when the Irish simple do not understand words, phrases and ideologies, it has to be explained. Manure Curley Carrot does this.

Wisdom from a Carrot

Meeting the HSE

By

Manure Curley Carrot-Top

It is a

 Bunny

 old World

Playing the dumb carrot

Ms. Curley Carrot-Top has this definition of playing the dumb carrot – by example lies therein the truth of ‘playing the dumb carrot:

‘what do they mean by ‘ongoing physiotherapy?

Curley Carrot-Top is not fooled – so tries to offer assistance in the task of understanding.

From FACEBOOK

to   HSE

Respondents to this question have answered the following:

Regular

Consistent

Long term

Should mean it is happening

Webster Dictionary: continuing to exist, happen or progress. Continuing without reaching an end.
Continuous, ongoing and regularly

Continuous. Frequent. Repeated.

·       Oxford dictionary definition:  Continuing; still in progress. Eg ‘This consultation remains ongoing and as a result, no date has been set for closure.’

SYNONYMS (oxford dictionary)

in progress, under way, going on, continuing, happening, occurring, taking place, proceeding, being done, being worked on, being performed, current, extant, existing, existent, progressing, advancing, evolving, growing, developing

Misunderstanding can get in the way….

                       stamp

                       stuck

                       here

                       (irish)

Postcard from ‘Sunnyside Up’

Dear Mammi,          .      Ms Carrot

Wish you were here.  .      c/0 CHO6

The sun is bursting   .      Dublin

Bright in the skies    .      code unsure

Burning me to a      .      (try the

Frizzle.  I left the   .      postman- 

Lotion in the bath-   .      very

Room.  Guess there  .      reliable)

Is no point in         .

Sending it on.         .

You wont recognise  .

Me when you see me  .

Me skin hurts, I may  .

Need you.              

Love Curley  

                                           stamp

                                             stuck

                                           here

                                            (irish)

A postcard from ‘Sunnyside Up’

Dear Mammi,           .

Its pissing out of     .     Ms Carrot

The heavens, stayed  .     c/o CHO6

Indoors, goose bumps.     Dublin

Like the measles.     .     (I know the

need your soup.      .      area code

Second thoughts –    .     but too cold

Maybe not.             .     to think (so,

                               Ask local

Love Curley                 postman

                              (they know

                               everything).

HSE Logo 

here                               

Dear Mr. Minister for Health (Teachta Dala),

Them twins are getting a ‘skilled professional service.’

This is the definitive version.

And if you believe that – you will believe anything.

Yours sincerely

Acting head of Disability

Area CHO 6

(‘acting head,’ secunded from Mental Health – the real one is on pregnancy leave.  Rest assured, she has paid her stamps and is full of entitlement).

The manure bunny trap = venus fly trap

There has to be song in this one, if there was it goes something like this, (goltrai), I do believe.

John Steinbeck once wrote that "they're a dark people with a gift for suffering way past their deserving", about the Irish. I couldn't help but agree with him on this quote.

John Steinbeck, who be the Derk People?  Is it the HSE or the suffering?

Manure Curly Tops Carrot’ will explain the Dark side of the dark people who inflict suffering way past OUR deserving.

‘Barney McKenna - I wish I had someone to love me

Christy Moore – Natives

"For all of our languages, we can't communicate"

This is for the education of the Minister for Health and the DG of the HSE, it clearly is needed in spades.

Emphasis is on the spade or the shovel digging for this.

(shovel is drawn here and a spade for comparison)

Fake news

by Manure Curley Carrot-Top:

1

the Irish meaning of:

  10th Anniversary of the adoption of CRPD: 2006 to 2016

  The Convention follows decades of work by the United Nations to change attitudes and approaches to persons with disabilities. It takes to a new height the movement from viewing persons with disabilities as “objects”  of charity, medical treatment and social protection towards viewing persons with disabilities as “subjects” with rights, who are capable of claiming those rights and making decisions for their lives based on their free and informed consent as well as being active members of society.

The Convention is intended as a human rights instrument with an explicit, social development dimension. It adopts a broad categorization of persons with disabilities and reaffirms that all persons with all types of disabilities must enjoy all human rights and fundamental freedoms. It clarifies and qualifies how all categories of rights apply to persons with disabilities and identifies areas where adaptations have to be made for persons with disabilities to effectively exercise their rights and areas where their rights have been violated, and where protection of rights must be reinforced.

AN ROINN DLÍ AGUS CIRT AGUS COMHIONANNAIS
DEPARTMENT OF JUSTICE AND EQUALITY

Down with that carrot says the Minister with ‘special’ responsibility for those (in Ireland) with a disability.

E.g. In other words, plain (Irish) speak “Fuck THAT!”

2 

HSE

Safeguarding Vulnerable Adults

All adults have the right to be safe and to live a life free from abuse.  All persons are entitled to this right, regardless of their circumstances. It is the responsibility of all service providers, statutory and non-statutory, to ensure that, service users are treated with respect and dignity, have their welfare promoted and receive support in an environment in which every effort is made to promote welfare and to prevent abuse.” ‘Safeguarding Vulnerable Persons at Risk of Abuse – National Policy and Procedures’.

In December 2014, the HSE launched its safeguarding policy for older persons or persons with a disability that, as a result of physical or intellectual impairment, may be at risk of abuse.

