the European Union and how it plays out for the 'little people'

i do believe we have a Union initiative.
its called European disabled - WIPE-OUT.'

because 'disability' is a dirty word.
its something that happens others.

it doesn't happen you.
Yet it does.

it can
it could
and it most probably will - in some shape or form, and when it does its then you wish that you had kept your finger on the pulse for the next generation and the next.

harsh austerity at the level of the vulnerable throughout Europe will impact on you - later, if not doing so already.

that is why being an active political force on a community setting can activate good policy around disability.
otherwise others are making the decisions when you least know about what, you may become sick, disabled or ill and there is a woopsie.

if others make the policies, they are WELL making these policies, and they too forget this fact, they are making policies of cut-backs and butchery towards the sick when they cannot hope to comprehend these actions because the ability to emphasize with disability is little in an able bodied person.
with a few exceptions of course, most have to 'feel' sick in order to understand.

the separateness of this type with say, water charges is simple, money can be felt by ALL, be they poor, middle income brackets or for the socialists amongst us which is a political ideology of working with the least well off, but it cannot impact on your health that is sickness and disability and will only directly impact on a family as a unit as a unit of payment that could be used for other areas when a family is so badly stretched to the limits.

the energy then of political force can be heard, can be understood by all.
it effects all.

disability doesn't.

the one mistake in all this of course, you are allowing others to make policy now that may effect you or your family in years to come.
those affected now are not your family but someone Else's, you usually cannot feel their pain, unless of course its your family!

that is why the fumes of toxic gases herein are toxic yes, but only if you know about it.
like radon gas you do not feel it, until you are dead - so.

when people say that all are worn down by years of austerity.
but tell me how many of you who read this blog can comprehend that Ireland who has given more to the bail-out than any other nation within the whole EU has also the lowest poverty rates for the disabled in the whole of Europe.

with one of the highest cost of living, it provides for the sick and disabled so badly there is permanent economic distress.
you will have not only the stress of basic costs everyone incurs but you have the bonus points of disability.
the charges many will never face because they may never be disabled.

when you have a health service that is  non functioning, as in dysfunctional and corrupt, which is disconnected and obscene which provides Nada to the sick and disabled the situation of basics as in living in a minor way as opposed to a normal way are hardly achievable.

disabled people in Ireland, unsupported by the Irish people have gone into a hole of apathy and despair.
we have done so because the fight is endless, draining and seems to produce nothing at the end of it.

something tells me i cannot do this.
give up.
i cannot sort of just forget the wrongs occurring in Irish society in the general domain of disability.
i cannot be bought off by large groups of people out of the poverty trap and so shut mouth and never be heard again.
People are NOT as vocal now within the disability groups because the voice isn't allowed.
In Irish society and the health services, you cannot be heard as a person with a disability.

Here is the way it goes OK.

1.  you request a better, functional wheelchair, one that does not run away with you or hit walls without wheels.
2.  you tell people what happened, via the media and through links with the Department of health.
3.  you go on radio.
4.  you sit out side dail in pink hats.

what you will never see is the despair all this engenders because of the very vicious approach to you as an individual.

the HSE dig very deep to uphold the collective Will to destroy that voice in you so that they can silence you and be shut of you and keep you at a certain distance.

three years on you are getting no where fast but some believe you are telling the story for many therefore it will sink in somewhere that Irish health care is poor, creates more pain then it helps lessen and therefore its all worthwhile.

but action is short on the ground right now.
we have a situation where the HSE are playing the game, 'do not give in to those feckers, the Kennedy twins'

while you are telling the media and the department of health the reality on the ground they are pushing pens to write vile letters to you personally and all the while responding to the accusations we present with rather a flourish.

'they have been expertly assessed as having wheelchairs that suit their needs'.
this seem to work on some levels.
but half are not fooled simply because the HSE is known for its deviousness and it doesn't go unnoticed how dysfunctional the HSE is.
the problem is they are quite plausible.

