Sunday, December 19, 2010

It was raining cats and dogs - and more snow!

Many a lesson was learnt this week indeed!
taught by 'Peanuts,' a neuropsychologist and also Colm Murray, who has ALS.
Peanuts became 'love in a tiny bundle' but the other chihuahaus, mature, sedate were having none of it. One distanced herself so much not even i counted!
the other just curled into a ball, that feathery tail screening her eyes like a fan and pretended she was dead.  Notwithstanding the eye opened now and again to peek over her fan to watch the devil incarnate on Her patch.
the devil incarnate fell in love with me, I am sure of it, and i with him, but he had to go for harmony's sake, so he went and i believe he will be 'loved up' by Brenda, she already felt he was her favourite so maybe she will keep him, she is keeping his name anyway!
so Peanuts taught me never to upset the status quo, well i have already done so, so pee peanuts came too late.
Now the other teacher in my life at present has to be Mark, at Beaumont the neuropsych.
He was tired the day we went, you can always tell.  Did we blame him?  not at all.
We are awakened to the 'situation,' yes, we sure do have a 'situation' here in this country of ours, in our health service, overworked staff.
but he is our leveller, just levelling twin and i out, so hope he doesn't flatten the good old spicy bits down, who like a flattened out twin?
Finally it was Colm Murray who stole my heart for bravery and courage who spoke with good humour and reality now that he has been diagnosed with Muscular Dystrophy.
As he recalled his 'finding' he did suspect it, long before its final official dx by a pro.
How, he did the google bit.
Who doesn't.
When one is very ill, you do the google.
I believe most professionals do this as well actually.
If i had not done the google i would be lying here in a mess and not knowing certain whys, and certainly knowing that almost every medic in the land would short shift me out of his clinic/surgery as soon as clapped eyes on me.
I had seen it, and experienced it.
when one woman, who was believed to be a bloody nuisance in A&E's for her sadness and her actions because of sadness took her life into her own hands and became a rock of determination, they didn't know what hit them.
I didn't ask for more of this torturous abuse, i walked, and i complained about the consultants.
I put it on record exactly what i thought of them and then finally pushed a yellow sheet or sheets of Papers in front of a neurologist and demand he sign.
He moaned and groaned, "i dont do forms, my secretary does that."
"not these she doesn't, doc. you are actually needed here."
It wasn;t easy, always he was 'too busy' or 'oh, where did i put that form.'
and of course the raised eyes etc.
once the forms got lost so we started all again, with new forms and i actually put them in front of him and said, "now doc, whilst i am here will you sign this."
the eyes went blank as if to say 'what are these?'
"well you know i am not happy, and i wish to go to St. Toms for a second opinion?"
his glazed eyes tried to concentrate and he remembers, ever so glinty.
'and doc i need a bit of historical detail and a lot of persuasion on your part to get over the hump past the airport boundaries, as the HSE have to sanction this, like/
we got that far.
I was to go to London, hospital and all and keep receipts.
after the event of one week where more was discovered there than in five years in Ireland, i put in the costing of the trip, one receipt was sent back, are you ready for this.
the HSE would not fund the bus fair nor the cup of coffee and bun i had at the airport on the way out and back!
so i could get to London but not even the cheapest transport would be funded to do so.  flying was a given otherwise i couldn't go, the cheaper option, swimming, was simply not an option.
right, good old Colm Murray probably did receive a good deal better treatment or attention for Colm was Colm and Awynah was herself.
So too, we had a week and a half.
as i drove home last night late, withnessing the last christmas party taking place at the hostelry we stopped off at for a meal (for the second time in a day), my twin announced "i will not forget this year."
to which i responded, "I doubt you will, my friend."
certainly not that day, would i.
drove the cat down to the vet, who was determined to give the twin ten lashes for trying to catch her, visibly seen on the palm of her hands and vERY painful looking.
she got jabbed for her pains. vaccinationa actually.
then it was home to bed for me.
I had done a massive shop at dunnes, collected yet more plants and pots from twin and settled down for the eve.
the phone rang, saffi had collapsed.
twin said she was going to call a taxi.
but i felt i wanted too, to be with Saffi for who wouldn't, saffi is a dog and a half. more than a dog and a half.
we all drove into the Vet hospital at UCD, rapid transport style in the bus lane.
and saff was put on a drip and given antibiotics.
Saff survived the night but twin and i hardly did.  she was worried, i was too tired.
and then the snow came, the bloody snow which might put the twin back in leaving the home she is to vacate on monday.
Most things are in prep.
i have brought all her plants here, someone else promised to keep them but that hit the deck in a big way.
i also brought bedding material, not in the shape of straw but probably the next best as twin poor twin is a fussy bed material chooser.
she has packed, we both have worked very hard indeed, with the paperwork, the business side of signing off a home.
we have also worked very hard and with purpose in dealing with trying to find our 'forever' homes.
Never would anyone think that a woman who is so collapsed in brain matter of the mental kind would be up to defeating it (and them), defeating the belief that i was a half wit and trying to defeat the innuendos that are currently flying, be able to juggle so much when so very unwell now, in a physical dimension.
never could it be thought that twins with neurodegenerative disorders, could actually do all this entirely alone and very successfully, they didnt chose to do it alone but we are quite proud of our achievements thus far.
also finding two properties, having them assessed and further reviewed tomorrow, was not what was thought of my twino and i, as we plough through the dealings with adults in an adult fashion.
on our recent path we have met many very kind people, not a one was against what we have done, and many are proud and joyous for us.
we shall travel onward a bit further, hopefully all dogs will keep well and paw up with us.
we shall trott and slither but hopefully not slip - in the snow and brain, and march on, like eggits in a war, for war is an idiots game.
we are marching as pasifists (can't spell that), we  hope not to find any dead bodies on the way, and hopefully, despite much good wish, we will not create some either.

1 comment:

Dr Margaret Kennedy said...

anddid you read about the vast expenses the HSE senior staff their sarnies are included!

glad you didn't swim the irish sea though...even the HSE staff wouldn't sanction that...would they?