The “Safeguarding Vulnerable Persons at Risk of Abuse  - National Policy and Procedures”, which applies to all HSE and HSE funded services, outlines a number of principles to promote the welfare of vulnerable people and safeguard them from abuse.  These include a requirement that all services must have a publicly declared “No Tolerance” approach to any form of abuse and must promote a culture which supports this ethos.

 Down with that carrot says: 

(HSE logo here)

(HSE Logo

Here)

The Director General of the HSE and Mr.Pat Healy

3

In other words, plain (Irish) speak “Fuck THAT!”  add HSE Logo here please!

4

“A Strategy for Equality”

The Report of the Commission on the Status of People with Disabilities

“We, as people with disabilities, are shouldering our responsibility to ensure that disabled people are “included” as full citizens in Ireland. It is now time that everyone else joins this process, so that we can all live and participate together as equal members of society”.

This Report is an equality strategy which will, if implemented, set about removing the barriers which stand in the way of people with disabilities who want to live full and fulfilled lives. It will also benefit greatly the parents and carers of people with disabilities. The Commission’s strategy involves legislative solutions, proposals for new policy initiatives and new structures for delivery of equality services within a framework of rights, not charity. The Commission has developed a model of service which places the user of those services at the centre of the process of service delivery, from the planning stage right through to implementation.

So says my friend Paddy Doyle on his website

In other words, plain (Irish) speak “Fuck THAT!”  consider a HSE logo here too please.

5

Social Care

(the reality of “sunny side up)?”

The Social Care Division was established to support ongoing service requirements of older people and people with disabilities. It is a fundamental step in moving forward with the design and implementation of models of care across both these Care Groups to support and maintain people to live at home or in their own community and to promote their independence and lifestyle choice in as far as possible.

National Director Social Care:  Pat Healy
Ph: 01 635 2308 
Email:             socialcare@hse.ie

Social Care encompases

Disability

Older Persons

Nursing Home Support Scheme

In other words, plain (Irish) speak “Fuck THAT!” Logo of the HSE may be added here.

a stain on my landscape - the HSE and accountability

There is nothing worse in life than to take a Life.

Taking of life in all its forms, is obhorrent and death, (as in a killing) - shedding blood and ending the heart beat is not the only way this can be done.
There is a slow torturous way and I have felt it.  I have been at the receiving end of a harrowing period of my time on this earth.

Last quarters of life in a normal existence can and should be peaceful and in someway restful, calm and enjoyable.
If naturally you cannot attain that through personal sorrows i would find that understandable and believable. If sadness, shock, trauma and severe trauma at that comes at this delicate period of a person's life and is caused by STATE then this is a crime.
remember the term of 'STATE'.  State is a body that as a body is enlisted to help its members, the people.
The State, that is, all forms of State rule and oversight form one purpose, 'oversight' and this 'oversight' is further divided into areas of ownership, e.g Law, Health, Policing, Housing, Finance et al.
Any one of these, who illegally disrupts the status quo, knowingly disrupts the life of its citizens by illegal means is committing a crime.

to hurt and harm an individual in the state whilst claiming to uphold the health of the nation is a crime.
To hurt and harm an individual in the NAME of its function, healthcare is even worse.
To damage a person who can then see no way out of profound trauma and is living a life of hell is a crime.    Living a life of torture during a time when she should be at peace with herself, her world and making peace with her future death and fragile state is a crime of Murder.

I see the death of a person as the most horrific event in a person's life, unless of course she/he feels at that time, it will come as a relief.   
If the person, in sickness,  had the ability to be at peace and had help to live then that should be the aim of society.

The aim of any healthcare system is not to deconstruct the human persona, but to assist in enabling the person live a healthy and wholesome life and lifestyle.  Anything short of this is using the brief of 'healthcare services' in a twarted fashion and not upholding the role placed on a person who has the skill to make life better for a sick person.
Over and over I have been victim to the abusive services of healthcare in Ireland.
I have been hurt, damaged and defamed by healthcare personnel.  I have been severely traumatised by healthcare personnel who take ownership over a persons rights, rather than enable a person.
Naming the HSE as the cause of deep and profound trauma is something i never envisaged doing at the end of my days, there is no doubt in my mind who caused such severe pain.  No doubt at all.

I am heartened to see written down confirmation that others see it this way too.
i have known others have witnessed my personal pain and heard my voice and cry to be heard.   It has been heard and has been believed.

To me that is good.  It is the confirmation that porkies are not being bandied about by myself, for I have always been honest and truthful to a fault.
Having Asperger syndrome I guess has helped my moral fibre, for people with Asperger syndrome do find it difficult to lie.  I have to say i find it strange and profoundly difficult to do anything other than tell the full truth and nothing but the truth.
I couldn't rest easily in bed at night if i had lied, i never lie.
It pleases me greatly that i have such high expectations of myself over lying.
It pleases me enormously to understand the concept around moral fibre, moral duty and the ability to stay with the truth at all times.