Powered wheelchairs can be described as:

Indoor use only

• For indoor use
• Small turning circle
• Could be used on a level patio area or in a small, level garden
• Short distance range

I put the above in here, because this is the type that ran away with me, its mentioned above on the AssistIreland.ie site and even a picture of MINE can be seen there, it was never meant to be outdoors enjoying a country smooth pathway because its not designed for this.  its of very basic limited use.
They do not tell you that the expert assessments for the right equipment was the equipment that went into a wall losing a wheel when the wheels were put on by the wrong bolts and was 11yrs old!

What is a Wheelchair Seating Assessment?

Wheelchair seating and mobility is a technical and specialized area of Occupational Therapy. The therapist must have a good understanding of not only the physical and functional needs of their client but also of the current technology available in order to choose the equipment that is best suited to your needs.

Above found on Therapy plus ca 

they will leave that bit out.
so too their expert assessment will never included where it was conducted, how it was done and what small nuggets of useful information they care to leave out, eg we stuffed a roll of her scarf under her bottom and saw that once we did that she shifted more or less upright, for the ten minutes remaining of the assessment.

they will not tell you that the wheelchair they provide is actually an indoor lightweight not meant to be driven outdoors on awful terrain or even not so awful otherwise it will run away with you.

TURNING AND USING ON A GRADIENT GUIDELINES

• Avoid sharp turns at high speed as this could result in the powerchair tipping over. This is especially relevant when turning on a gradient.

• The powerchair has been designed for use on gradients up to 1 in 6 (10%). However, other factors such as the surface of the gradient or the attributes of the user can vary this figure. If you are in any doubt about going up or down a gradient please find an alternative route.

• Please slow down when driving on gradients.

This is found in the manual for my wheelchair.  well, its online but i have no copy of any manual.

the next thing i am expecting is not to be on a losing flyaway but being tipped out of the thing and incurring an injury.

they will not tell you either that they have heard from the disabled person in utter anguish that the person reports suicidal ideation and has actually attempted suicide as a vulnerable young adult and very nearly succeeded on more than one occasion.

they do not even see that at 62 with a progressive neurodegenerative disorder that my needs are not like others, that i do actually need a better wheelchair.

the most worrying factor being...most of the people dealing with wheelchairs, don't seem to understand the item, they do not seem to understand the different kinds, and i mean this because we have tested this knowledge and they have been unaware.
they do not know how to power one up or how to turn one on.
these are our Occupational therapists, they should even know that basic, but they do not.

a letter was received today.
decision making time by the new disability manager of the area HSE she AB tells me that a wheelchair that suits my needs has been provided.

period.
waiting news of Newcastle and further reports.
well they did the assessments without any reports whatsoever you know.  they asked for none and made vital decisions without even knowing what was wrong with us.

that's how good they are.
this is how dreadful it gets.

but you who are not disabled at present, cuts are being made every single budget and by the time you or your loved one becomes disabled, you may be a bit weepy because by then they will take your disabled or yourself, line you to the therapeutic line - and shoot you dead.

they did that before and that's where its heading.
i am dead serious.

information station ---wagon!

well.
more information on the wheelchair situation here.
there isn't much to report.
still not a decent wheelchair in sight.

a phone call came to ask me did i want a repair man to come and look at the new wheelchair, that is for the one that ran away.

well, i don't think it needs repairs.
there isn't anything wrong with it, because its been built to do little and when it was doing little it was fine - that is, it didn't run no place on the flat floor of a hospital recently.
it didn't run no place either when i had to use it in the kitchen.

it hasn't run away since, but i have been afraid to use it for more than its able, or tax it more than one should.
like a sick child or adult, you do not strain the item.
well my friends, that's a wheelchair we are talking about.
the stress and strain is enormous for the human!

the OT came today...the local one.
the nurse came to day, the local one.

the OT asked again, 'will i send someone to look at it?' and 'tell me what happened'
well i told them already what happened.
i told them again!  its a crap wheelchair.

the nurse said it best to get it checked out we do not want an accident!
that is a tad bit rich considering the HSE gave me a wheelchair that lost a wheel causing me and whats left bolt  into a wall in July 2013.
so they are worried about accidents!

here is another.  YOu may like this as well...

