  and put back on the list for rehousing.
i was told by another HSE OT that i would be dead before they would find me a place to live.

losing the garden but i had lost my soul so what did i care right at that point

when a neighbour said i would never be able to grow anything, that the kids would rip em all up.  They didn't. They had great respect for me, i loved them.   I left presents for each child that i grew to love and they who loved me. why did they not rip up all my plants and cause me that harm?  These were younger but when i left a large table out which wouldn't fit into this new place they battered it to bits.  So angered was I, I went to every home in that cul de sac and demanded the kids write an apology and bring it to my door within 24hrs.  They never thrashed another thing belonging to me again. 

so i felt i didn't want to be dead before that.
we sold the small town house and after all my life living in one county sick, depleted, stressed to the point of a nervous breakdown i moved to a different county.

Yes, there is a human being on this sofa, its my twin, now with a diagnosis of Parkinson's disease, she was living at that time in the house we owned but we had to sell this.  she had no where to live until we both found a home.  She spent eight months on my sofa and it was a small sofa.  There was 'Family' who could have put her up, if they cared.

well no it didn't end here.
well its as if i am withering under the weight of depression, isolation, distress and despair.

but i know not a sod person cares a shit  i was left to it all.  There wasn't a lot i could have done.
So now i am here in this county.
No it doesn't end there because this county's HSE got at me.
I kid you not i have been very unfortunate.

name calling comes to mind, some very suspect stuff put on my medical files and no answers at all but more stress and strain from an organisation that i loathe now with all my might.
i think, well, what i think of the HSE is very evil  and dark thoughts indeed.

yes, there are some nice people within the organisation, but the organisation has one god and that is the organisation itself.
it doesn't really matter if its about people, the Irish people's health which they are all about.
Most forgot that part long ago, including this Government who cite Article 18 section something as to why they cannot get involved with the hokery pokery that is going on with a lot of sad and stressed and diseased and disabled ill in this small land.
Its not their problem according to them.
But then so too is it not the HSE problem, nor the council?

well its someones problem because once i was happy and now i am not.
Not only that, i am miles away from all i know and in the middle of the sticks, with no friends or even one person i know.
i am too sick really to start all over again and i miss my old life.
the life the consultants told them that i would not be able to leave and they are right.
so I am now in the life that the consultants said to them, both the HSE and the council that i wouldn't be able to adjust to.
I am not and i havent, they were right so.
that's my grumble.  i am sticking to it.
its a big one for me.
if i am now angry as well, who could blame me.

the grumble is this.
there isn't one single glorious thing i can think of that is relevant to this country, the state operatives, and the HSE.
there is one person who is also suffering, and partly because i am suffering and partly because she wasn't dealt a great hand once she met the HSE after the NHS, which to her and my eyes is a damn sight more civilised than the HSE.
i rest my case.
Ah, i will end on a better note, after well over two centuries we have or are about to get rid of the Lunacy act, i kid you not.   Many are incredulous about this one too, that it took so long!  They call it 'an embarrassment.'
Yep, we still have lunatics here in Ireland but we shall be getting rid of the lunatics soon.
 unfortunately not the ones in the HSE or the Government.  But those who are lunatic through no fault of their own shall be decently called what they always should have been called long ago, human beings who just happen to be learning disabled or mentally ill.
Not lunatics at all, now or ever but its taken us all this time to scrap a constitutional law they didn't know how to go about scrapping, until two centuries later, they couldn't wrap their little brains around that one so how on earth could they cope with little Ann eh?
god forbid how could they?

You could have said the same about me at the same place at the same time.  'Do not move'

we left -
but arrived at a new type of hell, with the same hell from the HSE, but even that was in complete contrast to the old type of hell. one more innocent. This kind definitely not innocent.

Men v. Women The war of the sexes - in H.......

Is the writer a woman? Does she own these dogs?  Is she therefore a wimp?
Answer - the writer is a Woman. Be warned -  The Writer ain't no pushover

Well,
there are many wars to be honest, between men and women.

if i am right and the hits on this title are large, we all seem to know about them.

Did you know of one particular one though?

Health?

Well, Women know about this alright and its also a proven one, the war is on..... Men!

Its not so much a war, but it is definitely about 'some mothers do have em'  and its about men who are doctors, and i am concentrating on one country, Ireland.

its a fact.
we are an incredibly misogynist country.

but it seems its also in politics and religion, of the latter the whole WORLD knows about that particular war, the fairer species is inferior.

but is it too about 'Trust?'
are women to be trusted.

is that what it is, rather than a war AGAINST women.

is it that we are inferior because we are not to be trusted?

or is it about 'Intelligence?'