Concepts around abuse and suffering and scheming and lying are gross to me.   To hurt a person is a horrible thing.
I would not want it.  I would not wish it but i have been at the receiving end of it - from the HSE.
Never have the HSE actually held ownership of moral fibre to say 'mai culpa, mai maxima culpa'
Never have the HSE apologised without innuendo in a scheming way as to call say a dreadful statement which is seen as callous be glossed over and out as 'a quip.'  This is how they do not apologise well.   Therefore, do not apologise at all.
One complaint about seeing a statement on file which was HORRENDOUS for this blogger, was to the HSE 'a quip'  just 'a quip.'  The viewing by the person of her statement as 'a quip' is contrary to her verbal statement of 'i would be appalled if i knew i had said something like that.'  I told this HSE official to be prepared to be appalled and showed where I saw she had written it down.
Her horror had turned into 'quip', she wasn't horrified.   She apologised for her 'quip,' downgrading her horror  in a sentence to a 'slip of the tongue in her written statement, the 'quip.' of it!
It didn't seem hard for her to acknowledge a 'quip' in writing or acknowledge how appalled she would be if she had said such a thing, but then acknowledging  it as a 'quip' says a lot to me.   All the wrong way of dealing with her acknowledgement of being appalled if she had said it.
She did, she wasn't as appalled in writing!

A deceased counsellor of the state writes, 'ann and margaret ...have been badly served by the state but horrendously so in recent years.' is testament that we as good people had been heard by another who was adored by community until her untimely death.
She heard us, witnessed some of our distress at the hands of the HSE and wrote it as it was.

She also reminded the HSE of their role in our life, and their duty to us, and didn't say we had to have a duty to the HSE in return. For that is not the role we played in this life, but they certainly had a remit to uphold their brief to provide a decent healthcare system of care in a caring manner, which she reminded them they were not doing.
Further another complaint upheld for both twins, the HSE had been requested to sort a mess and further, they were told of their duty to us, as opposed to what our duty should be to the HSE in all things.

The acceptance by the HSE that they should be able and strong to face all difficult situations with total committment and professionalism was dictated by this investigator.  Not to need, demand or expect a type of incestuous gratitude which may see them withdraw support and help if they didn't get that!  one such person blaming their lack of job satisfaction towards us as our fault when we see what it really is.
the hurt they have inflicted has been so bad, we consistently remind them of it.
This doesn't give them their job satisfaction but then to remind them they have to be professional may be viewed again as the thorn that is in their side when honest people face them with the truth and nothing but the truth, so help us god.

To me, in a once caring society, upholding care for all its citizens seems a chore, a financial burden and an unnessary part of job descriptions.
its like as if its secondary to the wonderful reports, and the policy documents around which their work is based.
the work itself is sort of a tag on and a type of begrudgingly offered part of the remit if they like you, definitely if they dislike you you can hope for the worst.
We have faced the worst.
Lessons on all of this really doesnt get heard and lesssons are not learnt by this State body.

the snappers at the heel of the HSE will be snapping because they are truthful, honourable and hate injustice.
you won't get snappers at the heels of anyone, if someone does good, snappers are far less, but snappers will snap if harm has been done.

I say to the HSE, isnt it time...time to learn a big lesson here?
What if i was a brother or sister to you in real terms, look at it from that perspective, how well would you receive such treatment to a loved one, if you witnessed it in your own family group especially if the family member was vulnerable?
would you stand by and accept it, or would you be angry, upset and snap sometimes viciously at the hurt another is inflicting on your family member?  
you would.
You could do far better than this, i say.
You could make a better fist at being professional in what you are trained to do.

it is not difficult to say what the HSE have NOT done for two sick women in ireland

Irish heathcare, the Irish HSE.

studying the 'form'

she is also sick and tired of being sick and tired

a pretty embattled scene we have here, i truly hope our minister for health can effect change.
it is tough though being at the receiving end of er, nothing

how many people know how terrible our genetic services are? they are this terrible!

its tough for the fight for care has now gone on for ten years.
what do you do? Expose them?

its very sad to even know, that all, patients and clinicians, hse and departent of health know this fact!

I think you have to.
you can do this through naming the departments approached and the inaction that resulted.
Lets first look at "needs" these are those that the consultants both irish (with international acclaim) and UK professors,head of centres of excellence.
there has been a significant amount, all top and noteworthy.

the hse turn a blind eye.

knowledge breaks ignorance and should bring change. worth a try?

DESPITE saying they would 'honour' the UK reports - they have not.

who is in charge?
Well Tony O'Brien is of course the Director General of the HSe.
he received some emails from top notables, including the retired chief ombudsman for Great Britian and x MP who is my first cousin - he got the standard letter they all got.  it didnt say alot.
the other departments in charge of areas of great concern were all contacted and no response or input,namely - Department of Primary Care, Department of Social Care, Department of patient care quality ??? and Department of Quality Care verification ( i kid you not!)
there were others too, all notified, Ms. Marian Meany, Dr. Aine Carroll, Philip Crowley, and far more.  these are HSE department heads.

they got a run down of my complex disease and our great need.
they didn't respond.

we met Ms. Meany and felt she was nice enough, but effecting change, nah.
We met someone from the quality division, very nice indeed but not a lot coming from that either. He does want me back doing my artwork - oh ye gods i wish! but i still have to make sure i stay alive and get care. 
i have contacted the department of health who say they have no remit over the HSE, i kid you not. they only pay them their wages, well who pays their wages - we do!

so what have i asked for, well:
requested ten years ago and still being requested by top consultants in uk and ireland;