'i am worried about all the falls you are having.'
said the nice nurse (she is nice).
'Yes, nurse i am too'.
but i tell you for sure most of the falls i am having is when i am too tired and i shouldn't be walking.
i should be in a decent wheelchair.
a proper one.

'seriously, i am worried about all the falls you are having.'
well i am serious too.

i then told her about a possible 'site accident'
we have had water coming down in buckets, (god  bottle it you say), and i had to avoid a mighty big puddle down by the harbour.
i had to go up on a grass prom and if the wheelchair didn't make it i was out of it and crack onto pavement, concrete like.

I have EXPLAINED all this before.

the bloody wheelchair given to me is the cheapest you can get, its a stock chair and neither does it 'fit' for a woman of 5.6.2in, yep measured to that height today, i have lost half an inch friends!  its far too small for a large lady.

if you read on any forum about wheelchairs, don't go there, do not go and buy the Energi cos mate, it isnt suitable for any other surfaces than a nursing home, they say.
the way the HSE are treating me i wont be in a nursing home but a mental asylum.

i explained what happened two weeks ago with the cheap wheelchair.
i explained why.
there are a few grades of wheelchair and it runs like this (excuse the pun).

Indoor chair - this is for indoors ONLY (the one i have).
outdoor chair - this is for outdoors ONLY.
indoor/outdoor chair, used indoor but with capabilities to be used outdoors.
Outdoor/indoor - outdoor with capabilities for indoor use.

now you cannot use a chair that is ONLY for indoors - outdoors.
they are not built for it.
they are light (no suspension for the bad roads) they do not have balast, so they can run away with you and tip to the side with you in it, (i do not wear a crash helmet.)

my twin sister and i are still able to go out.
yes, we do not hibernate, we do not stay behind closed doors, we are not hermits or reclusive.
we go OUT, a lot, because we need to and like to.
we need OUTDOOR chairs.

and far more besides.
(but thats all another days story).

the main one being, i have still this crap wheelchair.
and i call this torture and it has to be regarded as a form of torture under the 'human rights' legislation.

the HSE is driving us nuts, and causing us pain and driving us down paths and into orange leaves, and muck.  (and walls).

oh by the way, the top brass (our government departments) who inquire after i weep down the phone to them are told certain things.

the twins have had expert seating and wheelchair assessments and they have the suitable wheelchair for their needs.
yes, very expert to do this assessment with not a wheelchair in sight and also the most scientific and sophisticated measurement taken being having a scarf rolled up and shoved under my bottom to shift me from keeling to the left to more or less straight, until i get tired of course and i will keel to the left.
that will not take long.

they are told these assessments were professional yet they have been done with no reference to medical consultants analysis of what is wrong with us, at all.

a year ago my twin took a leap of faith.
she no longer has Parkinson's disease, so the HSE say in this expert seating/wheelchair assessment, you know what then,  she has prayed and a miracle occurred, because suddenly my twin has gone from having parkinson's to being pre-parkinsons disease, now that is a miracle by any stretch of the imagination.

here is another great gem of an assessment.
'she claims she is deaf and uses hearing aids.  there was no evidence of hearing impairment'
oooh now thats a great assessment.

we are back from a top UK hospital and we were both tested again by a consultant there.
a proper consultant.
we are both Profoundly deaf in one ear and severely deafened in the other, and the consultant was aghast to see that our audiogram was identical.
she has never come across this before.