Is it that we are stupid that we are not to be trusted and there is a war on.

or is it about 'Being Liars?'

Is it that, we are stupid, we lie and therefore cannot be trusted?

or, wait again, is it about Hormones?

We are stupid, we lie, we are not to be trusted because when our hormones flare we do too, therefore we are inferior!

its none of these things.

In fact women do better, in Ireland in science and maths in the Leaving certificate.
We work harder - fact.

Is this a Doctor?  Is this a Man's Dog or is it a Woman's dog?
the answer ..............This dog is both a doctor and it belongs to a female, who is not a doctor!

Is this a doctor?  Is this a man's dog or a woman's dog?  This is a Doctor!  YES!  SHE is a WOMAN!
this dog is a woman's dog, belonging to a woman who isnt mad on Irish Male Doctors!

therefore we are bright, if not brighter than men.

can we be trusted, well we can actually because we are trusted all the time with little helpless babies, its men that are not to be trusted with them!

is it because we are not strong.

we are actually, very strong.  Why do i say this, because as soon as there is trouble in the camp when it comes to children, men usually just walk away.
if a child is disabled the men walk out.
women don't, they stay, the face it - for better or for worse they face this.

Do we lie?

well no, no more than men, we are trusted to have a bank account for instance.
and we are more trusted to deal in finance and why do i say this?

because what brought this country down were men, male bankers, all of them.
so too the developers, and the housing trade, men, all of them.

so why when it comes to health we are 'perceived' as lying, whinging, stupid, weak, mentally defective and lazy?

its a good question, innit?

and i think the men should begin to answer them square on.
because, i can!
I am bright, intelligent, fair, strong and mentally able.  I am also practical and do not lie.

that's why i can say what i say.
the men are at fault in all of this.

Men chose to see women as weak, feeble, liars, hormonally strung high and daft as a brush.
I chose to see men as misogynist.

because they are!

How do i say this regarding health care and health and medicine.
here is why.

because i have been dealing with two health care systems for the past few years therefore i know men treat women dreadfully badly when they are doctors in Ireland as opposed in the UK, in the NHS.

here is the difference and here is the proof.

I go back as far as 2008.

can you tell the difference?  who may need a psychiatrist?  Is it the women in the wheelchair or the man with a book on his head?

this was my first trip out - i had to get out because Ireland left me for dead, i was to return home and take the anti-depressants.
it didn't matter that at the time i was a wheelchair user and couldn't get out of one!
that's entirely beside the point!

i went to London.
i was treated courteously, i was treated with a friendly embrace (not physical) but it was embracing and wonderful.
within five minutes and a bit of a chat i was diagnosed with Primary Sjogrens Syndrome.
whether it was because Ireland didn't know about this condition or didn't bother to test for it i am unsure.
but it only took five minutes!
i kid you not.
confirmation came with the bloods, but if the Irish had looked at the bloods they would have seen what i saw and which saw me head for the Lupus Centre, immediately i could.

Is this a Woman?  Is this a Doctor?  Is she Mad or an Artist?  This is a woman, who is NOT a doctor, but yes, she is a Mad Artist!

I did not do seven years medical school nor did i do my internship or be a registrar in any hospital.
i just took the same piece of paper with the same blood tests results that all Irish doctors had and i researched.  it was Lupus to me, but ah i was wrong but nearly right so that's clever with no degree so it is, it was sjogrens syndrome, the same spectrum of autoimmune diseases.
it should have been easy peasy to an Irish medic, we are supposed to be trained up well.

anyway a year later i was walking and back for review in the UK.
i was greeted with outstretched arms - they couldn't believe it, i was not in a wheelchair, i came into the room walking.
'my miracle patient!' said the consultant.
not really, i was just treated and under treatment and it was working.

but of course that wasn't the only thing happening and i had considerable muscle wastage.

back in Ireland i was left, i have now been out a few times, and all these outings brought a diagnosis.