• ongoing physiotherapy ( the hse have a problem with understanding the term 'ongoing' so while they grapple with that for the past ten years we have got nothing.  we get some now, but have been told it will be in small blocks and then six months nada again.  small blocks are six sessions.
• hydrotherapy waiting ten years to dip a toe in a warm pool yep not seen and recommended.
• metabolic nuitritionist - dont think we have them here in ireland
• neurophsyiological work up - don't think we have them here either, we havent seen one and badly need to.
• rehabilitation (whats that?) we don't do that, only in worse case scenario, eg stroke or spinal snap.
• bed surface begging for five years to sort this, through all the above and my area take note of it - in case you feel able to lobby for us - Area CHO6 - manager there is Martina Queally - never met her and dont even know what she looks like.

its so so easy too not to put a face on a client you might begin to 'feel'and that would not be good.

we have a serious problem here in ireland, unlike the UK where they have been hauled over the coals for human rights violations in europe, we can't get that far -we have no human rights so the europeans cannot intercede for us - so much for being best buddy in europe and we giving them all our money!

ireland hasnt ratified the convention on rights for those with disabilities, human rights which means, we either are shit and not human and dont deserve them or we are not equal therefore shit and dont deserve to be noticed

can i come on board? will you have me?

'at the heart?' I feel i am biting dirt and being treated like dirt.  No heart involved at all, at all

it all sounds GREAT, but - where does it get us patients - at the end of the day, do we or have we ever counted.

i am not going away HSE
soon when i recover enough, you are going to see a lot more of us.  and i am thinking serious campaign with information on the damage this group has done to me.
there is some major stuff on my hse files i would like to get out in the media.

it would make your hair curl.
any international individual who reads my blogs, and are moved will you contact Mr. Tony O'Brien DG and ask him what the hell is going on.
should it take ten years to provide basic care for people with a progressive neurodegenerative disorders and will you ask him while you are at it, does Ireland have a eugenics program on at present.
i believe it has!
i also believe the medical confraternity are being bribed not to treat as is happening in the UK, i believe its happening here.

i simply wont allow you kill me off 

yep! says it all!

Irish Healthcare Public/Private divide totally unworkable for the sick in Ireland

over two weeks ago i became very unwell.
an ambulance took me to a public hospital after uncontrollable vomiting and pain and far more.
seven hours later i had not seen a doctor, my twin was brought in by her neighbour as i lay in agony alone in a back room of the A'E department.   It was now well after midnight.
A drip was put up soon after and i do not know what was in it, but i seemed then to ease in pain anyway. No scans were done to determine if i had a crohns blockage, or a tear or rupture or bleed or whatever.
my twin stayed a short while and got a taxi home, we have to remember she is very unwell too.
i lay there all night, and as soon as day broke i was told i could go home.
this is astonishing as i was so unwell the previous night and had not yet seen either my own consultant at the hospital nor an A'E consultant.
i was pressurized to leave so at 7am i had to literally take up my blankie and pillow and get myself to the front doors and go home by taxi.
not even a cup of tea was given and i had been vomiting at 5pm the previous night for at least an hour or more.

I struggled at home for a week.  the story of that is in another blog previous to this.
i struggled staying with my twin until unfortunately i had to again at day break get into my own adapted van and drive to a private hospital with my wheelchair in the back.
i have and still do have a lovely consultant i no longer can afford to attend who will be able to facilitate me getting into an actual hospital in ireland for care but that is all really.
i was admitted and spent two weeks very ill indeed and on three different drips.
on returning home i am failing to recover to my ordinary self.
i am in a lot of pain and also have gut issues still, and i am concerned.

in this period my twin became unwell.
she developed a very bad cold and was getting so unwell i suggested that i would drive her to this same private hospital, at least it would not be so chaotic as the public and i felt sure she would be admitted.
she wasn't able to sustain being at home with all this.  For many a head cold or flu is surmountable, for a person with a rare and complex disease process with co-morbid conditions its a nightmare to transcend the slightest  of setback.

we also have little support in the community for these times, the only one on offer for me was to go into a nursing home for a full week and this would have cost the tax payer over 2k at least.  they were offering me a private nursing home in my own village when i was to be discharged.
i needed a few hours help each day to recuperate sufficiently, not 24/7 oversight for another week a sniffing distance from my own home.

My twin arrived at the A'E (ED) Private, and i had to leave her there as i was not well enough to stay with her, i was going to my own GP with retaining issues after my own inpatient stay a short while ago.
 I was getting physio that day during which i got a call from her to say she was being let home!

i was aghast!
i rang back but she is very deaf and i wanted her to urge the team to keep her in, she was far too unwell to come home.

the physiotherapist tried to contact her but we could not get an answer. He too wasn't that happy she be sent home.

When she came home, she had now coughed up (excuse the pun) over 500e in expenses for tests at this Private hospital.
with a spot detected on lung x-rays and swollen lower legs, she now was to go home!!!

NO, she didn't get better and got increasingly unable to cope.