so margaret my twin has effectively seen either a ghost, a saint, a witch or nada cos she no longer has deafness of any kind and she no longer has parkinson's disease of any kind.
Funnily when it suited them a reason given to why i needed a 'wetroom' and the twin didnt was because she has parkinsons disease and i have a neurodegenerative disorder.'  well i best inform the Health service, that parkinsons disease is a neurodegenerative disorder!

what else...
well this expert assessment forgot, yes forgot to tick some very relevant boxes on the questionaire.
this is a mystery not a miracle.
because if answered they would have given evidence of the whys and wherefores, the better wheelchairs are needed.

so this expert seating/wheelchair assessment has been the response of the HSE to all enquiries by the Department of Health.

economical with the truth?  yes, not pre-nothing, just post parkinson's disease diagnosis.

i could write a book on all this.

so they tell me today they want to send a repair man and you better have it done cos we 'are worried'
well, you should be on that score for sure, you should be worried.

some bright spark told me i shouldn't go out in it if it does this, run away on you.
well why is it that i cannot go out in the community like everyone else?
this bright spark said, you know you have a disability you just cannot use this machine in those places if its dangerous.
hey, its not them places that are dangerous, its the bloody wheelchair.
people almost climb mountains in wheelchairs.
if i cannot use a simple path in a wheelchair, jez what can i do - become that famous hermit and recluse when i want to be OUT there where everyone dares to go!

'Ann' says the nurse,  'I will come back next week and discuss the falling because you know i AM worried about this.'
'NURSE!  so am I!  can you give me a wheelchair?'

i am on the left with slippers, note the way i do lean to the left, note how my legs are
slipping away and note the size of my legs.
you have to if you are using/chosing a powered chair.

evidence has it when you become too tired and walk too much when diseased what happens - you fall down.
crack i have hit the deck down.

that is what happens, its not rocket science, its even more scientific than shoving a rolled up sausage under the bottom of a sick lady.

what is the point of a health care system

please please tell me anyone who can...what is the reason for having a 'health care system' when its one that is from HELL and doesn't care?

what is the point of being sick and disabled and being intelligent enough to know how best your needs could be served if a health care system will not listen and certainly will never believe you, cos they know best.

tell me who is sitting in a wheelchair in the first place?
who is taking the medication?
who is being denied a full quality of life due to be so unwell all the time.
who is deaf and cannot hear a bloody thing unless from close range and even then with difficulty.

how can a health official say no obvious signs of deafness at an assessment when a clinical consultant does very sophisticated testing which shows that you have profound/severe hearing loss, so obviously i would trust the consultant on this one.
not a person in the village health centre who hears you speak from a couple of yards and sees you answer her questions so says, well no obvious signs of deafness but she (the client) states she uses hearing aids!
we do!

how would they like to be as deaf as a door post, never hear the sound of waves, birds, TV (neither bother anymore with the sound we read the subtitles and only watch TV programmes with them.)

can they too, feel the pain we in and are they wearing our morphine patches.
are they taking three pain meds a day.

are they wearing clapped out (HSE) shoes which cause such danger to me personally that i have incurred two snapped shoulder muscles, complete tears and now one Achilles tendon from going over on my ankles in shoes that are supposed to be orthotic supportive!

i have sustained serious injury and the most diabolical pain due to the provision of inappropriate footwear by the HSE.
i could have been killed going into a wall when the wheelchair i was in lost a wheel.

and they are the ones who are the experts?

can they be so when they give items that go into walls and down paths but end in the muck and leaves?
are they when the items cause more pain than ease the pain.
causes injury to a persons body and they are a health care provider (cutting costs so cutting corners)

i am truly sick of it all.
i charge this state with neglect of the least able they are instructed to support and act for, as citizens of this state, this is what i gave them a vote and mandate to do - to honor all citizens of Ireland be they sick or otherwise.
i charge this state for causing such neglect as to cause grievous bodily harm and i mean it, for what more could you do to a person but make all limbs of that person incapable of doing things it was doing before being provided with dodgy supportive aids.
how grievous is it, that i can no longer lift a chihuahua without severe pain from the floor surface to a sofa?
tell me, causing that kind of harm is a crime and nothing short of a crime.
tell me is causing such harm that i can no longer turn in bed using arms that are snapped at the top.
causing such harm i cannot get out of bed by using these arms without excruciating pain.