OK then after five days in a side room in an Irish hospital i was told to go home and lie in a darkened room, my symptoms were probably migraine.
well there is a vast difference between menieres and migraine.
now even the Irish should know this one.

no i didn't do the research on tis but the next time out they discovered it.
yep, simples.
well it should have been to Irish medics.
they do diagnose menieres disease.

but in my case i was left in a side room.

the bit about dodgy genes and the fatigue, i was simply told i had ME.
well, no i couldn't said a guy from Imperial college UK, if i already have crohns i couldn't have ME.

but there is more to it than this.
its the way the Irish walk too that is different, that is the Irish doctor, they walk funny, see.
the men do anyway.

is this a woman?  Or...Is this a factory made tin woman pretending to be a woman?
Its brainless, therefore its not a woman, its tin, therefore its not a woman, it doesn't not have blood in its veins, therefore it is not a woman. It's a Tin woman NOT pretending to be a woman

In the UK they walk well, well they walk well beside the patient as they push her, yes A WOMAN back to the ward, they actually do not go all paralysed at the thought of walking/pushing a wheelchair back to the ward, and pushing a woman no less.

they do it, and they speak as if you have intelligence, about all manner of things, including travel and art.
here they wouldn't do that, or couldn't, i have yet to determine.

Do Wheelchairs move suspended from ceilings?  Are wheelchairs pushed?  Who is usually in them?
No, wheelchairs are not usually suspended from ceilings, they stay firmly on the ground.  They can be pushed (by a man or a woman!)  Sick or Disabled used them (no, not always those who cannot use their legs, eg spinal cord injury)
finally, do wheelchair users usually wave hatchets?  YES and NO!  Believe me there are many reasons why they can and sometimes do  not or chose not to.
its also physically impossible to swing from the ceiling in the horizontal position.

but they don't walk you to the ward.
they never push a wheelchair
cos they cannot walk that well nor speak that well to a woman patient, or wouldn't.

Who are these Women?  Are they Sick?  Why are they in the same bed together?
They are Ann Kennedy and Dr. Margaret Kennedy
They are Sick.
They are saving NHS Laundry (NO), they are sharing the only Fan on the ward!
Would Male Twin brothers who are Adult do this?
NO!

 another thing too.
they dont sit cross legged at the feet of a patient.  let alone a woman.
but they do that in the UK, even consultants.
especially if they are examining legs.
no this isnt sexists, its about doing a medical exam on legs.
they get down the level of legs, bare ones at that, of a WOMAN!  oh my, such a difference, such a shock.
And not only that, but they collaborate.
they actually do joined up thinking, they talk to a lesser species as if she is actually an equal.
ha!

no in ireland they wouldnt do that, or couldnt.
they will not work alongside a physiotherapist, that is rarely, i knew one female doctor working with another female doctor, together in the one room.
but never with a male doctor.

they just do not do it.

Men do it so so differently here.
they like to stick to the one room, they feel outside their comfort zone if they do not see a patient in a room which has a desk between patient and himself.

Doctors here, consultants, ask you at every consultation what medication you are on.
over 'there' they do not.
they may do once, the rest of the time, its written in stone, that is on file so they can refer to it, before a consultation.

its surprising too cos in the uk they have a good deal more patients than here.
i mean, we have only roughly four million, given that a million are in effect healthy.
in the uk they have about 50million, given that eight million are healthy.

Is the Owner of this Foot a Woman or a doctor?  is she a Liar, ignorant, feeble, cheat or hormonal?
Does she need a Doctor, a physiotherapist, botox and proper shoes?
The owner of this foot is a Woman.  the Owner of this foot is a Doctor.  She is NOT a Liar, She is Not Ignorant, she is Not feeble, NOR a cheat Nor Hormonal, the hormones are as dormant as most Irish doctors (males that is)

so its not that we are ignorant, weak, feeble, mad as a march hare, liars or cheats, that they treat us as if we are.
its because they perceive us to be liars, cheats, feeble, mad and hypochondriac.
they chose to do it.
the part that tells me one thing about the inferior versus the superior bit is, they dont push wheelchairs.
they simply wouldnt do it, its beneath them.

i call this absolutely pathetic so i do.
some of our most famous scientists and doctors have been female.

and i will leave one note to dwell on here with pure joy to be hold.

Every single condition that i have now presently, has been diagnosed in the UK.
nothing in Ireland.
Bar of course, hypothyroidism, which i think would be easy and crohns which is dead easy cos you can be absolutely sick as a parrot with that and i had to have surgery.
but, here is the catch, he didn't believe i was feeling unwell on the day of discharge.

what happened, my wound burst three days later and i was back in hospital.
i nearly flipping died.

we have the most amazing male doctors in Ireland.
someone should say something about this, i really think they should.
they could even do a doctorate on it.

it would be such a revealing thesis, but i think my blog wins me that doctorate.
i have it in one.
men are too posh to push - in Ireland
they don't trust women.
they are misogynist in Ireland.....Finally.....Would you TRUST these Dogs?