Again, she lives alone and by this time i had also developed her cold and still had the pain and hang-ons from my own health issues that saw me hospitalised only a few weeks before.

night after night my twin struggled horribly, both of us up all night sick, unsupported and isolated against the whole world in sickness, without a person to turn to in this state.
she managed to contact her GP today and she/he advised that she go back to the Private hospital and say she is too unwell to be at home.
i drove her back up, i am now getting more and more sick with the same issues she has.
she was brought into a cubicle and a registrar,  i think, wanted to do the full blast of tests on her to determine her health status.
we both in our distress told him that she had a myriad of tests only a few days previous to today  and it had cost her 500e.

he apologised but said he would have to do the tests again!
both of us got profoundly upset and distressed at this bizarre forking out of now 1k for tests when she should never have been sent home in the first place.

this caused both of us to become shattered and beyond richter scale stressed.

we did ring an older sister who announced 'Extortion!'
i felt that too.
i suggested my twin ring the Insurance company for clarification.  we both now were on our knees.
thank god a nurse came in and announced she was being kept in.
we didn't need that patch of distress.

how do you tell the Irish doctor base we are NOT simple patients that can withstand the usual slings and arrows of health crisis?   
Certainly i was sent home and within a week was sicker by far and a new disease process had now been added to my mounting 'sick disease stamp book collection.'
This happened my twin
It's a madness that we have a system that you cannot be kept in a hospital in a public bed because you are a public patient and the new gold is to get those with insurance to pay through the nose for the bed in the public hospitals to the horror of the people of Ireland and also it is driving the Insurances up so terribly more and more are leaving that cos they cannot afford it, so now we have the added strain of public patients on stream due to a very unworkable divide.

You cannot get public healh care - really anymore, and we have had the whole thing played out on - 'waiting on the trolley list' of a documentary RTE did recently - a horrific tale of tragedy,  a dangerous system and people being left too long endangering their lives, the future and death has occurred in this melee.

you can pay over two thousand euros for private healthcare but then what if you have NO disposable cash and are entitled to a bed if very ill to be covered by insurance but yet when you go to a private hospital they take 500e and send you home!
then they ask for the same amount when you have to go back even worse.
finally you are in that precious bed and everyone is weary.

This is turning into a nightmare.

we also have the chaotic primary care system.  without anyone to keep two women healthy in all regards we remain of of sound mind and sparky but such a system has left these two lovely women suffer horrendously.

its unworkable at present.

this sick individual cannot care for my twin sister who is also sick and vis versa.

we both are entitled to healthcare under both Irish systems.  Public and Private.
we are also entitled to care in the community but are not getting it.

the answer to everyone is - you cannot manage you need to be in a nursing home.

Abuse stories within these awful institutions are daily reported in the media, and we have an agenda through agreed policy to get disabled people out into the community where they should be and not in the nursing homes.

On the one hand they want us disabled to be cared for in the community (we are not).
 they promote the social model of care (they are not using it but completely and utterly abide by the old model, the medical one).
you cannot get into a public hospital and be cared for.
you cannot get into a private one either.
where the hell do they want us to be???

i am not going into an abusive institutionalised system where once i worked as a volunteer bringing 'arts & empowerment' to the elderly corralled there against their wishes but dumped by uncaring families.
I am not going into a system where daily we hear of the abuse, even the last nursing home i was working in has recently hit the headlines for its abject abandonment of the elderly to no more than the daily 'catholic Mass' and sitting aimlessly the rest of the day waiting for probably a tasteless lunch and dinner and bed early and no escape from this tedium, boredom and depression.

HOw do i actually afford Private healthcare?
I can ONLY afford the policy, i cannot go privately as i have no disposable cash.
I can ONLY use it if the consultant takes me into the hospital as an inpatient.

How do i afford the Private insurance of over 2k yearly -well recently i sold a painting i had inherited that was my parents wedding present from a minor RHA.
it recouped the sum of 710e and that still is way short of 2k.
i have three other far smaller paintings by the same artist, so i am not hopeful i will have the funds for the Private health insurance this year.

this irish healthcare system is totally unworkable.  you be damned one way or the other.
phone call from my twin, she is still in ED waiting to get to a bed.
sick, i am.

IRISH MEDICAL AND HSE TIMESCALES/FRAMES

CALL IT WHAT YOU WILL, BY ANY STRETCH OF THE IMAGINATION, WE ARE NOT EXACTLY IN 'THE FAST LANE' ON THIS ONE.
WHEN WE GIVE TIME FRAMES, REGARDING OPENING OF...BEGINNING SUCH AND SUCH ....STARTING WHEN?
AND ALL MANNER OF TIME SCALES, WE GET IT BADLY WRONG.
BECAUSE ANYTHING SUPPOSEDLY TAKING A YEAR TO IMPLEMENT HERE, USUALLY TAKES TEN OR MORE, ESPECIALLY IN HEALH CARE PROVISION.

THERE IS A DISCONNECT BETWEEN THE WILLINGNESS TO BEGIN, THE NERVOUSNESS TO BEGIN AND THE STINGINESS TO BEGIN, NOT TO MENTION THE INTENTIONAL STALLING TO BEGIN - FOR ONE PURPOSE ONLY, TO SAVE THE FEW COPPERS.
IN THE MEANTIME WE ARE WRECKING PEOPLE'S HEALTH AND COST EFFECTIVELY IT IS WRECKING THE ECONOMIC LANDSCAPE.
PREVARICATION ON DELIVERY IS NOT COST EFFECTIVE, AS DESTRUCTION OF BODY, FUNCTION, DISEASE INCREASE USUALLY COSTS MORE IF NOT TACKLED AT THE EARLY STAGES.