what more i charge the state with neglect by providing NO physiotherapy for me since the accident in MARCH when i fell and snapped the tendons in my shoulders.

this isn't health care, this is a slow, torturous end, on all fronts a slow torturous end and not an end in sight for it getting that much better either.

its time readers to show that you at least care, here are the triple whammy for you and i beg you to show such solidarity that it will make a difference to my life and that of my identical twin.

The petition is really important and could use our help. Click here to find out more and sign:
http://www.avaaz.org/en/petition/County_Wicklow_HSE_Provide_appropriate_powered_wheelchairs_for_Kennedy_twins_Greystones/?mFFiTcb

http://youtu.be/zwLgHc8uBOA

awnyah todaysay: more damage to limbs because of neglectful HSE

i am not a happy woman, anger rages with the deficient HSE (Health Service Ireland)awnyah todaysay: more damage to limbs because of neglectful HSE: image taken in 2010 - when i had the major trouble attempting to get away from a child who uses a gun against me. also be aware that my tw...

more damage to limbs because of neglectful HSE

image taken in 2010 - when i had the major
trouble attempting to get away from
a child who uses a gun against me.
also be aware that my two front teeth were
pulled by HSE and never replace for two years.
can you imagine going around as a woman with no teeth provided for the gaps?
we have the same neglect in 2014
I am sick of it all

yes, i have incurred another injury.
this time i have partially ripped an achilles tendon, due to three falls in ten days.

now i was wearing the so called special shoes for disability provided by hse but they are useless, as can be seen.  we had three occassions where i went over my ankle and hit the deck.

the first time meant a visit to A'E, it wasnt broken.
the second time i didnt go to A'E and now when i could not put foot to ground i have spent two afternoons in A'E where i was told it was torn and to return to the fracture clinic on monday.

i fell in march in the garden and sustained two torn, complete, muscles to the shoulders.
since then i have seen an orthopaedic surgeon privately and he told me he cannot mend due to danger, and seriousness of it with my health.

therefore i shall never be the same again.
this fall causing this damage occurred due on going fight with HSE for them to supply me with proper shoes for a person with deformed feet, pes cavis and muscle weakness, when i failed initially look at what happens.

the fall over the past few days now will have me immobile again.
if its not done directly by lack of provision of a wheelchair it wil be done by accidents.

we had also as i have said, dodgy stuff with regard to the wheelchair provisions.

i am sick of it and the amount of pain i am now in.
its horrendous.
the muscles are torn since march and no one is assisting me, i believe i should be having physio, well where is it?

this is called neglect, lack of care and also a disregard for human safety and against all human rights and disabled persons rights under the Disability Act 2005.
surely to god i count?
surely to god health care provision is not to cause harm but to prevent it!

i charge the HSE with wanton distruction of my life.
I charge the HSE with neglect
I charge the HSE with dangerous behaviours and appliances leading to injury which can never be repaired.
i charge the hSE with causing grievious bodily harm when it is not in their remit to do so.

they should be strung up.
i am so injured now i cannot walk at all and i cannot even lift my chihuahuas.
but having to engage as normally as i can i am increasing the pain levels by ordinary living.

this is caused by the neglect.

In this blighted house: When you wake every morning crying.

i link you into what i have deemed a very upsetting blog written by my dear twin sister, every word is true, everything here is from the heart and soul of a good woman being, abused.  abused by the HSE after all she did for society and she was a giver.

i hate to see this happening to one i love dearly.



In this blighted house: When you wake every morning crying.: I didn't think it would be like this!  Ann, my twin in front, I coming up the rear, saying No to water charges, but NO also to all the a...