No, especially the one on the left, SHE BITES both Male and Female!

Who is stealing the Irish Crown Jewels?

I think your nuts are being stolen......!

Mulling about life in Ireland today i think of a few things only.

the state of the nation
the state of our health care system
the state of community.

and with that once thought upon i also thought too a fact.   Its all wiped off the map, entirely.

we are now claiming to be celebrating 100 years of Freeeeeeedom, from oppression and dominance and subjugation and annihilation.

ha, in the last decade alone Ireland seems to have lost all it had gained in a particular way called yes, corporate affairs and the EU, we are subjects of Europe and we have been annihilated.

we have sold our souls to the highest bidder.
we did this because 'they' the ones at the top thought it would be the only way we could get rich.
they thought that we needed to be rich.
the also thought we needed to be the same as every other country and started feeling sorry for themselves that we had not achieve world class status.

what it has achieved to this end, that is world class status, is completely lost the run of themselves and so lost the country too.
we are lost.

so i got thinking of what Ireland has or had and what Ireland is and isn't and what Ireland could be great at when all else fails and all else has failed.

Ireland is tiny.
teeny weeny in the scheme of things.
but with an ego and arrogance matching humpty dumpty with no brain at all.

We are a small country folks, i mean really small.
to put it in perspective a very worthy notable in the neurology field Prof. Orla Hardiman pointed out wisely and correctly, that there were more neurologist in Mongolia then there are in Ireland.

we could and should have more.
but we are small and have not actually looked after the people who are sick with neurological decline.

but we do tend to lose things, and medical expertise is down the tubes as well.

i digress.
what do we have?
lets look at the saying 'the land of saints and scholars'
it might have been a bit of a gloss on crookery (which we really DO have) but its quite noteworthy and actually classy to be saintly and scholarly i think.
we could make it a world class act if we really tried instead of believing we can be like America or Germany or Russia.

we are not
we are teeny weeny itsy bitsy yellow polka.
that small.

we have no natural resources, (oh yes, we do actually but we have just sold all that to Shell who shall export it all OUT).
we have no minerals, or mines.
we have no land oil, but we have gas fields.

the vultures are already here pecking at that big time.

we could become the centre of learning, the centre of study and research.
we also could be a world class act of telling and showing how the christian ethos has not died, its living in a secular society that actually cares about its people.

now this is what i call 'feeling the heat'  for better or for worse

we could be a shining light.
this is expensive, this is world class, this is leadership and leading the way for all the world which alas is following Ireland - oh i laugh out loud!
the world has gone mad.

but so too has Ireland.
so what do we do after we have got rid of Ireland, and i think we already have done that.

we might fully understand our foolishness when the pigeon comes home to roost

i am not sure but nearly certain of this.

we could contemplate each other in a meaningful way and stop the march of stepping over the homeless bodies, as New York is familiar with now for decades when we once were not.

we could knuckle down and train up ~(well) the medics and the staff and researchers which could lead us to be world class in healthy living and leadership in nutrition, care, consideration and community.
these are valuable commodities.

its not hypothetical, i am deadly serious.

i am dying of the cold so i am, i best crawl to the A'E there is 'heat' there.

while we are choking in the A'E's right now we are seriously a dying nation.
so we have to use what we once had, if not in the same format but in the same idealistic way and away from that ridiculous notion that we are actually important - now.
we are not important.

how important do you think Ireland is.

to Europe we are, because they are taking all our money and our country, they are nicking it from us right from under our very noses.

did i say 'egg heads' or did i say 'poppy heads'

but we are not important and the egg heads in the government thing we are, the slimy devils actually believe we are so so wonderful it is unbelievable.

well, i don't believe it, so its unbelievable to me.

will someone take note of what Ann is saying here.
will the rest of Ireland cop on.
we are a tiny bead in a vast sea of mostly plastic and we are polluting our heads and minds with notions of grandeur above our station.

we are tiny.

if you look carefully we (ireland) are located on the second right hand branch of the middle bare tree but we are that bud at the tip

i have said that now a few times.
we are green, is that better?
we are a tiny green little isle in a vast sea, we are unattached.


presently i am not in love.