LETS TAKE A FEW INCIDENTS OF THE TOTAL DISCONNECT BETWEEN SICKNESS AND NEED AND HOW FAR THE HSE STRETCH THE SEMANTICS TO PUT OFF THE EVIL DAY TO PROVIDE FOR THE CITIZENS OF THIS STATE...HERE GOES, AS IN THE CASE OF THIS INDIVIDUAL.

SHOES FOR FOOT DEFORMITIES...WHAT HAPPENS WHEN WE DO IT 'CHEAP'
HERE IT IS:
2006: 'ANN IS UNWILLING TO WEAR THE SHOES WE PROVIDE.'
THAT MY FRIENDS, IS BLAMING THE SICK PERSON WITH FOOT DEFORMITIES, MYOPATHY, NEUROPATHY AND OTHER.
IN 2017 SHOES WERE SOURCED, BUT ONLY AFTER HSE CAUSED TOE NAILS TO BE RIPPED OFF FROM CHEAP SHOES, FALLS OCCURRING FROM SHOES THAT WERE TOO HEAVY AND CAUSING 'FOOT DROP,' AND ILL SUPPORTIVE SHOES SHOWING MINI FRACTURES IN THE PES  CAVIS AREA OF THE MIDDLE FOOT.

THIS HAS CAUSED YEARS OF AGONY FOR THIS SICKIE AND I HAVE NO DOUBT THE LACK OF ABILTY TO WALK WELL HAS INCREASED THE PAIN AND THE INABILITY TO WALK WELL AND SAFELY RESULTING IN NUMOROUS FALLS, CAUSING FRACTURED RIB, TORN ACHILLES, SNAPPED SHOULDER MUSCLES AND TORN OFF TOE NAILS.

COST OF THIS TO THE EXCHEQUER, XRAYS,SCANS, PHYSIO, CONSULTANTS VISITS AND HASSLE TO DEFEND THE INDEFENSIBLE.

LACK OF BED SUITABLE FOR A PERSON WITH A PROGRESSIVE NEURODEGENERATIVE DISORDER.
HAS LED TO SEVERE NEGLECT, LACK OF SLEEP, INCREASE IN PROFOUND DISTRESS,INCREASE IN PAIN AND HORRENDOUS NIGHTS.
SLEEP DEPRIVATION CAUSES INCREASE IN SICKNESS AND ILLNESSES.
DESPAIR INCREASES DEPRESSION AND THE ANGST IN ENGAGEMENT LEADS TO VERY BAD BLOOD AND LACK OF TRUST ON THE ONE HAND AND HATRED.
NOT SORTING ISSUES WITH SICK PEOPLE BUILDS UP AN AGRO SECOND TO NONE, AND ITS GRIM FOR BOTH PARTIES, BUT LETS BE CLEAR - LYING TO THE TAOISEACH THAT I HAVE BEEN SUPPLIED WITH FIVE DIFFERENT MATTRESSES IS NOT A TRUTH YOU SHOULD BE UPHOLDING BECAUSE YOU HAVE NOT PROVIDED ME WITH FIVE MATTRESSES, YOU HAVE PROVIDED ME WITH NON SPECIFIC,NON DISEASE APPROPIATE BED TOPPERS,AND THAT IS NOT A MATTRESS, AND THIS IS NOT A SKILLED PROFESSIONAL SERVICE, THEY ROTE THAT ONE OUT TOO - AD NAUSEUM AS THEY CONTINUE TO DEFEND THE INDEFENSIBLE.

 2006 - 2017  AT LEAST FIVE TOP CLINICAL CONSULTANTS AT THE TOP OF THEIR FIELD IN NEUROLOGY SERVICES IN IRELAND AND THE UK CLEARLY DEFINE THE TYPE OF AUXILLIARY CARE WE SHOLD BE HAVING, 'ONGOING' PHYSIOTHERAPY, AND HYDROTHERAPY.
BUT
WHAT THE HSE WANT TO KNOW IS, 'WHAT DO THEY MEAN BY 'ONGOING?'
MOTHER OF GOD I KID YOU NOT.
THIS TO ME IS PLAYING DUMB, AS ONE OT HAS ACCUSED ME ON FILE OF DOING, WHEN I AM SHARP AS A FLIPPING BUTTON AND SURE AS HELL, MEETING HIM TWICE HE ISN'T IN A POSITION TO SAY THIS.  DUMBNESS, BUT ME SAYING IT FOR TEN YEARS WHAT THE CONSULTANTS RECOMMEND IS PLAYING DUMB BY THE HSE PROFESSIONALS, WHO DO NOT UNDERSTAND THE TERMINOLOGY OF 'ONGOING' AND WISH THIS TO BE CLARIFIED BY THE CONSULTANTS IN 2017.
MY GP IS OF THE OPINION ITS PRETTY SELF EXPLANATORY.
WHAT ELSE ARE WE PLAYING DUMB WITH AND AT HERE.
DATA BREACH.

COPPER FASTENED IN THE ACTS OF THE DATA PROTECTION THEY CLAIM THEY HAVE IT SUSSED.

DO THEY?

WELL INTERNAL EMAILS ASKING FOR HSE PROFESSIONAL A'S KEYS TO HER FILING SYSTEM, FROM HSE PROFESSIONAL B BECAUSE HSE PROFESSIONAL A HAS GONE ON HOLS AND PROFESSIONAL B WANTS TO SEE WHAT SHE HAS SENT THIS WOMAN NAMELY ANN KENNEDY.