Rejection out of hand by the HSE of Ireland services to two wonderful women

it is 3.52am and i have been tossing around in my bed unable to sleep from shear anger and pain.  i am hurt to the core knowing what is happening here - for two Irish Women who never sherked their role of care, their  role of responsibility towards the least able.

let me remind all of who we are.
firstly my twin sister left these shores at a young age as most young people are doing again today.

she chose a life in social care and became one of the first women to recognise through her work that disabled people were being abused in institutions.
 disabled people were being sexually abused behind the doors of so many places where no one even entered or to people no one really cared enough about - to protect.

after becoming an internationally renown lecturer in the care and training of those who work for the disabled so that the disabled are considered part of society and are treated well and with social responsibility, she received the acclaimed Emma Humphries Memorial Prize in the UK for her contribution to caring for women,  her work in Clerical sexual abuse of women which, through  setting up of organisations where women abused could gather for mutual support she made it known that clerical sexual abuse of vulnerable adults was not to be tolerated and such women should be treated equally as that of clerical sexual abuse of minors and she also worked tirelessly to get justice for these women.

with the plastic bag and gown, she reflects on her fortune, coming away from her Phd graduaton ceremony.  Justly proud after leaving Ireland without even her Leaving cert, a primary degree or secondary degree.

margaret had good tutors at
the university, being profoundly/
severely deaf she needed them

this area of work she studied relentlessly and in her doctoral thesis she argued why the church, the state and other bodies should consider for support and care the women sexually abused by the clerics of the day, in their role as care givers and state bodies who had a political and ethical role to do just that - care.

it was also one of my happiest days, 2008, i rose out of my wheelchair to stand close the
person i adored and admired all the work
she had done over the years.
(doctoral thesis on clerical abuse of adult women)

Mary Raftery admonished the Irish for not recognising the work of this wonderful person  here, no one knew that she had won the Emma Humphries Memorial Prize and no one acknowledged that such an Irish woman of such stature existed even.

None the less the HSE 'bought' her in, to train up those who care for intellectually disabled in the west of Ireland and elsewhere, with the brothers of charity and other state funded bodies.

she was known as a whistleblower who couldnt keep her lips sealed when she heard of the mismanagement and abuse of intellectually disabled here in Ireland and she had been bought in to address these issues through training Irish HSE personal to do the exact opposite, care.
she immediately lost her job and another organisation did not retain her excellence in the field and told her she was not needed further.

RTE made a documentary of my twin sister, during a series called  'the spirit moves'  and called it "the Letter and the Law."  it is still on an RTE podcast and can still be viewed online.

given the work my twin sister chose to do, on her return to Ireland as a sick and disabled woman with the shoe on the other foot we see again what has happened to her - abject neglect by her own country and its official carers, the state body, the HSE.
Neglect.  Let it be known that the state, the HSE has turned its back on one of its most famous women who did more good for others than they themselves could find to acknowledge firstly after her awards in the UK and secondly as a disabled woman here, living out her days where she was born as a citizen of this 'glorious' state.

Margaret began her work in the UK comparatively late in life, her career therefore was short but good and productive as i have stated above.
she was not so careful with her finance, simply because she gave most of it away in her work with the women she wanted to protect and help.
so she returned not remembering in her working productive days that money may be important to herself if anything should happen her.
this is her one big failing,  her lack of understanding of her own self care.

but then NOW, she is sick with a rare neurodegenerative disorder, back in Ireland.

why is it then that the Irish cannot protect her and give her that care she extended to the Irish when she could do so herself?  A lifetime of care for the least able, she is now just that, an elder who has succumbed to a rare condition of muscle wasting, parkinsons disease and far more.

she came home to neglect.
she receives no physiotherapy for her body structure and muscle wasting.
she receives no specialised shoes for a severely inverted dystonic foot, fixed as turning inwards making her have to walk on the very edge and not on the flat of her foot on legs already weakened through myopathy muscle wasting,  giving her excruciating pain, and has done for YEARS, again neglected by lack of provision of suitable foot wear, by the state health care providers, the HSE.