 SO SNEAKING INTO ANOTHER PERSONS FILING CABINET WHEN THEY ARE ON HOLS AND EXTRACTING DATA VIA A SECRET KEY IS NOT PROTECTING DATA AND IS AN IRREGULARITY SECOND TO NONE IN MY BOOK.  YOU DON'T GO POKING INTO FILES IF YOU DO NOT HOLD THE OFFICIAL KEYS TO THEM FILES, YOU ARE BREACHING THE DATA PROTECTION ACT.

OK ECONOMICS ON EFFICIENCY.
2014 TO GREAT APLOMB, WE OPEN THE RARE DISEASES OFFICE AT THE MATER BY LEO THE LION GREAT, THEN MINISTER FOR HEALTH.
WELL, THE RARE DISEASES OFFICE IS NOT OPEN TO THE PUBLIC AND CONSISTS OF A HOLE, DEPRESSION ON A WALL WITH A RACK OF A FEW LEAFLETS, NOT EXACTLY LAUNCHING MUCH WHEN IN 2017 A 14 POINT PLAN TO BE IMPLEMENTED UNDER THIS RARE DISEASES PLAN HAVE GONE UNDONE, UNTOUCHED, UNACHIEVED, BAR A RACK OF LEAFLETS,COME TAKE AND GET THE KNOWLEDGE, BUT WE HAVE NO 'REAL RARE DISEASES PLAN'  A ROUSE TO THE PLEBS.
AND A MEDIA COVERAGE OF SNAZZY SHOES FROM A WHEELCHAIR PERSPECTIVE AS I SIT IN THE FRONT ROW WHEN THE 'RARE DISEASES PLAN' WAS LAUNCHED IN 2014.

PREVARICATION IS CAUSING HARROWING CONSEQUENCES TO THE MASSES, AND CONSISTENT BLASTING TO THE MEDIA HOW BLOODY WELL WE ARE DOING WHEN THE FACT IS - 
NOTHING IS BEING DONE AND PEOPLE ARE SUFFERING BADLY.
YEP.

SO CARE PLANS, FROM UK TOP CENTRES STATED AS 'PROMISE CROSS MY HEART, HOPE TO DIE' WE WILL HONOUR WHEN THEY ARE BACK, AND PREPARE TO DIE AND IT ISN'T THEM THAT WILL BE BECAUSE THIS WAS A ROUSE AND ABUSE COS NO CARE PLAN DONE BY THE UK HAS EVER BEEN IMPLEMENTED, FROM A SOFT NECK COLLAR FOR NECK PTOSIS, TO ONGOING PHYSIOTHERAPY AND HYDROTHERAPY AND MORE BESIDES,NEVER BEEN IMPLEMENTED.

DON'T PRESENT THE HSE WITH PHOTOCOPIES OF THEM REPORTS THEY WILL JUST ABOUT STOP SHORT OF ACCUSING YOU OF FORGING THEM, BY SAYING THEY CANNOT ACCEPT AS 'THESE SORTS OF DOCUMENTS HAVE BEEN KNOWN TO BE FORGED.'

I KID YOU NOT.

SO IN THE SPACE OF TEN YEARS A HECK OF A LOT OF MONEY HAS BEEN SPENT ON EMAILS, LETTERS, DEFENCE LETTERS JUSTIFICATION RESPONSES TO TD,'S IN ANSWER TO THE NEGLECT PERPETRATED ON CITIZENS OF THE STATE.
THE ONLY MONEY THE HSE ARE WILLING TO SPEND IT SEEMS IS ON THE LAW DEPARTMENT WITHIN, OR FANCY LETTER WRITERS WHO CAN WRITE A GOOD LETTER AND STOP THE ADVOCATE.
WHEN THE DEPARTMENT OF HEALTH INFORM ME THAT THEY GO BY WHAT THE HSE HAVE TO SAY, DOES ANY ONE GO BY WHAT THE HSE HAVE TO SAY?

 WELL WE KNOW WE CITIZENS DON'T AND NEITHER DO MOST EUROPEAN COUNTRIES, BECAUSE NOT A LOT IS BELIEVED FROM THE HSE, 'FACT!'
BUT THEN SHORING UP MAFIOSI STYLE, IS VERY IRISH I HAVE TO SAY.

TEN YEARS ON, SINCE I GOT SICK NOT A SODDING BIT OF HELP HAS BEEN OFFERED IN ANY CONSISTENT FASHION WHATSOEVER AND WHAT IS GIVEN IS SO SPORADIC AND INCONSISTENT, ITS NOT WORTH THE EFFORT TO IMPLEMENT, PIECE MEAL AS THE LONG DELAYS IN ACTION IN BETWEEN THE BITS OFFERED CAUSES HARM.  

 DELAY MEANS NEGLECT AND LACK OF CARE INCREASES DISEASES, BODILY FUNCTION AND HASTENS DECLINE.


BUT TO THE HSE ITS CALLED, THE ECONOMIC WAY TO GO,IN FACT CAUSING DECLINE MEANS NEEDING MORE AND MORE CARE IN THE FUTURE,SO ITS NOT COST EFFECTIVE TO PUT OFF THE EVIL DAY OF OFFERING CARE, THE COST WILL BE DOUBLED OR TREBLED IN A FEW YEARS OF WASTING THAT TIME AND THE HSE ARE IN DENIAL.