she receives no support whatsoever from either a social worker or from a psychological supporter which may help her in her need when she is now declining through very severe degeneration, she is left, neglected by the Irish.

she came home because she loved Ireland.
she came home to be amongst her own and amongst her family.
she had left  these shores at seventeen.
what a shame and what a disappointment and how she regrets her move.
she is shocked, that no one seems to care for her at all, neither her own family nor the HSE who has actually a caring role to play and are being in her professional eyes, neglectful of that role, which she would have told them in her training days when she was bought in to train them up in how to do things well when dealing with disabled people.  Irony personified.

as we see she and i have together been fighting for appropiate wheelchairs for our end of life quality of life.
three and a half years later we still remain in dangerous appliances for very sick people.

Myself, i believe too i am owed care from the STATE.
unlike my twin i was only a small player in a caring capacity and life.
unable to work most of my life i was drawn quickly into the psychiatric system because i had been abused by a cleric and there was no other system then in the 70's but when i did get out, i never looked back.

i too trained up to bring best practise to another group of people, the elderly.
i did a post graduate diploma in Arts & Empowerment so that i could bring some skills to the nursing homes i was visiting weekly and help them there to feel empowered and less depressed, something hard to do when they knew one thing only - they had been left to rot and to die, forgotten elderly of the Irish people.

I too receive nothing for my days of volunteering care, volunteering  tocreate a safe environment for the elderly to speak and to paint and to create for themselves a small piece of joy in an otherwise dreary and useless life or so they had felt anyway.

I too receive nothing and we fight too hard for a basic standard of care as laid down under the charter of care, the disability act and the rights of the disabled laid down by the UNited nations and the World Health Organisations

we are being neglected in our country of Ireland, against all best practise as laid down by the above organisations.

the two of us in 2012
a time for reflecting by a lack
i make a composite image
for my neice abroad

we are examples of how the state treat the disabled of ireland - they don't.
they do not care and they do not provide.
we are the 'useless eaters' as Hitler referred to his disabled, and burned down in the gas holes of the gas chambers for which we all now show a rightful outpouring of shock and horror decades later.

exhaused after being shot at in a social
housing unit, i take a break away and
bring my 'Irish Therapy Dog'
as you can see, my pet is doing her job on
me!

no shock and horror at the way the Irish state treat its own disabled.
can you by making it known to the Irish Health Service Executive and Dail Eireann that the Kennedy twins deserve far better then they are receiving now after their lives of service to the least able in society?

lying in a cot, my coat and gloves on
the glare of light hurts.
i am recovering after having all my front
teeth extracted after disease, undetected
in Ireland, but recognised in UK.
(primary sjogrens syndrome)

can you effect change for at least us, and show that you will not accept neglect of the sick and disabled.

i enjoyed bringing my chihuahua to
nursing homes to cheer the ladies
here she is in a mobility scooter i used
it was taken from me by the HSE and
they then gave me an 11yr old
banger which lost a wheel and i went into a wall
on my way to the neurologist.  Shame on
the HSE

a lady who is nearly
blind, gets comfort
from maggie
this was the first
smile i had seen
from her

can you do this as your token of outpouring of anger for what Ireland is doing to its own all across the land.

can you do this so that we, as elders now can live a less painful existence in our own country with a potentially life shortening disorder which is so rare there isn't







 even one consultant in ireland for this condition and there is no cure and no treatment.
all the more reason to give us the services of wheelchairs, special shoes, for both of us with our deformed feet, appliances such as suitable beds, and give us services such as ongoing physiotherapy and an input of psychology so that we can cope without the support of others that most do have, their family.

we are alone in all of this.
but you are there and can show you care, please do.
sorry this is so long and waffly.  i am angry and its early morning so not the best in editing terms.
I hope your night was a better one than mine has been