DOCUMENTATION IS THERE, TREAT NOW SAVE COSTS IN THE FUTURE AND MEGA  COSTS IN THE FUTURE.

DUMB THINKING IS NOT PART OF WHO I AM, BUT FALSIFYING THE TRUTH OF WHAT A HEALTHCARE SYSTEM IS DENIAL.

IF WE OFFER NO CARE TO THE SICK, WE CAN SAY YOU ARE RECEIVING PAYMENTS UNDER FALSE PRETENCES, YOU ARE STEALING FROM THE TAX PAYERS, AND OFFERING NOTHING FOR THE WAGES AND INPUT YOU CLAIM TO BE OFFERING.

 WHEN YOU ARE OFFERING NOTHING AT ALL, BAR FANCY LETTERS TO SHORE UP THE SELF DECEPTION AND WHEN YOU DO THAT, YOU ARE ABUSING YOUR ROLE IN THE PROVISION OF HEALTHCARE. THE ONLY REMIT OF THE HSE IS TO PROVIDE HEALTHCARE.  

IF YOU DO NOT, YOU ARE GUILTY OF STEALING AND NEGLECT AND INHUMANE PRACTISE AND SQUANDERING THE ECONOMICS OF THE FUTURE,BY BEING SO GROSSLY UNECONOMICAL IN THE SHORT TERM.

HSE ARE BEING DISINGENUOUS TO A FAST SWATHE OF THE IRISH POPULATION, WHO ARE SICK, DISABLED, ELDERLY AND NEEDY.

GET REAL, THERE IS NO SUCH THING AS TRUTH WITHIN IRISH LARGE ORGANISATIONS, GIVEN A BRIEF TO DO SOMETHING AND YET DO THE EXACT OPPOSITE.
MIND BOGGLING ABUSE OF POWER GOING ON

inhumane HSE treatment

I am completely worn out and down by this endless, endless struggle with the HSE.  i consider it demeaning, degrading amounting to torture and inhumane treatment.
i want to talk on one issue which demonstrates a complete lack of care and its impact on me and also that of my twin sister.
HAVING A GOOD MATTRESS FOR SEVERE, CHRONIC, PAINFUL AND DEGENERATIVE PROCESS IS 'VITAL' TO GET THE BEST QUALITY OF SLEEP POSSIBLE.

my twin and i have fought to have this one basic issue addressed.
despite representations on our behalf, the HSE consistently counter this with 'they receive a professional skilled service.'

we remain without a mattress that suits the level of pain, the level of disease and the level of dystonia, muscle wasting and all manner of symptoms we have to endure.
but endurance now has been for far too long on awful surfaces to sleep on.

consistently throwing a few inch thick 'toppers' for bedridden older people who do not actually have our condition is wrong.
they are insufficient to meet the chronic nee we have.
we then 'trialled' a mattress from a retailer, and have had this for months on end, its not working.
the hse then gave me a real mattress, but again its not working for me.
they add bits to this, they add toppers, and covers but its not helping me as its too harsh for my body and i have told them this over and over and over again.

i research all the time.  i consistently see that through many retailers in Ireland the HSE do provide quality mattresses for very sick people, so why are they giving us hell for year after year and providing basic items inconsistent to the degree of night time distress of pain, discomfort and heat intolerance and unbearable sleeping surfaces.
recently i was in hospital and very ill indeed and the hospital actually hired in a mattess, it was a Hills Rom Primo, it was divine, with only tiny issues to address i contacted the company on my release.
they suggested the Duo2 as i explained the complex issues of my twin sister and myself.
i asked how much would it be to hire these and trial, i am at my wits end.
i cannot afford it.
i have put it to the HSE begging to allow us trial and see if these are suitable and put closure of chaos of beds issues now going on for over six years.
the agony of procrastination and many sleepless nights, does now amount to torture and neglect on a grand scale.
the company reassured me the HSE has supported severely ill patients with these mattresses, yet they consistently messing with us.
only yesterday a guy came out with a HSE official and tinkered further with the bed from hell, and started to go into all sorts of technical 'pumping' up for the HSE official as only those flogging their wears will do.

i stood by knowing and being ignored, his efforts have been in vain for me and the bed mattress is goddam awful.

what am i doing at present?
i am like a bed vagrant, switching from this awful shite mattress to the sofa, which is softer and cooler or to going to twin and attempting the spare room one which is bigger and i can stretch out dystonic posturing as my bed is tiny and cramped.

i am climbing the walls over all of this.
the toppers and mattresses are banking up in my spare room, disgarded as useless for me and i have asked the HSE to remove them.

How long can we ignore pain and sleepless nights which is vital for the optimum health of very sick people?

Do people not consider six years too long?
if i could, i would get the Duo2 tomorrow and be shut of the awfulness of this agonising begging and begging and profound need to have a sleepful sleep rather than dreading the time i have to lie on a surface that within half an hour has me sweating in extreme distress and discomfort, before i drag all the bed clothes to the sitting room and decide to give up or get into the van and arrive at twins to go to her back room.

its insane, its torture, its inhumane, its neglect on a grand scale.
please share this blog.
i am going through hell and i want this to end
yes, i have asked the HSE to trial the Duo2.
what more can i do.
i now know they have provided these for other chronic sick individuals, but the knives are out for the kennedy twins.
help us if you can.
wits end i am